63426members
333759posts
cancel
Showing results for 
Search instead for 
Did you mean: 

SURGERY OCTOBER 2018

Member

Re: SURGERY OCTOBER 2018

Hi LInda,
I want to go back at the beginning of January. Also, they said to me today I would have to wait a year for reconstruction, but I am not sure if the breast cancer nurse meant a year after surgery or after radiotherapy. I don't want to be flat for that long!!! I will ask my oncologist when I see him in a couple of weeks.
Best wishes
Jane xx
Member

Re: SURGERY OCTOBER 2018

Great news Jane. I have been told in my results letter I can see the surgeon 3 months after radiotherapy re the other breast being done. When will you go back to work?
Love Linda xx
Member

Re: SURGERY OCTOBER 2018

Hi LInda

 

Well the news is great. They actually took ten nodes as the dye went to more than just the sentinel nodes so they could not identify which were sentinel but all were negative

There has been a complete pathological response of the invasive tumour and all the dcis has been removed so I am officially cancer free.

I am still having radiotherapy ( the tumour bed was 4cm not 5cm so I was worried they would say that I now don't fit the guidelines but they are still keen to do a belt and braces approach as am I). This will be in January or late December. I am hoping to work through if it is January.

Thanks for all your support.

 

Best wishes

Jane xxx

Member

Re: SURGERY OCTOBER 2018

Hi LInda

Well the news is great. They actually took ten nodes as the dye went to more than just the sentinel nodes so they could not identify which were sentinel but all were negative

There has been a complete pathological response of the invasive tumour and all the dcis has been removed so I am officially cancer free.

I am still having radiotherapy ( the tumour bed was 4cm not 5cm so I was worried they would say that I now don't fit the guidelines but they are still keen to do a belt and braces approach as am I). This will be in January or late December. I am hoping to work through if it is January.

Thanks for all your support.

 

Best wishes

Jane xxx

Member

Re: SURGERY OCTOBER 2018

Hi LInda

Thank you!
I am going to the appointment at 3pm today ( as opposed to 4.45pm) when I will get full results. I should still have radiotherapy because guidelines are based on the initial size of the invasive tumour- mine was 5cm, and the breast cancer surgeon said 5cm and above have radiotherapy to reduce the chances of recurrence. Also, I consented to mastetctomy with delayed reconstruction because they said they didn't want to do immediate because of needing radiotherapy. As you know, I was very traumatised about ' going flat' so I would be very upset now if they said they weren't doing radiotherapy. I will let you know.
Love Jane xxx

Member

Re: SURGERY OCTOBER 2018

Jane that is fab news. Soz was going to wish you luck but forgot as at work yesterday. So do you need radiotherapy? X
Member

Re: SURGERY OCTOBER 2018

Hi all,

 

Many of you will know I was due to receive my results this afternoon, after my mastectomy and SNB two weeks ago. Well, the BCN phoned to bring the appointment forward and I asked her for the results. I am thrilled to say, the lymph nodes are clear, and there was a complete pathological response in the breast.
So thrilled!!

 

Love Jane xx

Member

Re: SURGERY OCTOBER 2018

Well Linda- I might sound sensible on here 😊Actually it was a very big decision for me and I was really dreading phoning up this morning to say that I'd decided to opt for a mastectomy. I think I block it out most of the time. I really wish it wasn't happening - but maybe it's too easy to block it out because I just don't feel ill at all? I hope you're feeling better now. It sounds like you've been feeling sick for a long time. I've avoided chemo so far (thankfully!) so I can't comment on the cause ❤x
Member

Re: SURGERY OCTOBER 2018

Magsv sounds like the best plan unfortunately. You sound a very sensible person.
Hope it goes ok today!
x
Member

Re: SURGERY OCTOBER 2018

Been sick yesterday and today. Not sure if due to prawns I had on Saturday a bug or the horrid taste. I rang the helpline yesterday and they said I need 48 clear hours not being sick before returning to work as there are alot of bugs around. They said they would get someone to call me today and the taste is due to chemo. I have been felling sick on and off for weeks though before surgery and chemo finished nearly 10 weeks ago. Anyone else suffering like me? My Mum has been feeling sick and off her food unlike me.
Member

Re: SURGERY OCTOBER 2018

I know Linda. At the time, I did think that the surgeon's recurrence percentage for lumpectomy and radiotherapy were a bit on the low side (I google everything!). I'm thinking that the percentages he gave were for DCIS in general - whereas mine is high grade and there's more than one area and maybe when all that is taken into consideration, the % risk changes?

