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SURGERY AUGUST 2018

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Re: SURGERY AUGUST 2018

Thank you Michelle. I know i posted my rant on the chemo thread but it probably should have gone on here. I have never been one to cry and through most of this i have been the "good strong woman" i am expected to be but at times everything crowds in, you have no support and you are scared. Cancer is scarey no matter how strong we are. I am glad you got your support when you asked for it. My husband has had to deal with a lot and is a great support but we have always been quite independant so it is all new. I had to email my plastics consultants PA for an appointment and she has provided me with the number for a specialist nurse in another hospital that she says will talk to me if the Marsden still don't call me tomorrow. I have made an official complaint through the Marsden website so no one else is left stranded with a phone system that means you can't talk to who you need to and a pre arranged plan that can't be carried through.

 

Just getting to know the rest of you on here as I read through your stories and wish you all the best. The chemo threads have been my lifeline so far and the support has been amazing. As i move forward i know i will have support here.

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Re: SURGERY AUGUST 2018


Hi Christine nice to see a familiar face. You really have had a big operational and I’m sure recovery needs to be gradual. I understand you wanting the drain out. I also have had to wait for 2 consecutive days of less than 40mls which was today. I mentioned I have a district nurse come each day to check it, I understand why you feel so alone and vulnerable being left on your own to phone the numbers in. After the nurse took it out today she said they wouldn’t be back until Sunday when the clips need to come out. I felt very vulnerable and emotional at the thought of not seeing anyone until then. I am not used to feeling so fragile. Thankfully they offered to come on Thursday just to check all is ok. This has made me feel much better. It is a very difficult and emotional time and we have had a lot to deal with over the last few months.

Quaggie how is your wound today? Have you spoken to anyone else about it? I hope it is all ok now and healing nicely.

Linda I hope the op went well, come and let us know you are ok when you feel well enough.

I hope everyone else is doing well xx
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Re: SURGERY AUGUST 2018

I am sure all will go welllLinda. Let us know when you feel up to it

Christine Rim - welcome and hope you ‘lose’ your Darin soon

Hugs x
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Re: SURGERY AUGUST 2018

Good luck Linda with your operation today and presumably it’s a morning operation ?
Let us know how you get on when able to
Xx
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Re: SURGERY AUGUST 2018

Good luck with your operation today and presumably it’s a morning operation ?
Let us know how you get on when able to
Xx
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Re: SURGERY AUGUST 2018

Hi everyone. I am from the April 2018 chemo thread and this week had a DIEP flap bilateral reconstruction including a delayed on the left (17yrs ago) and immediate on the right. 

 

I didn't notice the surgery threads on here before and have had a read through some of the operations you have all had. We all have very differerent concerns. Like Michelle i have come home with one of the 4 drains still in place. I was so desperate to come home after 5 days in hospital even though the majoority if the nurses and doctors were lovely. Strangely one seemed to avoid me like the plague and kept saying she would do something later and never did. I went from no checks on me for 12 hours on her shift back to the 4 hour checks when the next shift nurse arrived. Anyway the one drain i have should have eassd off by now and i had arranged to have the drain taken out today if the levels continued down but the drop was only slight so i phoned in the figures and will find out what happens next later. I would love to be free from the tubes. The drain is coming out at the top of my hip so really uncomfortable to wear the support pants.

 

The  other thing of course is the pain relief. After the 10 hour op i was on a morphine pump but after it made me  sick, itchy and very out of it, i reduced doses so much they took it away. I was allowed oral morphine if i wanted but have survived on ibuprofen and paracetomol quite well. It is painful to move around too much as it hurts across the tummy but i am doing what i can and am getting better each day. Movements are slow and adjusting to it. Luckily my arms seem fine but i am aware that i am not supposed to lift more than a kilo.

 

Anyway "someone from the team" is due to phone me and let me know what next. I have a check up on friday but really want it out before then.

 

 

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Re: SURGERY AUGUST 2018

Best of luck Linda - wishing you well for tomorrow. Let us know how you get on when you’re feeling up to it.

Sending you strength.
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Re: SURGERY AUGUST 2018

Going in for my surgery tomorrow so hopefully I will be able to join in with the post surgery chat after then.  Just going up to bed as I have to be there at 7.30am and I haven't packed my bag yet!  Hope to speak soon x

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Re: SURGERY AUGUST 2018

Oh Quaggie that doesn’t sound very nice at all, I’m surprised they didn’t give you anti B’s. I always feel bad about contacting people too often but we shouldn’t as this is our health and therefore important. Good that you have left a message for your BCN but I would try and see someone before Wednesday.

I haven’t showered since the op, I’ve just been washing. I don’t really know what to do about the dressing. The nurses all seem to say something different. At the hospital they gave me small waterproof plasters that they said I could put on top and they would come off on their own. The district nurse said I could shower and stay in a wet dressing until she arrives. However she doesn’t give a time so I could be sat all day with a wet dressing!

