I'm so happy you had such a fun day out, and the mental image of you sat in full war paint and no wig did make me giggle!
To be honest it felt like an anti climax when I finished the rads. My life is basically back to normal now. Although I applied for an got a new job in the midst of all the chaos!
The redness and itchy skin peeked on Friday and has now started to settle down, whilst my sun tanned armpit looks to be honest bruised but is in no way painful!
You will have an appointment with the nurse to check your skin on the day of your last appointment (and if you have any problems just tell them and the will refer you to the out patients ward if necessary - that how I got to the bottom of my infection) and another one 6 weeks later. Mine is with my breast cancer nurse back in Harrogate.
I suspect that, that is when I will find out how often I have to go to clinic for a check-up. I know the mammogram will be annual but I'm not so sure about the medication reviews.
I hope you had a restful weekend
Jude I hope you feel a bit better today and make it to the races! I've been reading your blogs and they've made me laugh and shed a tear. I read the blog about the wig fitting whilst at the hair dressers. If I'd gone down the chemo route that would have been the day of the chop but instead it was the normal application of dye to hide the white roots! Besides I doubt very much that they make wigs to fit my natural hair style which is less chic bob and more long haired, slightly dishevelled poodle!
My radiotheraphy completed last Thursday. It was both a relief and an anti-climax. So far my skin has gone a bit red (you would have to be up close and personal to see it) and feels mildly itchy. I'm still drinking loads of water (about 2 litres per day) and applying moisturiser (Avene - RosePosie recommended and Aveeno - which is on offer in Waitrose). I had a bit of a rough day on Sunday (that could have been the red wine!) but otherwise I've felt fine and the rest of my skin looks much better thanks to all the water!
My appointments pretty much ran to time but I'd recommend that you give yourself some time to find a slot in the hospital multi-story. You will find one, it's just very busy with cars coming and going so you often have to wait to go up to the next floor or for someone to park. You don't have to pay and you exit via Floor A0. Just walk across to the main entrance then on to the "Green Lifts" and down to -A2. The opposite set of doors to the one you entered through will open and the toilets are on the right and reception to check in for your appointment on the left. When you go round to the waiting area to the machine you've been allocated there are more toilets. If you drink the amount of water I did you'll need them!
Radiotheraphy itself is just like having an xray. The majority of the time is spent lining you up with the marks to make sure they get the best coverage they can. My skin felt a bit warm afterwards but I was never in any pain.
Once again enjoy the races Jude!
I hope by now you are feeling a bit better and not so nauseous and that you slept ok too.
Hope you’re taking it easy again today - feet up , good book.
Just read your blog - I loved it, and to think you were thinking of not writing this time!!
I’m so pleased you are making plans to go to the races soon, I’m sure your lovely friends will look after you!
Sounds like you’re going to be prepared with the meds too.😉 You’ll have a great time.
Everything you said about Rachael Bland rang true! I listened to the podcast yesterday ‘About our Rachael’ and it was very sad but also, I felt uplifted by it, talking about the big c in such an informative but realistic way. It’s gotta be good!!!
Keep up the good work.
Sending hugs to you.
Lots ove love
I wish you luck for today and hope that all goes smoothly with the PICC line.I can imagine what a big step it feels like.
Hope your se’s are improving and you are taking good care of yourself. And I hope you find something good to eat, that takes your fancy, and to tempt your appetite. Lard at the beat of times...yuk!!!! 🤢
Sending love and hugs.
I hope you are not feeling too awful this morning and I hope you going to rest and take things easy. It seems awful to say that I’m glad your chemo went ahead and knowing how rough you’ll feel but at least you’re halfway there!!!
I am having a quiet week after the party ( its was great with cake and fizz etc) but I don’t drink very much and take care about the diet. Sad I know but after bc I’m just trying to take care of myself as much as possible.
Look after yourself. Sending gentle hugs and love from France.
love Rosie xx
i do hope your blood results were back in good time today and you could go ahead with your chemo. It sounds strange to say hope you had chemo- but if you're like me You just want to get on with it without any hiccups. And now time to look after yourself .
ive done better today, bone pain and aches gone, but the mouth thrush and sore now kicked in again😥. Hubble though potato rosti might be good- any other potato is a no no-was really looking forward to but tasted like eating a spoonful of lard!! My youngest,7, asked how I knew what lard tastes like!! 😂😂.
