Hi Savana - I’ll see if I can help with your questions.
Yes I think the recovery times you have been given are good guidelines, but as always the best advice is to listen to your body too and don’t rush things. You are also right, everyone is different. You will need to give your body time to heal and recover. To begin with you will be given arm exercises to do, and it really is vital to do them regularly just as you are instructed in order to get back the full movement in your arm again. I’m sure they will tell you to build up slowly, don’t start with 2 hours of gardening/housework etc., but your body will soon tell you if you overdo things. If you have problems at any time, do speak to your nurse/team and they may send you for some physio just to help things along - I had a couple of sessions.
The drain is more of a nuisance than anything else. I would suggest getting some sort of shoulder bag to carry it in so you don’t catch it when on the loo etc. You could use any bag you have/make something or I found mine on a site called Drain Dollies https://www.draindollies.co.uk you could look and see what I mean. The drain site is covered with loads of dressing so it would be hard for infections to get in - but do ask your team any questions like that, they are good questions and they will reassure you and help you to minimise infection.
You ask another good question about how long implants last and I don’t know the answer, even though I have one! It is on my list to ask at my next check up. I don’t remember being told that mine would need replacing, but I have since read that they don’t all last forever - or maybe I just zoned out at that point and didn’t want to hear about future replacements! If you do find any more answers, I’d be interested to hear.
I wish you all the very best for your op on Tuesday and for your recovery. Please do come back and let us know how you get on, or if you have any questions or concerns at all before the op. Hugs, Evie xx
Thanks Evie, I've chatted it through with a number of people now and understand that the team are just offering their best advice, they're just not very good at delivering it!
Thanks for all your advice 🙂 xxx
Jo - I’ve seen that you’ve started a new thread about chemo and had some great replies. It’s your body and it’s right that you ask questions. Some people don’t want to know, but others do - it’s very personal. I had a very patient surgeon and oncologist and asked lots of questions. I am sure you could ask for a second opinion too. All the very best to you for whatever treatment you have and for making decisions. Xx
Thanks so much for replying Evie.
Unfortunately I got my oncotype result and they are recommending chemo. Had my first oncology meeting today after all the surgical ones since June & I was not convinced but think there's very little choice.
Savana, I really hope you get the result you are hoping for.
Evie, thanks for all your advice. I'm disappointed with their rational for chemo seems like its a conveyor belt of "if you get this, you get that" no thought to other options.
Hi Jo22 and Savana - I don’t mean to intrude on your chat, but if either of you would like any more information, I am happy to answer any questions as I had a mastectomy and implant, which was a “pre-pectoral” one. I had radiotherapy afterwards, and had chemo before my surgery.
Savana - body image is important to some and not others, whatever age you are, it’s a very personal decision. From what you write, it sounds like you are taking the right decision for you - but if I can help in any way or discuss things further do please ask. Or if you just want to chat about your fears of needles/operations. This is what this lovely forum is for - to help and support, without judgement or needing an explanation.
Jo - I understand your concerns after you have already had 2 ops, but from what I have read this is not unusual when surgeons are trying to avoid a mastectomy. But frustrating for you when you asked for this in the first place. I was same age as you at diagnosis and I wanted to have reconstruction.
My very best wishes to you both as you go forward, big hugs and please feel free to ask any questions at all. Evie xx
Hi again, yes it's an implant. Pre pectoral I think it's called.Il have to do more research
as I was told it's the most up to date very expensive implant. BUT I hope I'm doing the right
thing,should I ,at MY AGE even bother with this? I still want to wear nice tops,not too tight
or loose, in the summer. So I at least look a bit womanly+as though I got a bit of a cleavage+a wear
padded bra as well. Otherwise, as I'm so trim+athletic looking elsewhere ,+as my breasts are so unfairly
small,Can't I at least feel good about myself for a few more years until I retire+shut myself away.?
But I'm so anxious,paronoid, scared, +I being late for menopause,just started properly 6 month ago,
is adding to me being indecisive,but it's all planned with hospital now,unless I back out. I'm so needle
phobic, scared of operations. scared in case dcis has spread. I've told doc not to take out lymp node,it's just
another thing IL have to recover from. I shouldn't complain ,should I ,some ladies,like yourself go through
chemo also,+radio, +far worse.
Yes agree it is worrying not knowing if it is going to become invasive or not. I was having a mastectomy but they did my oncotype test and the results can=me back yesterday so i have to go for chemo first. I'm gutted as it's the only thing I didn't want BUT i know it is the right thing to do.
I hope your surgery goes ok. Have you decided what type of reconstruction?
Thanks.Jo22. I'm 61! Masectomy in 10 days time+reconstruction at same time. I presume
docs can't tell if or when DCIS will be invasive,. Mine may never do so but then again it may.
It's the worrying what ifs going through your mind. So if I have breast removed+hopefully
dcis hasn't become invasive since lumpectomy op I had in Jan, then at least no more
worries as if it did get invasive I'd have to go through extra trauma of chemo,radio etc.
So what are you having done Jo?
Oh sorry to hear your DCIS has come back. I guess I feel like I'm having such bad luck as this is the 3rd attempt to get all the IDC & DCIS out and I'm only on the first occurrence. But I know this can be the case with smaller breasts I am 34D.
I think it is wise to remove the DCIS if you can then the risk is less for it spreading in future. How didi they predict 50/50 I didnt think they could predict that at all. Have they recommended reconstruction or have you decided against? I am only 48 and still would like to have two boobs so have been recommended the implant. I'm just not sure I trust my team now after two bad ops.
Hope yours goes well and you recovery is swift and trouble free xx
Hi. Jo. I'm probably bit older than you ,but I had a lumpectomy 10 years ago. Now the DCIS has returned
in same breast, I had another lumpectomy in January this year. Doc couldn't get all the dcis out as I'm small
breasted ,+radiotherapy won't be much use. There was n clear margins this time. Doc recommends mastecomy,so I'm due to have op in 3 weeks time. 50/50 chance dcis may become invasive.
I may have an unnecessary op,it may not become invasive till I'm 80,by which time I may not care.
I hope I'm doing the right thing. Savanah
I have had two lumpectomies on one breast to remove IDC and some DCIS. As the 2nd surgery didn't have clear margins they are recommending mastectomy. I asked for this right from the start but they didn't recommend it. Now I feel like I'm back at square one. Has anyone else had this?