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Surgery January 2020

52 REPLIES 52
Member

Re: Surgery January 2020

Hi 

in prep for your surgery I can recommend the asda post op bras 2 bras for £15 and asda button up pjs have been a godsend as you won’t be able to move things over your head.

i am two days post op after therapeutic mamoplatsy and sentinel node biopsy.

i was given excercises to do from the physio which I’ve started.Im pottering around then having little naps as it does all take it out of you.

wishinh you lots of luck for your surgery on the 20th.

i am recovering and back in two weeks to see if the margin they was taken was adaquate -really hoping so and everything crossed.

good luck x

Member

Re: Surgery January 2020

Glad to hear you are home!  I'll be praying for good results for you.  :-)

 

Member

Re: Surgery January 2020

Hi TLC2019,

Hope you are recovering well.

I stayed in overnight and got home this morning. Was very relieved but have to wait 3 weeks for follow up appointment.

Keeping on top of pain relief managing with paracetamol. Hope you get good news at your follow up. Fingers crossed for you. Take care.

Highlighted
Member

Re: Surgery January 2020

Hi Yorkshire,

 

I hope everything went well yesterday.  I had a lumpectomy yesterday and sentinel node biopsy.  I'm hoping for clear margins and nodes.  Will know in about a week.  How did your mastectomy go?  I hope you feel a little relief that it's done.  I know I sure do.  :-)

Member

Re: Surgery January 2020

Thanks Chelle

Member

Re: Surgery January 2020

Hi

Yes, button up tops are best especially as you will have drains. ASDA online also do nightshirts that have inside pockets for your drains. 

Hope everything goes well for you on 20th  x

Member

Re: Surgery January 2020

Hi

 

My surgery is next Monday, 20th, mastectomy, lymph node removal (which was going to all but they have said it might only be 4 now) and reconstruction. Have been told I will be in overnight. I’ve had 6 rounds of chemo, 3 FEC & 3 Docetaxel and am very pleased it’s over. My tumour was 7.5cm and has shrunk, a lot, I actually noticed it had shrunk after my first FEC treatment.
Hoping the chemo was the hardest part, obviously I’m nervous about the surgery, decided on immediate reconstruction as I couldn’t imagine looking at my body and there being no breast, wether this was a good reason for reconstruction or not I’m not sure. I’ll have a drain in for a week, apparently a district nurse will come round and change it. Do you know if I need to wear tops with buttons rather than things that go over my head? That’s probably a stupid question, it would be common sense really 😆

 

Member

Re: Surgery January 2020

Hi LotStan,

That sounds a nightmare, it shouldn't be like that. Do you have much swelling? I would get in touch with the BCN if I were you. They might recommend some different pain killers for the meantime till they get a chance to check it over and see if anything is needed. 

Hope it eases off soon for you. Take it easy.

 

Sam xxx

Member

Re: Surgery January 2020

Hi

i had mastectomy with implant recon and lymph node clearance Thursday. Home Friday. Op according to surgeons went well and looking down at myself (in post surgery  bra) all looks good. BUT, by crikey the pain in my breast bone when I move is awful. I consider myself to have a high pain threshold hold, but this has really beaten me. I’m taken paracetamol with codeine first thing, ibuprofen two hours later, paracetamol again when the required time has passes until bedtime when I take the codeine again. It’s now at the point where I’m scared to move because of the pain, which obviously isn’t good for recovery.   

Member

Re: Surgery January 2020

Hi Sam

I'm feeling ok as I haven't been in any pain and not needed any tablets, I still get tired easily but am nearly sleeping all night again now 😀. I have my wound check due on Monday and my sister ( a practice nurse) has told me to take pain killers before I go for it. My husband had a go at washing and drying my hair 😂😂😂😂 good job I had nowhere special to go, I am hoping they say I can do it myself on Monday as I should be allowed to lift arms above shoulders by then.  Had a teary moment yesterday when my doctors phoned to say I needed to go in and discuss my cholestral tests results ...... of all the things to set me off! I have managed it without tablets so far but Letrozole can affect it so think I may have to give in to statins 😔.  

