68590members
360739posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Mastectomy after 2 lumpectomies?

13 REPLIES 13
Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Thanks.Evie for helpful advice. Il be in touch as soon as feel up to it. S.  X

Highlighted
Community Champion

Re: Mastectomy after 2 lumpectomies?

Hi Savana - I’ll see if I can help with your questions.

Yes I think the recovery times you have been given are good guidelines, but as always the best advice is to listen to your body too and don’t rush things. You are also right, everyone is different. You will need to give your body time to heal and recover. To begin with you will be given arm exercises to do, and it really is vital to do them regularly just as you are instructed in order to get back the full movement in your arm again. I’m sure they will tell you to build up slowly, don’t start with 2 hours of gardening/housework etc., but your body will soon tell you if you overdo things. If you have problems at any time, do speak to your nurse/team and they may send you for some physio just to help things along - I had a couple of sessions.

The drain is more of a nuisance than anything else. I would suggest getting some sort of shoulder bag to carry it in so you don’t catch it when on the loo etc. You could use any bag you have/make something or I found mine on a site called Drain Dollies https://www.draindollies.co.uk you could look and see what I mean. The drain site is covered with loads of dressing so it would be hard for infections to get in - but do ask your team any questions like that, they are good questions and they will reassure you and help you to minimise infection.

You ask another good question about how long implants last and I don’t know the answer, even though I have one! It is on my list to ask at my next check up. I don’t remember being told that mine would need replacing, but I have since read that they don’t all last forever - or maybe I just zoned out at that point and didn’t want to hear about future replacements! If you do find any more answers, I’d be interested to hear.

I wish you all the very best for your op on Tuesday and for your recovery. Please do come back and let us know how you get on, or if you have any questions or concerns at all before the op. Hugs, Evie xx

 

 

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

  • Hi Evie,nice to be in touch with you. I'm lucky I'm not having radio or chemo, nor any
  • Lymph nodes removed.
  • Presuming  of course dcis has not become invasive since my lumpectomy I
  • had in January. How long does it really take before you feel OK to lift, do housework,move arm etc
  • where the op has been done? After 3 weeks but still be careful for up to 3 months .
  • That's what I've been told. But everyone's different,arent they. I'm concerned about the drain
  • I l have in me, never had 1 before. +concerned reg infection. How did you get on? Also 
  • is it true implants don't last until you re about 90 years old,if we are lucky to live that long
  • of course. I've read that they have a lifespan+will need to be removed eventually as they won't
  • last 30 years. I must read up on this,i wasn't given much info reg them. Good luck in your decision
  • also Jo, I let you know both know in 2/3 weeks how I'm feeling  after op,if you like?It's on Tues. X
  •  
Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Thanks Evie, I've chatted it through with a number of people now and understand that the team are just offering their best advice, they're just not very good at delivering it! 

Thanks for all your advice 🙂 xxx

Highlighted
Community Champion

Re: Mastectomy after 2 lumpectomies?

Jo - I’ve seen that you’ve started a new thread about chemo and had some great replies. It’s your body and it’s right that you ask questions. Some people don’t want to know, but others do - it’s very personal. I had a very patient surgeon and oncologist and asked lots of questions. I am sure you could ask for a second opinion too. All the very best to you for whatever treatment you have and for making decisions. Xx

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Thanks so much for replying Evie.

Unfortunately I got my oncotype result and they are recommending chemo. Had my first oncology meeting today after all the surgical ones since June & I was not convinced but think there's very little choice.

Savana, I really hope you get the result you are hoping for.

Evie, thanks for all your advice. I'm disappointed with their rational for chemo seems like its a conveyor belt of "if you get this, you get that" no thought to other options.

Highlighted
Community Champion

Re: Mastectomy after 2 lumpectomies?

Hi Jo22 and Savana - I don’t mean to intrude on your chat, but if either of you would like any more information, I am happy to answer any questions as I had a mastectomy and implant, which was a “pre-pectoral” one. I had radiotherapy afterwards, and had chemo before my surgery.

Savana - body image is important to some and not others, whatever age you are, it’s a very personal decision. From what you write, it sounds like you are taking the right decision for you - but if I can help in any way or discuss things further do please ask. Or if you just want to chat about your fears of needles/operations. This is what this lovely forum is for - to help and support, without judgement or needing an explanation.

