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SURGERY APRIL 2018

Fairy Dust
Member

Re: SURGERY APRIL 2018

You still up too, Feenix. You'd spotted I was awake in the wee hours before, so your sleep must be to pot too. I'd nodded off, but seem to get super hot flushes at night and they wake me up. By the time I've managed to cool down I'm wide awake! Hoping energy levels start going up soon and need to start cutting down on naps if I'm ever going to get back to work. 

 

Just thinking, Jem must have plenty of cupboard and freezer space for 2 trolley loads and I think Sally may recommend the Cornish air (or possibly cream teas/pasties) for healing! Thinking about you both for next treatment.

 

💖💕💞

Feenix
Member

Re: SURGERY APRIL 2018

Love the thought of a mad dash around the supermarket aisles Jem ...  lots of food in freezer though Smiley LOL  wish I had a fraction of your energy ... hoping all goes well on Tuesday xx

 

So pleased your wound has healed Sally .... will think of you on Friday ...

 

hope everyone else is doing ok

found a lucky Buddha 

1BF8E8DD-FF77-484D-A65A-D69DA6542BE6.jpeg

SallyG63
Member

Re: SURGERY APRIL 2018

Cheers Jem,

A hot flush at the right time may come in handy Friday cos nothing cools me down when I'm having them!!

Sally
JemPD
Member

Re: SURGERY APRIL 2018

Sally pleased went as well as it could go today. Good news re no PICC line. Cold cap - first 15 mins are not good - need to plan distraction. Once you get through this it’s not too bad. Take a hat to wear home as your hair will not be great!
Great news wound is at last healing.
It’s not a great thing to have to go through but I know it’s for the best long term for both of us. Big knickers at the ready for Friday. We’re with you all the way. Xx
SallyG63
Member

Re: SURGERY APRIL 2018

Oops, that went a bit wrong!
SallyG63
Member

Re: SURGERY APRIL 2018

Hi ladies,

I'm all good to go for Friday. Got measured for the cold cap and due to my unfeasibly large brain needed the biggest size 🙂 and best of all they were happy for me to not have a Picc line as I have good veins in my hand and what I'm having initially (first 4) is fairly quickly administered so that's good!

Sally

Oncologist meeting was just to check I had no more questions which I don't. asked about my wound and we're happy to take my advice that's it's now fully healed so cancelled breast clinic wound check appointment for tomorrow.
JemPD
Member

Re: SURGERY APRIL 2018

I hope all went well today for all.
Feenix - went a little mad shopping -2 trolley loads- we have food😊. I have a little too much energy so cooking today to freeze meals for next week. next chemo planned for Tuesday . Energy levels feel a little weird as not had this much since diagnosed in Feb. Xx
Feenix
Member

Re: SURGERY APRIL 2018

Morning 

Thinking of you today Sally... xhugx

Dcb .... rads underway next week is good. Glad you seem to be doing ‘ok’ on Tamoxifen

Everything crossed for a quiet week for you Jem ... How was your Waitrose trip?... hopefully you didn’t go too mad round the aisles ... although on the other hand ..Smiley LOL

Gill... xhugx

 

 

 

 

JemPD
Member

Re: SURGERY APRIL 2018

DCB - yes busy week- hopefully not for me after last week! Sorry the tamoxifen has made you very emotional- just one day at a time . I can understand how you would almost look forward to rads- at the start of our journey never thought I would hear that- how things have changed. Which day is day 1 for you?
Gill- huge hugs your way for tomorrow- with you all the way - just make sure they don’t zap any of us- yuk us out f the way.
Sally - good luck tomorrow- just ask away. I felt strangely calm after my appointment as knew what was going to happen.
Take care all xx💕
Dcb
Member

Re: SURGERY APRIL 2018

Good luck all with appointments this week, it sounds like between all the April surgery ladies we’ve every possible type of appointment happening, oncologist, rads, dressing!  hope all goes smoothly

 

Love the knickers clip Fairydust! 

Dcb
Member

Re: SURGERY APRIL 2018

I’m good thanks Feenix.  30tamoxifen taken so far and not too bad side effects - just a few dizzy spells and very emotional! Cant wait to start rads next week, 20 sessions so hopefully all done and dusted by early July.

