Just an update, I wen in for my first small operation on wednesday. Long wait till 4pm before I was taken in, and they had to go deep to find the nodes so I needed a lot of painkillers when I came round (enough IV morphine and tramadol to "knock out a pony" I was told) But it soon soothed everything. I slept well and the team was great. Got home yesterday as I was kept in overnight due to the painkillers. Slept well again.
I woke up this morning with a shot of adrenalin and have been bouncing around all day, having to hold myself back, not much soreness.
I've got a meeting with the surgeon's doing my mastectomy with DIEP flap reconstruction on Tuesday so hopefully, I'll get a date for the big op. I have to wait 2 weeks for the results of this last op.
Op was much less scary than I'd anticipated and it's made me less worried about the next one.
Hope everyone else is well
Thank you for sharing your experiences am feeling more reassured. I think I will assume overnight stay if home same day then a bonus.
Trying to keep busy so not thinking too much about Monday am glad it is in the morning . Hope you are resting and not in too much pain.
I had my surgeries in mid November (lumpectomy & SNB) and now 1st week in January (mastectomy & node clearance). I was also anxious about having 2 surgeries so close together and I do feel a lot more tired after this second one but it is also a bigger op. I was, however, much less anxious on the actual day of the 2nd op as I was familiar with the routine, etc. It probably took me slightly longer to waken fully from the anaesthetic - I was discharged pretty quickly after the first op but there was no way I would have been ok to go home the same day with the second op. The next day though - in fact through the night - I felt well enough to go home.
I hope all goes well for you.
Hi Yorkshire 50
Sorry you have had to join this thread after already having surgery. I haven't had 2 lots if surgery but have been under the aneasthetic twice on 28th November when my surgery was abandoned and then again on 7th Jan when I had my lumoectomy and sentinel node biopsy, I was very sleepy after the second time. If you speak to your bcn or the nurse specialists on this site hopefully they will be able to reassure you.
Hi everyone on this thread.
This is my first post.
I have completed neo adjuvant chemotherapy followed by lumpectomy and sentinel node biopsy December 2019. Unfortunately margins were not clear and now require mastectomy due 13th January. Am anxious having 2 list of surgery so close together.
Hope all that have had surgery are recovering well.
Glad your surgery went well I hope you are putting your feet up now 😀
I had my surgery on Tuesday it went well but stayed in overnight because vety sleepy, low bp and sats. I don't have any pain at present ( but have a high pain threshold normally). I keep forgetting not to overstretch though!
Take things easy and lets hope our results are good 😀
I had my surgery on Monday (mastectomy w/o recon and axillary node clearance) and am now back home. I'm not in too much pain, especially from the mastectomy wound, but my arm is very numb and I am getting really sharp "pinching" pains under my arm. It just all feels so strange and un me like, but I'm sure in time I'll get used to it.
Hope anyone else who was having surgery this week is doing ok.
Thanks Blackcaf I will do that as I haven’t been given any information as they rang me yesterday to arrange it for tomorrow having been referred that day by the plastics surgeon. It’s all very prompt.
I had a CT scan shortly after my diagnosis (of chest, abdomen and pelvis), and it was a fairly quick procedure. I did not have to wear a gown, as I was wearing nothing with metal in it (such as a bra with metal hooks) and had loose clothing on. I was having a scan with contrast dye, and this involved having a cannula put in my arm - when the dye was flushed through, I was told
I might have the sensation of passing urine, although this would not be the case (thankfully
I didn’t feel anything). The scanner is large and not at all claustrophobic, and my scan took only about five minutes. The experience was much better than having a breast MRI.
My hospital gave me useful leaflet about the scan, which explained the process, the risks and what you could wear if you didn’t wish to change into a gown. If you haven’t received a leaflet, it would be worth having a look on your hospital’s website, as the information might be there.
All the best for tomorrow!
Sorry you have had to join this club. I have never had a CT scan but if you post your question in the 'ask the nurses' or 'top tips' feed someone msy be able to answer you. Hope everything goes ok with your scan tomorrow x
I’ll be joining you guys having surgery in January. I will be having a mastectomy and DIEP reconstruction on 29th. I was diagnosed 12/12 with DCIS and a small invasive cancer in my right breast having had a total duct excision on 26/11 to find out why I was having a nipple discharge. The results were a complete shock.
It’s rubbish that we are having to go through this but I take comfort in the fact that I won’t be going through it on my own.
I have a CT scan tomorrow to check the blood flow in my tummy for the DIEP, never had one before and no idea what to expect. Any tips? Do I need to wear a gown for it?
Good luck January peeps.
