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Surgery July 2019

27 REPLIES 27
Member

Re: Surgery July 2019

Hello CornishLassie,

Glad you've got through your surgery okay and out the other side. Sorry you had a bad reaction to the anaesthetic - that was not what you were expecting. Good you've healed well and I really hope you get good news next week when you go for your appointment. Like you, I'm still sore, but shoulder movement isn't bad and I am reasonably alright at remembering to do the exercises. I'm very glad to finally have had the surgery done. I'm not really getting as much rest as I could do with though - my old habits of late nights are creeping back in.  

Hope you and everyone on our thread has a good weekend.

 

x

 

Member

Re: Surgery July 2019

Hi Sandpiper,

 

I’m so glad your surgery went well! Fantastic news about the lymph nodes - well done you! I hope you’re feeling ok now. I was very up and down after mine but I had a bad reaction to the anaesthetic so think it just took time to work it’s way out. I’m pleased that bit is over! I’ve healed really well. Still quite sore but have great movement and am managing to surprise myself by being patient and taking it slowly! I’m hoping to hear next week about my results and what’s next treatment wise - date TBC.

 

MissWhite89 I really hope your appointment went well yesterday. Thinking about you, and everyone on this chat!

 

xxx

Member

Re: Surgery July 2019

Hello Carol-Ann,

Welcome. I had my grade 2 tumours shrunk with letrozole as they were hormone sensitive and it worked very well, like yours, by the time I had surgery this week. Glad you have had good results with your lumpectomy. Will you be having radiotherapy next as well? I don't know what my one looks like yet - I can't really see because of all the dressings. I don't mind as long as it is reasonably okay (I think).

Sandpiper

x

Member

Re: Surgery July 2019

Hi MissWhite89

Thanks for your kind message. Hope your appointment with the surgeon went well today and there were no nasty surprises. I had surgery on Tuesday  and luckily my lymph nodes were clear! I had been quite worried as I was getting aches and pains there and thought might the cancer had spread because I was diagnosed way back in January. All the business with the wires and injection the day before was better than I expected. The staff in all the departments have been very kind and aftercare excellent so have felt well supported. Just getting myself back together again. Next appointment 14th for results re margins - next worry! Re the osteoporosis - if I hadn't had breast cancer I wouldn't have known I had the problems because I wouldn't have had the DEXA scan. Trying to be philosophical about that.

Hope everyone else on this thread have managed to get through their July surgeries without too many upsets.

Sandpiper x

Member

Re: Surgery July 2019

Hi Sandpiper 

Yes you are right, it seems once you get over one obstacle another one presents itself. I have the same worry as you about the radiotherapy situation. I’m seeing my surgeon today, got a bit of a nervous feeling not sure why. I’m sorry to hear about your osteoporosis but I do hope you are doing well. Is you next step seeing the surgeon for results? I hope it all goes well for you and I’ll keep my fingers crossed for you 🤞xx

 

sending lots of love to everyone 💖

Member

Re: Surgery July 2019

Hi there,

I was diagnosed last december with stage 2 triple positive breast cancer which had spread to my lymph nodes.  I have been through my chemo and its been a week since my surgery.  I had a lumpectomy, cause the chemo had worked so well and a full lymph node removal.  Im a bit sore obviously after surfery, but my surgeon has done a great job, you really wouldnt know i had just had a lumpectomy.  Just waiting on results now to see they got all of the tumour.

Sending hugs x 

Member

Re: Surgery July 2019

Hello MissWhite1989

welcome - what a long, long journey you've had so far, all that chemo must have been rough. You've already been through such a lot. I was lucky in that I haven't had side effects from the letrozole I'm on, although finding I have osteoporosis was a bit of a downer, but I've got used to taking the drugs for it now. Am very glad your surgery has gone well and that you're satisfied with your reconstruction. Hopefully the radiotherapy will not affect it. I worry that the radiotherapy will shrink my breast where I've had the WLE and I will look odd because of that - there's seems always to be something to worry about next, I think. Just have to keep going and one day we will come out the other end okay. I hope you get some good news next week when you see the surgeon again - you certainly deserve some.