 

 

JemPD
Member

Re: SURGERY APRIL 2018

Fairy Dust thank you for the posting the clip - hilarous😆😆
After busy weekend celebrating eldest birthday, I am happy to say arm so much improved. Feeling like I have so much energy today, trying to pace myself. I am Off to Waitrose shopping today - sounds bizarre but I have had deliveries since February so quite excited really!!!!
Busy week for you all, just planning on 1/2 hour hospital visit this week (Picc line flush). Planning on lots of ‘normal’ things this week eg school run.
Take care xx
Fairy Dust
Member

Re: SURGERY APRIL 2018

Good morning ladies.

 

Thought I'd pass on this link from a song that was banned by the BBC in 1971. This is from Noel Edmonds' Show in 1985 when they still edited 2 verses out! Just thought we may need it for all our various reasons and appointments for this week (and next week Feenix).  Another lady on another thread here  remembered it when I mentioned swinging my knickers! Unfortunately, both Helena and I are old enough to have remembered it, don't know about the rest of you. Enjoy!

 

https://m.youtube.com/watch?v=fnb0Fn1_iDc

 

Xxx💞💖💕

Feenix
Member

Re: SURGERY APRIL 2018

Morning ladies

I hope you all had a good weekend

 

I hope your return to work goes well this week Sally... steady away. And of course you’ve got a couple of busy appointment days, Tuesday and Friday and all they entail.... I’ll be thinking of you.

 

Jem ... you’ll have had a busy weekend with Birthday celebrations yesterday. Hope your arm has improved. 

 

Gill.... hope all goes well this week.

 

Fairy Dust .... Smiley LOL hope you had a good celebratory weekend. 

 

I’ve pottered over the weekend, got back to walking, building up exercises again and that’s about it. Got a dressing clinic appt Wednesday and results appt for the week after but I won’t hold my breath considering the long delay I had before..... I could have been on a world cruise the time it took Smiley Surprised

SallyG63
Member

Re: SURGERY APRIL 2018

Jem,

I have blood test, oncologist and pre chemo with nurses Tuesday afternoon and then physiotherapy at 8 am Friday followed by chemo at 10.00.
JemPD
Member

Re: SURGERY APRIL 2018

Fairy Dust your post a few days ago was really helpful. This is a roller coaster but we all need to take one step at a time (our next for us few is hormone tabs, rads, chemo or results) but each step we take is one we take together, each one further away from the start of this and a step closer to moving on. A friend, who has unfortunately been through this, widely said that after I taken a step, take a breath look to the next step, no regrets and no looking back. I’m just going to add after each step swirl those big knickers.😊
Gill - with you all the way this week.
Sally - you can do this. Take one day at a time. When is your appt?
Fairy Dust - you’ll be our expert on hormone therapy- we’ll be joining you soon.
Feenix - big girl knickers at the ready for results- I’m ready for another whirling!!
Jem xx
SallyG63
Member

Re: SURGERY APRIL 2018

Fairydust,

Only went from near St Ives to South East London. And the fish aren't that strong! After telling tales of seeing another fisherman's rod being taken years ago and how to prevent it by tieing it to the chair when dozing or eating, he didn't take his own advice! He dozed for a couple of seconds (so he says) and woke with a start to see it going into the water!

Sally
Fairy Dust
Member

Re: SURGERY APRIL 2018

Gosh, Sally. Where do you live? Almost takes the joy out of going anywhere. You did make me giggle the other day when you said your hubby had lost a rod to a fish. Don't think I'd dare try it if the fish in Cornwall are that strong! Good luck for next week (work & chemo) I'll be thinking of you. Channel that fish's strength 😁 xxx

 

 

SallyG63
Member

Re: SURGERY APRIL 2018

Hi all,

😞 back from Cornwall after a nightmare 8 hour drive home instead of the normal 5/6 and back to reality (and washing). Back to work and starting chemo this week. Gill, I intend to work all thru, side effects allowing, but work are pretty good about me doing what I can, when I can. It probably helps that I work in occupational health.

Have a good weekend everyone and enjoy the sunshine.

Sally
Feenix
Member

Re: SURGERY APRIL 2018

How are you doing Dcb? 

