Hi Rizzer…..I don't want to leave the bedroom unless I absolutely have too......I am so teary and cant stop crying and the worst of it is I actually am feeling not as much pain today so you would think I would want to get up but I'm really not in the mood to be positive today so I am going the lie here and weep for a while.....have a good day everyone.....I actually do mean that x
Hi Debelina, glad to hear you’re up and about. The bedroom carnage can wait! Nice to hear you’ve made contact with someone on the ward and hopefully can give each other a bit of moral support thru the dreaded Chemo. Thanks for sharing your experiences with the axillary clearance. I hope you make it out of the bedroom and well past your son’s room today! Trying to live a bit rather than just exist while waiting for the op again on Monday. Consultant hassled me to stay on with the exercises as he said the scar tissue will be a pain for him (and me) to deal with otherwise. Wishing everyone going through this all the best X
I slept soooo much better last night after relenting and taking something to help me sleep so I slept for a solid 5 hours without waking......I can really feel the difference today because I managed to walk from our room into our sons room......saw the carnage and promptly came back to bed and slept for two hours so that's progress in my book
I am petrified of chemo.....my but I'm going to start reading the info books the nurse gave me this evening.
I knew from my initial dx that my lymph nodes where holding some cancer and that made it easier for me to accept having them all removed.....in the end only 1 out of the 20 was cancerous but it was one too many for me!
I don't feel pain at all under my arm sometimes a bit of tingling and today is my first day only using paracetamol so for me its manageable. They used glue and dissolvable stitches which are now showered away and there is a lovely healthy pink line for my scar and its so so thin. My vest top isn't irritating it at all. A girl on my ward had her mastectomy 3 weeks and was in for her axillary clearance......out of 16 lymph nodes 13 of hers was cancerous.....and we are texting because we will probably have chemo at the same time.....her axillary clearance recovery sounds even better than mine.
This is so wick xxxx
Rizzer and debelina😘sorry you’ve both got to have chemo 👭and rizzer sorry you’ve got to have node clearance now too. Please look at the starting chemo threads, lots of good tips and advice on there, if you are starting in December there is already a starting Chemotherapy December 2019 thread started. It’s such a lot to take in just now, so have a read through those and if you want a laugh please read our crazy Oct17 chemo thread, if nothing else it will get you 😁 as you read us navigating through 👭together. You will always have people on here that understand and don’t forget the ask the nurse facility and the someone like me options on here and find strawberry blondes mountain lion story 💪💪 sending big ❤️And ask away about anything, someone will always be able to give love and support and any tips 💕💕✨✨Shi xx
Thanks Debelina. I hope you had a better night? I’m sorry you’ve got to go thru it too. How are you feeling about Chemo starting? Have you had full axillary clearance then as part of your surgery? Thanks for responding to my post. It’s a comfort to know someone understands. Sending you lots of love X
Oh Rizzer I am gutted for you.....to go from one operation to another so soon isn't fair xxx
I got my letter today confirming my results and will be staying with you on our journey which looks like is going to last longer than we hoped. I'm having my chemo appointment on Monday.
Sending you lots of love x
Hi. My cancer is in my lymph nodes and I have to have another op to remove all my nodes. Probably Monday. I’m certainly having Chemo and Radiotherapy. I am totally gutted X
Awwwww Rizzer our poor bodies......I was horrified when I saw my tummy scar and my tummy/boob......she looks like a boob but there is no nipple and the scar are pretty tremendous holding it in place across the middle of it......I could have nipple reconstruction to add one on but I am not going too....I made the decision to go through the reconstruction and mastectomy during one operation because I don't want to go back into hospital for anymore operations as my anxiety is too high. I feel a bit better today now I have seen my body but who knows how I will feel tomorrow!
I am so glad you are getting your results in the morning and not in the afternoon......less waiting......please let us know how you get on and naturally sending you positive hopeful thoughts x
You so didn’t the need the pneumonia on top of op recovery as well, but I’m glad to hear you’re up and moving about, Debelina. I hope you have a better night tonight x
I’ve been eyeballing my mastectomy scar today, having thought... I’m going to give myself a cricked neck by avoiding looking down in the bath. Not horrific or anything, just a bit emotional to see a flat chest on one side. Bizarrely keep getting the ‘let down’ prickly experience familiar from breastfeeding, but clearly there’s nothing there now. Makes me sad when it happens.
