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Secondary Liver Cancer just been diagnosed

11 REPLIES 11
asilmcs
Member

Re: Secondary Liver Cancer just been diagnosed

I am so sorry to read this and it sounds like you’ve had such a shock. I was diagnosed originally in July 2013 and with my secondary January 2017 of which it also has spread to my liver. I was put on an oral chemo Capecitabine of which I think is a much more doable chemo from the intravenous ones.  I’ve had some side effects  but not horrendous, my hair thinned a lot but it hasn’t gone completely this time. I’m am lucky to be still on my first line of treatment after 3 years and at first my lesion reduced in size considerably but I thhink I’ve been stable now for nearly 2 years. I hope this reassures you a little and once you’ve got your head around things you will learn to live with this as your new normal. If you have any other questions don’t hesitate to ask or private message me, sending lots of love.

 

Lisa aka asilmcs Xx

Gilly001
Member

Re: Secondary Liver Cancer just been diagnosed

Thank you Nicky.

Gilly x

nicky08
Community Champion

Re: Secondary Liver Cancer just been diagnosed

Hi Gilly

Goodness you are going through it right now aren’t you? I hope that Eribulin gets the liver mets under control to give you some breathing space to enable Herceptin based treatment to commence later. Everyone’s BC is very individual, even though we are all classed by certain receptor types/grades etc so it’s so difficult to know what will happen after we are diagnosed. 
Wishing you luck with your continuing treatment, Eribulin is a manageable chemo, ie it doesn’t have the really strong side effects that others do so I hope it treats you kindly.

Nicky x

Gilly001
Member

Re: Secondary Liver Cancer just been diagnosed

Hello everyone thank you so much for your comments.

Its been a tough few of weeks for me.  So the plan was to have 1st treatment Kadcyla on 5 May 2020, although my abdomen was quite swollen and uncomfortable.  Dr said liver sac doesn’t like change it’s pushing everything around.  Treatment all OK no problems.

22 May 2020 very uncomfortable abdomen.  Ultrasound done showed only a small amount of fluid above bladder unable to drain as too close to bladder and could puncture.  Dr said could just be liver swollen. liver function test is up again.  Kadcyla is no longer safe with deteriorating liver function.

After Oncologist discussion Dr said last CT scan showed significant liver remodelling and warned that it was a sign of significant burden of the disease in the liver and that deteriorating liver function can sometimes preclude further-cancer treatment.

It’s clear that this disease is changing rapidly and is worried that things could deteriorate very quickly. Without treatment time is likely to very short.

To attempt to regain control.  I started chemo. EPIRUBICIN without Herceptin today all went well with no adverse effects yet.  There is no guarantee that this will be effective but it can lead to responses quite quickly in some patients.

Of course it comes with potential risks.  The disease may continue to grow despite treatment.  Its well tolerated but does come with side effects.  There is also a risk of heart failure.  But this far outweighs the potential benefits.

My concerns - How big is the window – impossible to tell, one month or two could worsen in days.

If no improvement we’re in real trouble, if improvement we continue with the 8 cycles (24 weeks then a different chemo probably an oral drug with herceptin.

Apologies for this big missive.  On a much more positive note at he moment I am feeling really well, all be it I have legs and ankles that look like elephants.

Keep safe and well everyone.

Thank you again

Gilly

 

 

EllyH
Member

Re: Secondary Liver Cancer just been diagnosed

Stay positive! I know it’s hard especially as it’s sinking in but I’m 13 years liver, lung and bone x

Sarjaba77
Member

Re: Secondary Liver Cancer just been diagnosed

Mary,

That's so positive for me reading your post. 

I was diagnosed with liver mets in March after my initial breast cancer diagnosis in December. Just started 3 x FEC and 3 x Docetaxel as oncologist is trying to blast what he describes as 'low volume' disease in my liver. 

I have an 8 year old boy and plan on fighting as long as I can! 

Love and hugs,

 

MaryMaycock
Member

Re: Secondary Liver Cancer just been diagnosed

Hi Gill,

Just picked up this message from you. I hope your CT scan went well and that you have a good plan in place now? A plan that is reassuring for you?

