Thank you so much for replying it was good to hear you are doing well.
It was reassuring to hear about how you are coping five years on. I do understand everyone is different and hoping Wednesday when I have my consultant appt that I will know more too. I have been given quite a poor prognosis.
I hope with more information I will understand what the coming months may look like.
thank you again and will keep in touch.
all the best
I was diagnosed with secondary bc in 2015, 20 years after my first diagnosis. I had been very poorly with sickness and stomach pains and it was discovered that I had a blocked small bowel due to secondary breast cancer in my peritoneum. I had to have an ileostomy. I was given FEC chemotherapy which luckily did an amazing job on the mets. Since then I have been "stable" (I also have numerous metastases in my bones which have not increased). I have taken Anastrozol ever since as well as having denosumb injections every four weeks, also blood thinners as I also had a large pulmonary embolism at the time of my blockage.
I could not find any information about peritoneal Mets at the time.
I am currently being seen with a view to reversing the ileostomy, but apparently the cancer isn't the problem, but whether there is scarring in the bowel, so I may have to put up with it.
I should say that I don't believe that people with peritoneal Mets necessarily need ileostomies, mine had probably been there unnoticed for some time.
Also, everybody is different and treatments will vary depending on circumstances, but I am happily still here five and a half years after the discovery.
Wishing you all the best and hopefully someone with more information will reply soon.
I hope you are doing ok and treatment has been helping you.
This week I too was Dx with secondary tumors in my peritoneal and trying to understand what this means for treatment. I am due to see my consultant next week and would be so grateful if you have any advice or knowledge that can help me.
all the best
There’s a fairly recent thread in the Treatments and Medical Issues part of the Secondary BC part of the forum called something like HIPEC treatment for peritoneal mets. MYbe have a look at that and post your own message on that thread. It may get picked up by someone like Jacksy who has posted on there, and started the thread, Peritoneal mets aren’t that common as a secondary BC site therefore not many ladies have experience of the treaments which is probably why you have not had any specific advice or support. I find I tend to reply to threads where I have experience to pass on and have only just seen this one of yours. Having read it I realised there is another thread that I did reply on which is the one I’ve mentioned on here.
So sorry for you having to join us here. I have never heard of peritoneum Mets and see you have not heard back from anyone in the same boat. Just want you to know I am sure you will soon here from someone and once you have a treatment plan you can come to terms with the big C and put your life plan in place and enjoy your time living. I have bone mets DX October 17 and after the initial shock and disappointment soon decided I need to get on with living and now enjoying my time. Thinking of you and wishing you all the best. I hope you have family and friends to give you lots of support. xx
Primary BC 2014 and diagnosed with peritoneum mets last week. Awaiting treatment plan. Suffering with Ascites and having 9 litres drained every 3 weeks. Anyone had similar. Does the Ascites stop when treatment starts?