 

Anyway, I googled both of them and my surgeon is an 'Associate Specialist in Surgery' and my daughter-in-law's friend is a 'Consultant Oncoplastic Breast Surgeon'.

 

So - my mind is made up! I'm going for the mastectomy. I'll phone the breast cancer care nurse on Monday - but I do hope I get the same surgeon again as I've had absolutely no problems and minimal scarring with the last two operations he performed.

 

I think I'll sleep better tonight ... I'll worry about the anaesthetic reactions nearer the time. I wish I knew an anaesthetist :-) x

 

 

Member

Re: SURGERY OCTOBER 2018

Magsv well that is a big difference isn't it? Not really too knowledgeable able %s though. Does she recommend a mastectomy? Odd that the %s are so different than what your surgeon said though. X
Member

Re: SURGERY OCTOBER 2018

My daughter in law is a doctor and has a friend who's a breast surgeon. she very kindly had a good look at my report last night after I took photos of it on phone. She reckons risk of recurrence with mastectomy on would be around 2%. With radiotherapy alone on the right would be around 10%. But that last number might be higher in as have had multiple areas of DCIS in the same breast, and there is some concern that margins aren't optimal. Also said half of DCIS recurrence presents as invasive disease. Radiotherapy might be reasonable if priority was to keep boob and willing to take a higher risk of recurrence.
Member

Re: SURGERY OCTOBER 2018

Hi Linda. I've been tested because of strong family history of various cancers. It came back as not having any gene ... any known one anyway. I'm pretty convinced there's something. Brother had very aggressive prostate cancer, sister had womb cancer and blood cancer, mum had breast cancer and dad lung cancer. Because all in age 60s said that was another factor that meant just an unlucky coincidence. Hmmm?
Member

Re: SURGERY OCTOBER 2018

Magsv do you have BRCA 1/2? I know people on here are thinking about mastectomies on here with cancer in their family but I have read its more to do with lifestyle and would personally be reluctant to do so without getting a second opinion first at least. x
Member

Re: SURGERY OCTOBER 2018

Thanks Linda - that does help 😊. I've also been thinking about the conversation with the breast cancer nurse who gave me the results last week. She was the one who set up the appt for the surgeon yesterday to discuss things further. She said that she understood my concerns (but I found it difficult to get these over as was emotional at the time) and that the main thing was that I needed to be in a place mentally where I was ready to move on from this and get on with life again.
She's right! - probably not helping that my brother and sister both died of cancer since my first diagnosis. x
Member

Re: SURGERY OCTOBER 2018

Magsv I messaged my colleague and she said her friend was told they were not convinced they got it all and so a mastectomy was required. All ok since. Not sure if that helps though.
Love Linda xx
Member

Re: SURGERY OCTOBER 2018

Sorry Linda crossed wires again. I'll only have radiotherapy if I don't opt for mastectomy. I should have said they recommend it if high grade and you're having a breast conserving surgery. I'll just stay flat if I have a mastectomy. Just about flat anyway :-)

Thanks for the advice on re-posting. I'll do that later - and any info from your work colleague would be really helpful. Thanks x

Member

Re: SURGERY OCTOBER 2018

I though that is what you meant Magsv. Would you have recenstruction & when?
Maybe post on here again on a new thread to ask others advice or look through previous posts? Sometimes people on here who work for the website can advise you too.
I think someone at work knows someone who ended up having a mastectomy altough not initially and I think she had DCIS. Can try to find out but not at work atm?
So you will definitely have radiotherapy then!
Pity they don't recommend what you should do although I want to be part of the decision making.
Hope this helps & thanks for the info on invasive cancer and recurrence. I am going to ask my surgical team re that when they ring me re my HER2 results as awaiting a call re that although it was negative after my biopsy. Not sure if it is the oncologist who tells you re that though.
Take care,
Linda xx
Member