As far as my treatment plan goes, no I don't mind you asking, but I think maybe that things are changed and improved since 8 years ago. I started with some pretty aggressive chemo, and now remain on Zoladex injections (not in menopause yet) and Tamoxifen. My cancer was described as oestrogen positive, moderately aggressive, invasive ductal carcenoma...I don't understand it all, but it felt pretty dire at the time!

I think everyone's cancer is different and the medics treat us as individuals and, with nearly 9 years between us in our diagnoses, I should imagine your plan will look very different to mine. Mine hasn't been changed because my cancer hasn't progressed further again yet and none of us want to upset that apple cart!

I look forward to hearing from you,

Sending you all best wishes,

Mary

x

 

Gilly001
Member

Re: Secondary Liver Cancer just been diagnosed

Hi Mary

 

Thank you very much for your reply.  Its good to hear that you are 8 years on from your diagnosis.  Well done you!

I had my CT scan today so hopefully I will have a plan soon.

If you don't mind me asking what was your treatment plan?

Best Wishes

Gill x

MaryMaycock
Member

Re: Secondary Liver Cancer just been diagnosed

Hey,

I'm a "liver mets" person. It's nearly 8 years on now and they can't find them right now. (Doesn't mean they're not there, but shrunk until they can no longer see them) and, hey, that's good enough for me! I still have a few lung nodules, but all appeared stable at last look in November last year.

Big huge hugs to you. It's not an easy path. I would encourage you to trust your medical team, but demand all the possible help you can. You really truly can not know what's round the corner, and it might even be good stuff!?

The "median" for my lung and liver mets was pretty poor, but 8 years on I'm still here and pretty fit. I did not expect to be here now. So take heart and take good care of yourself. You are worth it.

xxxxxxx 😉

Gilly001
Member

Re: Secondary Liver Cancer just been diagnosed

Hi Nicky

 

Thank you for your reply.

Its hard coming to terms with this retched thing again!  But the good news is that I have a CT scan booked for tomorrow morning, and have been advised that my name is on the list for Multi Disipline Team meeting to discuss the results and devise a treatment plan on Thursday.  So hopefully I will know quite quickly what my fate is.

Thanks again

Gill x

nicky08
Community Champion

Re: Secondary Liver Cancer just been diagnosed

Hi

We all know exactly how you feel when you get a secondary diagnosis, the shock and fear is awful. We do all learn to come to terms with this diagnosis and this often happens once you have a treatment plan in place. At the moment there doesn’t seem to be an active liver mets thread, there used to be, but we do hang out on the Bone mets please join in thread, even if we don’t have bone mets. 

I have been living with bone mets since 2008 and liver mets were added into the mix in 2013 so I do have experience of liver mets. Depending on your receptor status for your primary you will follow a treatment path for that unless the oncologist thinks that your secondary is not the same as your primary. As you’ve mentioned HER2+ you will have a treatment plan based around that, unless anything is different. Once you know what that plan is you can look down the list of thread topics to see if there is an active thread where you may be able to find out more about that particular treatment. Otherwise asking other questions etc works. Hopefully you get some other responses as well and you also find out what your treatment will be quite soon, although it sometimes seems to take a while for the oncologists to get everything organised as extra scans can sometimes be needed.

Good luck

Nicky x

Gilly001
Member

Secondary Liver Cancer just been diagnosed

Hi - looking for some reassurance please?

2014 Had bi-lateral breast cancer Left Grade 3, Right Grade 2.  Lumpectomy on both.  All cancer removed with clear margins but found HER2 positive so had Chemo (Docetaxel and Carboplatin plus Herceptin.  Followed by radiotherapy.

Annual mamograms have been all clear.

6 weeks ago started to feel unwell.  Urine infections diagnosed.  Blood test came back showing raised enzyme levels.  Investigated further, found to be liver rather than bone.  Pain under right breast moved to lower side.  

Yesterday had ultrasound - diagnosed with Liver Cancer.  Gutted!

Awating CT scan then results will got MDT at breast care when they will decise what happens next......