Laura x x
Hello ladies, firstly the very best of luck to all of you going through surgery this month and I hope everything goes smoothly. I too am having surgery in 2 weeks. It will be my 4th round of surgery and my second mastectomy.
I was first diagnosed with high grade DCIS in 2012, has a lumpectomy, then another to get clear margins and then radiotherapy. At my first year mammogram in 2013 they found that the DCIS had returned, there was even more than the first time and were micro invasions so I had a mastectomy and SNB. I had an immediate LD flap reconstruction with an implant. Prior to having the mastectomy I had panic attacks, I just couldn’t believe it had happened again, and I had to make the decision about which reconstruction I wanted, if any, in a couple of days. However, I’m pleased with the result and I’m glad I went for it I had some problems, short term lymphoedema, muscle weakness, numbness but all sorted now. I celebrated my 5th anniversary by getting a lovely floral tattoo across the reconstructed side. And then I went for my first mammogram back on the screening programme and was recalled. This time it’s a lump, and although offered a lumpectomy I’ve asked for another mastectomy. I really didn’t think I could cope with yet another recurrence. I will have another immediate reconstruction this time just an implant and mesh, and an SNB. And I’m feeling amazingly calm and relaxed about it all. Maybe because I’ve already been through it? I don’t know.
Thankfully I don’t need chemo, I’ve started taking Letrozole and so far feel ok Hopefully I’ll still feel like this closer to my operation!
Take care xxx
Big hugs for tomorrow Blackcat. Will be thinking about you, let us know how you are when you come out the other side.
Take good care
Hi to all,
Many thanks for your good wishes for my surgery tomorrow. I have just finished packing my hospital bag, and have to be there at 7.30am tomorrow. I am hoping that the early admission time means I will be on the morning list for surgery, especially as I can’t have anything to eat from midnight tonight. Ironically it is only in the past few days that I have got over my chemo-induced warped tastebuds and loss of appetite, and have been able to enjoy my food again!
As Carisma has said, it must be nice just to be going back to work tomorrow, and only to have normal things to worry about! I am really missing my work, as I have been signed off completely since July due to the infection risk during chemo (I work in frontline healthcare). However, the surgery is an important part of our treatment, and it has to be done. Although I am feeling a bit apprehensive, I am glad that the waiting time for the surgery is nearly over.
Good luck to everyone who is preparing for surgery, appointments and treatments. I will report back after my op as soon as I am able.
Happy New Year everyone and best wishes to blackcat for tomorrow.
As it draws closer and all the distracting celebrations are at an end, I find I can't think of much else but my surgery on Monday. I had a chat with my BCN yesterday which helped but part of me just can't wait to have it over and done with and move on to the next step in my journey - whatever that will be. I'm (almost) envious of my colleagues who are going back to work tomorrow and just getting on with their lives.
Happy New Year my January surgery buddies. Here is wishing all a smooth journey. I know I am frightened but knowing all of the others on here who have gone through it and that we are all in this together helps.
Fine, I am grazing too but that is nothing new! I am taking vitamin d though as said they can lead to bone thinning- well losing estrogen does that. I have hot flushes too but again they are not too bad.
Ok at the moment. Just starting with hot flushes a little bit if I start stressing and find I am grazing throughout the day, but I want to eat things with strong flavours. x
Do you mind me asking which hormone tablets they put you on? I was put on Letrozole two weeks ago
Gosh you seem to have been through a lot already but at least you know what to expect after surgery.
I am also nervous for my op next week but trying to out it to the back of my mind.
Try and pamper yourself tomorrow and good luck for Thursday hope it all goes well and to plan
That's great to hear Blackcat. I hope it all goes smoothly, it sounds like you have everything in prep from your own and your teams angles. Is there a level of excitement for you there too? I know it sounds odd but I've got a combination of fear, apprehension and a bit of excitement mixed up at the moment......I've no doubt that will change as time progresses though!!
I hope you have a great new years eve and day to focus on in the meantime.
Hi to all on the thread,
I am booked in to have a mastectomy and axillary node clearance very soon - this Thursday in fact (2 January). I had my final pre-op blood tests at the hospital today and have got my hospital bag packed, so my upcoming surgery is now feeling very real! I have been having neo-adjuvant chemotherapy for my HER2+ tumour over the past five months, which has been very successful in that it has completely dissolved the tumour and cleared the one lymph node which was affected. Due to the size and location of the tumour, I have known from the beginning that I would always have to have a mastectomy, and I have chosen (for the moment at least) not to have a reconstruction as I have already been off work for six months and am keen to try to return to a more normal life as soon as possible. After surgery I will still have to have 14 cycles (every three weeks) of herceptin and perjeta infusions, but thankfully this is not chemo and does not have too many side effects. I have already had four cycles of these infusions together with the chemo drug docetaxel, and before that had two cycles of EC chemo.