Fairy Dust
Member

Re: SURGERY APRIL 2018

That's so good to hear, Helena. I know some people don't find the hormone therapy easy, but I'm not looking for problems. I'll take it in my stride and deal with it cos this is not chemo or rads.

 

You're right about the positive posts. It took me ages to post yesterday with my good news. Then I thought we all need to see the good news. We're together in this through the bad bits and we need to share in the good too. We want knicker twirling news for everybody on here. I know at the beginning it was the positive good news I was looking for and needed to keep me going. We need the success stories to come back from time to time to boost those starting out. Whichever bit of this ride we're dealing with we need to see someone whose got through that stage and is now swinging their knickers in the air. xxx

ladybowler
Community Champion

Re: SURGERY APRIL 2018

Fairy Dust

 

Keep in mind that not everyone gets all or any of the side effects that they tell you about.  There are many many ladies who have little or no side effects, however they are the ones who do not post because realistically they have nothing to report.  Myself apart from a lovely hot flush about an hour after I have taken my tablet, an occasional cramp in a leg at night (and I mean occasional) and some aches in joints sometimes (which I can not say is down to the tablet more my age!!) I am fine.

 

Helena xxxx

Dcb
Member

Re: SURGERY APRIL 2018

I keep checking back on this thread to see how everyone’s is doing. lovely to hear some positive news, and such support for everyone no matter how challenging their next steps are.  keep strong all, we got this!

Fairy Dust
Member

Re: SURGERY APRIL 2018

I can't tell you how lucky I feel, Sally. I woke this morning and have been counting my blessings. I don't think I've felt this good,  emotionally, since I gave birth to my son 25 years ago this month.

 

I don't "have" to have rads, Gill. They found a 4 mm piece in 1 lymph node when they did the snb. My wonderful surgeon said she would "just" do a level 1 clearance to check if any more were involved and to hopefully avoid the need for radiotherapy if there were no more. She knew that was why I had originally wanted the mastectomy (before we found the area to come out would be too big to make a decent job of anything else). It was suggested, with the results, that rads may help "just in case", but I said no as no morwprobablyn found. Number of reasons for that, but main one being that if (heaven forbid) it comes back/I get a new one (another reason I wanted the mastectomy to reduce that risk further) I will still have rads in my arsenal to hit it with. My surgeon agreed with me and said to the nurse, " I told you what she'd say!"

 

It's took six months to get here and the delay from diagnosis to eviction date had seemed forever and think I only stayed sane because of this forum and a special mention for Helena and her knickers. They've been with me from the start. It's been hard getting what I wanted in terms of reconstruction, because it isn't done in my area and I was delayed at the beginning not knowing that and being told it was my because of my BMI, particularly because the cancer was left doing it's own thing inside me for this time. I finally got 2 amazing female surgeons (even though they are 2hours drive from where I live) who where wholly on MY team and who, because of their support and wonderful care I would walk over hot coals for if they needed my help or support with anything.

 

Just got the hormone therapy to deal with now. Still worrying about that, as I had debilitating menopause symptoms.I've been reading some of the threads on there this morning. Why does everything we need to do to get through this seem to have nasty side effects to challenge us even further?

 

Anyway were all closer to getting through this than we were at the start of the thread. When the last of us has had her solo knicker twirling moment, we need to have a communal knicker twirl. The draught we create will probably help with the hot flushes we may be having from the hormone therapy!! Xxxxxxx💕💖💞

Gill3105
Community Champion

Re: SURGERY APRIL 2018

Yeahhhhh so pleased for you fairy dust. Don’t feel guilty but know what you mean, it’s great news and worth sharing and celebrating as it shows as many of us have said so many times and still say “we will get through this”. This was my first time posting also and agree on it has helped so much both through good and not so good times. And we have laughed. Have you got to have rads fairy?
Lovely you saying you will pop back here I know I will till the last posting is done.
Feenix glad you feeling good and on the road to recovery but on that carousel again. I am fine with Wednesday a tad anxious but not all the time just keeping busy which keeps it off my mind hmmm well maybe not but you know what I mean. It’s when your stomach does the flip as it just jumps into your head at the least unexpected time. I will be fine this is doable and I know I will get through it.
Jem enjoy the rest of your weekend then rest as I am sure you will be Needing it but with a nice feeling.
Sally has your wound healed fully now? Do you plan on working through treatment? I intend to all being well may just take a bit of time off at the end to recover. Who knows will take each day as it happens.
20 days seems forever so hoping it goes as quick as the last 2 month.
Have a good weekend and hope the sunshine’s with you all.
SallyG63
Member

