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Potentially Kadcyla after surgery

Community Manager

Re: Potentially Kadcyla after surgery

Hi Phil86

Thank you for posting on the Forum, and I'm sorry to hear you're feeling anxious. Hopefully someone will join the conversation soon, but if you would like to talk things through, our nurses can offer support, information, or just a listening ear. You can post a question in the Forum's Ask Our Nurses board, or if you prefer to speak to them on the phone, you can call them confidentially on freephone 0808 800 6000.

Sending you my best wishes 🌞


Potentially Kadcyla after surgery

Hi all. I was diagnosed with stage 2 (grade 3) triple positive BC in November 2020. This was such a shock as I’m an active and healthy 34 year old woman. I was lucky enough that the cancer hadn’t spread but still needed chemotherapy due to it being aggressive. 

I struggled through 6 horrible cycles of chemo and had a lumpectomy a month later. I started herceptin on my 4th cycle of chemo and now get an injection in my thigh every 3 weeks (for a year I’ve been told). 

Yesterday I received my pathology results from my lumpectomy. It was quite unclear to be honest. Even though the surgeon got the tumour and my lymph nodes are clear, I need to get further surgery in less than 2 weeks. I was told that this is because they have to follow guidelines about how much tissue they take away and not enough of mine was (about 1mm). I was also told that even though there was no sign of cancer in my lymph nodes that I might need further chemo as there was no sign of chemo in my lymph nodes. I’m getting radiotherapy also. I’m so upset about this as the cancer is gone but it’s just to prevent it coming back. I know I should be happy that the doctors are trying everything to stop it recurring but the thought of more chemo is causing me so much upset and anxiety.


I spoke to my nurse and she thinks the chemo that the doctor was referring to is Kadcyla. Is anyone getting this treatment? If so, what side effects have you experienced? I really want to be able to work as I couldn’t during previous chemotherapy. 


Thank you. P x