The fluid in the drain was down to 30ml today so if it is below 40ml again tomorrow she will take the drain out. Which I’m sure will be more comfortable but then it start worrying that I will get a build up of fluid that will need draining. I know I am just worrying about everything but I can’t seem to help myself.

I hope everyone else is doing ok xx
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Re: SURGERY AUGUST 2018

Thanks ladies. I left a message on my BCNs answer phone this pm so will see what they say when they call back tmrw. I feel guilty as I seem to be phoning Ng them every 5 mins!

I’ve got my results mtg with my consultant on Weds pm anyway so if I don’t see them before then I’ll try and ensure I see a BCN then.

I’ll probably just heal up properly in time for the wound to be reopened for my second op anyway.

Sending healing vibes to everyone xx
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Re: SURGERY AUGUST 2018

Sounds unsettling Quaggie. I would also suggest you see your BCN. They might want to give you some antibiotics just to be sure
Michelle I agree it is good to get of the codeine- it really bunged me up !!! But sometimes at night I still take it and I am 11 days post surgery ... but paracetamol is a good thing
Keep up the healing ladies, we are on the right track now.
Hugs to all xxx
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Re: SURGERY AUGUST 2018

Oh Quaggie, could you ring the BCNurses tomorrow and see if you can come in for them to put your mind at rest? They surely have a facility to see you if you have a BC related-problem? I would do that if it was me. I was discharged on a Friday and on the Sunday I didn't feel right, and took myself to the A&E of the hospital - not my local hospital, but where I had been an in-patient? Better to get peace of mind than worry yourself even more. All the best x
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Re: SURGERY AUGUST 2018

Congrats on wearing yourself off the cocodamol Michelle! That stuff can be hard on your stomach, gives me agonising heartburn.

Had a bit of a down day today - my WLE steristrips started oozing green gunk so I went to my local NHS walk in place. There was no infection luckily but when they took the strips off, the wound edges hadn’t bound together and it all looked wet and open. Really upsetting to see the wounds for the first time and like that. I had to stop myself bursting into tears in Waitrose on the way Home.

Have new steristrips on but it feels very vulnerable now.

Think my surgeons bold statements about just showering and not worrying if the strips fell off was not good advice.

Hope everyone else is fairing ok. Sending hugs xxx
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Re: SURGERY AUGUST 2018

So 3 days post op and am easing off the co codamol, plan on taking paracetamol today and co codamol at bedtime. I am feeling better but still quite fragile. I have got a bra on now and that is a help, thanks for the advice Quaggie. I have been doing the shoulder rolling exercises and am trying to be as mobile as possible, walking around without over doing it.
The district nurse did turn up yesterday to empty the drain and is coming again today but apparently they are having a meeting between the 2 areas on Monday to decide who I am with! As long as someone turns up each day to monitor the drain and take the clips out in 10 days then I don’t mind who!
Sorry to hear you have an infection Jane, but good thatbthey havebitnynder control with antibiotics. How long are you staying in hospital for? Enjoy the visit from your friends today.
I hope everyone is recovering well, have a good day xx
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Re: SURGERY AUGUST 2018

Thanks for the good wishes ladies. I'm awake again way too early but I did sleep for almost 6 hours in the same position on my back. Less distressed than I was 24 hours ago,yesterday morning was a bad one. Catheter was removed and later in the morning went to the loo and whilst sat on it came over all hot then cold. Held onto the support bar and bawled my eyes out. Nurse rescued me and a bit later found my temperature was 37.8 so after re-inserting the manila put me in IV antibiotics. Later in the day temp was normal again but am on oral antibiotics. They think some slight infection or that I might have a reaction to gabapentin. Will see how it goes today.

 

Boyfriend has been an absolute star, very caring and loving even when he holds my drains when I'm on the loo. 17 years together and until now have only peed in his presence when very drunk! Now I have no shame!!!!!! 

 

Right time for relaxing, can't sleep any more as 4am wakeup seems to be my new normal. Looking forward to tidying my appearance a little today for when my friends come to visit later.

 

Sorry I haven't been able to reply to each one of you about your progresses but sometimes technology defeats me and I can't remember some details or scroll well enough but as always I wish all you free from pain and angst and to remember we are strong women who will get through whatever we need to get through.

 

Hugs to you all.

 

Jane x

 

 

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Re: SURGERY AUGUST 2018

Hi Linda

 

Right from the beginning the surgeon told me 6 hours for mx and recon. Not sure if size of boobs matter (I'm a 40C) or the amount of fat/muscle on the back. I also had an SNB in June, same as you that 3 nodes were removed and all clear fortunately.

 

Jane x

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Re: SURGERY AUGUST 2018

Hi all

 

Hope everyone’s well this morning! 