Re: SURGERY APRIL 2018

Really please for your Fairydust. Don't feel guilty, just lucky! 🙂
Feenix
Member

Re: SURGERY APRIL 2018

Fairy Dust what fab news .... thought there was a helicopter landing but must have been you twirling those knickers Smiley LOL  Really pleased for you .... enjoy a celebration and never ever feel guilty. You’ve been through a lot. Glad you’re book for your Christmas pressie xhugx

Fairy Dust
Member

Re: SURGERY APRIL 2018

Christmas pressie! 

Fairy Dust
Member

Re: SURGERY APRIL 2018

I did forget to say that I booked my appointment for my Christmas pressure today. I get my new nipples in December! 

ladybowler
Community Champion

Re: SURGERY APRIL 2018

Fairy Dust

 

I wondered why i suddenly felt giddy this afternoon 🙂 🙂

 

Oh that is wonderful news and I am sure that all the other ladies on here whether they have had their results or still waiting will be so happy for you.  Yes it is difficult to post your good news when you know other people are still waiting, however it does enable other ladies to see that good results happen.

 

Be careful with twirling those knickers around, you dont want to get arrested 🙂 🙂

 

This is a wonderful forum, it was the first time I had ever posted when I came on here and it has been a godsend since November 2016.

 

Onwards and upwards now to rads

 

Sending you loads of hugs

 

Helena xxx

Fairy Dust
Member

Re: SURGERY APRIL 2018

Will definitely celebrate, but have been resting since I got home. Didn't sleep last night and I'd got myself in the usual results day tizz which took it out of me.

 

You've had a busy day and have got a busy weekend try to take time to rest and enjoy it. How are you feeling now, as I was reading about the blood clot?xxx

JemPD
Member

Re: SURGERY APRIL 2018

Fairy Dust swinging my big knickers here for you- amazing news. I am truly thrilled for you. Please don’t feel guilty sharing good news.
I agree we have been on a journey together. I also have never posted anywhere before this thread. Somehow the bond we have built is special, thrown together through odd circumstances that we never wanted.
I hope you are going to celebrate this news.
Thank you for wanting to keep popping back - means a lot.
We’ve had a good day celebrating eldest sons birthday, friends have been staying which has been great. I’m exhausted now, tomorrow to relax and then get ready for family birthday celebrations on Sunday- they all expect me to carry on as normal and run around after them all.
So so pleased you don’t need to go through any more active treatment.😍
Fairy Dust
Member

Re: SURGERY APRIL 2018

Well the big knickers did their job really well again today. As I walked into the consultants office I (honestly) metaphorically adjusted them and checked you were all tucked safely in the pockets. I took a deep breath and stepped inside to the best news I could have had and have had in the last 6 months. I hope you didn't all get too sick or dizzy as they came off and I swung them around my head in joy. Large area of DCIS (as I knew) removed. 2.5 cm IDC grade 1 (as I knew) removed. 1.8 cm grade 2 (as I knew) disappeared!! DISAPPEARED! Told my weight loss etc had helped with this. No more nodes involved so no more needing to be cleared. Low scores on Oncotype test so no chemo. Prescribed Anastrozole.

 

I've taken a while to post. I've gone from feeling elated to feeling guilty. I wanted share my good news with you all. We all need the good news. Then I struggled because after a false start, Feenix is still waiting for results - fingers crossed for knicker twirling ones, Sally and Jem are about to start/have started chemo and Gill's started rads- can't wait for all your knicker twirling moments when you're through it. I suddenly feel I've got off "lightly". Still trying to believe it really. I've restarted this post 3 times because of it.

