Thank you. Your blog and these posts spurred me to register and battle with the “I’m not a robot” test (which seemed far trickier than normal).
So many of the messages in this string resonate, particularly the comment on controlling who knows about my breast cancer.
With children in 2 separate schools, I have kept th information contained in one school but not in the other - and I know which one I feel more comfortable with.
I also work in a large organisation (where I have been for a long time) and I can feel my news spread between colleagues across geographies with each kind message I receive - extending further from my immediate team and city. Part of me fears that I won’t be able to walk into any of the offices without glances of pity - which are well-meaning but...
After a mastectomy and lymph clearance surgery last week, I get my pathology report tomorrow. I’m quite nervous now after making the error of looking up 5 year survival rates before I know my stage. Whatever the report, I know there will be a treatment plan in which I will be confident.
Good luck with all your treatments and recovery. Thank you for reminding me of some of the most positive and important things.
Just read your blog!!! Well done you - love the title and I so enjoyed reading it. Thanks for sharing on here...I will be thinking of you, as I said but it will also be good reading your blog posts too.
Sending love and hugs and you’re so right about the great support on the forum.
Good luck with your blog...I think you’re right! Writing is very cathartic so I’m sure you’ll find it helps you through chemo. Will you publish it? Let us all know on the forum if you do.
Meanwhile enjoy those little things! Thinking of you and let us know how it goes.
Take care of yourself.
Jude there is nothing selfish in focussing on yourself!!! In fact you must do it!
It’s so helpful having support from your nearest and dearest as well as friends around you. I’m sure you feel much more in control of things now - it’s a much better place to be than the early days of uncertainty and the terrifying unknown.
Yes we live in France. There is a support group for everyone affected by cancer in the city, about 10 kilometres from where we live. Also a similar forum to this one (my French is good but having to write it all in French is much harder) I’m sure I’d make some faux pas along the way! Having said that my French friends have been wonderful as is the care I’ve received. There is counselling, well-being courses and dietary advice there if I need it and I only have to pck up the phone to speak to my oncologist, surgeon, gynécologue (sorry French spelling) to have an appointment within hours. It is an excellent Heath service.
I suppose sometimes I think people think you’re all done now you’re finished with active treatment but I think it takes time to recover. I think it’s finding the new me...the one who will never take anything for granted and is making time to appreciate what I have and enjoy all the little things in my life.
Good to hear your news!
I'm pleased that you have the full picture and that you now have a plan. It must feel much better and also that your oncologist is lovely chap.
I can’t pretend I know what your journey through chemo will be like as it wasn’t necessary for my treatment but I’ll be thinking of you and wishing you well. I hope you have lots of family support or if not, some good friends to hold your hand. Although as I’ve read on here, there is a lot of virtual handholding along the way!!
I seem to be recovering very well physically but still find the emotional side harder. I have no further appointments until November when I’ll have a six monthly mammogram but I’ll be hanging around on this forum, hopefully cheering everyone on and taking a little support for me, from the lovely ladies in the coming months ahead.
Love Rosie x
I was prescribe Cicalfate Repair cream after my lumpectomy. Still use this now on my scar.
Then Xeracalm AD Lipid-Replenishing balm during radiotherapy. I also use TriXera Nutri-fluid cleanser over my breast and underarm. This is a face and body wash but is very soft and gentle. Both these products are designed for very, very dry skin that is irritated.
I can see why they are medically prescribed and have been worth every penny. If they are not stocked in store , perhaps you could google an Avene supplier in the UK.
Just found out the that radiotherapy wil be 6-8 weeks from 1st radiotherapy appiontment, that I wont get till 2 weeks after results, that are going to be at least 4 weeks after surgery that was 6 weeks after diagnosis.
I had plans......that due to denial I thought were possible!
l'm in total denial about the posibility of needing chemo although I have researched ALL possibilities in high technical detail! I, like you appreciate the power that knowledge brings.
Maybe I will have to lose my nipple and have chemo. Neither are the end of the world, I must keep away from catastrophizing. I may know this time next week, 4 weeks after surgery.
I hope tomorrow goes ok for you.
love e x
that is great news about your results 🙂
If you go on the Radiotherapy section here there is a montly thread for radiotherapy where ladies who are continuing rads that month and ladies just about to embark on them can give help and support to each other. I generally start the next months thread towards the end of the month before.
Hi Yorkshire Tyke
So pleased to read about your results this morning. You must feel somewhat relieved given how worried you were. Great news that you have a holiday planned - something to focus on. Me too!!!
I’m not sure I was ever in denial but it was a great shock, I must admit. Your journey sounds as though it will be similar to mine, although I live in France. I have appointments booked for November including a mammogram. Was diagnosed in February and rads finished 5 weeks ago, so they’re not leaving me too long to relax!!!
In terms of skincare ( and i know it is different from what I’ve read for other ladies on the forum in the UK) i was told not to put anything on my skin other than what was prescribed by my oncologist and surgeon. I was given Avene products which have worked like a dream and absolutely no side effects whatsoever throughout. The products were developed with the advice and expertise of cancer specialists in France and the center Thermale provides aftercare for women after cancer treatments. I know they are available in Boots but not a full range -probably need the website. Would be happy to tell you what I use if you are interested.