Re: SURGERY OCTOBER 2018

Oh my Linda! I must have been too knackered to read over that before posting. I think I meant to write more mammograms being offered. Because DCIS is usually found that way, more cases are being picked up than years ago when they weren't routinely offered. I think research takes a long time and women are followed for 10 to 15 years, they're still gathering info on best way to treat it. That plus better ways of determining benign cases and the various grades. Some cases will never turn into invasive cancer, but they've no way of knowing which ones will so just treat them all. Mine were both high grade and they know that these are both faster growing so more likely to become invasive sooner, plus they're more likely to return - either as DCIS or invasive - after treatment. That's why these types are always followed up with radiotherapy.
The surgeon I spoke to yesterday explained that the latest research has indicated that letrozole type treatment is of no benefit when treating DCIS - only invasive cancer. So hopefully mine is working on the other breast- that had me a wee bit confused. It's also harder to diagnose DCIS accurately than invasive cancer via biopsies. That's why they decided to remove my second one even although it showed up as benign in the sample. It apparently looked just like the one that was definitely DCIS.
I'm thinking along the lines of mastectomy ...Maybe! I know I'll just hate myself if I don't do that and it comes back in a year or so. I'll also dread each yearly mammogram even more than I do now. There's also that 3rd area they biopsies that was thought to be ok to leave ...what if they got that wrong? Should trust them - but my mind goes into overdrive in the middle of the night. I have very small breasts and this one had a quite large benign lump taken out 40 years ago so has always been smaller anyway. I've been buying post surgery bras since last op 3 years ago so now used to padding them up to make clothes look better 🤣. Think I'll ponder it some more over the weekend and phone on Mon. with definite decision.
Gosh - so sorry about another long essay instead of a post! I'm glad your results were good Linda x
Member

Re: SURGERY OCTOBER 2018

Magsv why are there more cases of DCIS being found do you think? (Mammohrmd beign offers?) What do you think you will do and how long do you have to decide? Hope you slept ok. xx
Member

Re: SURGERY OCTOBER 2018

Thanks for thoughts Daisydi and Linda. It is indeed a hard decision to make. When I was diagnosed with invasive breast cancer 3 years ago, I was so happy when I was told I didn't need a mastectomy. I'd also researched things and had learned that the survival rates were exactly the same for lumpectomy plus radiotherapy versus mastectomy. I was very happy with my choice of keeping my breast.

This DCIS is complicated tho. There's still a lot to be found out about it -probably because they're finding more and more cases of it recently due to mammohrmd beign offers It's usually not found out via lumps etc.
Anyway- glad I wrote this ...it helps me gather my thoughts before final decision. My eyes are drooping. Time for bed - can't even focus I'm so tired thinking about it's all xxx
Member

Re: SURGERY OCTOBER 2018

This is all so difficult for everybody having to make decisions like this.  Although my tumour was removed there are multifocal changes in cells next to it which did not show up on anything other than pathology.  My second surgery and axillary clearance is booked for 29th November and now I'm worrying if there are other multifocal changes that havent shown up in either breast.  I had a mammoplasty so a lot of tissue was removed in the first place.  I'm now thinking should I have the whole lot off incase there are any more areas.  Then another part of me thinks it has already shown up in one lymph node so whats the point.  Linda I dont think counselling would help as all I want is for someone to wave a magic wand and make it all go away.  I just hate this so much

Member

Re: SURGERY OCTOBER 2018

Magsv i got my results on Thursday and got clear margins. I have got an onc appointment on the 26th now as I managed to get an earlier appointment as agreed to see another onc as mine isn't seeing anyone in November.
What did he say about the fact you have been taking Letrozole to stop a recurrence?
Could you get a second opinion as you want to minimise the chance of reoccurrence but it sounds like different areas have different approaches? I would be against a mastectomy unless absolutely necessary and thats why I got a second opinion but other people think differently. I didn't ask re different recurrence percentages but thought there wasnt any but I had IDC. I am sure my surgeon would have said if there was a difference though. See what others say though.
Take care,

Linda xx
Member

Re: SURGERY OCTOBER 2018

Well, I've had my appointment and have a decision to make now. My first question was about the 3rd area that was biopsied for DCIS but not removed. He explained that they grade the biopsies from 1 to 5. 5 being definitely DCIS, 4 is suspicious, 2 is benign and 1 means it's just normal tissue. Mine (the one they left in) was 3 - wish I could go back ask more about that!

 

My next question was, if it had been known from the very start that there were 2 definite areas of high grade DCIS in different parts of the same breast, would a mastectomy have been advised over 2 WLEs and radiotherapy? He seemed to nod at that, but said that in another area he knows of, they are doing breast conserving surgeries plus radiotherapy in these cases.

