FF, I love how you got your nicknames! Thinking about you, Carolyn and Rosie, scanxiety is so hard. Hoping for great news for you and sighs of relief all round. FF, I know how you feel, I think that I've been through most treatments as well. Would you ever consider an immunotherapy trial, there seem to be some in U.S.but not sure where?
I decided to get a wig last week, my hair has practically gone on this trial sadly. Went for long blonde ha ha, not sure I like it as it keeps sliding, oh what we have to put up with!!
Yes Carolyn we need to hold hands.I wouldn't be so anxious if my back wasn't acting up like this! I've seriously had enough of it!! The other thing is that if this combo has failed its back to infusions. Plus the drugs I have left at this point all cause hair loss, so I probably will never have hair again. Also feel I'm running out of options. I've never been brave enough to ask if I'm still doing good and there is no drugs left f o r metastatic breast cancer what happens? Do we revisit them all? Do we try other chemos that aren't really for breast cancer? Is it curtains even if I'm doing good? I've used abraxane/avastin, vinorelbine (navelbine), xeloda (capecitabine), gemcitabine (grammar), ibrance/ letrozole, and now evermolimus/ exemestane. At least the two hormonal combination gave my body a break from chemo. Time will tell! FF
Lol Bon! When I decided to join and was trying to pick a name I wanted to pick something my family might not recognize if they decided to be nosey. There used to be a song call Funny Face. My ex husband would sing it to me and call me that, so I knew my family wouldn't know. We remained friends through out our divorce and still are. He is like a brother to me. Has often said I love you just not in love with you. It's the same way I feel now.
My best friend next to my hubby calls me Silly A$$, bc I make him laugh.
Hubby calls me Sugar Face and Gracie. My closet friends, call me Gracie. Grac I e came frkm the first time I went canoeing. We took my oldest son and a neighbor's son. Every time we hit a rock or hit bottom he would cry we were going to drown. I didn't know the person in the front had to tell the person in the back that a Rick was ahead so they could steer around it. My hubby is 6'5" and should have been able to see over my bead. He had the boys start to yell "Go ahead Grace! " every time we hit. This stopped Jeffrey from crying. By the end of the day I was Gracie. Hubby didn't know that my grandmother's first name was Grace and my mother's middle. Funny that I ended up with it for a nick name. Sugar face came from a down syndrome 5 year old bus student. He called his brother that, and it cracked me up. When I didn't have the little guy on my bus anymore, hubby knew I missed him and would grab my face like the little boy did his brothers and call me sugar face. Amazing how things get started.
That's appalling! What do they think it's like. I can only think that they are desperately short staffed.
Holding your hand
Hi Funnyface. Holding your hand and sending you big hugs for your scan and results. It's a tough time. Hope you are not in too much pain. (Why are you called Funnyface? Your face is lovely)
Scanxiety has begun!! Scan on Tues. results Thurs. I having back pain again. I was out of pain and back in my bed. I'm back in pain but it's not as bad as before. It mostly hurt at night when I was lying down.Now, Its the opposite. Hurting when sitting, standing and walking. The pain is definitely at T-11 where I have cancer. When the chiropractor tugged on my leg the pain shot directly to that spot. I decided I'm not letting him touch me til we have the CT results. FF
We are all there with you and your mum when it comes to scans. Sometimes we can get along not too badly when they are not looming in front of us but inevitably they come round again. Hope the results don't take too long. We'll all be thinking about you both and holding your hands and hoping with you. Hugs Bon xx
We all know how you feel. I found counselling at our cancer centre very helpful. there wasn't anyone else I could talk to like that and I hadn't found this forum. I shouldn't be too reluctant to take anti depressants, they could get you through the next few weeks until you know where you're at.
Everyone is right about odd pains, they really spook you but mostly they are false alarms. Worrying makes them worse.
Thinking about you while you wait.
Thank you so much for your reply Funnyface, it is just what I need to read. I am beside myself with anxiety about this and other stressors in my life so your calm words have helped. I hope to get appointments soon so that I feel one step nearer to answers - just bracing myself to what might be found. I am luckily having counselling at the cancer centre and was completely wibble at my appointment yesterday so was seen by the psychiatrist who has suggested antidepressants to help me cope with all the anxiety in my life. Never taken any before but just wondering if the time has come for extra help. It's so hard.
OnceWild, I'm not poking fun at you or making light of your pain. Do know that once you have had cancer it is very hard not to think every pain is cancer!! We all do it! I do agree with you getting it checked out! You need to satisfy yourself that you have been as proactive as possible!! I can tell you I have a very tender area just off to the right of center on my chest. I feel the area feels thicker than the left side. It is right where my one tumor was. The largest and the one I had found. I have CT's regularly of my chest bc I have lung mets. I have had a bone scan too. Nothing shows up! The onc feels it is a combo of nerve damage, scar tissue and maybe my implant hitting it. Yes, scanxiety is a rough time. After 12 years of mets I have had more than my share of scans and scanxiety. First of all I live in the USA and our system works a little different. They give you a prescription to get a scan. You call whatever hospital you want to go to and make your own appointment. You set up your own oncologist appointment too. My oncologist is in the cancer center which is on one end of the hospital where I get my scan. I make my scan appt. for early on a Tues. and my onc appt two days later. When I go to my onc appt if they haven't sent the results my onc marches right through to the hospital and gets them. It took me a couple scans to figure out they could have the answers this quickly and to set it up like this. I keep myself busy. I try to tell myself that I'm doing everything I can do to fight. I also want to say that even if it is mets that many of us have lived a long time. My primary cancer was in 1995. My secondary in 2005! It is in my lungs, lymph nodes in chest one spot in my spine. I still work PT. There is a good chance if it's mets that you will be here a long time! Good luck and big hugs! Please come back and let us know! FF
Hello everyone - not sure where to post but feeling scared. Backstory is MX and ANC on 1/6/16 Her2+, then chemo, radio, Herceptin, Letrozole since. Have had tender spot on chest since autumn (prior to rads) and have mentioned it at every appointment. Asked for chest X-ray last oct which was clear. Radiologist said sometimes we just have pain with no known origin and surgeon didn't even look at it in Feb when I went for a lump check in other side. So I've been living with the tenderness which has only bothered me sometimes when lying on my side in bed. An uncomfortable night last week prompted me to take action so rang BCN who got me booked into clinic yesterday. Now waiting for X-ray and bone scan and feeling so stressed. Follow up appointment will be in a month and I don't know how I'm going to cope waiting - such a feeling of impending doom. I have masses of other stuff going on in my life so with this on top I really feel like I will implode. Any advice on coping would be great. Thanks
I had my three monthly CT yesterday so once again waiting for results. It is 5 years next week since I was diagnosed with cancer - it never gets any easier. Sending lots of love and Stable Mabel vibes to anyone else waiting xx
That is excellent news, Waffles! News like that always cheers everyone up. As someone else asked (Bon?) can you not stay on a kind of maintenance dose of the Tax?
Hugs and best wishes. Barton.x