I find the differences between hospitals amazing. When my wound broke down I was told not to let anyone pack it as the fluid needed to escape. Then when seroma stopped I was still left with the sinus which failed to heal on its own. That’s where I insisted on getting tissue viability to review it. They said that flaminol gel would work a treat on the actual wound and I swear after a week of using the gel it was half the size. The small sinus was still there. They then said to put nothing at all on it and let it close itself which I did last week and so far the wound is now fully healed.
so many difference between wound healing and time scales for radiotherapy.
My radiotherapy dept said they would offer rads up to six months esp for folk with wound issues as it is an extremely common problem. My breast surgeon said the evidence is poor to back up having it done within 6-12 weeks. Other people are saying they won’t get it if they go over the 12 weeks. Such a variance in what should be all stream lined care.
Thank you for your reply. I think somewhere along the way I've got my posts and replies crossed. I've just read your reply and realise what similar experiences we've had. I am also having the wound packed and dressed daily, as I have been told I have a 2cm sinus wound ( I'd never heard of a sinus wound!). My anger is due to the fact that if I had been given more after care from the day of the op, they would have seen the fluid was building up and would have drained it, instead of it being allowed to burst and cause an open wound. So my overall recovery is delayed. I agree with you, it is massively frustrating & depressing.We saw the surgeon yesterday and he thinks it will take a further 2 months to completely close 😞
Hi Dorsetlass I am really sorry to hear about your experience. I had a mastectomy a week ago today as a daycase. I wasn’t ready to go home at all but wheeled out in a wheelchair out to my partners car. I had drains which leaked on the same night. We called the woman’s unit that night who told us to go to A&E. I was in no fit state to go to A&E so as it was late at night my boyfriend said let’s see how we go and wait for the district nurses in the morning. The drains were taken out this week, but I can not get my head round why mastectomies are day case. I hope you have a very speedy recovery x
Thank you so much for replying to my message and for sharing your story. It really helps to hear that someone else has experienced this. Like you I have cried a lot over it and had begun to think it was only me. The booklet I was given only mentions seromas a bit, but doesn't go into any details. I left the hospital after surgery with no dressings and when I asked at a later date where I could get stoma bags I was told to buy them! It was only when I went to my own GP that the nurse gave me tons of dressings. She was horrified at what she saw and the lack of after care I had received. I also had antibiotics to clear up an infection.
I've just seen the surgeon again and he has explained that I too have a sinus which will need to heal. He thinks it could take 2 or more months, and my surgery was 24th July.
This is my second time around with breast cancer after 19 years. The first time I was in hospital with a drain for 10 days.
Sorry to hear that you are having to go through all of this! I had a lumpectomy on June 10th and had initially a haematoma drained ten days post op which then changed to a seroma . The wound over the next three weeks got bigger and wider. After 5 weeks the seroma stopped draining and I was having it dressed daily to let it heal from inside out as I had a 2cm sinus inside. I eventually got tissue viability to come and look at the wound after 9 weeks post op and thankfully got a wound swab sent away which showed there was infection. So between flaminol gel ( can not recommend this enough) and antibiotics my wound has finally healed so I can start my radiotherapy next week which will be twelve weeks post op.
It is so frustrating and depressing when a wound breaks down and like you could not find many reports on here which had similar experiences. I cried many night as I thought it was just me going through this. Thankfully I am seeing light at the end of tunnel again. Never thought it would happen.
I first posted on here about three weeks ago following my mastectomy & sentinel lymph node biospy. I had the surgery done in day surgery and had a pretty rubbish recovery. I mentioned that I could feel a build up of fluid behind the wound. To cut a long story short the wound burst open 4 days later, flooding the bed with about a litre of seroma fluid. I phoned 111 and was told to go to A&E. They packed the wound and I then saw my surgeon the following day. He said the wound would be left 'open' so that it could heal from the inside up. The wound is 4cm long and 2cm wide ( the rest of my wound is sealed). I have to wear a stoma bag on my chest to collect the fluid and empty it several times a day. I am now visiting my doctor's surgery everyday to have the wound packed and for them to check for infection. As a result I am angry this happened, angry that a mastectomy can be done in day surgery & worried about getting an infection. I should have started Tamoxifen, but have put this off until I feel a bit better about the wound. I just wondered if anyone else had experienced this, as I haven't read about anyone else having a wound open ?