Yes Barton, very strange about the mri hours, but someone at church this am told me a relative had one on a Subday evenng. I think mris are now the very best way to find out how active a known cancer is...my radiol manager said they can now tell if cells are active by the amou t of tluid aroubd them which makes sense because every cell excretes water to be removed by the lymphatics.. And cancer cells rapidly divide, so more water..(. Sorry to bore you.)
Thank you all! Esp Carolyn, Barton and Ff and anyone ive missed.
Carolyn, whilst we are holding hands..all of us, we could do a dance,
you put your left leg in, your left leg out...etc
have a lovely day ladiesxx
I have lost track of who is doing what. I think I need to take notes to keep it straight! While Carolyn is busy holding all your hands, I will be running around giving all the technicians and doctors the evil eye! Good luck ladies.
Hi Marirose and Bonaresis,
thanks for your good wishesxx
im wondering tho, where they will get all the radiographers from to staff what seems to amount to two extra days per week....yes, Bonareisis....maybe they will be as unhappy as the junior doctors..at presesnt they are volunteers, but what happens at holiday times??
love and hugs both of you
Moijan, all the best for you results and lots of hugs for the waiting period. Has anyone told Jeremy Hunt about the new MRI clinic hours? xx B
All the best for good results Moijan
I had my MRI 7.pm on a Saturday night so they must be all trying to get everyone in.
Good luck to everyone waiting results Love and (((hugs))) xxx
.Had my MRI This pm. Went ok, but a little nerve wracking, apparently I moved( when I was convinced I wasnt moving) and then the chest straps were too tight and I found it hard to breathe in and hold my breath.
Then afterwards, my arm wouldnt stop bleeding! I never usually have problems!
the radiogs said, interestingly, that there has been a decision this week that from now on, every evening and every Saturday there will be MRI clinics...as the demand is so very high! Well, theres a thing!
Happy birthday, ff, and well done with those results! I agree with you, and the others, stick to a scan every three months if they will let you! I always think it's far better to know whats going on, just in case.
FF, I just wanted to say Happy Birthday! Hope that you are doing something nice today. Your Onc sounds a really lovely woman with real empathy, so many of them don't seem to have that quality although they are super intelligent. I am sorry that you have a few worries but overall you have done brilliantly on Ibrance. I'm hoping for as good xx
Helen44, I'm sorry that your liver is now involved. I do think having a plan in place helps us. I sure it scared you to hear that news about your liver, it is just awful the fear we all get. I know they decided I was stable but that area in the lung that they are watching frightens me, so holding your hand!
Marirose, Thank you for your support. I feel having the scan sooner is never a wrong choice. That way if it is the ground glass maybe we can get it under control. I was very pleased with my onc. My old Inc quit back in Dec and had been my onc for 20 years. I liked him but others loved him. I thought he was good but he angered me quite a few times. Several times he said to me I don't want to hurt our feelings but you 're a rather large woman. Yeah I know I am and I struggle so hard with this. It makes me cry typing this. Couldn't he just say you are over weight. She on the other hand was so empowering today. I was just there a month ago for a rash on my legs she had said all these wonderful things about the differences in me that she was seeing. Today again we discussed how I'm making small changes every week. I told her my weight hadn't changed now in a couple weeks. She said don't focus on the scale, focus on your changes and the differences they are making in you. She said she isnt worried about my weight because she sees a woman with a healthy glow, that stands taller, appears active, looks more toned and is happy. She said she agreed with my choices and thought I weighed them well. I left there feeling very positive about myself. I'm more than pleased with her.
Yes, the Zoladex stops the ovaries producing oestrogen so no ovaries = no Zoladex. However, your body can still produce oestrogen by other means so I will still carry on with Anastrozole to stop it doing this. My main reason for exploring this route is to have one less injection and trip to the surgery each month.
Sorry to hear about the new liver met but lets hope the Kadcyla I remember when NICE were going to stop funding it and a protest was set up I remember signing a petition it was said to be a very good drug. So lets hope it will be a good one for you and does it's job. Best wishes.
FF you sound as though you have a thorough onc she seems to be positive over your condition. But Stable Mable after all this time is great but I agree with you to leave the next scan at 3 months. We do live our lives from one scan to the next. Have a great Birthday and celebrate both results and birthday you deserve it.