Ive been dedicated to doing my arm exercises and although painful, I hope I’m making progress. I’ve found the morphine unpleasant (nausea/dizziness) so am sticking to the paracetamol or codeine.
I have my results tomorrow at 9.30 so am fearing all sorts of horrible outcomes. Still, there’s absolutely nothing I can do about it now.
wishing you all lots of love and healing X
I feel like absolute not niceness but I am still glad to be home. My hubby got a call at 11pm last night to collect my medication but to be honest I had such a rough night I couldn't have told you if it made a difference!
I cannot believe how poorly I feel......I am constantly shivering and sweating and its awful.....I know this is the pneumonia and I need to be over it so much.
On the absolute positive side of things my diep scar is healing so well, my tummy tissue that is now my new breast is so pink and healthy and although under my arm where I had my lymph nodes removed is sore and tender its bearable especially as I had no feeling under it yesterday. I can safely say that my recovery from the mastectomy and DIEP is so unbelievably not scary and I am a real pain diva!!!! Today I walked around my bedroom with a straight back
Dreading tonight and the night chills
Okkkkkkkkkkkkkkkkkkkkkkk feel so much better after that little rant...….how has everyone coped with their recovery today?
😁😘debelina, I had pillows all round me in bed when I got home, like a wall of pillows, it just made sure I didn’t do any moving through the night when back in own bed. Now amazing lady, rest up and enjoy being home 😁👍❤️💕💕✨✨Shi xx
Great to hear from you. Have been wondering how you’re doing. No clot, thank goodness, but pneumonia? That’s certainly something you could have done without. Reading between the lines of your email... Are you glad to be home by any chance!!? 😉 I hope you can get comfy enough to sleep without your pain relief. Very very glad to hear from you and sending you a big hug Xx
Ladies...…… I AM HOME I AM HOME I AM HOME Ok so I was supposed to get out on Friday but I got a clot in my lung which ended up thank god not being a clot but pneumonia instead...…...and ok I am home with no pain relief and waiting on my hubby getting a call letting him know when he needs to go back and get it but I cant believe I am home!!!!!!
Happy to answer any questions...….and big hugs to us all xxxxxxx
Thanks rizzer. Sounds like you are doing great. I’m hoping to be able to do similar.
Thank you for the lanyard tip, will have a look at getting some.
Wishing you luck with your recovery and onward journey xx
Lots of love to you. I’m at home recovering from the mastectomy and sentinel node biopsy. I am also having a delayed reconstruction (it all felt like too much to contemplate for me at this point).
In terms of pjs I would say, based on where my one drain is, it’s fine to have long sleeves buttoning at the front. Mine comes straight down slightly to my left side and is taped to my ribs. You can slide that arm in first. It is also very quick and easy from my experience to empty the drain.
One tip I would give - I can’t remember now who suggested it - was to get hold of some cheap lanyard holders on amazon so you can hang it round you neck and clip the drain to something for hands-free bathing/dressing.
Ive found it hard not to feel a bit low about everything since the op, but I know this isn’t the case for everyone. And yes, the results are looming. The docs and nurses were absolutely lovely tho and with their support and your loved ones around you you can do this lady.
I walked a couple of miles (slowly!) yesterday (Op on Monday 22nd) and am cracking on with arm physio exercises so physically you should feel a lot better after 2-3 days. Sending you lots of hugs and healing wishes. If there’s anything else I can answer around the op please just get in touch Xx
Hi. I’m having a single mastectomy (delayed reconstruction) and senetal node biopsy on Tuesday next week. I’m still not sure how I feel about it. I will be glad to get the cancer out of my body but I’m not sure how I will feel about my post op body. However hard I try I can’t imagine what it is going to look and feel like.
It has been good to read people’s experiences and advice on this thread. I have only bought long sleeved button through shirts and pjs, mainly because I’m always cold - do people recommend short sleeved? If so, can I ask why?
Also, how have people got on with the drain? Is it easy to empty/change? My partner isn’t very good with blood/bodily fluids but insists he will change it for me!
I still don’t know what my follow up treatment is going to be which is playing on my mind. I feel like I’m in a bit of a limbo - knowing the cancer is going to be gone (hopefully) but not knowing what’s coming next.