 

Michelle - glad your surgery is done and you’re home already.  I’ve taken to wearing a bra day and night as I find that the gravity of my boob pulls on the wounds otherwise.  I wear a soft front fastening bra designed for post surgery (from Nicola Jane) during the day and I wear a firmer cup bra from M&S during the night as I feel happier that it gives me a bit more protection if I roll onto it by accident.  I didn’t have drains though so can’t advise on what might be comfortable with those I’m afraid.  But the leaflets from BCC do suggest wearing a bra all the time if you can, although whatever keeps you comfortable.

 

Mavis - great news on the no chemo!  That must be such a relief to hear.  It must be great to know what the next few months/years look like, at least you can get your head around it now.  My surgeon has kept saying I’ll probably only need radiotherapy and when I heard the two lymph nodes they removed were clear I assumed I’d not be needing chemo but apparently it can depend on other factors so I’m still waiting to hear one way or the other.  It’s the thing hanging over me that scares me the most.  I’m hoping they might tell me when I have my next appt on Weds, even though I know that I already need to have more surgery.  

 

Jane304 - hope you’re still doing ok, with the painkillers keeping you on top of the discomfort.  How lucky to be in a private hospital!  The NHS is wonderful but sometimes the nurses just don’t have time to give you the personal attention that you get in private places.  I hope you continue to improve - do you know when you’ll be heading home? 

 

Michelle - hope you get sorted with the district nurses.  I don’t think my GP even offers that service! 

 

Linda17 - good news for you on the SNB front too.  Everyone’s cases are so different aren’t they?  It’s fascinating to read so many different stories.  Glad you are avoiding any need for further treatment, that must be such a relief to hear. 

 

Anyway, I’m 2 weeks post op and feeling ok.  Had my first full day out yesterday, heading into Central London for some culture with a friend.  It was fun but I found 8 hours on the go really tiring so am taking it easy today.  

 

I feel a bit of limbo at the moment.  2 weeks post-op, but still 2 weeks to wait for my next surgery to hopefully get clear margins.  The waiting around makes me anxious as no-one’s said yet whether I’ll still have to wait another 2 weeks after that surgery to get the final answer on chemo or not.  And I’ll also have to wait to see if they clear margins are there or not.  I’m not a patient patient so all the waiting around is the worst.

 

Right, wishing you all strength and speedy recoveries - keep us posted!! xxx 

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Re: SURGERY AUGUST 2018

Hi Jane

 

I'm so pleased your sugery went well.  It's OK, you haven't scared me, I am expecting pain and discomfort but I was a bit surprised to hear that it lasted 6.5 hours - I have been told 4 to 5 hours but I wonder if that's because I have very small boobs (34B) so they obviously don't need to take as much from my back.  I got the results from my SNB yesterday, they took 3 nodes and they were all clear so I'm really pleased that I won't have to have any treatment after my surgery.  I forgot to ask you before if your SNB results were OK.  Hope they were.  I think I will take my tablet with me as you have so I can keep up with the forum.

 

Hope you start to feel better each day.  Keep us informed of your progress.

 

Linda x

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Re: SURGERY AUGUST 2018

Thanks Michelle, it’s really helpful to hear your experience! I might see if grandparents can help out for a few days...

I hope that you - and all of the brave ladies on here - recover quickly! Xox
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Re: SURGERY AUGUST 2018

Mavit Great news about no chemo! We will be having rads about the same time, but no tamoxifen for me as only a weak oestrogen link. I will have a year of herceptin though which I startedbin May.

Jane Glad to hear your op went well and you are coping with the pain. Those inflatable boots of yours sound great!

Elliesmum - I have come home with a drain and have asked my mum to take the dog for a week or so for the same reason! I didn’t want her to pull on it and I was feeling very fragile when I returned. Will there be someone to help you when you get home? Or could your daughter stay with grandparents for a day or two, just until you feel a little better? I have a drain dolly bag and I get what you are saying about making it more interesting but I have found it incredibly handy especially when going to the loo.

I am feeeling a little bit better every day. I have the district nurse visiting today, although we have had problems with them not turning up before because we are in between areas and quite remote so fingers crossed. It feels good to be back home x

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Re: SURGERY AUGUST 2018

Hi everyone

Sorry for brevity or typos or missing anyone. On my tablet not my pc and not used to the virtual keyboard.

Here I am in my hospital bed after mx and LD flap reconstruction on Thursday. The operation was as expected about 6.5 hours. I went down at 2pm for anaesthetic and was back in my room at 11.30 pm. No issues in recovery room and I remembernothing of it. My boyfriend was waiting for me when I came back to my room, he didn't leave until 1am and was back by 9am bless him.

My surgeon came to see me on Friday morning and very pleased with the outcome. He did a biopsy on my nipple as aiming to keep that and seemed ok but further checks will be done on it and I should find out later today if fully ok or needs some surgery.

Friday was not too bad. I ate well and drinking lots. I have 3 drains - 2 in my back and one at the front, plus an anaesthetic in my back attached to bottle so 4 things in a bag when I have to get out of bed e.g. For having the sheets changed. I also have a catheter who h is good that I don't have to think about peeing but it's a bit uncomfortable in the urethra and I will be so happy when its removed in a few hours as proved I can walk yesterday and even managed to walk around my bed unaided.