Love and ((((hugs)))) to all xxx
Stable Mabel with some concerns. White count a little low so not to finish this cycle palociclib. Have to have a blood count done on the 24th before I start the next cycle. My count has never done this. They scanned mg liver for a base line it is clear. Then we discussed my bone met and getting the bone strengthening drug. Onc wanted me to think about it. We discussed I only have one, it is stable and apparently she said its been there a long time and never changed. We discussed my dental and decided not to do it at this time. We were both in agreement. Then mg lungs had a condition in them called ground glass opacity it was almost completely gone last scan. Those small areas that were left hadn't changed, but there was a couple areas that they aren't sure if the ground glass is coming back or if it's pneumoniitis. The radiologist suggested scan in 3 months, she was going to say the same thing. Then I was telling her that my O2 levels were at 100% when I was exercising the other day so she said 6 months. I told her I wanted to do 3 months because palbociclib on average works for 20.4 months and I'm concerned that those areas might be the ground glass and I don't want to let it go that long, in case palbociclib is coming to the end. So for now stable!
Funnyface, hoping your scan results are good - preferably reductions! You are so lucky getting your results so quickly - I had to wait 5 weeks last time because of how my appointments fell. Sheer torture!
Fingers crossed, anyway!
Helen sorry to read about your scan result - it's a nightmare, isn't it? I hope the new drug works for you - let us know how you get on.
Wishing you all the best.
Helen, sorry to hear abot the new liver met but as you say, the scanxiety is over and yo have a new plan. I have another 2 weeks to wait (thats if the scan reslts have been sent to my onc) : am expecting bad news but not sure there's mch left for me to go on to. The waiting is agony isnt it...wish i was FF !!
It's funny how some times you are more stressed than others waiting for results. I think this time because the results are the day before my b-day I'm stressing bc I'm hoping my b-day doesn't get ruined. FF
FF fingers crossed for you that the results will be ok my you are lucky to get them so quick saves spending so long waiting. Sending you lots of cyber positive vibes.
Love and ((((hugs)))) xxx
So pleased at least that bit is done, FF. Now to keep busy until Thursday.....that IS quick!! Do you want to do a house swop, I'm sure you'd love England??!! xx
Scan done! Answers Thursday! I don't know how you girls wait weeks for results! I remember waiting for couple weeks for my secondary dx and that was enough!
MarionP, I would go for the option of bye, bye, ovaries and drug!
Stresshead, Me too, scan on Tues.
Sharon, I think the drain might be good if it keeps you out of the hospital. Also can they radiate the bowel?
Off to work I go have a great dag ladies! FF
Great news Marierose. Hang in there Stresshead.
Had to wait three weeks for my results this time but found out today there's still no progression - hoorah! And as the hormone treatment is working at the moment, onc supported the idea of having my ovaries out so (potentially) bye bye Zoladex!
Hi Marirose, yes sounds like the onc is good and nice too!
good that there is no spinal compression. Glad you are getting support re the drug
Hi everyone thankyou janette glad I was not on my own with the cage thing.
I have just got back from the hospital having had cycle 3 taxol. When i arrived at the chemo unit they told me the Dr wanted to see me up at the breast unit. So I needed to go straight away they said they were ringing up to let them know. When I got there no one knew about it had to wait over a hour for someone to deal with it. Yes the Dr wanted to see me so I was shown into a consulting room they keep for bad news Great was it to do with the MRI from Saturday!
He came into the room and said he wanted a quick word to see how I was getting on with the treatment my scan was clear of any spine compression. We asked about the cage he was unsure he felt it could be to help keep the spine straight. But what he was concerned about was neurological problems because I have MS this drug could make it worse and it does cause alot of problems in that area. i was given all the instructions phone here unless after 5 phone cancer hospital. I have to let him know if there were any problems and to ask to see him every 2 weeks. I will say this Mathew is on the ball and he said it was ok to call him by his 1st name.
Then back to the chemo ward I explained to the ward sister about the other place not knowing I was going. She was annoyed because she had rung them and was going to ring again to complain because it has happened before and it holds up the treatment times.
Helen the Breast Cancer awareness Day is 21st October so everyone wear pink on that day we had a big board at the Breast unit.Good luck with your scan and anyone else awaiting results
Love and (((hugs))) xxx
Hi Marirose, I've had 3 MRIs of my head but never had a cage. What a very long session, poor you. I can never hear the music anyway (if it's offered) above the general din. I find the world is full of music I'm suppoed to like but don't. Staff are usually agreeable but obviously under pressure to maintain their schedule. Hope results are good. Hugs while you wait. Bonariensis xx
Hello Marirose, you poor thing! It sounds more like a torture chamber than an MRI scan! They should have let you go to the loo first! Glad you were able to hold on, but you shouldn't have had to! Glad thats over, and now just the results wait. Hoping everything comes out OK.