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Going through reconstruction partly failed

7 REPLIES 7
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Re: Going through reconstruction partly failed

Hi. Was wondering how your phone call on monday went ?. Did you have an update? X

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Re: Going through reconstruction partly failed

Hi. Hopefully love it's a positive phone call.  With positive news So you can move forward and try to get back to some kind of normality.  We are important. Will be thinking of you ❤

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Re: Going through reconstruction partly failed

Hi, there must be so many breast and other cancer patients whose life has just gone into free fall.

I have no idea when the operation will be arranged for. I am having telephone consultation with a breast surgeon on Monday who hopefully will have an update. 

Hope you get an update with positive news soon

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Re: Going through reconstruction partly failed

Hi. That's what happened to me I wasnt getting any answers.  I was cancelled by a administrator and she wasnt caring  she was very blunt to me I was told to contact my GP which I found not acceptable with the situation I'm in. It's such an ordeal going through breast cancer as it is and having to fight for things to be done so I can get closure and move on to the next stage of my operations. I honestly feel for you too and we as a person are important for us to carry on and try and get back to some kind of normality as far as normality can go for us. My breast care nurse was trying to get answers for me too and found it frustrating.  So do you know when your operation will be?

Sending big hugs and love to you xx

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Re: Going through reconstruction partly failed

Hi

I live alone too, and the self isolation imposed, since having recently finished chemo, is making the NHS decision to cancel the op hard to deal with. It feels like all the caring words and reassurances that the NHS have said in the past mean nothing. Given a decision and choice to make we are thought not worth it by the NHS. 

Who in informed you of the cancellation? I received a phone call from an administrator whose message was blunt and brutal, your op cancelled due to covid 19. When I rang my lovely breast nurse, the management hadn't even had the decency to contact her, she knew nothing about the fact that her hospital had just cancelled all operations. She was left having to deal with me break down on the phone with no information to offer me. I hope the NHS management team who took the decision to inform cancer patients in this way feel the ends justify the means.

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Re: Going through reconstruction partly failed

I feel its soul destroying and I cant move on to the next stage. I need more operations after too. It's not been  easy time from when I was diagnosed on 16th  october 2019 with breast cancer and my 1st operation which was a lumpectomy operation on 11th November 2019 didn't work still had this disease and I had to make difficult decisions on having this tram flap reconstruction its emotionally upsetting it's not been easy for me and I'm having to do all this alone My heart felt sympathies  goes out to you too. 

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Re: Going through reconstruction partly failed

My heartfelt sympathies. My mastectomy and reconstruction was also cancelled yesterday and like you I am left not knowing when it will be rescheduled. I totally empathise with your sense of abandonment. 

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Going through reconstruction partly failed

My operation appointment was cancelled due to covid 19 on 18th march. I've been battling trying to get another operation appointment as I'm left here with open wound that I've been dressing due to my reconstruction partly failed Its emotionally upsetting for me and I dont feel valued . I had a tram flap reconstruction on 5th february 2020