Good luck and big hugs to everyone having surgery this month xx
Hi rizzer sending big ❤️ Glad to hear you are home and sorry you’ve got post op blues. I can only speak for myself here, post op is a bit of a right, that’s the op done 👍then you kind of morn the loss of your post op body, but celebrate too because they’ve got the cancer out, so it’s quite a strange feeling, you also have to say hello to new body and I said right we are getting through this together. Hope that doesn’t sound too mad. To help my husband feel included and helpful, while everything was heeling, I asked him if he would mind just checking the wound when I was concerned after bandages were off to see what he thought, it did help him feel useful, included and a help to me and it got him over any worry of looking at me. They honestly don’t care you know as king as we are ok, that’s all husbands, wives, partners care about ❤️ I don’t know if this helps at all, but hope it does 😘💕💕✨✨Shi xx
Anyone around? Feeling pretty low about it all. Today been a sad day. Does anyone else have experience of post-op lows or advice they can share? X
Hi all, how is everyone doing?
Im home now after the mastectomy and lymph stuff. I hope you’re recovering well Debelina. Feel weird looking at my flat left side but that’s to be expected I guess. Your op sounds much more involved with the tummy. I imagine you’re pretty sore. I hope you have some good drugs. Sending you lots of healing X
Debelina, ❤️👭❤️ For tomorrow, this is like a grand national hurdle that you will fly over, have total trust in your surgeon and team and let them take care if you. You just let yourself and body heal and rest afterwards, you will be amazed how quickly your body will heal, just be sensible and follow your teams advice and guidance and for anything else you’ve all us on here, the ask the nurse facility and the someone like me facility 👭👭 you’ve got this 💪💪👍👍😘😘 and we will all be 👭👭with you tomorrow ❤️💕💕✨✨Shi xx
Hi there...… I am having my surgery tomorrow. I am all marked with the permanent marker where the surgeons are going to remove my breast and part of my tummy for my diep reconstruction...… I have just had my injection to avoid blood clots and my 'big' socks are on my bedside table to put on in the morning. I need to be at the hospital for 7am and I am the only one booked into the theatre tomorrow so they are planning to begin at 8.30am.....the surgeons hope to be finished in 8 hours. I so need this operation.....my breast is so sore and I can now see where the tumour is pressing at my nipple which makes it all seem so real now. I only need to hold it together until I say cheerio to my son who is only 12 years old in the morning then I am going to feel like I can totally go to pieces so he won't see. I couldn't have gotten this far and held it together if I didn't have this forum and been able to read everyone's experiences and feelings.....so a massive thank you to you all.....sending much hope to you all xxxxx
There was no way I was missing my concert lol.
I have just finished chemo and starting rads this week.
Best wishes everyone x
I had surgery on Friday and I got home Saturday. I'd recommend taking a dressing gown as well but they will give you a hospital one if you don't have one. Also I took jammies in with me but also took a light top and shorts which I ended up wearing instead. My top is really lose and quite strappy so it didn't get in the way of the drain and didn't restrict my arm which is more sore than my boob (I got a mastectomy and then implant reconstruction.) They offered me dihydrocodine before bed, my advice TAKE IT, I didn't as I felt amazing, like I thought I could run a marathon but believe me it was the meds talking, i woke up at 4.30 barely able to move. I've found it's best to avoid the pain in the first place rather than have to make up for it. Good luck and know that there is loads of support, also make sure you don't go home until you feel that you are comfortable, it took me until the early afternoon to stop feeling woozy every time I stood up. They did say that there was no rush which made me feel better about taking my time.
All the best,
Thanks for taking the time to post Katy. I can’t tell you how much difference it makes to feel that someone really understands. Looking back at what’s behind you and offering help to those about to face it, is really kind of you and everyone else who has contributed their experiences. It made me smile to think of careful dancing at Wembley! Good on you.
Glad you managed to avoid the rib removal. Have you been through Chemo or radiotherapy subsequently?
I had my mastectomy in May and I found the forum really helpful so I thought I would add my 2 pence!
I echo what Shi said about taking to the hospital. I would also recommend a small pillow to put under your arm pit especially at night. I was given a heart shaped one (with matching bag to put my drains in) and it made a real difference.
I had a full node clearance from arm pit and also had node removed from my chest. This involved going between my ribs to get to them. I have 4 removed. They did warn me that they may need to remove a bit of rib if they couldn't get to them, but luckily this wasn't needed.
Because of the chest nodes I was in hospital for three days, so would also say don't forget your phone charger!
The drains were more of an inconvenience than painful, but u get used to them. I was really worried about having them out but they came out easily and pain free 🙂
Once out of hospital I was surprised to be virtually pain free and was dancing (carefully) at a concert at Wembley only 3 weeks later !