Obviously very uncomfortable but being dosed up nicely by the lovely nurses. I cannot fault their care and compassion and patience. When this is all over I will be getting them a present, not the usual flowers and chocolates but maybe a basket of fruit or candles and pampering products.

Loving being in a private hospital in my own room For the peace and quiet.

Anyway all going well so far apart from being awake at this hour but I woke up in pain from lying in the same position and needed pain killers as the bruising on my back is troublesome.

Another good point, I've got floating boots! Really they are cuffs around my calves that are connected to something that inflates and then deflates and helps blood flow or something. They feel amusing to wear!

Apologies if unforgettable names, not easy for me to multi tab in my browser but

Michelle, glad it went well and you can deal with the bra and drains, just take it easy

Mavit, great news and so pleased that you don't need chemo and that was a lot of nodes removed. You can get through the next steps I'm sure.

Linda, you're having the same as what I've just had, you can read above some of the after effects. I'm not trying to scare you but the pains d discomfort are annoying, as is the very restricted movement as can't use the arm on the operated side but do ask for painkillers if you feel you want them even though the nurses will give them on their schedule. Right now I'm in discomfort and a bit of pain in my back but just had some painkillers which will kick in quick. Above all, be brave, we have to do this to get rid of the invading lurkers. I wish you all the best for a successful op and all that comes after. Keep in touch and hugs.

Well this was a longer post than I intended. Pain killers kicking in no doubt!

Again sorry if I forgot to mention something, I blame technology and the fact I'm hungry. Where's my breakfast??!!

All the best to you ladies and hugs.

Jane x
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Re: SURGERY AUGUST 2018

Hi everyone

 

Sorry for brevity or typos or missing anyone. On my tablet not my pc and not used to the virtual keyboard.

 

Here I am in my hospital bed after mx and LD flap reconstruction on Thursday. The operation was as expected about 6.5 hours. I went down at 2pm for anaesthetic and was back in my room at 11.30 pm. No issues in recovery room and I remembernothing of it. My boyfriend was waiting for me when I came back to my room, he didn't leave until 1am and was back by 9am bless him.

 

My surgeon came to see me on Friday morning and very pleased with the outcome. He did a biopsy on my nipple as aiming to keep that and seemed ok but further checks will be done on it and I should find out later today if fully ok or needs some surgery.

 

Friday was not too bad. I ate well and drinking lots. I have 3 drains - 2 in my back and one at the front, plus an anaesthetic in my back attached to bottle so 4 things in a bag when I have to get out of bed e.g. For having the sheets changed. I also have a catheter who h is good that I don't have to think about peeing but it's a bit uncomfortable in the urethra and I will be so happy when its removed in a few hours as proved I can walk yesterday and even managed to walk around my bed unaided.

 

Obviously very uncomfortable but being dosed up nicely by the lovely nurses. I cannot fault their care and compassion and patience. When this is all over I will be getting them a present, not the usual flowers and chocolates but maybe a basket of fruit or candles and pampering products.

 

Loving being in a private hospital in my own room For the peace and quiet.

 

Anyway all going well so far apart from being awake at this hour but I woke up in pain from lying in the same position and needed pain killers as the bruising on my back is troublesome.

 

Another good point, I've got floating boots! Really they are cuffs around my calves that are connected to something that inflates and then deflates and helps blood flow or something. They feel amusing to wear!

 

Apologies if unforgettable names, not easy for me to multi tab in my browser but

 

Michelle, glad it went well and you can deal with the bra and drains, just take it easy

 

Mavit, great news and so pleased that you don't need chemo and that was a lot of nodes removed. You can get through the next steps I'm sure.

 

Linda, you're having the same as what I've just had, you can read above some of the after effects. I'm not trying to scare you but the pains d discomfort are annoying, as is the very restricted movement as can't use the arm on the operated side but do ask for painkillers if you feel you want them even though the nurses will give them on their schedule. Right now I'm in discomfort and a bit of pain in my back but just had some painkillers which will kick in quick. Above all, be brave, we have to do this to get rid of the invading lurkers. I wish you all the best for a successful op and all that comes after. Keep in touch and hugs.

 

Well this was a longer post than I intended. Pain killers kicking in no doubt!

Again sorry if I forgot to mention something, I blame technology and the fact I'm hungry. Where's my breakfast??!!

 

All the best to you ladies and hugs.

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Re: SURGERY AUGUST 2018

Evening ladies - Just wanted to update 

 

I am pleased to say that I received results from ANC and saw the Breast Registrar. She confirmed that they removed 11 nodes and they were all clear . They have taken out 13 in total of which 2 were taken out during SNB which one was infected and the other clear 

 

She also confirmed that as a result of this , I would not need chemo as it would be on no benefit to me 

She confirmed that the oncologist would write to me within the next 3-4 weeks with an appointment so that we can go through the arrangements/ treatment for radiotheraphy to the breast.

