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Re excision of nipple following nipple sparing mastectomy

5 REPLIES 5
beachcomber
Member

Re: Re excision of nipple following nipple sparing mastectomy

Hi Linda, well done on your return to work; I hope it goes well for you.  I have to go back to see my surgeon to arrange a date for the nipple removal and i have to see an oncologist as well though further treatment is not likely.  I feel as if I am doing well as its only 2.5 weeks post surgery - some soreness in the breast where i expect the implant is 'bedding in' and i definitely need a nanny nap in the afternoon Smiley Happy as I get so tired. I still find it awkward sleeping at night as I have to be propped up and not lie on my side. However, I am lucky the DCIS was detected during routine screening mammogram and treatment so far has been effective.

Linda17
Member

Re: Re excision of nipple following nipple sparing mastectomy

Hi Beachcomber

In answer to your question I am doing OK although I wouldn't say that I'm back to normal.  I had LD flap reconstruction and I still have some discomfort on my back and on the side under my arm but my boob and nipple do look good.  My consultant said it can take up to a year to feel completely normal again.  I'm going back to work next week and am expecting to feel tired and will probably get some backache but I do feel ready to go back.

 

When will you be having your nipple removal?

SallyG63
Member

Re: Re excision of nipple following nipple sparing mastectomy

Hi,

I had my nipple only (and a little bit behind) removed when I had my 1st cancer 12 years ago. I was never offered any sort of reconstruction but it was fine. I could wear normal clothes and padded bras evened it out. I also did go bralesss in vest tops in the summer and it wasn't really noticeable.

A second cancer has meant a mastectomy with no reconstruction option so I've done it the other way round.
beachcomber
Member

Re: Re excision of nipple following nipple sparing mastectomy

Hi Linda, Thanks for your reply. I have been told it is possible to reconstruct the nipple at a later date, but not at the same time as removing the original - so another operation, ;-( .   

You are much further on in your recovery than I am.  How are you doing?  Are you completely 'back to normal' or what difficulties, if any, are you experiencing?   thanks for your time. x

 

Linda17
Member

Re: Re excision of nipple following nipple sparing mastectomy

Hi, I didn't have my nipple removed as a second op but I did have my nipple removed when I had my mastectomy 9 weeks ago.  I also had reconstruction and my surgeon did a reconstructed nipple at the same time which I am very happy with.  Is this what they are planning to do for you once they have removed your nipple?

beachcomber
Member

Re excision of nipple following nipple sparing mastectomy

Hi, its my first time of posting even though this site has given me lots of support and useful information throughout my 'journey'.

2 weeks ago I had a nipple and skin sparing mastectomy and immediate reconstruction with an expanding implant for widespread DCIS.  Luckily the lymph nodes sampled were clear and there was no evidence of invasive disease (yay 🙂 ).  Unfortunately there was evidence of a remaining duct containing HG DCIS behind the spared nipple so my surgeon has recommended removing the nipple.  I was so pleased at the initial appearance of my reconstructed breast with my own nipple that I am finding it hard to come to terms with losing it - even though it is probably the most sensible route to take.

Has anyone else had a similar experience?  ie. removal of nipple as a second op following mastectomy, and if so can you give me any feedback about the experience. Thank you