Hope everyone else are doing well. My turn next. x

 

 

Member

Re: Surgery July 2019

This is my first post since diagnosed but have been following some groups for a while. Had my surgery 17th and had a skin sparring mastectomy to right Breast and some lymph nodes removed with immediate reconstruction. I know it’s a bit different to yours but I have to say it’s not looking too bad so far, it’s been matched pretty well. My only worry is now having to have radiotherapy and the implant not looking as good as it does now, but I guess we’ll cross that bridge when we come to it. My journey has been a long one so far. I was diagnosed 25th October at 29 with Triple Negative and started a gruelling regime of chemotherapy 18th December which finished 11th June. I have to say it’s nice in a strange way to be moving forward to the next stages. I’ll see my surgeon next week to find out the results of surgery. 

 

All my my best to all warriors fighting this fight 😊

jb9
Member

surgery July 2019

Good luck for tomorrow cornish lassie, it will all be over before you know it and you'll be back at home 

Member

Re: Surgery July 2019

Thank you so much Sandpiper. That’s really helpful to know. I’m sorry you’ve had the upheaval of changing teams and hospitals on top of the lengthy process. I’m glad you got that extra ultra sound and have a plan you are happy with. Feeling ok about tomorrow - just hoping for a good night sleep tonight! All the best and hope to chat again soon xxx

Member

Re: Surgery July 2019

Hi Cornish_lassie

Welcome!  Sounds as if it hasn't been easy for you with having to cope with the fertility treatments on top of your diagnosis as well. I did have a lumpectomy many years ago for a benign tumour and the operation and my recovery was straightforward. Of course there was no need for a SNB for that, so only one incision.

My journey has been quite tedious on the whole but with times when I have been very worried when they said the tumours weren't shrinking. However they were, just more slowly than usual. I did change hospitals and then the new consultant initially wanted to do a mastectomy as the tumours are in different areas, whereas the first consultant offered a choice. Luckily an extra ultrasound showed that a lumpectomy would still give good results. 

Wishing you well for tomorrow. Hope everyone elses recoveries are going smoothly.

x

 

Member

Re: Surgery July 2019

I’ve just seen the rest of the thread (sorry as I said I’m new to this!)...

I’m so pleased to hear the surgery went well. For you too jb9. I really hope you are getting lots of rest, tlc and recovering well.

sandpiper I share your nerves! It sounds like you have had a really long, tough journey to get to this point. Waiting is agonising. It’s great to hear you haven’t had any side effects from Letrozole. I am extremely tired, get headaches and my hair is thinning but I’ve only been on it for a few weeks so I’m hoping it’s just my body getting used to all the changes.

I think you are all amazing - this is such a helpful and positive thread. I’m so grateful to you all for sharing. All the best to you ladies and keep up that fight!

xxx

Member

Re: Surgery July 2019

Hi beanie47,

 

I am new to this and have just found your post. I’m really sorry to hear about your diagnosis - what a shock and thank goodness that radiologist was thorough. How was your surgery? I hope it all went as best as it possibly could and you have been doing well in your recovery. Do you have a date for results?

 

I am very grateful for you kicking off this thread. We share some similarities in our story. I found a lump earlier this year. I am 33 with no history so wondered if it was maybe something to do with my cycle but after a couple of months I went to get it checked. I’m exceedingly glad I did! I was diagnosed with suspected 1 or 2 grade IDC in left breast with scans showing size of 14mm on 27/06. It’s ER+ and HER2- like you. My consultant and hospital have been incredible. I feel very lucky. It’s been all go with fertility and MRI referrals happening pretty quickly and I’m having my lumpectomy and SNB tomorrow (22/07). I’m currently on Decapeptyl and Letrozole which was initially part of the fertility treatment but may continue post op. They have told me best case is the surgery and radiotherapy but understandably won’t commit to anything until we have the results from surgery. 

 

I’m pretty anxious about it but am looking forward to getting it out! I’d be so grateful for any advice you might have having just gone through the same. There is so much to process and wade through - sometimes it is overwhelming. Keeping very positive and I hope you are too. I am so pleased you have such a good support network - I also feel very blessed with how incredible my friends, family and work have been too. We are certainly lucky in that respect! Really glad to be in touch and wishing you all the best in your journey.

