Oncotype Results

[Helenvb]

Hi, my Oncotype score came back at 28, so very borderline.

Stage 2, er+, n0, her2-.  The result was unexpected so have nearly finished my week of radiotherapy which was already planned.  It’s my decision whether to have chemo and really struggling to make a decision. The oncologist is not really recommending chemo as not clear it would add enough benefit but it is up to me…

Finding this really hard.

helen 

[Whatatit]

Hi Chance2019,

I think is just natural to worry about it all, its all unknown for us all. Breast cancer is just a waiting game but the most frustrating, nerve racking, mind messing game I've ever played. You do just take it all one step at a time and it is surprising how quickly the time goes but the waiting for results feels like an eternity. 

Well I haven't got my results back, went to see the oncologist on Tuesday and she said that she doesn't expect them to come back high so has referred me to radiotherapy and started me on hormone treatment and they should have the results by today but will discussed in the MDT meeting on Tuesday and call me. Me being me and having no patience I called my breast care nurse today to see if she had them but she said they weren't back and will speak to me on Tuesday so the wait goes on.

On Tuesday I was happy and relieved but as the week has gone on the nerves have been creeping back in and my head is starting to spin again because until I hear that result I don't have a defiant plan going forward. I have an appointment on Wednesday for my radiotherapy set up (not sure what its call) so fingers crossed this will still be happening.

I did giggle to myself reading about the free lift. I've ended up with one small than the other so feeling a bit loopy at the moment but no plans for topless sunbathing at the moment 😂

Whatatit ❤️

[Gill3105]

Hi ladies just reading with interest on your oncotype testing.  I was offfered this last year after surgery to see if I would or would not benefit having chemo.  So my tumour was sent of to California and yes it takes a minimum of 3 weeks.  Longest 3 weeks of my life.  Had prepared myself for chemo.  My results were 22 and my oncologist informed radiotherapy and hormone tabs for 5 years would do the same as 6 sessions of chemo so this is where I am today with almost 1 year down on the hormone tabs.   I have read somewhere that the figures for the scoring have changed slightly also but I could be wrong on this so don’t quote me so to speak. Wishing you all good luck on your results.   Best wishes and lots of love xx 

[Chance2019]

Hi Whatatit

Thank you 

I am so sorry to hear that your results won't be available until later and I totally relate to how you are feeling (hugs), I was the same and honestly I am still the same now.   I am really getting annoyed and fustrated with myself that I am allowing this.  It's all the emotions, I am ok one minute and feeling strong saying I can do this and tearful the next and very scared. 

I know that I am very lucky that mine was  Stage 1, the size was 40mm and also ER+ PR+.    When I was first diagnosed, one of the options was Chemotherapy first to reduce the size but was waiting for the Her2 results, when received  just opted straight for Therapeutic Mammoplasty surgery.   My right breast was a lot larger than my left breast and the good thing is it now looks the same size (one bonus I got a free uplift ).  

So I always knew that Chemotherapy was a possibility, but was hoping, that my Oncotype score would come back low and would go straight for Radiotherapy and Hormone Therapy.    I am not looking forward to this part either  I know that I should not try to worry about it, but I cannot help it,  it is always there at the back of my mind. I think mainly it is the unknown and how I will react to the treatments.   

Hopefully I will learn how to deal with everything one step at a time,  like all the amazing others who are going through/have gone through this journey that none of us want to be on.

I hope that you don't have to wait too long, please let me know how you get on x

Chance2019

P.S.  I love your user name, this brought a smile to my face when typing this 

[Whatatit]

Hi Chance2019,

It is a really big decision to make. I think by giving it all now it gives it a better chance of not coming back, if you don’t you may always be worrying about what if. Good luck with your assessment this week.

We are very similar, I am also 48 and am grade 3. Mine is an invasive lobular but I am also bilateral and the other side was invasive ductal grade 1. I saw the surgeon on Friday and he kept saying after chemo which really started to worry me. It was like it has been decided but until I see the oncologist and get my results I wouldn’t know. I had a appointment tomorrow for my results but I found out today my results wouldn’t be ready until the later this week. My mind is all over the place at the moment and just need to know what is going to happen next as life is in limbo at the moment.

❤️ xx

[Chance2019]

Hi

Yes the wait did seem quite long, just over 3 weeks and I did find the waiting time very stressful.

With my score of 25 and 12% distant recurrence risk, Chemo was recommended due to age (48) and also being Grade 3.  I have decided to go ahead with this, to be honest with you, I still don't know whether this is the right decision, but then also agree with my Oncologist and fantastic, loving and supportive family and friends, that I have to go with this.  

I am due to have an Chemotherapy Assessment this week, they gave me some time to think about it before I made my final decision.  

I am very scared and worried of the side effects of all the treatment, but hopefully things will be ok.  I will also be having radiotherapy and hormone therapy after.

I hope that you get your results soon xx

Chance2019

[Whatatit]

Thank you for your reply’s

Joemic - sorry you results was so high and good luck with your treatment.

Mel - hopefully your wait will not be to long

Chance2019 - that was quite a long wait. I hope you don’t mind me asking as your score is 25, are you having chemo?

thanks x

[Chance2019]

Hi

I had my Surgery at the end of April and had my results from Surgery on 14th May 2019, and the sample was sent after this date.   I had an appointment booked for the 10th June and received results from Oncotype then. 

My score was 25.

x

Chance2019

[3331melanie]

Hi

I am waiting for oncotype results too. I was up told it can be up to four weeks (they go to the USA).

Mel x

[Joemic]

I had to wait 3 weeks to get the result from my onco test, my score was 40, high risk hence chemo😟

Joemic X

[Whatatit]

I am 6 weeks post surgery and was told 2 weeks ago that a sample was being sent for Oncotype test. Can’t tell me when the sample was sent so don’t know how much longer I have to wait for the results, have an appointment on Tuesday with oncology so hopefully will have them then.

I’m interested to know how long other people wait for their results and what was your results?

Thanks