You still up too, Feenix. You'd spotted I was awake in the wee hours before, so your sleep must be to pot too. I'd nodded off, but seem to get super hot flushes at night and they wake me up. By the time I've managed to cool down I'm wide awake! Hoping energy levels start going up soon and need to start cutting down on naps if I'm ever going to get back to work.
Just thinking, Jem must have plenty of cupboard and freezer space for 2 trolley loads and I think Sally may recommend the Cornish air (or possibly cream teas/pasties) for healing! Thinking about you both for next treatment.
Love the thought of a mad dash around the supermarket aisles Jem ... lots of food in freezer though wish I had a fraction of your energy ... hoping all goes well on Tuesday xx
So pleased your wound has healed Sally .... will think of you on Friday ...
hope everyone else is doing ok
found a lucky Buddha
Thinking of you today Sally... xhugx
Dcb .... rads underway next week is good. Glad you seem to be doing ‘ok’ on Tamoxifen
Everything crossed for a quiet week for you Jem ... How was your Waitrose trip?... hopefully you didn’t go too mad round the aisles ... although on the other hand ..
Good luck all with appointments this week, it sounds like between all the April surgery ladies we’ve every possible type of appointment happening, oncologist, rads, dressing! hope all goes smoothly
Love the knickers clip Fairydust!
I’m good thanks Feenix. 30tamoxifen taken so far and not too bad side effects - just a few dizzy spells and very emotional! Cant wait to start rads next week, 20 sessions so hopefully all done and dusted by early July.
Good morning ladies.
Thought I'd pass on this link from a song that was banned by the BBC in 1971. This is from Noel Edmonds' Show in 1985 when they still edited 2 verses out! Just thought we may need it for all our various reasons and appointments for this week (and next week Feenix). Another lady on another thread here remembered it when I mentioned swinging my knickers! Unfortunately, both Helena and I are old enough to have remembered it, don't know about the rest of you. Enjoy!
I hope you all had a good weekend
I hope your return to work goes well this week Sally... steady away. And of course you’ve got a couple of busy appointment days, Tuesday and Friday and all they entail.... I’ll be thinking of you.
Jem ... you’ll have had a busy weekend with Birthday celebrations yesterday. Hope your arm has improved.
Gill.... hope all goes well this week.
Fairy Dust .... hope you had a good celebratory weekend.
I’ve pottered over the weekend, got back to walking, building up exercises again and that’s about it. Got a dressing clinic appt Wednesday and results appt for the week after but I won’t hold my breath considering the long delay I had before..... I could have been on a world cruise the time it took
Gosh, Sally. Where do you live? Almost takes the joy out of going anywhere. You did make me giggle the other day when you said your hubby had lost a rod to a fish. Don't think I'd dare try it if the fish in Cornwall are that strong! Good luck for next week (work & chemo) I'll be thinking of you. Channel that fish's strength 😁 xxx
That's so good to hear, Helena. I know some people don't find the hormone therapy easy, but I'm not looking for problems. I'll take it in my stride and deal with it cos this is not chemo or rads.
You're right about the positive posts. It took me ages to post yesterday with my good news. Then I thought we all need to see the good news. We're together in this through the bad bits and we need to share in the good too. We want knicker twirling news for everybody on here. I know at the beginning it was the positive good news I was looking for and needed to keep me going. We need the success stories to come back from time to time to boost those starting out. Whichever bit of this ride we're dealing with we need to see someone whose got through that stage and is now swinging their knickers in the air. xxx
Keep in mind that not everyone gets all or any of the side effects that they tell you about. There are many many ladies who have little or no side effects, however they are the ones who do not post because realistically they have nothing to report. Myself apart from a lovely hot flush about an hour after I have taken my tablet, an occasional cramp in a leg at night (and I mean occasional) and some aches in joints sometimes (which I can not say is down to the tablet more my age!!) I am fine.
I keep checking back on this thread to see how everyone’s is doing. lovely to hear some positive news, and such support for everyone no matter how challenging their next steps are. keep strong all, we got this!
I can't tell you how lucky I feel, Sally. I woke this morning and have been counting my blessings. I don't think I've felt this good, emotionally, since I gave birth to my son 25 years ago this month.
I don't "have" to have rads, Gill. They found a 4 mm piece in 1 lymph node when they did the snb. My wonderful surgeon said she would "just" do a level 1 clearance to check if any more were involved and to hopefully avoid the need for radiotherapy if there were no more. She knew that was why I had originally wanted the mastectomy (before we found the area to come out would be too big to make a decent job of anything else). It was suggested, with the results, that rads may help "just in case", but I said no as no morwprobablyn found. Number of reasons for that, but main one being that if (heaven forbid) it comes back/I get a new one (another reason I wanted the mastectomy to reduce that risk further) I will still have rads in my arsenal to hit it with. My surgeon agreed with me and said to the nurse, " I told you what she'd say!"