 

xxx

 

Member

Re: Surgery July 2019

Hi jb9,

Glad you are doing okay and you are recovering well. It's good that you've been able to get through this part of your treatment quickly. This breast cancer thing seems to come in all shapes and sizes - I had no idea before diagnosis  - thought there was one type and that was it.

My surgery date is getting uncomfortably near so I'm starting to get a bit nervous. Had pre op assessment already and due to have the wires put in and dye on 29th. I was diagnosed back in January but it still seems unreal to me, I don't feel any different even though I'm taking letrozole and now bone density drugs as well.

Hope everyone is recovering without any problems

x

 

jb9
Member

Re: Surgery July 2019

Reading other ladies stories I am thinking I am whizzing through this process very quickly! I had my mammogram on 11 June, recall on 27 June, diagnosis 5 July & surgery yesterday 18 July.  I am due results in 2 weeks and am hopeful that margins will be clear and lymph nodes clean. I understand I will have to have radiotherapy rather than chemo but I suppose that may change depending on the results.  I was very wobbly yesterday being wheeled into theatre but the next thing I knew I was in recovery.  I have to say all the medical staff have been excellent so far.  Best wishes to everyone x

Member

Re: Surgery July 2019

Sorry, Beanie47, spelt your name wrong too!

Member

Re: Surgery July 2019

Sorry, Jennyj, I spelt your name wrong in my last post or it auto-corrected and I didn't noticed. Hope you are feeling much less Frankenstein-like today.

Beany47, I'm glad you're doing well, I was wondering how you were getting on. Fingers crossed you don't need chemo.

I don't have young children now, just old ones! I have a lot of respect for all those who have little ones and are going through all this breast cancer business.

Jb9 - good luck for tomorrow.

Sandpiper

x

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Member

Re: Surgery July 2019

Hi again everyone, it’s nice to read everyone else’s experiences and know we understand what we are all going through even if our journeys are slightly different.

i had my WLE and SNB on Monday and am now just trying to rest and not worry too much about the results. My surgeon is hopeful of clear nodes but has said if not then it will be a change of plan and will have chemo. Just really hoping all is clear and can have radiotherapy only.

My recovery so far has been better than I expected. I have a track record of post op sickness keeping me in hospital but had a fab anaesthetist who gave me a good cocktail because I didn’t even feel nauseous afterwards. Was very groggy though and still a bit lightheaded. My family think the bright blue wee is hilarious 😂 I know I am very lucky, I have a wonderful husband and daughter who are really looking after me and a close family and friends. I don’t know how you ladies with young children or no support get through this.

I think you are all amazing! 

Wishing you all the best xx

Member

Re: Surgery July 2019

Hi Jenna,

Waiting is very, very  hard - there seems to be a lot of it with breast cancer  - especially as there have been so many twists and turns for you. Hopefully when your treatment plan is worked out by your consultant team you can get on with it and feel you are getting somewhere. Families don't always 'get it' as you say.

Is it possible for you to speak to another BCN from the hospital instead? I've spoken to several different ones where I am and that's been fine.

There's also the BCN line here on Breast Cancer Care and one on MacMillan support as well. Are you near a Maggie's Centre or other cancer support centre - they are very good ? Keep going with your exercises as well in the meantime to help your recovery. Is your reconstruction settling down okay? You must feel very battered.  Do anything that helps to support you. It's a rollercoaster ride isn't it but this forum is a good place to get support.

Take care. 

Sandpiper

 

Member

Re: Surgery July 2019

Hi Sandpiper, thank you for your kind words. I do have some support from friends and family, but no-one really seems to “get” it. 

My assigned BCN is worse than useless, have lost all trust in her after discovering that she had repeatedly failed to pass on queries and concerns  to my consultant. 

My reconstruction (diep) was done at a different hospital (one that specialises in plastics and reconstruction) and the BCN there was very good. 