 

Think I'll printout a picture of Helena's pants to remind me about all this, who I'm sharing it with and who has helped me get this far. Have just read my 1st posts on here (and they were my first on anything and I've not posted anywhere else ever). The wonderful ladies on here have carried me through all the rants and meltdowns. How can you feel so much gratitude and love for people you've never met? I'll keep checking on here waiting for each of your knicker twirling moments, but be careful I'll be in the pockets with you and I do get sea sick!! Xxxxxx

Feenix
Member

Re: SURGERY APRIL 2018

Hi Gill 

Gotta keep up the warped humour at the very least Smiley LOL You ready for next week? 

 

Sally ... have you been on chemo thread for idea about questions...  Hope your wound is continuing to behave... sounds like the honey did the trick. Short hair rules ok... it’s so easy. Great you’ve had a good break away before your appointment Tuesday before start of chemo. Hope work goes ok on Monday.

 

Jem ... hope your lad had a great birthday. Sorry to hear about Picc problem with clots...bleeping heck. Hep jabs will do the trick tho. What are plans for chemo? You definitely need a reward for all the time spent clocking up the hospital hours.... spa, dinner, theatre !!!

 

Fairy Dust .... hope appt went well today 

 

I’m fine after excision of margins ... didn’t sleep really well last night...  I was hungry.. probably stomach rumbles kept waking me up !!! Up at 4am for snack. I think I’ll sleep well tonight. 3 week wait for results...2 weeks sooner than last time !!  I think I should be on priority Smiley LOL

 

Hoping for a good weekend but I think there’ll be some rain. Hoping for a walk along seaside promenade. Hope you’ve got sunshine wherever you are.

hugs and positive vibes

Gill3105
Community Champion

Re: SURGERY APRIL 2018

Hi all. So good we can all laugh at each other and with each other as it does help.

Feenix good luck today with results. Nope wrong fairy dust hope all goes well and feenix recovery going well. Crikey there is only 4/5 of us and still forget where we are all at and what stage.
Sally hope all goes ok next week and you stay strong. I am sure you will. The big knickers are going to betting some use next week but enough room for all of us.
Jem. Rewards has to be a spa day total chill. Go for triple point then we can all come also. Do you have a champneys near you? My fave spa. Had a lovely day yesterday topped with gift from daughters trip to London to see mamma Mia and overnight stay. Once treatment all done with and feeling fit enough. I will be!!! Have a great weekend all and take care. We will all get through this and in how ever many weeks time 20 + with our lovely Sally and Jem going through their treatment we hopefully will still have the April surgery thread live alongside dec/jan and maybe feb. Let’s do it.
SallyG63
Member

Re: SURGERY APRIL 2018

Morning all,

Hope your birthday was good Gill.

Feenix, hope you are feeling good and recovering well.

Fingers crossed for a good result today Fairydust.

Jem, sounds like you are having a nightmare with the PICC line. Hope it improves. It's because of potential problems like this I don't want one. I still have enough aggravation with the left one following the lymph node removal without screwing up the right one too. I already have to inject insulin 3 times a day without adding too many more into the mix. I'll have nowhere left to inject.

Everyone loves the new hair cut. Got up, ran my fingers thru it and am good to go!

I have my pre chemo appointment Tuesday afternoon. I've not really got a clue as to what questions I'd be asking?

Sorry if I've forgotten anyone. Having to pack to go home and back to reality today 😞
On the upside I'm looking to go back to work on Monday as between my second operation, not healing and holiday, I've been off since the start of April.
Have a good day all.

Sally
ladybowler
Community Champion

Re: SURGERY APRIL 2018

Jem

 

Here we go my dear, positive vibes coming yoru way xxxx

 

tough pants.jpg

JemPD
Member

Re: SURGERY APRIL 2018

Well done Helena for posting for Fairy Dust.
If you don’t mind I’m still in need of mine at the mo- will return freshly laundered!!
Xx
ladybowler
Community Champion

Re: SURGERY APRIL 2018

FairDust

 

Just wanted to wish you all the best for today and sending you the tough pants so that we can all be with you holding you hands, loads of positive vibes coming your way.