I am feeling a bit nervous about the surgery, but if all goes well it will involve just one night in hospital, after which I will be discharged home with a drain for a few days. I have been given a useful goody bag from my BCN, which includes a drain bag, a heart-shaped cushion on which to rest your arm, and a couple of softie prostheses of different sizes. I will be fitted for a silicone prosthesis in about six weeks. I have been told by the BCN that the axillary node clearance is likely to cause the most pain/problems after the operation, and she has emphasised that the risk of lymphoedema is high after an ANC, so it is particularly important to do the post-op arm exercises.
Good luck to everyone who is about to have surgery. Hopefully we will get through it without too many problems, and will be one step further on towards our recovery.
Yes, this is for my mastectomy and armpit clearance. Yes, I think when I sit still and think about it - it may hit me hard again. I have been making various arrangements and telling people this morning, which has kept me busy and anxiety at bay. On one hand I'm glad it is soon as the sooner I have the surgery the sooner I can move on to the next step - whatever that will be. I am not having reconstruction at this stage, if ever, for various reasons including possible further treatment.
I'm so glad you've got your date. Is this for your mastectomy? I can imagine the reality must be hitting you hard again now. Seems much further away with it being 'next year....which is really only a week. Sorry if that makes it sound even more anxiety provoking!
Have you decided to have a reconstruction at all?
So I've got a date for my surgery - 6 January. I'm so glad it is soon but all the feelings I had managed to put aside over Christmas have all come rushing back.
Hi Sam, yes my first post! I was told at the beginning of October but then further tests were needed each of which take two weeks to get then results. Because it was all taking so long I was put on hormone therapy in November so didn’t get plan until 20th November, at which I was told I would have surgery in 4-6 weeks so I was very upset to discover it was going to be 8 weeks
I'm having lumpectomy and sentinal node biopsy on 7th January. Not looking forward to it but keeping my fingers crossed it all goes to plan this time as I had a bad reaction and my op was abandoned in November.
I hope everything goes well for you ladies x
Thanks for your reply. I'm having a Sentinel Nobe Removal op on 8th Jan, and have been requested an immediate mastectomy with DIEP flap reconstruction so hopefully not too long after that. How long is it since you had your diagnosis? Is yours DCIS too? Sorry for the questions but as you've guessed I'm new to this too.
I hope I didn't come across as critical of the original test/diagnosis. Everyone in my medical team have been very supportive of me, with everything fully explained. I always knew there was a possibility that the MRI wouldn't show the true picture and, whilst I hoped to preserve my breast, that a mastectomy was the next course of action if the lump was bigger than tests indicated and there were no clear margins. I have invasive lobular cancer rather than ductal.
I didn't find the SNB problematic at all, 2 nodes were removed at the same time as the lumpectomy and I have had no real after effects. I healed really well from both the lumpectomy and the SNB so I'm hoping that bodes well for the mastectomy and node clearance.
I found the lump myself - which isn't the full story but I'm not comfortable going into all the details yet.
Yes, it is frustrating waiting (but there seems to be a lot of waiting involved). It is difficult to plan anything and I have to travel quite a distance from home for appointments due to my locations.
Thank you for your response and I hope I can be of support to you too.
that must have been a real let down. I know I would always trust the initial tests but it seems that lots of people are given an initial diagnosis/prognosis and it can change not necessarily for the better.
Frustrating waiting for dates too. I hope you get yours very soon. It'll be nice to have others alongside on this forum who are having similar experiences. I feel it always help when you don't feel on your own.
Did you manage to find the lump on your own in the first place? It was out of the blue for me as there were no lumps, just calcification throughout.
And how did you find the Sentinel node removal?
I am due to have surgery in January 2020 but I don't have a date for it yet. I had a lumpectomy on 19 November and a sentinel node biopsy. However, due to the size of my tumour and no clear margins it has now been recommended that I have a mastectomy (pathology showed it was bigger than MRI indicated otherwise I would have had a mastectomy in the first place). I have opted not to have reconstruction at this stage for various reasons. I am also having an armpit node clearance at the same time as the SNB indicated that one of my nodes had cancer in it. I have just turned 56 and also have 3 adult children. I had hoped by now to be clear of surgery but unfortunately not.
I'm just wanting to connect with any others here who are having surgery in the very near future? I'm 54 with 3 older children. Having 3 Sentinal nodes removed on 8th January and having a mastectomy of my left breast with DIEP reconstruction hopefully very soon after.
Are there any others out there who are due to have surgery very soon too?
Thanks and hoping to hear