Im pleased for you nicky.
Sending hugs to Caroline for today.
Great news from you as well Waffles!
Just read your update on the Xeloda thread and will add my congrats on there as well.
Good luck today Carolyn with your results and also to all those getting theirs in the next few days and weeks.
Great news, Nicky. Keep up the good work!
Fab Nicky, it's precious and heart warming to hear and share your good news.
Happy days 🙂
Great news , enjoy xxxx
Great News Nicky
Such a relief when the news is good long may it continue we all live from one scan to another.
Sending you love and (((((hugs))))) xxx
Just to let you know I've just had my scan results and all is good 😊 Bone mets continuing to sclerose (why do they use that term, it still scares me!) and liver mets continuing to shrink or disappear. Phew, scanxiety over - until the next one that is 😬
Good luck all those waiting for results.
Good luck Carolyn and everyone e waiting for results xx
Good luck Carolyn hope all goes well today. Big Hugs Ann xx
Wow, Carolyn, you were lucky! Just the loooooong wait now. Wishing you all the best.
Hi Carolyn, was thinking of you today.. Not tooooo long to wait. Crossing my toes for you. I find a bit of extra retail therapy useful whilst waiting for results.. I'm sure you can manage a bit more 😉
Thank you Marirose (((((hugs for you too ))))) xx
Congratulations with your scan results really pleased for you
Ann, thank you so much for the info...you have indeed put my mind at rest. At the moment my breathing is still better...not using the oxygen much now but dont do much to exert myself. I too dont think i could colpe with another effusion so will definitely bear all your info in mind should i ever need further treatment. xx
Hi Stresshead, yes I have had my results and they were good thank you. My scan showed that the disease has not progressed further and the bones are healing. The plan is to continue with present treatment tegime a day will be reviewed in 3 months following the next routine scan.
I totally empathise with you with regards to the pleural effusions, to me it was the worse symptom I had to contend with following my secondary dx last year. Eventually my oncology consultant referred me to a thoracic cancer surgeon at Guys and had a right VATS procedure sterile talc pleurodesis carried out in February this year to stop the effusion reoccurring but unfortunately it was not successful. I became so breathless again because of the fluid building up again in my pleural cavity, I was unable to function and carry out any activities.I was reviewed a month later and it was decided then to insert PleurX catheters to manage the effusions and after the initial post op discomfort, I am so much more comfortable. The community nurses came in initially but now my husband and I manage the catheters on our own. My quality of life has improved dramatically and I am now able to lead a relatively normal life. Ok....the catheters are sited on your chest wall and I am a little conscious of what I wear so not to make them obvious but to me that it is a small price to pay for the freedom I have gained and not be breathless. The catheters are not necessarily permanent, eventually once your disease is under control and the fluid decreases they can be removed. I have had mine now for over 2 months and am still draining over 2 litres of fluid in the space of a week. Every one is different so I am told as the average time for catheters to remain is 31 days so don't panic. To me the catheters have been a positive solution to the debilitating symptom and is certainly much better than having to go to A&E regularly and have a needle inserted to drain my effusion.
Please do not be worried about VATS procedure it just means that it is a procedure carried out by using a Video to Assist Thoracic Surgery, yes it was quite painful post op but you are given strong analgesics to help with this. I do not understand why this procedure would preclude you from having chemo as this has not been discounted by my oncologist for future use. I hope this helps and you should try and get as much info as possible to make the right decisions about how to manage your condition. This forum has been a great help to me and I am sure other members will be able to contribute to your question.
Please let us know how you get on I will be thinking of you. Hugs and best wishes Ann xx
Anneemay, just seen your post. By now you will have had your results and i pray they have gone your way.
I too have had 2 recent pleural effusions and know how you feel. The pain and breathlessness is horrendous isnt it? I had a chest drain and pleurodesis after each one and i dont know if the second one has worked to make my breathing better or it is the new chemo i'm on (carboplatin) that has eased the problem. The fluid in the pleura was malignant but i was told my lungs were ok...i'm not realy sure about this.I asked about treatments should the effusion happen again and was told i could have a permanent catheter bt this would preclude me from any further chemo (assuming there is any) or their was a procedure called vats but that this was quite major and invasive??
Any info/advice you can share would be great.
Good luck today Ann, sending you lots of positive vibes.
Hugs Janette xxxx
Good luck today. Well all be thinking of you. Let us know how it goes please - we'll only worry! Xxxx
Thank you all for the (hugs) and support. Ann xx
I am sending (((hugs)))) for tomorrow I hope it is not what you are dreading it to be. I wish I could reassure you your pleura effusion but I have not had any experience in that area. But we always dread the worst when scan results are due especially if your condition seems to be getting worse.
Good luck for tomorrow let us know how you go on and try to relax
Seeing Oncologist tomorrow for Ct scan results, currently on Exemestane and Denosumab for pleura,lung and bone mets. My concern is that I had PleurX catheters inserted for persistent pleura effusions which we are draining every 4 days at the moment and the fluid is not decreasing, in fact it has increased today. Which to my way of thinking means that not only is the disease not being controlled on present treatment but may be worsening. I am feeling a little bit anxious now of tomorrow's results. Ann xx
I hope you sorted the admin out at your hospital and I hope your new onc will be much better than your last one.
Best Wishes for good results on the 23rd will keep fingers crossed for you.
Love an (((hugs))) xxx
Keeping everything crossed for you Carolyn. Good to get results quickly - they tend to be pretty speedy at Exeter xxx
Glad you have a scan booked and you get to see your onc soon after it is not too far away. Also thanks for putting it on here sometimes it is hard keeping up with ladie's scans.
Love and (((hugs))) xxx
Great news Marion. It is such an amazing relief to get good news when you are expecting bad. Go celebrate!
Carolyn, I have to hand it to you, you have a great turn of phrase. I totally get what you mean by 'squeaky bum time' though. I've suffered from it myself around results time. I know it's a little while off yet but good luck anyway. Best wishes xxx
Fantastic news go and celebrate all that worry over your scan has been rewarded. We all go through such a lot stress assuming the treatment is not working I have done it so many times.
Again congratulations xxx
Just got the results of my first scan since starting treatment before Christmas (Zoladex + Anastrozole + Denosumab). Was very anxious but onc says cancer hasn't spread (from lung or vertebra) and the largest nodule in my lung has shrunk from 2.7 to 1.5cm. Feeling very grateful and relieved (if somewhat exhausted). I know it won't last for ever but I'm going to make the most of the reprieve!
Good luck to everyone else who's waiting.
I have my regular (every four months) CT scan next week ... so will have the scanxiety until I see my consultant a week on Friday.
Hi all I thought I would bump up this thread again I loose track of people taking and having scan results so please let us know when you have scans and results x
Lovely to hear good news. Really pleased for you xxx