 

Helena xxx

 

tough pants.jpg

JemPD
Member

Re: SURGERY APRIL 2018

Good morning all
Feenix - so pleased you are home and all went according to plan. Be kind to yourself - box sets here they come.
Fairy Dust - big girl pants on day, as Gill always says - be careful you don’t squash us - we’re with you all the way. 1.2 litres - wow that’s impressive!!
Sally - well done with hair cut. When is your pre chemo appt- take your questions with you.
Gill 🎂happy birthday for yesterday
I went for my scan yesterday - the lady had breast cancer 5 years ago almost same journey as me, including this. it was great chatting to her. The results are I have DVT in my arm - 3 clots around my PICC line. So now have to have injections every day into my stomach😖trying to be positive that they can do something about it. Arm still very swollen and red but this should go in a week or so. Hubbie is stepping up to do the injections. No bikini for me this year as my poor stomach will be black and blue. Today focus on celebrating eldest 12th birthday. I’ve clocked up too many hospital hours this week- we are counting hospital hours, and like air miles, I get rewards- planning what these will be- thinking 100 hours = spa day. Any suggestions for rewards???
Jem xx
Feenix
Member

Re: SURGERY APRIL 2018

Gill .... you’re starting your zaps next week... hope they go really well with minimal se’s .

 

Happy Birthday for today Smiley LOL

 

Yes ... it’s amazing how time has flown since my diagnosis in March.

 

Definitely will keep on here as it’s good to keep in touch and support.

 

Fairy Dust... I’ll be thinking of you tomorrow.... I had a good chuckle at your post. Humour is essential and as a retired nurse mine can get weird...what we are all going through has the same effect.....  humour is a relief valve.

 

Hugs and positive vibes xx

 

Fairy Dust
Member

Re: SURGERY APRIL 2018

Oh, and you did make me laugh with the "shorter gassing". It's a good job we can still laugh, even at what we have to go through. Xxx

Fairy Dust
Member

Re: SURGERY APRIL 2018

Think I'll be on my knees tonight, Feenix. Not been on my knees for a while, so may find it a struggle to get back up. Luckily Hubby's at home, so if I get stuck at least I won't be there all night! xxx

Gill3105
Community Champion

Re: SURGERY APRIL 2018

Hi feenix. Glad all has gone welll for you and hope
Your recovery goes well with good results. Waiting carousel again?

Jem. New hair do! Hope the clot disappears soon and less hospital trips. Enjoy your weekend and birthday celebrations. Been my birthday today and had a lovely day with daughter and grand children at a local agricultural show and forgot everything if just for a few hours. Was lovely weather and a fun day.
Fairy dust good to hear from you and hope recovery is going well and hope no more seroma,s. Fingers crossed for results tomorrow.

Sally another one with new hair do. You and Jem will be supporting each other lots next weeks and hope it goes ok for you.

Can’t believe we are in June tomorrow where has March April and May gone?? Crazy it’s like three Months of your life gone by in a flash but so much happened in that time.

Hope everybody has a good weekend and we must revisit here to keep in touch. Take care all
Feenix
Member

Re: SURGERY APRIL 2018

Hi all

Ive been back home a couple of hours... feeling good as compared to first time but a much shorter gassing and simpler op ... the post op toast didn’t taste like cardboard this time I’m pleased to say.

 

Jem ... pleased your short haircut is a hit. Sorry you’re having a problem with a ? clot ... hope scan turns out to be clear. Enjoy your friends visit.... great they are bringing dinner ... enjoy their pampering and support. Have a good birthday celebration for your son tomorrow xhugx

 

Fairy Dust ... Sounds as though you’re doing really well in spite of your seroma... 1.2 litres ..wow. Good luck for tomorrow and your results. I’ve got another 3 week wait after today... got everything crossed and may even get down on my knees !!!Smiley LOL Will certainly keep on here. Xhugx

 

Sally .... had a chuckle about the carp. Pleased you like your short hair and that your hairbands are going to a good cause... they’ll be well appreciated by your lad. Xhugx

 

 

SallyG63
Member

Re: SURGERY APRIL 2018

Morning all

Good luck today Feenix and for tomorrow Stardust. Husband caught loads yesterday but lost a rod which was taken into the middle of the lake by a carp. We were soaked to the skin but a nice hot shower, coffee and scones with clotted cream sorted that out. Haircut is good. Gone back to how I had it 30 years ago. So liberating to not have it halfway down my back. My youngest long haired son is placed to inherit all my hairbands!