 

Next was a question of how likely a recurrence was for each procedure for high grade DCIS. He said it was high if lumpectomy alone. Very good if lumpectomy plus radiation - but better odds if I had a mastectomy (he mentioned 2% with lumpectomy, and 1% with mastectomy, but I've read slightly less favourable odds?).

 

I also had circled a bit of my pathology report where it mentioned that there were clear margins of 1.5mm, but in the anterior margin edge there was evidence of DCIS present. he said he wasn't too concerned about that as the radiotherapy would most likely deal with it, however he was happy to operate again to remove that bit.

 

So - the decision's mine. He said that he should point out that radiotherapy has a slight chance of damaging the lungs in time (and I've already had radiotherapy to the other breast so have to think about that apparently), but I have to weigh that up with the risks involved in having another general anaesthetic and a mastectomy.

 

So sorry about the long, involved post - but I think writing this down will help me decide the next step. And any thoughts would be most appreciated :-) xx

Member

Re: SURGERY OCTOBER 2018

Daisydi

 

My heart aches for you. All the ladies on here can truly empathise with you. It is so disappointing when the reality doesn't meet your expectations. It is so draining to keep having to pick ourselves up and remain positive to accept the next stage of treatment.

All I can say to you is that you will get through this.It is only in one node, so the axillary clearance is going to remove the opportunity for spread in a 'belt and braces' approach. You clearly heal well if it is all healed up, so you will heal quickly again. 

I am one week post mastectomy and I get my results next Thursday. Four nodes were taken to check for cancer. So I really do know how you feel. I keep telling myself this is a blip in my life, I will recover and be a stronger woman for it, and it is the same for you.

But I don't take away from how you feel right now. It is a shock and deeply upsetting so allow yourself to feel sad and angry, but then you will pick yourself up, and get on with the next step to a full recovery.

Thinking of you

Jane xx

Member

Re: SURGERY OCTOBER 2018

Daisydi sorry to hear this! When will your surgery be? Try to stay strong. I think I would think at least they have found it now and they will remove it. That is the main thing. I had 2 sentinel lymph nodes removed in April so had 2 ops plus another potentially on the other side 2 months after radiotherapy. We will support you through this. Have you thought about counselling? Xx
Member

Re: SURGERY OCTOBER 2018

Went back for my results today and to say I am devastated is an under statement.  Although my tumour was removed with decent margins there is an area of multifocal pre cancerous cells next to it so I have to go in and have that removed also.  It is only 10 days since my surgery and the dressings were taken off and it has all healed up now to be cut into again.  Also one of the two lymph nodes was positive so I have to have an axillary clearance too.  I feel so sad.  I was feeling great this morning and now this.  How can I cope??

Member

Re: SURGERY OCTOBER 2018

Just checking out The Titty Gritty blog Janie. Looks great 👌😄. Off to have a closer read 👍

Member

Re: SURGERY OCTOBER 2018

Thanks for the best wishes for tomorrow Linda 😊.

 

I’ve been away catching up with the Manchester grandkids and their mum and dad. It was a good distraction and hardly thought about tomorrow’s appt at all. I did pop in here when I got the email message to say there’d been updates tho and was happy your op went well. 👌When do you get results?

 

It’s hard work getting back to thinking about all this again. I’m trying to work out what I want to say. I’ve got 3 questions for tomorrow- but want to mention that they’re also coming from someone who’s already taking medication that’s supposed to help prevent breast cancer. 

 

If he says not to worry everything in plan is ok, I’ll worry about the nagging doubts I have ... and if he offers me a mastectomy, I’ll worry about having to go through another operation (it’s the anaesthetic after affects I have trouble with) A no win situation 🤔

 

How is everyone else doing? xx

Member

Re: SURGERY OCTOBER 2018

Hi Jane,
Yes I thought the blog was good too. Glad you read it and found it funny. Yes definitely have to laugh about this.
Had a bath today and shaved my legs. It's been ages since I've done both things. I used the red dot shampoo from Lush today and it does look longer already. I don't think it worked that fast though.
Not allowed to go for a massage but off to Weston Super Mare tomoz to try on some boots in Next. Maybe have a walk round too as not done that yet.
Glad u are less traumetised & in little pain (assume that's still the case). I think my back hurts due to the exercises. I went for a walk today and felt abit spaced out but other than that been ok today.

Tried on an old padded bra and it looks normal not lopsided.