 

The radiotheraphy itself wont start until I am fully healed underarm which is 8-10 weeks post surgery so we are looking at end of September/ beginning October time.

 

She has prescribed me a months supply of tamoxifen which I have to take for 5 years and then Aromatase inhibitor  for the next 5 years.

 

Once radiotheraphy completed , follow up appointment with oncologist and a 6 monthly review with the BCN.  Annual mammograms for the next 5 years

 

I am very pleased that I dont need to go down the chemo route and relieved !   so this is one less thing to worry about

 

Seems my guardian angel was looking down on me  xx 

 

   

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Re: SURGERY AUGUST 2018

Thanks wombat Woo, I will try and get my bra on tonight x
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Re: SURGERY AUGUST 2018

I certainly felt better with support and found it difficult to wear day and night. But as the ladies on hear say it really helps. I have front fastening bra from John Lewis, pure cotton and very soft.
I hope you are able to get some sleep tonight, always good to be in your own bed. It doesn’t matter if you sleep day or night as long as you can get some
Hugs xx
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Re: SURGERY AUGUST 2018

Hi everyone I’m back home after a WLE and lymph clearance. I was in hospital overnight and didnt have a great night. My blood pressure dropped very low and also I’m finding the drain quite sore. I am taking concodamol and ibruprofen. I haven’t put my bra on yet because i can’t face putting it over the drain because it’s sore but feel I would probably be better with a bit of support. Any advice? X
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Re: SURGERY AUGUST 2018

Hi Appletree. Yes saw my surgical team a few days ago. I am probably just being very impatient as my breast feels fine Probably some psychological healing to be done too
Thanks xx
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Re: SURGERY AUGUST 2018

thanks Linda17 for your response really helpful. I wish you a speedy recovery on Monday I will keep an eye on it and if it doesn’t start to go down go back to my BCN. Xx
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Re: SURGERY AUGUST 2018

Hi Wombat Woo

 

I haven't had my surgery yet - I'm having a mx and LD flap reconstruction on Monday - but I did have a sentinel node biopsy 2 weeks ago and my underarm is still painful.  In fact, it's more painful now than it was straight after the op.  I've seen 2 BCN's in the last 2 weeks and they both said it looked fine and it's normal for it to still be sore.  I think I'm just a bit inpatient and expect it to improve each day.  I'm also worried that it will be 10 times worse after my surgery next week.  It sounds like yours is a bit worse as you've got some swelling.  Hope you get it sorted.

 

Best wishes - Linda x

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Re: SURGERY AUGUST 2018

Appletree, you are a star!!!!! I just read your comment about taking the wire out of your bras! I never tbought of that. I was going to get rid of my pre BC bras due to the wire, but i shall now spend the day pulling the wires out 😊😊😊😊
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Re: SURGERY AUGUST 2018

Wambat Woo, have you been given an appointment for a wound clinic or to see your Breast Care Nurse? You might feel reassured if someone suitable can have a look at the wound and swelling. I was informed it is quite common to have accumulations of fluid after lymph node removal, but such swellings need monitoring carefully.

 

Also, I was advised to wear a bra night and day for a couple of weeks, to give that bit of support. I removed the wires first. I did the exercises recommended morning and night, and was careful not to over-exercise the arm on the surgery side.

 

The swelling should go down of its own accord after a time, but if it keeps increasing in size or becomes in any way painful, hot or uncomfortable you need to get professional advice promptly. If I were you I'd get it checked out and obtain advice from your BCN.

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Re: SURGERY AUGUST 2018

I had my surgery a week ago and stayed in overnight although I had expected to come home. I had a WLE which took my nipple and SNB. The surgeon got 5 lymph nodes.
My breast is not sore st all and I now only have surgical tape over the scar. My underarm is a different story - I have surgical tape over that scar too but the swelling seems not to be going down and is a little uncomfortable.
So my question ladies is does this sound similar and are you wearing your bra day and night??? And any advice on encouraging the swelling to go down ? Thank you x
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Re: SURGERY AUGUST 2018

Hello lovely ladies,

I’ve been following this thread, as I’m going in for a mastectomy and SNB on the 22nd. The consultant and my breast care nurse have been great at explaining the details of the surgery. However, I’m still a bit unsure about what the drains will be like. I’ve been told to anticipate staying in hospital overnight, then heading home with drains in place. I’m (relatively) young, at 33, and have a one year old little girl at home. I am a bit concerned that she will pull the drains out, or dislodge them in some way! How are the drain tubes held in place? Am I worrying about nothing? Or is there something I could do to try and prevent issues with the drains? I will be given a bag by the hospital to carry the drains around in, but I’m concerned this may make the whole thing even more interesting to my inquisitive 13 month old!

Any and all suggestions would be most appreciated. Best of luck to all of you recovering from or about to undergo surgery!