Look after yourself 

Member

Re: Surgery January 2020

Thanks Chelle,

 

How are you feeling now? Its been a few days since your op hasn't it.

 

Sam

 

xxx

Member

Re: Surgery January 2020

Hi Ollies

Glad to hear everything went well. Take it easy and rest up, it's easy to over do things when you can't feel any pain. Hope everything goes well on Tuesday

Chelle

Member

Re: Surgery January 2020

Hi All,

Just an update, I wen in for my first small operation on wednesday. Long wait till 4pm before I was taken in, and they had to go deep to find the nodes so I needed a lot of painkillers when I came round (enough IV morphine and tramadol to "knock out a pony" I was told) But it soon soothed everything. I slept well and the team was great. Got home yesterday as I was kept in overnight due to the painkillers. Slept well again. 

I woke up this morning with a shot of adrenalin and have been bouncing around all day, having to hold myself back, not much soreness.

I've got a meeting with the surgeon's doing my mastectomy with DIEP flap reconstruction on Tuesday so hopefully, I'll get a date for the big op. I have to wait 2 weeks for the results of this last op.

Op was much less scary than I'd anticipated and it's made me less worried about the next one.

Hope everyone else is well

xxx

Member

Re: Surgery January 2020

Hi Carisma

Thank you for sharing your experiences am feeling more reassured. I think I will assume overnight stay if home same day then a bonus.

Trying to keep busy so not thinking too much about Monday am glad it is in the morning . Hope you are resting and not in too much pain.

 

Member

Re: Surgery January 2020

Hi Yorkshire50

 

I had my surgeries in mid November (lumpectomy & SNB) and now 1st week in January (mastectomy & node clearance).  I was also anxious about having 2 surgeries so close together and I do feel a lot more tired after this second one but it is also a bigger op.  I was, however, much less anxious on the actual day of the 2nd op as I was familiar with the routine, etc.  It probably took me slightly longer to waken fully from the anaesthetic - I was discharged pretty quickly after the first op but there was no way I would have been ok to go home the same day with the second op.  The next day though - in fact through the night - I felt well enough to go home. 

I hope all goes well for you.

Member

Re: Surgery January 2020

Hi Chelle56

Thank you I will speak to my bcn. Hope you are ok following your surgery.

Member

Re: Surgery January 2020

Hi Yorkshire 50

Sorry you have had to join this thread after already having surgery. I haven't had 2 lots if surgery but have been under the aneasthetic twice on 28th November when my surgery was abandoned and then again on 7th Jan when I had my lumoectomy and sentinel node biopsy, I was very sleepy after the second time. If you speak to your bcn or the nurse specialists on this site hopefully they will be able to reassure you.

Take care

Chelle

 

Member

Re: Surgery January 2020

Hi everyone on this thread.

This is my first post. 

I have completed neo adjuvant chemotherapy followed by lumpectomy and sentinel node biopsy December 2019. Unfortunately margins were not clear and now require mastectomy due 13th January. Am anxious having 2 list of surgery so close together.

Hope all that have had surgery are recovering well.

Member

Re: Surgery January 2020

Hi Carisma

Glad your surgery went well I hope you are putting your feet up now 😀

I had my surgery on Tuesday it went well but stayed in overnight because vety sleepy, low bp and sats. I don't have any pain at present ( but have a high pain threshold normally). I keep forgetting not to overstretch though! 

Take things easy and lets hope our results are good 😀

Chelle 

 

Member

Re: Surgery January 2020

Hi there. Really pleased all went well and you are home now. Rest up and recover 

Member

Re: Surgery January 2020

I had my surgery on Monday  (mastectomy w/o recon and axillary node clearance) and am now back home.  I'm not in too much pain, especially from the mastectomy wound, but my arm is very numb and I am getting really sharp "pinching" pains under my arm.  It just all feels so strange and un me like, but I'm sure in time I'll get used to it.  

Hope anyone else who was having surgery this week is doing ok.