Take care,

Linda xx
Member

Re: SURGERY OCTOBER 2018

Hi Linda,

Thanks for the post. Things do seem to be moving in the right direction. Would definitely be good to hear about the other ladies on this thread.

The blog you mentioned is called ' The Titty Gritty' and it is fab! Even when she described her mastectomy operation she managed to make it funny. I loved the section on what not to say to someone diagnosed with breast cancer. We have to find the humour in this situation we find ourselves!

Best wishes to you all

Jane xx

Member

Re: SURGERY OCTOBER 2018

Hi all,

Jane yes feel positive most of the time but still have some dark thoughts. My Dad has said afew times about women who thought it had gone then it comes back. I keep saying to him that is why I am having chemo, radiotherapy and hormone treatment. I knew he would and that is why I asked my bro to tell him.
Anyway I am feeling less drained now. I had back ache, felt sick and a liitle boob pain yesterday. I had the sickness and back pain recently before op so just ongoing se's I think. I went shopping in Exeter yesterday and so am feeling stronger each day. Thinking about having a massage and going to yoga tomorrow but not sure if yoga will be too much atm.
I am doing the exercises but struggle with the one where you raise your arms over your head to the floor. I can't reach the floor.
Yes good path results will be a boost.
Good luck Magsv with your meeting with the surgeon. How are you feeling?
How is everyone else doing?
Daisydi how long are you off work for assuming you do work? Did you have both sides done? When are your results?

Just saw a discussion on Lorraine re whst to say to someone with breast cancer. If you look on the web site there is a blog by one of the women so may look at that.

Love and hugs,

Linda x
Member

Re: SURGERY OCTOBER 2018

Hi LInda,

You sound very positive. That is good! Glad it went well.

I have read lots of anecdotal evidence about how to eliminate the salty taste. Spicy food is definitely meant to help.

 I am feeling good today. Very little pain. I am being very good with the exercises! I need to get my full range of movement back in case I go back to work in December. I feel less traumatised each day though I am sure there will be ups and downs ahead though. I think if I get a good pathology report it will be a huge boost. A week on Thursday. I have everything crossed!

Best wishes

Jane xx

Member

Re: SURGERY OCTOBER 2018

Ho Jane,
Had picc line removed and so I can have a bath now but def tomorrow when dressings removed. I didn't feel anything. It's nice not to have it anymore. The nurse had to get the hospital to confirm it could be removed. I gave her the oncs ps's number as she couldn't get through.
Yes I will be invincible after this ends. I feel alot better today. I tried lemon in cold water which seems to have helped. The nurse on the chemo line thinks my salty mouth is due to chemo and should improve soon. So i will monitor it and let her know if not getting better.i had to call her re checking if pucc line measurements were needed. The nurse had them anyway who removed it.
Also was advised that strong foods are good so had a sweet potato and lentil curry that was yummy.
The picc line nurse said that I look fine with sports bra until i get the other side done.
How are you feeling today?

All the best,

Linda
Member

Re: SURGERY OCTOBER 2018

Hi Linda,

Thank you for your good wishes.The second surgeon I saw said the same thing about women being happier with a delayed reconstruction- I think that's because it will never look exactly like the original breast, but by the time I have the reconstruction I will have forgotten how it used to look, and it has got to look better than it does now!

Good luck with getting your picc line removed. Just think what you have endured so far. By the end of treatment you will be an even stronger woman, as will all the lovely ladies on this forum. Ordinary daily crises will seem a walk in the park after what we have been through!

Best wishes

Jane xx

Member

Re: SURGERY OCTOBER 2018

Hi Jane,
I am glad that you coped well with looking. My nurse said to me to just think of it as temporary when I was discussing having a mastectomy with delayed recenstruction. She has been really supportive when I get my picc line flushed.
Apparently people are happier with the result when having delayed reconstruction.
I asked re skin used to replace skin they remove and was told they use a skin graft for reconstruction.
Fingers crossed for good results on the 15th.
Not looking forward to today as hoping to get picc line removed. I am such a wimp. I thought I was less squeamish now but obvioulsy not after last week.
All the best,
Linda xx
Member

Re: SURGERY OCTOBER 2018

Hi Linda

Oh my goodness. I decided to do it last night just before going to bed. I had almost decided that I was going to glance at the scar, and then keep my eyes averted from it til the reconstruction. But some of my friends were concerned about the psychological impact of that on me.

