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Starfish nipple removal

6 REPLIES 6
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Member

Re: Starfish nipple removal

Hi SU

 

Thanks for your message. I will be thinking of you tomorrow. I think waiting for results and treatment decisions is so hard.

i didn’t realise I needed chemo initially and 6 months feels like a long time, and especially restrictive because of covid and having lowered immunity. On the other hand it’s helping giving me the best chance of preventing recurrence and once I knew the oncologist said I needed it, and I had got my head around it, I just wanted to get started.

For the first 10 days I felt tired and probably overdid things and didn’t rest enough. I was given anti sickness medicine so I didn’t feel sick, which was my main fear. I have had stomach pain on and off, and feeling a bit queasy, but it hasn’t been as bad as I thought  it would be. I think the doctors have to go through every possible side effect and when you read them all  it does sound very alarming but no one is likely to get all of them at once!

I rang the helpline and talked everything through with the nurse who was very helpful. I’ve rung them several times in fact.

 

sending you positive vibes back 🌼

 

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Member

Re: Starfish nipple removal

Hi Carmen

Hope things are going well.  How do you feel about having chemo?  I find out on Monday if I need chemo after my tumour was regraded to grade 3.

Sending positive vibes 

SU xx

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Member

Re: Starfish nipple removal

Hi SU!

Good to hear that you are pleased with the result of your surgery.  My breast looks a bit odd as I have a bit of a dip where the lump was removed and the breast is a bit smaller and higher than the other. I think they can take some of the areola from the unaffected breast to construct a new nipple, however my areola is not big enough apparently! At the moment I’m a bit preoccupied with starting chemo, but the surgeon assured me they would be able to do something in the future, after chemo and radiotherapy, to even me up and create a better shape, give me a nipple tattoo, and create some sort of a nipple. I would like to look a little bit more like I used to in the future, if that is possible.  I have Googled nipple  tattoos and they are impressive. There are also custom made prostheses.

Good luck with your post op recovery and let’s keep in touch to share nipple related news  ( ever thought I would post that phrase online)! 😊

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Member

Re: Starfish nipple removal

Hi Carmen 

I am in a similar position, I had my surgery last Friday, my cancer was also behind the left nipple and had to be removed.  I wasn’t actually told what the scar would be like and expected to find a horizontal scar but was pleased with what I called my tied balloon look.  I didn’t know it was called starfish.  

I now too have to think about reconstruction and have been told that they can use part of my right nipple to even things out but I’m not sure how I feel about this.

I hope we can support each other as we have gone through a similar experience at  the same time.

Thanks

Strangely positive 

 

 

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Member

Re: Starfish nipple removal

Thanks, I was feeling a bit lonely out there! I have phoned the helpline a couple of  Times and it has been very useful 😊

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Community Manager

Re: Starfish nipple removal

Hi Carmen Verandah, 

Thank you for your comment. Whilst you're waiting for a reply to this thread, you may find it useful to speak to one of our clinical nurse specialists on 0808 800 6000

Sending you our best wishes, 

Saskia

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Member

Starfish nipple removal

Hi

I’ve never posted to a forum before, but I’ve never had breast cancer before, so here goes. 3 weeks ago I had a wide local excision, and axillary node clearance. My lump was behind the nipple, which had to be removed, which was a bit of a shock, as I rather liked my matching pair. My surgeon said she would use a starfish technique but did not have any photos to show me. She said this would be much better aesthetically then a more traditional horizontal scar. It doesn’t look great! The nurse and surgeon said it was healing beautifully, but I’m a bit traumatised. The long whiskers dissolvable stitches don’t help. Has anyone had one done, and if so what is the outcome further down the line? At the moment I have a big dip in the breast too. I have researched 3D nipple tattoos (who knew?), and nipple prostheses, which was also an eye opener.