Member

Re: Surgery January 2020

Thanks Blackcaf I will do that as I haven’t been given any information as they rang me yesterday to arrange it for tomorrow having been referred that day by the plastics surgeon. It’s all very prompt. 

Member

Re: Surgery January 2020

Hi Laura,

 

I had a CT scan shortly after my diagnosis (of chest, abdomen and pelvis), and it was a fairly quick procedure.  I did not have to wear a gown, as I was wearing nothing with metal in it (such as a bra with metal hooks) and had loose clothing on.  I was having a scan with contrast dye, and this involved having a cannula put in my arm - when the dye was flushed through, I was told 

I might have the sensation of passing urine, although this would not be the case (thankfully 

I didn’t feel anything).  The scanner is large and not at all claustrophobic, and my scan took only about five minutes.  The experience was much better than having a breast MRI.

 

My hospital gave me useful leaflet about the scan, which explained the process, the risks and what you could wear if you didn’t wish to change into a gown.  If you haven’t received a leaflet, it would be worth having a look on your hospital’s website, as the information might be there.

 

All the best for tomorrow! 

Blackcat xx

 

 

Member

Re: Surgery January 2020

Thanks for your reply Chelle56 I have done that now. Hope your op all goes well x x 

Member

Re: Surgery January 2020

Hi Laura

Sorry you have had to join this club. I have never had a CT scan but if you post your question in the 'ask the nurses' or 'top tips' feed someone msy be able to answer you. Hope everything goes ok with your scan tomorrow x

 

Member

Re: Surgery January 2020

Hi ladies 

I’ll be joining you guys having surgery in January. I will be having a mastectomy and DIEP reconstruction on 29th. I was diagnosed 12/12 with DCIS and a small invasive cancer in my right breast having had a total duct excision on 26/11 to find out why I was having a nipple discharge. The results were a complete shock. 
It’s rubbish that we are having to go through this but I take comfort in the fact that I won’t be going through it on my own. 
I have a CT scan tomorrow to check the blood flow in my tummy for the DIEP, never had one before and no idea what to expect. Any tips? Do I need to wear a gown for it? 
Good luck January peeps.

Laura x x 

Member

Re: Surgery January 2020

Hello ladies, firstly the very best of luck to all of you going through surgery this month and I hope everything goes smoothly. I too am having surgery in 2 weeks. It will be my 4th round of surgery and my second mastectomy. 
I was first diagnosed with high grade DCIS in 2012, has a lumpectomy, then another to get clear margins and then radiotherapy. At my first year mammogram in 2013 they found that the DCIS had returned, there was even more than the first time and were micro invasions so I had a mastectomy and SNB. I had an immediate LD flap reconstruction with an implant. Prior to having the mastectomy I had panic attacks, I just couldn’t believe it had happened again, and I had to make the decision about which reconstruction I wanted, if any, in a couple of days. However, I’m pleased with the result and I’m glad I went for it I had some problems, short term lymphoedema, muscle weakness, numbness but all sorted now. I celebrated my 5th anniversary by getting a lovely floral tattoo across the reconstructed side. And then I went for my first mammogram back on the screening programme and was recalled. This time it’s a lump, and although offered a lumpectomy I’ve asked for another mastectomy. I really didn’t think I could cope with yet another recurrence.  I will have another immediate reconstruction this time just an implant and mesh, and an SNB. And I’m feeling amazingly calm and relaxed about it all. Maybe because I’ve already been through it? I don’t know.

Thankfully I don’t need chemo, I’ve started taking Letrozole and so far feel ok   Hopefully I’ll still feel like this closer to my operation! 

Take care xxx

 

Member

Re: Surgery January 2020

Big hugs for tomorrow Blackcat. Will be thinking about you, let us know how you are when you come out the other side. 