Anyway, I slowly removed the dressing, and it wasn't as horrendous as I feared. Obviously I don't like it, but I didn't cry. I felt philosophical really. I thought, it's not forever. It is a neat horizontal scar ( quite long as they have taken four lymph nodes for testing). I had a shower, not getting it wet, and then put a new dressing on. I got a really nice post surgery bra from M and S which arrived in the post yesterday. With my knitted knocker in place this morning I looked completely symmetrical. Some of my girlfriends came round today and were amazed at how natural it looked under clothes. 

 Also, I thought to myself, when I get dressed and undressed ordinarily, I don't stare at my breasts, so when I showered this morning etc I didn't linger on looking at them, I just decided to glance as and when and just accept them until reconstruction.

Hey, I am glad your eyebrows are growing back! Annoying about the continued side effects from chemo. I am over chemo thankfully. Just hoping so much that the nodes are clear. 

Best wishes 

Jane xx

Member

Re: SURGERY OCTOBER 2018

Hi Jane,

How did the big reveal go? I hope it wasn't too traumatic.

I didn't suffer too much with chemo apart from feeling sick when having FEC. I seem to be still having annoying se's though.

My eyebrows are begining to grow back I noticed yesterday.

Take care,

Linda x

Member

Re: SURGERY OCTOBER 2018

Hi Linda

I didn't go on to the chemo threads as I found the chemo quite bearable after the first two and I wasn't really aware of this website.However, when I had to decide between mastectomy or lumpectomy and radiation, I really wanted to see what other women had gone through and ask their advice. Little did I know that it was already decided in my treatment plan that I was definitely having mastectomy and radiation.

Best of luck with going back to work. I hope the side effects from the radiation are not too bad. I think it affects people so differently. It's a bit like chemo in that respect. After the first two, I wasn't too bad. Just the dreadful fatigue for a few days, and feeling very emotional, and then that passed.

Best wishes

Jane xx

Member

Re: SURGERY OCTOBER 2018

Hi Jane,
Yes I intend to work during radio. I feel so drained atm but am hoping to go back to work in a week ideally or 2. It will just be a case of going to the hospital each day ideally first thing or last thing but work home and hospital are quite close fortunately so hopefully it won't take a big chunk out of my day. Will see how it goes though. I don't think the se's are too bad though. Were you on one of the chemo threads?
Take care,
Linda x
Member

Re: SURGERY OCTOBER 2018

Hi Linda,

It sounds like my plans re work may be scuppered! I had to give up work on 26th June on the advice of the breast care team. As I work in close proximity  to my patients I would be at risk of infection especially with low neutrophils ( and in fact I ended up in hospital with neutropenic sepsis after my first chemo)

My plan was surgery, ( ideally lumpectomy), four weeks recovery, radiotherapy in December and back to work January. I still thought even with mastectomy, if I started radiotherapy within thirty one days, then had the radiotherapy, this time scale would work, as I was told it would be three weeks of radiotherapy. Now I am thinking, maybe I should go back to work in December, and fit in radiotherapy at the end of the working day in January or whenever it starts. Are you intending to work during radiotherapy?

The only positive thing is that currently the radiotherapy unit is about twenty five miles away, but the new radiotherapy unit should open at our local hospital in January, which is just up the road from the dental practice where I work. It was supposed to open in June this year but got delayed.

Best wishes
Jane xxx

Member

Re: SURGERY OCTOBER 2018

Hi Jane,
My appointment with the oncologist is 6 weeks and a day after surgery. I am expecting a call from the oncs pa so am going to ask her but my surgeon said it should start within 12 weeks of surgery. I have 4 weeks or so now to recuperate as still got mouth and toilet issues. Also my hand and foot feel cold/ numbish on one side. I mentioned my hand being cold to the surgeon and he said it would be chemo related.
I have completed my NHS survey and have another from my local hospital re chemo and have been asked to go on 16th to a discussion on the survey. Not sure yet if I will go as if I am working it will mean taking holiday or not being paid potentially. How long are you off work Jane
Take care,
L x
Member

Re: SURGERY OCTOBER 2018

Hi Linda,

I really hope you're right regarding the timescale for reconstruction! Six months seems so much more bearable than a year. I am also not sure regarding the timescale for radiotherapy. The second surgeon said I would have to wait for ten weeks for healing , the oncologist said it is usually  4-6 weeks after ( though this was when he was talking about lumpectomy with radiation), and I have read that 3-6 weeks post mastectomy and certainly ideally within 31 days is the norm. Do you ( or does anyone else) know? 