It's took six months to get here and the delay from diagnosis to eviction date had seemed forever and think I only stayed sane because of this forum and a special mention for Helena and her knickers. They've been with me from the start. It's been hard getting what I wanted in terms of reconstruction, because it isn't done in my area and I was delayed at the beginning not knowing that and being told it was my because of my BMI, particularly because the cancer was left doing it's own thing inside me for this time. I finally got 2 amazing female surgeons (even though they are 2hours drive from where I live) who where wholly on MY team and who, because of their support and wonderful care I would walk over hot coals for if they needed my help or support with anything.
Just got the hormone therapy to deal with now. Still worrying about that, as I had debilitating menopause symptoms.I've been reading some of the threads on there this morning. Why does everything we need to do to get through this seem to have nasty side effects to challenge us even further?
Anyway were all closer to getting through this than we were at the start of the thread. When the last of us has had her solo knicker twirling moment, we need to have a communal knicker twirl. The draught we create will probably help with the hot flushes we may be having from the hormone therapy!! Xxxxxxx💕💖💞
Fairy Dust what fab news .... thought there was a helicopter landing but must have been you twirling those knickers Really pleased for you .... enjoy a celebration and never ever feel guilty. You’ve been through a lot. Glad you’re book for your Christmas pressie xhugx
I did forget to say that I booked my appointment for my Christmas pressure today. I get my new nipples in December!
I wondered why i suddenly felt giddy this afternoon 🙂 🙂
Oh that is wonderful news and I am sure that all the other ladies on here whether they have had their results or still waiting will be so happy for you. Yes it is difficult to post your good news when you know other people are still waiting, however it does enable other ladies to see that good results happen.
Be careful with twirling those knickers around, you dont want to get arrested 🙂 🙂
This is a wonderful forum, it was the first time I had ever posted when I came on here and it has been a godsend since November 2016.
Onwards and upwards now to rads
Sending you loads of hugs
Will definitely celebrate, but have been resting since I got home. Didn't sleep last night and I'd got myself in the usual results day tizz which took it out of me.
You've had a busy day and have got a busy weekend try to take time to rest and enjoy it. How are you feeling now, as I was reading about the blood clot?xxx
Well the big knickers did their job really well again today. As I walked into the consultants office I (honestly) metaphorically adjusted them and checked you were all tucked safely in the pockets. I took a deep breath and stepped inside to the best news I could have had and have had in the last 6 months. I hope you didn't all get too sick or dizzy as they came off and I swung them around my head in joy. Large area of DCIS (as I knew) removed. 2.5 cm IDC grade 1 (as I knew) removed. 1.8 cm grade 2 (as I knew) disappeared!! DISAPPEARED! Told my weight loss etc had helped with this. No more nodes involved so no more needing to be cleared. Low scores on Oncotype test so no chemo. Prescribed Anastrozole.
I've taken a while to post. I've gone from feeling elated to feeling guilty. I wanted share my good news with you all. We all need the good news. Then I struggled because after a false start, Feenix is still waiting for results - fingers crossed for knicker twirling ones, Sally and Jem are about to start/have started chemo and Gill's started rads- can't wait for all your knicker twirling moments when you're through it. I suddenly feel I've got off "lightly". Still trying to believe it really. I've restarted this post 3 times because of it.
Think I'll printout a picture of Helena's pants to remind me about all this, who I'm sharing it with and who has helped me get this far. Have just read my 1st posts on here (and they were my first on anything and I've not posted anywhere else ever). The wonderful ladies on here have carried me through all the rants and meltdowns. How can you feel so much gratitude and love for people you've never met? I'll keep checking on here waiting for each of your knicker twirling moments, but be careful I'll be in the pockets with you and I do get sea sick!! Xxxxxx
Gotta keep up the warped humour at the very least You ready for next week?
Sally ... have you been on chemo thread for idea about questions... Hope your wound is continuing to behave... sounds like the honey did the trick. Short hair rules ok... it’s so easy. Great you’ve had a good break away before your appointment Tuesday before start of chemo. Hope work goes ok on Monday.
Jem ... hope your lad had a great birthday. Sorry to hear about Picc problem with clots...bleeping heck. Hep jabs will do the trick tho. What are plans for chemo? You definitely need a reward for all the time spent clocking up the hospital hours.... spa, dinner, theatre !!!