Xox
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Re: SURGERY AUGUST 2018

Hi all

 

Thinking of you Michelle and Jane this morning as you go into your surgeries - sending you loads of strength and positive vibes.  You sound like you have great surgical teams who will look after you well (and good support networks for the home care afterwards).

 

Also sending good wishes to Mavit for your ANC results today.  Waiting, be it for surgery or test results, is certainly the worst part.  Hope you get the news that you want.  Fingers crossed. 

 

My plans for a walk and the cinema today were rather scuppered by the atrocious weather - I don’t drive and I can’t face getting soggy while waiting for a bus, so I’m having a home day instead.  Will do some tidying up and paper work then get on with some knitting and box set viewing.  Will get some walking in tomorrow instead.  

 

I put in a call to my BCN last night but they usually take a day or more to reply so I will wait to see if one of them calls back.  I just asked if the appt next week will give me all the pathology results and who I will see.  As I think I’ve said before, I don’t particularly like my surgeon - he’s not very empathetic and is a bit blunt and brutal with his talk, not really giving me space to take info in before he’s asking ‘any questions?’ and ushering me out of the room.  I’m hoping that the oncology team are a little more gentle.  

 

Anyway, wishing everyone well for today whether it’s a surgery day or results day xxx 

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Re: SURGERY AUGUST 2018

Good luck Jane394 - I hope surgery goes well for you . It note its a a long operation  - your surgeon / anaesthetist /BCN have all been through this before with other patients so remain positive and optimistic -I wish you a speedy recovery 🙂

 

Quaggie - keep going and stay positive . Let us know how you get on

 

Paulus - I am so lazy - I really need to start moving / walking too . At the moment I still feel lightheaded and havent got the strength as Im still recovering once all proposed treatments are completed, I will make more of an effort.

 

Michelle21 - good luck for today ! I will be thinking of you . I am sure you will be fine - please let us know how you got on and how your feeling when you are able to do so

 

All the best and hugs to you all xxxxxx 

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Re: SURGERY AUGUST 2018

Good luck to everyone having surgery or results today.
Hope it all goes well for you x
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Re: SURGERY AUGUST 2018

Good morning ladies, today's the day. Slept ok, admission isn't till 11.30 so I'm allowed to eat and drink up till 7.30am so getting in a quick coffee then will move onto water which I can drink up to 11.30. Expecting to go down to theatre around 2pm and the op will take 5-6 hours, I'm the only patient for my surgeon today - he's cleared his surgery diary for me due to the length of op (but keeping his morning clinic hence the late admission). Expected I will stay in 4-5 days but if I recover quickly and the drains clear quickly I could come out earlier. Will see how it goes.

Slowly feeling more terrified, was so yesterday afrernoon and starting that way this morning. Expect to be a puddle of emotions by 11.30 but will have my OH with me for support and TLC. My surgeon and anaesthetist are also really nice, my BCN will also pop in to see me and will watch the op, and all the nurses are lovely and so caring - I'm very lucky in my care.

 

Quaggie - as long as you're taking it easy and following advice from the hospital to not overdo things, you'll be fine, to some extent physically not having someone with you 24/7 might help you to not "take advantage" and be too lazy and waited on hand and foot cos that's so easy, but rather keep up with your exercises and get your mobility going, but I'm sure it all can be hard emotionally. Big hugs to you. And fingers crossed for the next step and keep in touch with your BCN etc to get info. Enjoy your cinema day tomorrow.

 

Paulus - walking is something I really mujst start doing, it's been on my list of things to start for years but there's always been some excuse to not. I don't have a dog I can walk (and anyway not necessary) but no reason why I can't walk places and bop along to my iPod! That will have to be become part of my new normal!

 

Mavit- good luck and hugs for your ANC results today, I do hope it's good news for you

 

Michelle - big hugs and all the best for today, I guess the op shouldn't take too long as you should be out tomorrow, but still a lot to deal with. I'll be thinking of you as I can and wishing that it goes quickly and you escape to your home tomorrow morning. For sure will compare notes.

 

Thanks and lots of hugs to all of you for good wishes. Will update with my progress when I can but may not be till early/mid next week depending on my recovery - crossing my own fingers!

 

 

 

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Re: SURGERY AUGUST 2018

Mavit, I will be staying awake with you as it it my op tomorrow and feeling nervous. I will keep everything crossed for you for good results xx

Quaggie, I am in at 9am tom and out Friday morning all being well. My treatment plan experience has been very different to yours and Appletree’s so just thought I would give you a contrast. Within a week of being diagnosed I had started chemotherapy. It was a massive shock and I didn’t really have a choice but I am glad it all happened quickly. I am HER2 +ve, with 2 tumours and lymph node involvement and was still 47 years old, I’m 48 now. I coped with chemo well and my surgery is less than 4 weeks after chemo which is early but again I’m pleased it is happening quickly. Obviously they wouldn’t do surgery if my blood count wasn’t back up. The original plan was to do a mastectomy but it appears that I have responded well to chemo so they are going to do a lumpectomy and full lymph clearance. If the pathology result isn’t clear then they may have to go back for more or I may end up with a mastectomy after all, but fingers crossed. After surgery I will be having 3 weeks of radiotherapy and a year of herceptin.
I think everyones experience and treatment plan is slightly different. I agree with Appletree it would be a good idea to make notes on what you want and don’t want and questions on how the different treatments might effect you.