 They did mention an uplift of my healthy breast, and I would certainly be keen for that. I would like to be as symmetrical as possible long term. At least you have a little while to decide. 

Best wishes

Jane xx

Member

Re: SURGERY OCTOBER 2018

Jane soz you did say previously but interesting re the offer to do an immediate implant. I was being considered for an immediate diep but may not have been an option as I have lost weight and was slimish anyway. They did say no-one had had an immediate diep altho not 100% sure that was correct. They said I may not be able to have a diep immediately even if an option but the surgeon I was going to see at another hospital would tell me.
Anyway I think they thought I was traumetised too so sent me to a councillor but by then I had got a second opinion so the councillor thought I was coping ok and had done the best thing.
I am sure you will be able to get reconstruction done in 6 months or less. I know someone who had one who is very happy with it.
I have to decide if I want my other boob lifted to match. Some nipple sensation may be lost but won't look lopsided in the nude. I wasn't going to but I think I will now but have afew months to make my mind up.
Linda x
Member

Re: SURGERY OCTOBER 2018

Hi Linda,

I am 51 and was diagnosed at 50, a couple of months before my birthday. 

I think it is good to get a second opinion, but I actually ended up speaking with three different surgeons, all of whom said something slightly different, though they all agreed mastectomy was the only option. The senior surgeon, who saw me just over two weeks ago, advised that I needed a mastectomy, and, if lymph nodes were clear, no radiotherapy would be needed, and I could have reconstruction with an implant eventually, as this would have least effect on my left arm ( I had breast cancer in my left breast and I am left-handed).

The second surgeon said I was definitely having radiotherapy, and I wouldn't be able to have an implant after radiotherapy but I would have a full reconstruction, though they may struggle to find enough skin as I am quite skinny. It can't be from my back ( due to the effect on my arm), probably not my stomach (due to previous caesarean), so possibly inner thigh or bottom. She said I could not have a temporary implant at the time of mastectomy due to a one in four risk of complications( but I see other women on this forum were offered an implant in a mesh, before radiotherapy).
Then the surgeon who carried out the mastectomy,( a locum from a different hospital), and saw me before the operation, was very sympathetic as I told him how traumatised I was feeling, and he implied that he would have been happy to have given me an immediate implant, but it would cause a delay, then he added that he wouldn't want to annoy the other surgeons by changing the treatment plan. He also said I wouldn't necessarily have radiotherapy, and I still could have an implant after radiotherapy.

So three different opinions, which makes it all very confusing. I expect I just have to wait for the review on 15th November.

Best wishes

Jane xx

Member

Re: SURGERY OCTOBER 2018

How old are you Janie? I am 52 but was 51 when diagnosed. I know how you feel as I was told I would need a mastectomy with no reconstruction recommended immediately. I think I must be vain but the therapist sais it hits people at the end of treatment. I got a second opinion. My head is in a good place due to doing that. I thought at least I knew I had all the options. I have been working full time most of the time to keep busy.

What type of reconstruction will you have?

By the way I work in house insurance and live in Somerset (from Lancashire though).

Maybe use the Someone Like Me on this site to talk to someone or get some counselling to help you get through this temporary period. You are more than your boobs.
L x
Member

Re: SURGERY OCTOBER 2018

Hi Linda,

I didn't realise you had neo-adjuvant chemo, like I did. So, definitely, it should be fine to see the hygienist. Also, you could see your dentist any time really.

 Thank you for your comment about being able to have surgery only two months after the radiotherapy. I will certainly ask for it as soon as possible. I am finding the mastectomy the hardest part of the treatment so far. Tonight I am taking my dressing off, as instructed, and I am absolutely dreading it. I had a very wobbly day yesterday, crying on and off about what has been done. It really feels like I have been mutilated. I knew I would find it difficult, but I didn't appreciate how traumatised I really would feel. Hopefully, I will get used to it.

Best wishes to you

Jane xx

Member

Re: SURGERY OCTOBER 2018

Thanks ladies Ive now started doing exercises again

Member

Re: SURGERY OCTOBER 2018

hi daisyd

re exercises - I stopped doing mine as I had full range of movement. About a week later I realised I was feeling quite tight across the chest, and when I tried exercises realised that one was quite sore even though I still had good movement. I've been exercising since, and after a week it's all fine again. I would keep doing them :-)