Tomorrow my PICC line coming out😀Think this will be a big step for me, hope it doesn't hurt!
take care xx
Yes I had a great weekend thank you. Very busy but fun. I finally managed to celebrate my 60th birthday properly yesterday with hubby and some friends. It was lovely.
Hope all has gone well for you today and you’re getting through it.
Thinking of you.
love Rosie xxx
Sorry to hear that the se’s this time have been miserable and are making you feel so tired as well.
Sleep is a body’s way of healing and you’ve been through so much. Do hope you feel better soon.
In the meantime be kind to yourself and go with it.
sending you some positive thoughts from France.
Love Rosie xx
I just wanted to wish you well for tomorrow. Third chemo and you’ll be halfway through!!!
I’ll be thinking about you and cheering you on. Hope that all the results are in too, ready to go.
Love Rosie xx
Congratulations on getting through last chemo and being able to ring those bells 🎉🤗🛎🛎🛎!!
It is emotional...even I felt it after the rads and didn’t need to take the chemo pathway.
Glad to hear you are resting today and making time for yourself but also pleased that you were able to take your daughter to school. Very important for both of you (I’m a retired teacher, so know how much it means😉). How lovely also that your children are planning a celebration together - enjoy the chocolate and seeing them happy too.
I hope your se’s are not too awful and I’ll be thinking of you. That’s it!!! Yay!!!!
Enjoy your rest and relaxation and let the family all spoil you.
Hugs. Take care.
love Rosie xx
Yes, it was my HER2 test that came back as borderline, so they did a FISH test which takes longer for the results to come through. The surgeon was more optimistic than I and said, in her opinion, she thought it would be negative. It was an anxious wait and that’s when I geared myself up for chemo.
However she was right...so I didn’t have to have to go down that route. But as others have said, you throw everything at this disease, don’t you?
Have a good weekend and take care too.
love Rosie xx
Thanks for posting your blog again for us to read. I find it quite emotional, I’ll confess, because in the early days I really thought I’d be with you on the chemo pathway - I had prepared myself for it. So it sort of grounds me. You are very brave to write so frankly about it all. It is a beautiful picture of you and you look lovely regardless of hair or not...it’s your beauty from the inside!! Enjoy your lunch today.
Jem it’s a wet Burgundy this morning but we desperately need rain! The vineyards are stunning and the wine very good, in fact the grape harvest has already begun...very early. I so understand how you need to feel control over things and i bet you look gorgeous in your wig. My way of keeping some control was to choose very carefully who I told; i didn’t want to be a subject of discussion particularly when I wasn’t there!!! Enjoy the rest of your holiday.
I've got no excuse now, I’ve got some housework to do now it’s cooler!
Sending love and gentle hugs.
love Rosie xxx
another insightful blog into this strange world we are currently living in- well done you. Beautiful picture of you. Interesting your thoughts on facing the reality re wig or not wig wearing. For me I find wearing my wig when I leave the house 1) gives me confidence and 2) allows me to be me rather than bc entering a room before me and face conversations I wouldn't chose to have. Somehow for me this is the way it gives the control back to me, this awful disease tries to take away so much of our control. But that is just me, a bit of a control freak really. We are all different people and there shouldn't be a route for us all to follow but somehow find our way through this crazy season in our lives.
Rosie- love Burgundy - have happy memories visiting prior to chin with my oh, drinking wine in the sunshine overlooking the vineyards 😀. Yes we will have happy memories from this holiday too. Spending time with oh and children has been great.
Just catching up with you all again.
Jude, it sounds like the cumulative effect of of chemo means it takes longer to recover each time. 😢 I guess you can cross another one off and are nearer to the end!!! However I hope you can enjoying doing something you enjoy before the next round in September. Very important. Stay strong...you can do it!!
