Just stopped by to say that I'm HER2+ and I had chemo first - I don't remember having a choice. It shrunk the tumour enough that I had a lumpectomy on Thursday last week. I need to wait a couple of weeks for the results of that. My oncologist said that having chemo (FEC-T) first, then surgery and then radiotherapy was the "gold standard" for HER2+ cancer. I've also just started having an Herceptin injection once every 3 weeks into my thigh (will have these until May next year).
I hope that helps a bit?
Hi I am 3 days post surgery, skin sparing mastectomy, LD flap and axillary clearance. I was sore the day after but had fantastic pain relief like oxycodone tablets and paracetamol which was enough for me but could have had other things too. I had 3 drains in which were reduced to 2 now.
My axillar and below my axillar or next to the recon there is a build up up of fluids and i am wondering wether that drain had been removed too soon?? Anyway got the district nurse coming tomorrow and see what they say.
I feel emotionally ok so far, physically i am still stiff with some discomforts, I take regular Paracetamol. It is frustratrating at times as I can't yet move around or do things as I like.
I take small walks everyday dont want to over do it but it is boring at times as I normally have a busy working life.
My surgeon said I can have correction surgery to the other side once I am fit from this episode
Hi again Xela. Yes it seems we're on a very similar path. I'm rubbish at the breast cancer lark and don't know what half the abbrevaitions used mean - I am 'learning' though as I go along and from reading experiences on this fabulous forum.
Like you at my first one stop appointment all the ultar sound scan showed up 2 lesions in my right breast - these were biopsied (I hated having the biopsies as I'm quite a whimp) and one was garde 1 invasive ductal carcinoma ER positive abd Her2 negative and The other showed suspicious cells labelled C4 (may as well be speaking 'clingon' for all this means to me!🤣).
Consultant could feel more on examining me so sent me for an MRI - 45 minutes of trying to stay still in an uncomfortabel position left me light headed and stiff.
The MRI showed up 4 further nodules which were biopsied. But a these didnt show up on the ultra sound the radiographer was finding it difficult to locate them but she took 3 biopsied from the general area.
At my appointment on this Wednesday I was told those biopsies were benign but it was felt the 4 new 'things' hadnt been biopsied. They said they were pretty sure they would be cancer and if I wanted to try and preserve my breast they would have to do MRI guided biopsy, my surgery would have to be further delayed and it was felt it was only delaying the inevitable and it would have to be a mastectomy in the end in any case.
Now the thought of going through another 45 minute MRI and more biopsies filled me with dread. My poor breast is still black and blue and not really recovered from the 1st two rounds of biosies. Also I had built myself up to the pre op on Monday, going on holiday coming back and 2 days later getting rid of the b*****d. The thought of delaying everything yet again for another 3-4 weeks was awful for me. I've been 'dealing' with all this since my 1st visit to the doctors on 13th July - so it will already be over 2 months passed and I'm no further on.
So, after discussing the options with my husband and BCN i decided to have the mastectomy and keep my surgery date for 24th Sept.
Like you, I have loads of books and leaflets to look through, but to be honest I'm feeling drained at the moment- had a melt down on Wednesday night - I slept for an hour in the middle of the day yesterady (which isn't like me) - god knows what I'll be like after surgery if i'm this tired just dealing with appointments.🤦♀️.
Sorry that was a rather long and rambling post, but feel better for writing it all down.👍
Hi Xela. I have never been told the stage. I’m a bit confused about it to be honest. When I was first diagnosed I did the usual googling which scares the sh** out of me but did help me find this forum which has been an absolute godsend. I seem to vaguely remember reading on the net that they couldn’t tell the stage until after surgery, so I never ‘pushed it’. But I know now most people seem to know the stage before surgery. I get copied into all the letters sent to my doctor and there’s no mention of stage in any of them.
ive been told it’s 40mm - is it the that determines the stage? I don’t want to start googling again so any help on this topic would be much appreciated. Xxx
Hi - thought i'd join this September surgery thread - I have my pre op assessment on Monday and in for a mastectomy of my right breast on 24th Sept with reconstuction and SLN biopsy - lymph nodes look OK so just 3 or 4 being taken to doubel check that is the case. Hoping that will be the end of it and no chemo required - although surgeon couldn't guarantee that aspect.
Really feeling quite nervous about it all now and reality is staring to sink in - 6 weeks of scans, biopsies etc have sort of kept my mind off what was really going on - but it's hit home now.😥
Good luck to all us September Surgeries.
Starting a new thread for September surgeries. I am having a Wide Local Excision and auxiliary node clearance today. Not too concerned about the WLE but dreading the node surgery. Would liove to share experiences with any one else having surgery this month.