Paulus i am with you on the walking, I walked at least 3 miles almost every day through chemo, with friends and dogs! I truly believe it’s what got me through it not just physically but mentally too.

Not long now Jane and it will all be done and we can compare notes!

Hope everyone else is well, I will report back on my op in due course x
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Re: SURGERY AUGUST 2018

Evening everybody

2 weeks tomoro post op surgery and tomoro is the day I will find out the results of my ANC. Whether positive or clear . Depending on the outcome , the oncologist/ BCN - we will be able to discuss proposed treatments for me .
I am so nervous and will pray tonight before I go to sleep that the outcome is good. Fingers crossed.
Doubt I will get any sleep tonight as this will be playing on my mind.
I will provide further update tomorrow evening
Sending you all big hugs - will say a prayer for you all those undergoing surgery/ those recovering
God bless xxx
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Re: SURGERY AUGUST 2018

Quaggie, have you been assigned a Breast Care Nurse? Most breast cancer patients are. It might be worth contacting her and perhaps arranging a face-to-face chat.

 

My understanding is that the treatment plan is put together after surgery has been completed and after the lab results are back. Once the tumour and lymph nodes removed have been analysed, there should be a Multi Disciplinary Team meeting, involving your surgeon, BCN and oncologist, to dicuss your pathology results and the treatments to be recommended. After the MDT meeting, you should be given an appointment with the surgeon and with your BCN present, at which the surgeon will tell you the results and discuss them with you.  A letter is then sent by the surgeon to your GP, outlining the pathology results and the recommendations of the MDT.

 

I was advivsed to have chemo, but it was stressed that as my tumour was 8/8 oestrogen +ve, HER2 -ve, and as there was only one (sentinel) node involved (all 26 were removed in an axillary node clearance), that the relative benefits of chemo were uncertain. I was advised that radiotherapy, hormone therapy and bisphosphonate therapy were all 'mandatory'.

 

After receiving the results from the surgeon and BCN, I was referred on to the consultant medical oncologist and chemo was advised, together with hormone therapy and bisphosphonate therapy. In advance I had read up the info on chemo on the reputable websites (Breast Cancer Care, Cancer Research UK, Macmillan). Bearing in mind my medical history and the fact I live alone, have no partner or relative who can stay and look after me, I explained I couldn't cope with chemo especially as the benefits could well be outweighed by the side effects. I am 69 and quality of life is my priority.

 

The oncologist was sympathetic to my views. I asked him whether there could be long term effects from chemo. He paused a few seconds, then acknowledged that there can be; it can prompt leukaemia, heart problems, long-term damage to your immune system, and your hair might not grow back. He didn't suggest these effects are common, but neither did he claim they are especailly unusual. He acknowledged that in turning chemo down, I was making an informed decision and one which he felt was the right one for me, under the circumstances.

 

In advance of my session with the oncologist, I had provided the BCN with a resume of significant aspects of my medical history and notes of my circumstances. The oncologist had read these notes so took my history into account.

 

If you put together some notes of your own to discuss with the surgeon and the oncologist, with your concerns about any health issues you might aready have, as well as your doubts about chemo, it might help you to feel more in control of your own situation. It can take away the stress of face-to-face discussion, give you something to refer to with relevant dates if needed, and help you to make your decision. The experts are there to advise us, but it is the patient's decision in the end as to what they accept.

 

Best of luck and do ask the experts to talk you through the details of the treatments advised.

 

 

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Re: SURGERY AUGUST 2018

Hi Quaggie, I'm out 8 days out the other side of radiotherapy, and I walk - a lot ! I always have anyway, but it really does help lift a dark mood - and if you stop in a coffee shop for awhile, or just meet the occasional friendly face, it does make a difference. (And I have a husband and son at home, but I could never cope without being able to get out of the house!!) Will your bro be able to come with you and help out next time around? Wishing you a lift in spirits, onwards and upwards. . . . .x
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Re: SURGERY AUGUST 2018

Hi all

 

Jane/Michelle - hope you're doing ok in the lead up to your surgeries tomorrow (it is tmrw yes?).  The night before is the worst as it's so hard to sleep and, if you've got an early sign in, then it's miserable not even being able to have a cuppa first thing, but hopefully the day will speed away and you'll be waking up on the other side of the surgery.

 

Are you both in for day surgery or are you expecting to stay in overnight?  

