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Lumpectomy and full removal of lymph nodes

20 REPLIES 20
Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

Hi Jane 

I had the full clearance 2 and a half years ago when I was 60, it’s more uncomfortable than painful and heals quickly. Agree about the exercises- make sure you do them and keep doing them - I have full movement in my shoulder still and no pain . There is some numbness and no sweating in that area but otherwise fine . 
Good luck and hope it goes well xxx

maz1973
Member

Re: Lumpectomy and full removal of lymph nodes

Hi I had this same procedure last March and the pain was manageable with paracetamol what I would say is make sure you do your exercises as I was a bit lapse with them and now have constant pain in my shoulder xx I’m still a bit numb under the armpit but that is manageable xx stay strong sending big hugs xx

Gelbel
Member

Re: Lumpectomy and full removal of lymph nodes

Hello Jane

Here's a recent thread where we started off discussing ANCs. I hope it helps you.

In a nutshell, more uncomfortable than painful. 

https://forum.breastcancernow.org/t5/Surgery/AXILLARY-NODE-CLEARANCE/td-p/1353023 

JaneHW63
Member

Re: Lumpectomy and full removal of lymph nodes

hi im not as young as most of you im 58 in march got diagnosed with breast cancer on the 13 of december had the lump removed in a wide incision lumpectomy they found cancer in the three lymph nodes they removed so im in surgerery again tomorrow for the rest removed i would like to know has anyone had this and how is the pain afterwards .

 

digitalbabe
Member

Re: Lumpectomy and full removal of lymph nodes

hi Bungula X 

Big Positive healing hugs to you.

Im in the same position as you, same age and I’ve had the same surgery on Friday. I was Kept overnight as my op was at 4pm and was sent home with a drain and big bottle !!! 

 

Im quite sore but the paracetamol is helping which I am taking as prescribed along with doing the exercises. I’m also feeling tight around the area. 

 

Mentally I had a really bad day yesterday but today I am more positive and happy that they have removed the cancer following 7 rounds of chemo I have already had  !!! I get the pathology results in 2 weeks. I’m not stressing about it but I’m more focussed on healing right now. Will deal with the results when I get them. 

 

Im not wearing a bra just yet but will do so with a softie next week more for my mental state If is comfortable. I’m wearing loose fitting clothes and find it difficult to sleep on my back. 

 

Hope you are are doing well. We will get through this 💕💕💪🏼💪🏼😘😘 xx 

Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

So good to hear you are positive Jac - and glad you has your op and got sorted. 
I will raise a glass to our wonderful NHS  too and to wish you a speedy recovery . 
Take care xx

Bibi 

Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

Laura hi again - look under the ‘going through breast cancer treatment ‘ section and there is a group for younger women - hopefully you can connect with someone through there 

All the best 

Bibi 

Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

Hi Laura 

sorry you are going through this at such a young age - I’m sure it would help to talk to people who have been through similar at the same age - I’m a lot older so have a similar experience physically but would probably affect you and me psychologically and emotionally in different ways. Keep up with the exercises is my advice - it will help tremendously and once the drain is out it will be much more comfortable. 
if you look on the menu I believe there is a ‘Someone like me’ section that you can post on to look for people who have been through similar- or just start a new thread appealing for people your age to talk to.
Take care and I wish you a swift recovery xxx 

JacT
Member

Re: Lumpectomy and full removal of lymph nodes

Hi everyone I hope everything is going well and you are keeping safe.

I got a call from my surgeon and was admitted to the Nuffield Hospital on Monday 20th.

This was due to no surgery taking place at the Royal.

I can only describe it as a non stop rollercoaster for the last week!

I had my mastectomy and full auxiliary node clearance. My drain comes out tomorrow all being well.

This has been the most difficult week of my life. Being in hospital over night with no visitors, having major surgery, and everyone in the hospital dressed like we were in a nuclear disaster zone!

But I take my hat off to them! The breast cancer team and the team at the hospital have been fantastic! 

What they all do is amazing and has helped me cope with the river of emotions from my experiences.