Take good care

 

Sam

xx

Member

Re: Surgery January 2020

Hi to all,

 

Many thanks for your good wishes for my surgery tomorrow.  I have just finished packing my hospital bag, and have to be there at 7.30am tomorrow.  I am hoping that the early admission time means I will be on the morning list for surgery, especially as I can’t have anything to eat from midnight tonight.  Ironically it is only in the past few days that I have got over my chemo-induced warped tastebuds and loss of appetite, and have been able to enjoy my food again!

 

As Carisma has said, it must be nice just to be going back to work tomorrow, and only to have normal things to worry about!  I am really missing my work, as I have been signed off completely since July due to the infection risk during chemo (I work in frontline healthcare).  However, the surgery is an important part of our treatment, and it has to be done.  Although I am feeling a bit apprehensive, I am glad that the waiting time for the surgery is nearly over.  

 

Good luck to everyone who is preparing for surgery, appointments and treatments.  I will report back after my op as soon as I am able.

 

Blackcat xx

Member

Re: Surgery January 2020

Happy New Year everyone and best wishes to blackcat for tomorrow.

 

As it draws closer and all the distracting celebrations are at an end, I find I can't think of much else but my surgery on Monday.  I had a chat with my BCN yesterday which helped but part of me just can't wait to have it over and done with and move on to the next step in my journey - whatever that will be.  I'm (almost) envious of my colleagues who are going back to work tomorrow and just getting on with their lives.

 

Member

Re: Surgery January 2020

Happy New Year my January surgery buddies. Here is wishing all a smooth journey. I know I am frightened but knowing all of the others on here who have gone through it and that we are all in this together helps. 

X

Member

Re: Surgery January 2020

Fine, I am grazing too but that is nothing new! I am taking vitamin d though as said they can lead to bone thinning- well losing estrogen does that. I have hot flushes too but again they are not too bad. 

Member

Re: Surgery January 2020

How are you finding them? x

Member

Re: Surgery January 2020

Ok at the moment. Just starting with hot flushes a little bit if I start stressing and find I am grazing throughout the day, but I want to eat things with strong flavours. x

Member

Re: Surgery January 2020

Hi there, yes I am on letrozole too. How are you finding them?

Member

Re: Surgery January 2020

Hi Blossom

Do you mind me asking which hormone tablets they put you on? I was put on Letrozole two weeks ago 

 

Chelle

Member

Re: Surgery January 2020

Hi Blackcat

Gosh you seem to have been through a lot already but at least you know what to expect after surgery.

I am also nervous for my op next week but trying to out it to the back of my mind.

Try and pamper yourself tomorrow and good luck for Thursday hope it all goes well and to plan

 

Hugs

Chelle

Member

Re: Surgery January 2020

That's great to hear Blackcat. I hope it all goes smoothly, it sounds like you have everything in prep from your own and your teams angles. Is there a level of excitement for you there too? I know it sounds odd but I've got a combination of fear, apprehension and a bit of excitement mixed up at the moment......I've no doubt that will change as time progresses though!!

I hope you have a great new years eve and day to focus on in the meantime.

Big hugs

Sam

x

Member

Re: Surgery January 2020

Wow. That is great the treatment has been so successful. Good luck with the surgery. 

Member

Re: Surgery January 2020

Hi to all on the thread,

 

I am booked in to have a mastectomy and axillary node clearance very soon - this Thursday in fact (2 January).  I had my final pre-op blood tests at the hospital today and have got my hospital bag packed, so my upcoming surgery is now feeling very real!  I have been having neo-adjuvant chemotherapy for my HER2+ tumour over the past five months, which has been very successful in that it has completely dissolved the tumour and cleared the one lymph node which was affected.  Due to the size and location of the tumour, I have known from the beginning that I would always have to have a mastectomy, and I have chosen (for the moment at least) not to have a reconstruction as I have already been off work for six months and am keen to try to return to a more normal life as soon as possible.   After surgery I will still have to have 14 cycles (every three weeks) of herceptin and perjeta infusions, but thankfully this is not chemo and does not have too many side effects.  I have already had four cycles of these infusions together with the chemo drug docetaxel, and before that had two cycles of EC chemo. 