 

I wish I had your PAs/partners at my place.  My brother and a good female friend did the first few days of looking after but after that it's been fending for myself.  Although that's probably for the best as it's meant I've got back to doing normal things fairly fast and I've been using my arm a lot.  Hopefully that means I'm fighting fit just in time for the second op at the end of the month and recovery from that won't be as traumatic.

 

I'm still reeling from the news of needing the 2nd op if I'm honest - especially as surgeon confirmed that just because the lymph nodes aren't involved, that hasn't ruled out chemo (as I mistakenly thought it would).  So I've still got to wait another week to find out about that and, tbh, it's the thing that's making me the most anxious.  

 

I keep reading about people having 'treatment plans' but I don't know what that means - can anyone advise?  I've only seen my surgeon so far, not an oncologist so maybe the plan will happen when I see them?  But I don't know when that will be.  No-one really talks you through the process do they? 

 

Right, sorry, feeling a bit down this pm but am trying to keep myself busy - going out every day for a 2 or 3 mile walk and putting fun things in the diary (cinema tmrw and meeting with a friend on Fri).  Must keep the brain active and stop it going on a cancer wander.

Wishing you all well - Jane/Michelle - please do post on here to let us know how you are after your ops and when you feel up to it.

 

K xx 

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Re: SURGERY AUGUST 2018

He does sounds worth his weight, I’m sure you could make a fortune but I would wait a couple of weeks! And yes my pa does have a few good qualities but I won’t list them here! X
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Re: SURGERY AUGUST 2018

I'm sure your personal assistant has many other good features! Fortunately mine is not squeamish at all and has been my personal chef since day 1 and is happy to cook me anything at any time, maybe I could make some money by renting him out!!!!!!!
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Re: SURGERY AUGUST 2018

Your anaesthetist sounds great Jane. I Haven’t met mine but I hope she puts me at ease like it sounds yours did! Yes we will definitely have to compare our ops and progress. It’s quite comforting actually to think I’m not going through this alone. Like you I have a personal assistant at home, trouble is he is very squeamish and a bad cook!

I hope everyone else is doing well x
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Re: SURGERY AUGUST 2018

Thanks Ladies, starting to get a bit panicky but I'll manage. I'm pretty sure I will have the same anaesthetist as for my SNB who is lovely and very funny - last time she wrote on my notes that I need a vodka and coke, not a gin and tonic, when I come out of recovery. And one thing I remember just before going under, was someone checking with me that vodka and coke is indeed my tipple!

 

Michelle21 - let's compare notes after our ops even though we're having different ops! There's still time for more purchases - I bought a bed table today - a small one with folding legs that can sit over my legs when I'm reclining on my bed giving orders to my personal nurse (my OH!)

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Re: SURGERY AUGUST 2018

Thanks Appletree that is all very reassuring x
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Re: SURGERY AUGUST 2018

All the best to Michelle21 and Jane304.

 

I hope you both have as lovely a surgical team as I had, and as skilful an anaesthetist. If my surgical experience is anything to go by, there is nothing to worry about. Techniques really have improved as have anaesthetics and analgesics. Most medics treating cancer patients seem to be extra kind.

 

Hoping to see you both back in here again soon.

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Re: SURGERY AUGUST 2018

Hi Jane I was wondering how you are getting on. I still seem to have lots to get sorted although I’m probably worrying about things that will get sorted whether I’m there or not!
I think I have everything I need for hospital. I am starting to feel nervous about it all now and just want it to be Thursday or better still Friday so it is all done.
I hope all goes well with your op Jane, I will be thinking of you. X
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Re: SURGERY AUGUST 2018

Catching up at last, been busy busy. My admission should be done in 48 hours I will have been admitted and (hopefully) relaxing during the final wait before going down to theatre around 2pm. Eeeek! 🙂

 

Today's blood test went better than I expected, the nurses recognised me, called me their dodgy patient and remembering last week's experience and me pointing out the ("Hungarian") vein on the back of my hand, took the blood with no effort although it did hurt but I remembered to breathe. I think it helped having followed some advice to be hydrrated beforehand so had drunk quite a fair amount of water this morning.

 

Michelle21 I think you may have outdone my experiecne with your blood spurting! Hope you're all ready for Thursday - I pretty much am, just the bare essentials to put into a bag. As for the antibacterial wash and nasal ointment it seems to vary by NHS trust or private hospital - I'm going private so maybe this is an extra thing do at my hospital, or they know they will get extra money from my insurance company for the more they prescribe!

 

Belmont Rosie hope your recovery is still going well and that you haven't exhausted your books and Netflix!

 

mavit1 and Quaggie glad things are improving for you both, keep it up!

And I can also add that since my SNB on 21st June, my left armpit is not sweaty but feels constantly sticky where the inside of my arm touches my chest

 

Appletree oh that sounds like quite an experience you had - hugs to you

 

If I've missed anyone reading through the posts, I'm so sorry, it wasn't intentional and lots of good wishes and hugs to you all and look forward to your updates.