Jem, it sounds like you’re having lots of fun in Somerset with your children and the weather has been beautiful this year in the Uk. You’ll have some happy memories even though you’re facing chemo. Nearly there though!!! You go girl!😉
We live in Burgundy in eastern France, not too far from Dijon. It’s a beautiful region and has been super warm this summer. I know the Dordogne and agree with you about the wonderful lifestyle, it’s very relaxed and family orientated. We are very happy living here.
Elaine - I hope by now your infection is clearing up and you’re feeling ok. 😊
Do take care of yourselves, lovely ladies.
Jude - pleased your through the se of this cycle- enjoy the time before your next cycle. 2 down 😀.
Rosie - trip to London to see your daughter sounded lovely. Where in France are you? I'm really missing being in France this summer - we always spend time inFrance and loving the life, last year spent a month in the Dordogne- just beautiful. Due to horrid chemo am forced to holiday in UK. Although enjoying time in Somerset with my beautiful children it's just not France 😥.
Elaine - more days ✅ off for you😀. I hope your infection has cleared up.
im enjoyingweek3 of chemo cycle 5. Se lasted 10 days with a day spent in hospital due to high temp thrown in. As mentioned we are away in the caravan enjoying the best of Somerset- lots of cycling and walking along coastal paths. Had breakfast on the beach made by the children on their trangier stoves😀. Back home on Sunday for pre chemo assessment and appt with oncologist Monday morning and appt with new oncologist re rads an hour later and then final chemo on Tuesday- That feels good to say 😀Not looking forward to horrid se but final one😀
Take care love Jem xx
Hello lovely ladies
I am just catching up with some of your posts after ongoing internet problems (still😡) and a wonderful weekend in London visiting my daughter. Had a wonderful time but came home exhausted making me realise that I’m still recovering from the whole bc treatment thing.
Jude I’m glad that after the initial few hours after your chemo, you are feeling better than the last time. I guess the body has to adjust to new medication and I expect you are getting the hang of coping with the se’s. Fatigue is the body’s way of telling you to rest and take it easy, I think.
Elaine I’m sorry to hear that you have an infection - that is really unfortunate although I’m pleased it’s not held up the radiotherapy. I know that once on the rads treatment, I counted each day in my diary and hated having so many bank holidays through May. Just wanted to get through it!!!
Wishing you both well with your treatments. Take care and make sure you look after yourselves.
Love Rosie xx
The radiotheraphy is going ok. I'm already 1/3rd of the way through.
In reality I spend more time getting to and from the appointment than the actual session itself.
Initially it was a bit odd. They have to align the dots with some grid lights in the roof so they spend as much time drawing on you with a pen and shuffling you into the correct position as actually treating you.
The couch itself has no padding (and I don't have much natural padding) so it not exactly comfy but your there 10 to 15 minutes max.
The downside for me is a bacterial infection in the area where I had surgery.
I'm on antibiotics to clear it and it's not held up the radiotheraphy.
Sorry to hear that the medication isn’t working - that’s rubbish!
I hope they can get it right for you soon. Sending gentle hugs.
Take care and look after yourself.
Love Rosie xxx
Hope 2nd chemo has gone as well as it could go today- no complications. Now time to rest and ride the first week- lots of tlc needed.
big hugs xx
Yes internet has been hell this week and our problems are still not quite resolved either so I’m taking an opportunity to respond whilst I can.
I don’t think you were EVER a fraud and although it may have felt a bit that way in the beginning it was never the case. Your blog says everything and it’s lovely to read it - I hope you’ve had positive feedback from friends and family as well as us folk on the forum.
I hope your treatment is going as well as can be expected and that you’re coping with the se’s.
Am feeling more positive today - spending some time cooking...always one of my relaxation interests!!!😊
Stay strong and take care.
Love Rosie xx
I’ve had a dodgy week with out internet, this last week😡...don’t ask! I’m just catching up with some posts realising how much I’ve missed reading about you all.
I hope you are all doing well and treatment is going well. Lovely to read your blog again Jude...glad you had a little treat with the bubbles, always good for the moral.
Jem I hope you’re feeling less exhausted and taking a few moments for yourselves.
Felt a bit sad yesterday when a friend made a thoughtless comment which made me realise I still feel quite vulnerable even now.😢
Better for a little time on the forum though - still need you all.
sending love and positive thoughts.