 

I am feeling a bit nervous about the surgery, but if all goes well it will involve just one night in hospital, after which I will be discharged home with a drain for a few days.  I have been given a useful goody bag from my BCN, which includes a drain bag, a heart-shaped cushion on which to rest your arm, and a couple of softie prostheses of different sizes.  I will be fitted for a silicone prosthesis in about six weeks.   I have been told by the BCN that the axillary node clearance is likely to cause the most pain/problems after the operation, and she has emphasised that the risk of lymphoedema is high after an ANC, so it is particularly important to do the post-op arm exercises.  

 

Good luck to everyone who is about to have surgery.  Hopefully we will get through it without too many problems, and will be one step further on towards our recovery.  

 

Blackcat xx

 

 

 

 

Member

Re: Surgery January 2020

Hi Sam

 

Yes, this is for my mastectomy and armpit clearance.  Yes, I think when I sit still and think about it - it may hit me hard again. I have been making various arrangements and telling people this morning, which has kept me busy and anxiety at bay. On one hand I'm glad it is soon as the sooner I have the surgery the sooner I can move on to the next step - whatever that will be.  I am not having reconstruction at this stage, if ever, for various reasons including possible further treatment.  

xx

Member

Re: Surgery January 2020

Hi Carisma,

I'm so glad you've got your date. Is this for your mastectomy? I can imagine the reality must be hitting you hard again now. Seems much further away with it being 'next year....which is really only a week. Sorry if that makes it sound even more anxiety provoking! 

Have you decided to have a reconstruction at all?

 

Warm wishes

Sam x

Member

Re: Surgery January 2020

So I've got a date for my surgery - 6 January.  I'm so glad it is soon but all the feelings I had managed to put aside over Christmas have all come rushing back.  

Member

Re: Surgery January 2020

I hope all goes well for you too. X

Member

Re: Surgery January 2020

Hi again Sam, mine is invasive duct anal carcinoma. 

Member

Re: Surgery January 2020

Hi Sam, yes my first post! I was told at the beginning of October but then further tests were needed each of which take two weeks to get then results. Because it was all taking so long I was put on hormone therapy in November so didn’t get plan until 20th November, at which I was told I would have surgery in 4-6 weeks so I was very upset to discover it was going to be 8 weeks 

Member

Re: Surgery January 2020

Hi

I'm having lumpectomy and sentinal node biopsy on 7th January. Not looking forward to it but keeping my fingers crossed it all goes to plan this time as I had a bad reaction and my op was abandoned in November.

I hope everything goes well for you ladies x

 

Member

Re: Surgery January 2020

Hi Blossom,

Thanks for your reply. I'm having a Sentinel Nobe Removal op on 8th Jan, and have been requested an immediate mastectomy with DIEP flap reconstruction so hopefully not too long after that. How long is it since you had your diagnosis? Is yours DCIS too? Sorry for the questions but as you've guessed I'm new to this too.

 

Sam x

Member

Re: Surgery January 2020

Hi there. I am having a mastectomy and lymph node clearance in jan too. When is your op? 

Member

Re: Surgery January 2020

Hi Sam

 

I hope I didn't come across as critical of the original test/diagnosis.  Everyone in my medical team have been very supportive of me, with everything fully explained.  I always knew there was a possibility that the MRI wouldn't show the true picture and, whilst I hoped to preserve my breast, that a mastectomy was the next course of action if the lump was bigger than tests indicated and there were no clear margins. I have invasive lobular cancer rather than ductal.

 

I didn't find the SNB problematic at all, 2 nodes were removed at the same time as the lumpectomy and I have had no real after effects.  I healed really well from both the lumpectomy and the SNB so I'm hoping that bodes well for the mastectomy and node clearance.

 

I found the lump myself - which isn't the full story but I'm not comfortable going into all the details yet. 

 

Yes, it is frustrating waiting (but there seems to be a lot of waiting involved).  It is difficult to plan anything and I have to travel quite a distance from home for appointments due to my locations. 

 

Thank you for your response and I hope I can be of support to you too.