Hope this helps, happy to answer any questions you have, especially about the internal nodes as this is a bit more unusual.
Best wishes everyone
That’s great you are having chat before Monday. I always went armed with a notepad, questions written down. They are the experts and do treat bc all the time ❤️ Get yourself a nice scarf while in London to wear for after the op and a new lippy ❤️ A new lippy is always good. If I can’t get on forum the next few days please use ask the nurse facility and there will alway be others who have had surgery already popping in with any help and support they can offer ❤️ Be gentle with yourselves everyone it’s not a sprint, but you do feel like giving usain bolt a run for his money at times. And well done everyone for being vigilant and taking action to see your doctors, you are doing amazing. If you feel able to tell as many people as you can to check themselves regardless of age ❤️ It’s so very important ❤️ Even if it’s a random stranger, your conversation could help save a life ❤️💕💕✨✨Shi xx
Thanks Shi x You’re so kind and supportive.
Ive decided to take action and see if my consultant could see me just for a quick chat before Monday. Want to get my head straight as poss before the weekend. So, currently on train to blimmin’ London (not ideal but his lovely secretary says he will see me and it’s there or nowhere!) in the hope for some pearls of wisdom.
wishing everyone having surgery all the very best X
Sending ❤️ Because op was first for me, I went back after op for results, you just have to take one step at a time ❤️ Get the op out of the way and healing from that, then your teams will know which treatment plan after is they way they would like you to go, remember it is always your choice about treatments, you are in control even when it feels like you are not. It’s easy to be in 🤯🤯🤯land with everything because it’s like being sucked up in a hurricane and your flapping your arms madly trying to fly, you will find your peace with this in your own way, I shopped and danced and went a bit bonkers through it all but this forum and all the beautiful support and care on here (it was the breast cancer care forum in 2017) from everyone gave such ❤️👭💪 it helped more than words can ever say and you will find this too 👭👭you will never feel alone or like there is something you can’t ask, everyone helps each other as much as we can, with kindness, care, support and love and if you ever read the oct17 chemo starters thread which I was on a lot of 😂🤣😂🤣😂🤣 which you never expect but find on here as everyone 👭👭👭each other through 💕💕✨✨Shi xx
Thanks for setting up this thread. I’m having a mastectomy on the 18th and I’m very keen to hear any tips anyone might be kind enough to share.
I have another question that’s bugging me about what happens after the histology results come back post op - I.e do you see the oncologist for those, of back to the surgeon? I’m interested to know if anyone had experience of the internal mammary lymph nodes being affected or not? I’ve just got myself all in a sweat about that, having thought that the axillary nodes were the only ones to think about!
Hi Shi...…..I have to be honest I did watch a you tube video this morning and although my hubby is horrified that I did this after watching it I have felt calmer than I have in ages.....I know its not for everyone but I helped me.
I also have bought the M&S bra howeverrrrrr I bought it in my current size 38d......I know I don't have the receipt but the label is still on it so I might pop back and ask if they would be able to change it...… I also bought button up jammies but I have long sleeved ones...I cant give blood unless they take it from my hand or foot so maybe they'll be ok...….. this is exactly why I needed to come onto this fourm…..the advice is so much appreciated x
Debelina ❤️ I don’t know if it will help, but I googled an operation that I had which was a therapeutic mammoplasty and watched a video Of the same op so I knew what would be happening while under the anaesthetic, it calmed me and also knowing it was going to be out was another positive as far as I was concerned. Remember your team do these operations all the time, you will be in safe hands. Get your bag ready, button front short sleeve pyjamas, flip flops, dressing gown one with pockets and a tie bit inside in case you are having bottle and drain, easier to carry round, hand cream, lip balm and anosol (the op meds can bung you up after op) take it steady after op and let your body knit back together, it’s an amazing thing and being gentle with it helps ❤️ Use the someone like me facility on here too it will give you reassurance ❤️ I did use a M&S zip front sports bra with racer back after op go up 2 sizes if you do, also few scarves to drape down front of tops after op if your team just wants you in vest tops can disguise any unevenness very well ❤️ Others will be along to offer support and advice soon 💕💕✨✨Shi xx
I am having my surgery on the 19th to have a right mastectomy and my lymph nodes removed..... tonight I feel calm...… this morning I woke up petrified x
Hi, this thread is for anyone having Surgery in November 2019. If any of us can pass any tips on or anything, please ask away on here, there will be 👭 ❤️ Here for anyone who needs us. 💕💕✨✨Shi xx