I could tell you about my pain, my fears and the problems I have had but instead I want to say that today I feel really good, the sun is shining, I have food in my cupboards and most of all I have realised what amazing family, friends, colleagues caring support network I have. Big thank you to all of them xxx

 

So ladies lets raise a glass of pure orange with a squeeze of lemon and lime in to all the fabulous people we have around us! Here is to everyones good health! xxxx

Kindest Regard

JacT xxxx

lausel88
Member

Re: Lumpectomy and full removal of lymph nodes

Hi all,

 

I am still very new to this site, only got diagnosed a couple weeks ago with grade1 IDC LN+ ER+ still awaiting her2. 
had my operation on Wednesday for lumpectomy and axilla clearance. Today is the first day I’ve woken and starting to feel normal again. Although the drain is a pain I’m slowly getting use to having it. Hopefully it will come out this coming Wednesday,
exercises are getting easier as the days pass. Although I still get upset and constant worry of the results I still yet have to receive. 
but I must stay positive. 

I am 31 and was just wondering if there were many people my age going through the same or have been on this site, would be nice to chat. 

laura x 

maz1973
Member

Re: Lumpectomy and full removal of lymph nodes

i had my second operation 2 weeks ago to remove extra margins and lymph node removal, all went well other than my husband wasn't able to stay with me at the hospital but the nurses were amazing and i was still out the same day xx hope your operation went well xx 

Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

Hi - glad you had your op 

I had the drain in for about 5 days -2 weeks  does seem a long time to still have it in . Hopefully it will settle and you can start getting back to moving normally - it’s quite a weird and uncomfortable thing to have isn’t it ? 
Take care 

Bibi 

JacT
Member

Re: Lumpectomy and full removal of lymph nodes

Hi There 

Great to hear you got your op. Unfortunately mine has been postponed. I have been put on tamoxifen until surgery is available. I did not realise the drain would take so long to stop. I thought it was just a couple of days. I hope everything goes well and it is removed soon.

Take care and stay stafe

Bungula
Member

Re: Lumpectomy and full removal of lymph nodes

hi there,

It is indeed a nightmare time at the moment. My operation was reinstated after having one day of taking Tamoxifen and then being taken off the drug to have the operation. It was a rollercoaster week. 

My question now is has anyone got any experience of a surgical drain and how long it can stay in? Mine has been in now for 2 weeks and the drainage is still between 70ml and 100ml per day. I have been told the district nurse cannot remove the drain until I have two consecutive days of less than 40ml drainage. The way things are going I can't see this ever happening! 

JacT did you have your operation after? How r u doing? 

X

JacT
Member

Re: Lumpectomy and full removal of lymph nodes

Thank you for this post. It has helped. I am supposed to have a mastectomy and all nodes removed on the 7th April. My lumpectomy did not have clear margins and all 3 nodes removed showed cancer. I am prepared for the surgery to be postponed and chemo to kick in instead. such a difficult time with all thats going on in the world. xxx 

Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

So so sorry that you have to wait - so awful. 
if you look on the Hormone Therapy thread you will see threads and info re Tamoxifen. 
I am on Letrozole as I am post menopausal- Tamoxifen usually given to pre menopausal women . They are drugs to reduce oestrogen which reduce  oestrogen +ve cancers growing. 
So I guess they are trying to stop your cancer growing any more using the Tamoxifen. 
So awful to have this happen - I hope they are able to get you in as soon as possible - did they give any time scale? 
Take good care of yourself - I want to say try not to worry too much but I know I would be so just be kind to yourself and stay safe from the virus xxx Sending hugs xx

Bungula
Member

Re: Lumpectomy and full removal of lymph nodes

thank you for the replies. I really appreciate them. It's so good to hear from people who have first hand experience. I have had some devastating news this morning, my operation has been cancelled due to lack of surgical protective equipment. The surgeon says I am very high priority and the op will be done as soon as they can. For the time being I have been put on Tamoxifen. Has anyone any experience of this drug? He has said this will protect me from the cancer growing.

If anyone has positive things to say, please help me coz I'm struggling right now.

Xx

Jaybro
Member

Re: Lumpectomy and full removal of lymph nodes

Hi Bungula

 

I’m sorry you find yourself in this situation, bad enough at the best of times but possibly additionally worrying right now - however, you won’t know if your immunity will be affected until the histology is done after surgery. Cancer treatment is what puts us at risk.