Anyway good luck with your treatment and will be thinking of you.
I think I was initially in denial, I was so fit an healthy way above average for my age. I kept thinking why me what did i do? I don't smoke, I have a good diet, I excercise regularly etc.
I am an analyst so I was straight on the internet researching and reading articles. Basically trying to process what was going on. After a couple of days I had read so much I decided enough was enough and I had to limit myself to reputable sites. The US version of this site is very good for information on the tests.
After more thought I decided the only way I could stay sane through this was to break it down:
Part 1 - get through the operation
Part 2 - get through chemo if necessary
Part 3 - get through radiotheraphy
Part 4 - A tablet a day... how bad can that be you take a multi vitamin everyday
My friends (one of whom is a GP) kept telling me, the fact that you are so fit will help you recover from surgery etc.
Running along side this was the thought what will I do when I've got through all of this?
Like Jude it's a holiday, but for me it's skiing, which was booked before my journey started and then (as a result of a question asked by the nurses distracting me while the anethetist put the cannula in the back of my hand (the only bit that I hated)) Scuba Diving in Galapogos with hopefully shoals of hammerhead sharks!
So in short I think that DENIAL is a pretty common response.
I felt such a fraud after diagnosis that I became obsessed with asking for a re-test!
Was called back from my first mamogram at 52,
diagnosed 16th may Dcis and idc.
Had not worried one jot at the appointment where a biopsy was taken, how would i have cancer . I am fit and active with a good diet and no family history of breast cancer. Bit of a shock on results appointment!
3 weeks of MRI and 4 more biopsies I was relieved
to be able to chose breast conservation surgery on 27th June .
I've now been waiting nearly 3 weeks for results.
phoned today and was told maybe next week!
I feel I'm being given a test in patience .
If margins arn't clear my surgeon has said he will have to take my nipple! I so want to keep my new boob as it is.
I can't stand this waiting so have joined your conversation though I see from your more recent posts that you probably don't feel a fraud no more xxxxxx
My Oncotype DX score was 11 so I've avoided Chemotheraphy by a whisker, so releived. I was actually shaking before I went in for my appointment, I could have done cartwheels down the corridor on the way out (well in theory I was never any good at them when I did gymnastics at primary school....)
Just goes to show that despite the tumour being Grade as 3 chemotheraphy is not always necessary.
My Radiotheraphy will start Mid to Late August as St James Hospital Leeds so if anyone has some top tips (even if it's which cake to choose in the cafe) please share.
A holiday is definately something to look forward to. Where are you thinking of going?
Well done Jude!! Planning a holiday is good...something to look forward to.
I was diagnosed the day before my husbands birthday and two weeks before my 60th!! I had such big plans but obviously they didn’t happen. It’s only now, 6 months on, that we are planning a few celebrations and a break to relax.
Your spring holiday will be here before you know it. 😊
Just popping in this thread again and seeing a few recent posts.
I’m sorry that you’ll be facing chemo after your recent results. At least you’ve done your reading and preparing for it and you have a tailor-made plan just for you. I felt much better (relieved even!) when I knew what was happening although i waited many weeks to hear what treatment path I would take.
Hi Yorkshire Tyke
I’m wishing you lots of good luck today for your appointment! Whatever your road you’ll be in good hands and plenty of support on here.
Thinking of you both, lovely ladies, and sending love and hugs from France to you.
I'm 52 and being treated in Harrogate at the moment. So far I've only seen the Surgeon and my BCN who are both lovely. My bruising has gone now although I did have a rather interesting blue, green, yellow design at one point! Not as good as the combined art work of Nuclear Medicine, Radiology and the Surgeon though :). Still a couple of lumps around the edges of the scar but they also appear to be going down.
My next appointment is scheduled for Friday 13th (provided the Oncotype DX results are back).
I've been reading up on the various tests done so far to try and understand the results I've been given to date.
You can find out more about the Oncotype DX test on the company web site (if your interested) and download an example of the report they produce. http://www.oncotypeiq.com/en-US
Whatever happens I'm sure the team at St Lukes will look after you.
I'm new to the forum but my story is so similar.
I was diagnosed at the end of May. I'm very active and practically live at the gym when I'm not at work.
My surgery was on 20th June. WLE, Sentinel Lymph Node and re-construction. I was told to take it easy and rest. The following day I had to have the drain checked and as it was so nice and sunny I decided to walk to the hospital a 4 mile round trip. Well they did say they wanted me up and moving... The following day I went back to get the drain removed and walked there and back again. I then had a week at home facing the challenges of washing your hair with one hand whilst trying not to get the surgical dressings too wet. I felt absolutely fine. After 5 days I had stopped taking the pain killers and was happily pottering round in the garden.
I'm now back at work and the mobility in my arm is improving rapidly.
I don't require anymore surgery!
My problem is the waiting for test results...... Tumour was Grade 3 ER+ HER2- Node Neg. So I'm now waiting for the results of an Oncotype DX test which will indicate how much benefit I would get from chemo.
On the plus side all the aches and pains from gym training have gone, but I so wish I could go back NOW!