Sally
Fairy Dust
Member

Re: SURGERY APRIL 2018

Just checking in on all of you to see how you are doing hsving gota back from a short break over the bank holiday. Have not had great internet access, but have kept off line on purpose to help me feel "normal" while I've been away. Can't believe it, but I've had to have 1.2 litres of fluid removed from my jelly belly following the DIEP surgery. Told it may come back and need removing again, but that wasn't a painful experience so no worries. I'd had to buy stronger hold in pants for the weight while I was away as it was a bit difficult walking with it swishing around, but I  still can't believe the amount. All wounds healing really well and I'm amazed at how my new boobies feel and the sensation I have in them. The scars are already fading in colour! I do seem to have strange sensations with phantom nipples though! When I have a hot or cold drink I casn feel nipples I haven't got! Back down to earth with a slump though, as I've come back to the letter with my results appointment for tomorrow 1st June. That'll be another sleepless night tonight then! You've all been here before me and are now the otherside dealing with the #@$% this thing has thrown at us. I hope I can be as strong as you all are.

 

Sally - good luck with the hair restyle today and glad to hear your wound is healing. Hope that is continuing. Can't believe you sat in the car. I'd have been in the spa!

 

Feenix - good luck with your op today. Fingers crossed for clear margins this time. They kept finding new areas before they decided to operate with me and was the reason I went straight for the mastectomy. I knewI couldn't have coped and needed it done with. Thinking about you today, but you've done this once and you can do it again x

 

Jem - you're doing brilliantly. You and Sally are now dealing with my biggest fear. I know tomorrow is going to be traumatic because I'm scared they'll tell me I need to have chemo 

 

Gill - good luck with radiotherapy next week.

 

Gill's right,  we all keep coming back here, but I want to know how you are all doing. We've never met, but we're all going through something together and I do care what is happening with you all. Please, even though we may all be going off in different directions with treatments, keep this thread informed with how you are doing. I seem to be bringing up the rear end of this and will let you know how I get on tomorrow. Depending on results though it may take me a bit to get my head around or I'll be on here immediately having a meltdown!

 

Oh and have you noticed I've finally worked out (only took me 5 months of being on here) that I can open a different tab for my reply and keep looking back at you individual posts to be able to address each one of you. I'm such a Luddite. Another reason you need to post your progress on this thread as I'll never be able to keep up with where you all are if you don't (selfish, lazy reason really).

 

Love and hugs xxx

 

JemPD
Member

Re: SURGERY APRIL 2018

Good mprning all
Feenix - thinking if you today, hope all goes wonderfully smoothly. Xx
Sally - I had my hair cut short - everyone loves it- don’t like to say why I’ve had it done! Tips on cold cap- it isn’t great for first 15 mins- I set a timer, cup of tea, Hubbie on keeping me distracted duty- this time going to watch Car Share as found the final one hilarious!! After this it gets better- also distracted me from thinking of the drugs.
Quick update- another 3 1/2 hours in oncology last night- a much better experience than and a and e- but does it really need to take that long? It looks like I have a blood clot, having a scan today to confirm, if so I will have daily injections until gone😖, my bloods really show my low immunity - scared me a little. Today we have friends coming to stay for 2 days and so looking forward to it- my friend is even bringing dinner for us all💕. Eldest sons 12 birthday tomorrow so something good to end week.
Hugs to you all🤗
Feenix
Member

Re: SURGERY APRIL 2018

Sally ... hope you’ve dried out by now.  Did hubby catch anything? Hope you like your haircut tomorrow. I got mine cut short after diagnosis to prepare “just in case”... I’ll keep it short as it’s so easy to manage. Xx

SallyG63
Member

Re: SURGERY APRIL 2018

Hi from a very rainy Cornwall where I am sitting in the car reading whilst husband fishes. I'm soaked through so am taking a break with a coffee. Good luck with the second surgery Feenix.
Jem, I'm having 4xEC every other week followed by 12 x Taxol weekly, so 20 weeks of chemo. Lovely. Got an appointment to have all my hair cut off tomorrow. Think Carol from the Walking Dead. it'll be in better condition them to maybe survive the chemo, (going to try the cold cap but don't know if I'll be able to manage, I get brain freeze eating an ice lolly!). If not the it won't be so drastic when it goes.

Sally