The current picture is 4 different tumours (so far - there were a couple of other ‘areas of concern’ that they didn’t biopsy because it would just cause more delay), invasive lobular, and also in sentinel nodes, so had a full node clearance, waiting for path results in the next couple of weeks - I’m not very good at waiting!

 

Member

Re: Surgery July 2019

Hello jennyj

You are having such a tough time - so hard to get your head round it all the picture keeps changing.  How are you managing, do you have family/friends support and support from breast nurse specialists at your hospital? All you can do at the moment is take as much good care of yourself as you can to build yourself up and to recover from your surgery. 

My surgery (lumpectomy) is not for another fortnight - I was diagnosed back in January -  two grade 2 tumours - multi centric.

Look after yourself - sending you a hug.

Sandpiper

 

 

 

 

Member

Re: Surgery July 2019

Surgery was on the 12th, sent home yesterday. 

I was diagnosed in April, and then each time I went back for an appointment, the news got worse. From initially we think we’ve caught this early will just need a lumpectomy, to multi-centric multi-focal lobular carcinoma, to mastectomy, SNB came back positive so mastectomy turned into mastectomy plus full node clearance. Currently waiting for results from surgery and also an appointment for a bone scan, so more stuff to worry about!

currently feeling like frankenstein’s monster. 

Member

Re: Surgery July 2019

 

 

Beanie47 - Hoping your surgery goes well for you tomorrow and jb9 hope all okay for you on 18th.

x

Member

Re: Surgery July 2019

Hello,

This is my first post although I've been folIowing the different threads since I was diagnosed in January and have found them very helpful and encouraging. I hope all goes well for you both for your surgeries next week. I'm due for lumpectomy at the end of the month then radiotherapy of course - I just hope my lymph nodes are clear and the margins! I don't want any unwelcome surprises, I've already been on letrozole for several months to shrink my two small tumours (grade 2) and to avoid a mastectomy. Haven't had any side effects, thank goodness.

Thank you for starting the July 2019 thread beanie47 - I was looking out for one.

x

jb9
Member

Re: Surgery July 2019

I'm due for surgery & SNB on 18 July. Mine came about after I was recalled after a routine mammogram. I'm told its been caught early - I didn't think to ask what size it is.  I've been pretty calm so far but I did have a wobble today after appointments came through for magseed insertion on Friday and blue dye on Weds, the day before the op.

Member

Re: Surgery July 2019

Thank you, I hope your recovery is going well

 xx

Member

Re: Surgery July 2019

Hi Beanie47

Sorry to hear about your diagnosis but pleased you've found the forum useful.

I started the May 2019 thread and was great chatting to woman going through surgery at the same time.

Although I’ve had my surgery I just wanted to pop by and wish you all the very best.

Love Mel xx

Member

Surgery July 2019

Hi, it doesn’t look like there is a Surgery July 2019 thread yet so let me start it off!

I am due lumpectomy and SNB on 15th July, this is my journey so far:

I found a small hard lump in my left breast in April and was referred as per guidelines. Mammogram showed it was nothing to worry about, everyone keeps saying I have very dense breast tissue. However, a very efficient radiologist found a subtle abnormality in my right breast. So the same afternoon I had tomography, ultrasound and biopsies. After 2 stressful weeks I got the news it is ductal carcinoma. I’m 47 so wouldn’t be due routine screening for a few years yet. It’s weird that the problem I went with was fine but lead to this diagnosis in the other breast. I feel very lucky it’s been found.I’ve been told it’s 17mm ER positive, HER2 negative. Originally a registrar said stage 2 but my consultant says it’s likely stage 1 but will not say for sure until after op.

MRI showed a potential 2nd tumour so I had a further ultrasound, luckily it was a couple of cysts which they aspirated.

so next step is surgery then radiotherapy followed by tamoxifen. Just want to get the op done now but starting to think a lot about what it will look like afterwards, will it be a lot smaller??

I’m very lucky to have an extremely supportive husband, daughter and close family. Friends have been great too and so far work has been very accommodating so I feel lucky as I know not everyone has this help.

Reading everyone’s experiences and advice on here has really helped me. It would be great to link up on here with anyone going through surgery around this time.

xx