 

I had a full mastectomy and full axillary clearance 18 months ago. The operation was in the morning, I was home by 9pm but that was at my request. You need to expect to wake up with a very cumbersome drain attached which will put you off raspberry smoothies for a long time to come. You’ll learn how to manoeuvre yourself around as the days pass. Some hospitals have the good sense to supply you with a carry-bag. Not mine. I resorted to big cardigan pockets, waistbands and the toilet cistern (sitting sideways on the loo).

 

You may need pain relief. As this is in short supply, make a point of asking the hospital to equip you with what you need till your next visit or to instruct your GP to prescribe pain relief from your pharmacy. I actually didn't need it. It was more uncomfortable than painful. You may find the outer part of your upper arm feels numb - nerves inevitably get damaged and are slow to repair. You will be shown how to massage your arm to avoid complications. You’ll also be given exercises to do. No excuses. These are essential (I learnt the hard way!).

 

PJ jackets are essential, rather than pull-on tops or nighties. You’ll also need loose, front buttoning tops till the drain, and perhaps the dressing, are removed. Men’s soft casual shirts are ideal. After this, things become more complicated. Some women like soft sports bras. I’d had an allergic reaction to the adhesive in the dressing so I needed really tight support. A lot will depend on the size of your breast and if you’re having a reconstruction. I happily go round monobreasted without a bra nowadays and I’m 36C.

 

In the current crisis, you wont be going out and about much so make sure you have plenty on tv. You’ll take nothing in during the first couple of days so forget good books and puzzles. Conversation and TV that isn’t important will see you through. Then you need plenty to keep you busy - but think of the logistics. Your front breast muscle at the least will protest at many activities. 

 

I am pretty certain virtually every woman who has been through this feels some degree of terror. It’s important to keep things in perspective. Start looking after your emotional health immediately. There are some excellent YouTube videos you can plug into. Practise with them now and they’ll be there to help you when you have to go for your results. Michael Sealey, Good Vibes and particularly Progressive Hypnosis stood me in good stead. They may promise the world or seem airy-fairy but they really do help.

 

Sorry to have gone on so long (are you asleep??). As I wrote, something more came to mind. Eat well, even when you don’t feel like it, do those exercises and I wish you the very best when you get your node results. I was ‘heavily node positive’ and I’m still here, cancer-free, 18 months on. It’s not as bad as it sounds.

 

All the best, 

Jan xx

PS. Do not google anything. Ask your questions of your breast care nurse or the nurses on the phone number above. Never ever google unless you're prepared to handle things you don't fully understand and statistics that scare the wits out of you! 

MelissaH_BCC
Member

Re: Lumpectomy and full removal of lymph nodes

HI Bungula, I just wanted to let you know that we are here for you. We have trained volunteers with a personal experience of breast cancer available on our Someone Like Me service via telephone and email. If you would like to speak over the phone to someone who has had a similar surgery experience you can call the Someone Like Me team on 0345 0771893, or see if any of our online volunteers could be of support by following this link here.  Our helpline is also open from 10am tomorrow for information and support on 0808 800 6000. I hope that we can help, Best wishes, Melissa

Bibi
Member

Re: Lumpectomy and full removal of lymph nodes

Hi Bungula

Sending you hugs - a tough time to be coping with BC and Covid 19.

I had the same op August 2018 - was just in overnight and that was because it was an afternoon op. They try to get you out of hospitals quickly these days. 

Recovery from op was not too long - just having the chest drain was the only thing to cope with really - the op scars settled down and healed quickly. 

Take care of yourself and I hope it all goes smoothly for you - good luck x

Bibi

Bungula
Member

Lumpectomy and full removal of lymph nodes

Hi there, 

 

I am 47 and about 4 weeks ago was diagnosed with breast cancer which has spread to my lymph nodes. I'm devastated but positive.

I have my operation this Friday. With everything which is going on with covid19 I'm sure I'm not the only person who is terrified. 

 

I'd love someone to reply who's been through this operation, if they have any tips.

We have many friends who are all being so supportive and encouraging but it would be great to hear from someone who has experience themselves. 

 

Thank you

X