Jo - I understand your concerns after you have already had 2 ops, but from what I have read this is not unusual when surgeons are trying to avoid a mastectomy. But frustrating for you when you asked for this in the first place. I was same age as you at diagnosis and I wanted to have reconstruction.

My very best wishes to you both as you go forward, big hugs and please feel free to ask any questions at all. Evie xx

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Hi again, yes it's an implant. Pre pectoral I think it's called.Il have to do more research 

as I was told it's the most up to date very expensive implant. BUT I hope I'm doing the right

thing,should I ,at MY AGE even bother with this? I still want to wear nice tops,not too tight

or loose, in the summer. So I at least look a bit womanly+as though I got a bit of a cleavage+a wear

padded bra as well. Otherwise, as I'm so trim+athletic looking elsewhere ,+as my breasts are so unfairly

small,Can't I at least feel good about myself for a few more years until I retire+shut myself away.? 

But I'm so anxious,paronoid, scared, +I being late for menopause,just started properly 6 month ago,

is adding to me being indecisive,but it's all planned with hospital now,unless I back out. I'm so needle

phobic, scared of operations. scared in case dcis has spread. I've told doc not to take out lymp node,it's just

another thing IL have to recover from. I shouldn't complain ,should I ,some ladies,like yourself go through 

chemo also,+radio, +far worse.

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Hi Savana,

Yes agree it is worrying not knowing if it is going to become invasive or not. I was having a mastectomy but they did my oncotype test and the results can=me back yesterday so i have to go for chemo first. I'm gutted as it's the only thing I didn't want BUT i know it is the right thing to do. 

I hope your surgery goes ok. Have you decided what type of reconstruction? 

Jo xx

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Thanks.Jo22. I'm 61!  Masectomy in 10 days time+reconstruction at same time. I presume 

docs can't tell if or when DCIS will be invasive,. Mine may never do so but then again it may.

It's the worrying what ifs going through your mind. So if I have breast removed+hopefully

dcis hasn't become invasive since lumpectomy op I had in Jan, then at least no more 

worries as if it did get invasive I'd have to go through extra trauma of chemo,radio etc.

So what are you having done Jo?

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Hi Savanah,

Oh sorry to hear your DCIS has come back. I guess I feel like I'm having such bad luck as this is the 3rd attempt to get all the IDC & DCIS out and I'm only on the first occurrence. But I know this can be the case with smaller breasts I am 34D.

I think it is wise to remove the DCIS if you can then the risk is less for it spreading in future. How didi they predict 50/50 I didnt think they could predict that at all. Have they recommended reconstruction or have you decided against? I am only 48 and still would like to have two boobs so have been recommended the implant. I'm just not sure I trust my team now after two bad ops.

Hope yours goes well and you recovery is swift and trouble free xx

Highlighted
Member

Re: Mastectomy after 2 lumpectomies?

Hi. Jo. I'm probably bit older than you ,but I had a lumpectomy 10 years ago. Now the DCIS has returned

in same breast, I had another lumpectomy in January this year. Doc couldn't get all the dcis out as I'm small

breasted ,+radiotherapy won't be much use.  There was n clear margins this time. Doc recommends mastecomy,so I'm due to have op in 3 weeks time. 50/50 chance dcis may become invasive. 

I may have an unnecessary op,it may not become invasive till I'm 80,by which time I may not care.

I hope I'm doing the right thing.  Savanah

Highlighted
Community Manager

Re: Mastectomy after 2 lumpectomies?

Hi Jo22,

Sorry to read your post, this must be a frustrating time for you. You are welcome to call our helpline and speak to our clinical nurses for support and information. They are available on 0808 800 6000.

Sending you our warmest wishes from everyone here,

Saskia 

Highlighted
Member

Mastectomy after 2 lumpectomies?

Hi All

I have had two lumpectomies on one breast to remove IDC and some DCIS. As the 2nd surgery didn't have clear margins they are recommending mastectomy. I asked for this right from the start but they didn't recommend it. Now I feel like I'm back at square one. Has anyone else had this?

Thanks

Jo