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Safe margin clearance after a lumpectomy

13 REPLIES 13
Dizzybee
Member

Re: Safe margin clearance after a lumpectomy

I asked for copies of my pathology reports and my BCN had them waiting for me at my next appointment. I found it really useful to go back through them at home, I think I understand better what I had. Not everyone wants to know the details though, they seemed a bit surprised when I asked.

ladybowler
Member

Re: Safe margin clearance after a lumpectomy

Feenix

 

Well that is great that you are going to see your surgeon

 

xxx

Feenix
Member

Re: Safe margin clearance after a lumpectomy

I did take my list of questions (bullet points) but still forgot ladybowler !!

Anyway I emailed my bcn and surgeon happy to see me again.

xx

ladybowler
Member

Re: Safe margin clearance after a lumpectomy

Feenix

 

I got myself a little notebook after I was diagnosed and I would write down all the things/questions I thought about as I went along so that I could ask them either at my appointment or when I spoke with my breast care nurse xxx

Feenix
Member

Re: Safe margin clearance after a lumpectomy

I would never thought to ask for copy of histology. I’m for wle and snb next week so good info for f/u.... I always seem to remember things to ask after appointments...
girly888
Member

Re: Safe margin clearance after a lumpectomy

Hi Fenouillard, very glad you have it at last and hope the MDT can put your mind at rest.

 

I am having a reduction on my good side this summer and my understanding is that the removed tissue is examined -  I will feel nervous waiting for the results, even though my January mammogram was clear.

 

all the best for your meeting, girly

Fenouillard
Member

Re: Safe margin clearance after a lumpectomy

I’ve finally got a copy of my pathology report by insisting. I’ve also booked another meeting with my consultant to go through it so I finally hope to understand the MDT’s thinking. It is all a bit of a struggle though isn’t it? 

 

F

girly888
Member

Re: Safe margin clearance after a lumpectomy

Dear Fenouillard, glad it was helpful.  I am a bit of a bore about this but have suggested a few times that ladies ask for a paper copy of their results whilst they are at the appointment - I know that I'm not so good at remembering everything that has been said to me plus I have read my report a few times when something cropped up that I wanted to check.

Hope you get on ok,  best wishes, girly.

Fenouillard
Member

Re: Safe margin clearance after a lumpectomy

Thanks so much Girly888. This was very useful. It’s been promised but I still haven’t seen it. Curious

 

best wishes 

F

girly888
Member

Re: Safe margin clearance after a lumpectomy

Dear Fenoillard, I am sure your surgeon will be happy to give you a copy of the information - you have the right to see it (without anyone's authority.......)  best wishes, girly

 

See below:

 

The Data Protection Act gives you the right to ask for a copy of the information an organisation holds about you. This right is commonly known as a subject access request (SAR).

Requests for medical (health) records

  • A request for information from health records has to be made with the organisation that holds your health records – the data controller. For example, your GP practice, optician or dentist.
  • For hospital health records, contact the records manager or patient services manager at the relevant hospital trust. You can find a list of hospital trusts on the NHS Choices website.

 

 

 

mustardandgrey
Member

Re: Safe margin clearance after a lumpectomy

Hi, Fenoillard!

 

I've just had pathology results from a WLE today and my margins, although clear, were only 0.5mm on one side.

My surgeon wasn't happt with that as he likes a full mm, so I'm going back to surgery on Thursday to shave some more off the margin.

 

Sarah xx

Fenouillard
Member

Re: Safe margin clearance after a lumpectomy

Thanks so much for your reply. I have tried various avenues but they all seem to lead back to the surgeon so I’m going to book a call with her for when she gets back. I’ve been told that I can’t get a copy of my pathology report or the minutes of the MDT meeting that refer to discussion of my case without her authority. 

ladybowler
Member

Re: Safe margin clearance after a lumpectomy

Fenouillard

 

Hello and welcome to the forum.  Cant help you with your query but I wanted to acknowledge your post.

 

Just a thought is there anyone else at the breast clinic that you could have a chat to about it letting them know what your concerns are so that you can get some peace of mind and understanding of how the boosters will help, or perhaps your oncologist to see what they say x

 

 

Fenouillard
Member

Safe margin clearance after a lumpectomy

Hi everyone. I have a question about the safe margin clearance after surgery. I recently had surgery to remove a 4.5 mm grade 2 invasive ductal carcinoma with DCIS. I was told that my margins were clear although a little close at the front (anteriorly), so I was initially pleased with the outcome. Yesterday I had a meeting with the radiologist prior to having radiotherapy and was shocked to hear that the front margin was only 0.5 mm. The guidelines appear to be that a margin of at least 1 mm needs to show clear from cancer tissue. I have been told I will be having a booster week of radiotherapy to address this issue but I’m really concerned that I ought be discussing whether to have a re-excision with my surgeon. I can’t speak to her at the moment as she is on holiday and my breast cancer nurse was really unable to help other than to say I should speak to her. Has anybody had a similar experience? Thanks so much and all the best for your own path.