Fairy Dust .... hope appt went well today
I’m fine after excision of margins ... didn’t sleep really well last night... I was hungry.. probably stomach rumbles kept waking me up !!! Up at 4am for snack. I think I’ll sleep well tonight. 3 week wait for results...2 weeks sooner than last time !! I think I should be on priority
Hoping for a good weekend but I think there’ll be some rain. Hoping for a walk along seaside promenade. Hope you’ve got sunshine wherever you are.
hugs and positive vibes
Just wanted to wish you all the best for today and sending you the tough pants so that we can all be with you holding you hands, loads of positive vibes coming your way.
Gill .... you’re starting your zaps next week... hope they go really well with minimal se’s .
Happy Birthday for today
Yes ... it’s amazing how time has flown since my diagnosis in March.
Definitely will keep on here as it’s good to keep in touch and support.
Fairy Dust... I’ll be thinking of you tomorrow.... I had a good chuckle at your post. Humour is essential and as a retired nurse mine can get weird...what we are all going through has the same effect..... humour is a relief valve.
Hugs and positive vibes xx
Oh, and you did make me laugh with the "shorter gassing". It's a good job we can still laugh, even at what we have to go through. Xxx
Think I'll be on my knees tonight, Feenix. Not been on my knees for a while, so may find it a struggle to get back up. Luckily Hubby's at home, so if I get stuck at least I won't be there all night! xxx
Ive been back home a couple of hours... feeling good as compared to first time but a much shorter gassing and simpler op ... the post op toast didn’t taste like cardboard this time I’m pleased to say.
Jem ... pleased your short haircut is a hit. Sorry you’re having a problem with a ? clot ... hope scan turns out to be clear. Enjoy your friends visit.... great they are bringing dinner ... enjoy their pampering and support. Have a good birthday celebration for your son tomorrow xhugx
Fairy Dust ... Sounds as though you’re doing really well in spite of your seroma... 1.2 litres ..wow. Good luck for tomorrow and your results. I’ve got another 3 week wait after today... got everything crossed and may even get down on my knees !!! Will certainly keep on here. Xhugx
Sally .... had a chuckle about the carp. Pleased you like your short hair and that your hairbands are going to a good cause... they’ll be well appreciated by your lad. Xhugx
Just checking in on all of you to see how you are doing hsving gota back from a short break over the bank holiday. Have not had great internet access, but have kept off line on purpose to help me feel "normal" while I've been away. Can't believe it, but I've had to have 1.2 litres of fluid removed from my jelly belly following the DIEP surgery. Told it may come back and need removing again, but that wasn't a painful experience so no worries. I'd had to buy stronger hold in pants for the weight while I was away as it was a bit difficult walking with it swishing around, but I still can't believe the amount. All wounds healing really well and I'm amazed at how my new boobies feel and the sensation I have in them. The scars are already fading in colour! I do seem to have strange sensations with phantom nipples though! When I have a hot or cold drink I casn feel nipples I haven't got! Back down to earth with a slump though, as I've come back to the letter with my results appointment for tomorrow 1st June. That'll be another sleepless night tonight then! You've all been here before me and are now the otherside dealing with the #@$% this thing has thrown at us. I hope I can be as strong as you all are.
Sally - good luck with the hair restyle today and glad to hear your wound is healing. Hope that is continuing. Can't believe you sat in the car. I'd have been in the spa!
Feenix - good luck with your op today. Fingers crossed for clear margins this time. They kept finding new areas before they decided to operate with me and was the reason I went straight for the mastectomy. I knewI couldn't have coped and needed it done with. Thinking about you today, but you've done this once and you can do it again x
Jem - you're doing brilliantly. You and Sally are now dealing with my biggest fear. I know tomorrow is going to be traumatic because I'm scared they'll tell me I need to have chemo
Gill - good luck with radiotherapy next week.
Gill's right, we all keep coming back here, but I want to know how you are all doing. We've never met, but we're all going through something together and I do care what is happening with you all. Please, even though we may all be going off in different directions with treatments, keep this thread informed with how you are doing. I seem to be bringing up the rear end of this and will let you know how I get on tomorrow. Depending on results though it may take me a bit to get my head around or I'll be on here immediately having a meltdown!
Oh and have you noticed I've finally worked out (only took me 5 months of being on here) that I can open a different tab for my reply and keep looking back at you individual posts to be able to address each one of you. I'm such a Luddite. Another reason you need to post your progress on this thread as I'll never be able to keep up with where you all are if you don't (selfish, lazy reason really).
Love and hugs xxx
Sally ... hope you’ve dried out by now. Did hubby catch anything? Hope you like your haircut tomorrow. I got mine cut short after diagnosis to prepare “just in case”... I’ll keep it short as it’s so easy to manage. Xx