Hi Kip, good tips about knitted knockers. I’ve got the pattern for straight needles as I knew I would need a canny gap filled post WLE x 2 but still haven’t started as can’t find knitting needles... I know my Breast unit has them so might snaffle one tomorrow when I see the nurse as I’m still thinking no recon... all in the name of research. I’m in a m&s post op bra 38b cup so would be interesting to see if size corresponds. I have Asda’s hook front post op bras (L) and found them really useful although it’s a shame they don’t have adjustable straps but they are racer backed... might send off for a smaller size as have lost at least 1/2 stone and hope to lose a bit more pre op. How do you find the Asda bras for size? Asda is very popular re post op gear.
hope you’re having an ok day. I’m a bit behind with dates but when’s your next chemo? I’ll have to catch up with threads... just remembered you’re to have your ct scan today.... fingers crossed for results xx
Jazza - so sorry to hear you are facing more surgery, but the team sound like they are sure this time will be the final one, keep thinking of the nasties that have been removed already. Big hugs..
Feenix - Knitted Knockers: I don't have any problems with my bra riding up, not sure why? But on their website they did mention that some ladies like to sew a small weight, or bead into it to give it some weight at the bottom and some stitch a small piece of velcro onto their bra and knocker to keep it in place. I just shove my in the little pocket inside the bra and it seems to be fine, I guess its not for everyone. The bras I have found best come from George (Asda) on line, very cheap, pretty and very comfy, I got post-surgery sports style bras from their too which did up at the front for immediate wear after surgery and from day 1 I could wear these with my softie prothesis from the hospital. Also got a lovely post op swimming costume from George too, and you can get Knitted Knockers for swimming which have a waterproof lining (made from those scrunchy shower mits).
Love Kip x
Thanks Michelle. Hope you’re doing ok and ticking those days off.
That’s so true Kip.
Sally ... I was thinking about bras riding up when doing pros/cons but I’m sure I’ve seen a mention about using dressmakers tape on bottom of bra somewhere... don’t know whether it works. I’ve seen mention that the silicone prosthesis works better if on the smaller side as too heavy in the larger.
cdc... so pleased you finally had chemo...long wait though. I hope you manage to have a good night and that se’s are minimal.
Oh those leaky eyes Feenix, I can't believe how much I've cried in the last few months and it's never far away, wouldn't think I'd have anything left to cry but it is better out than in.
Pleased everything is going well ktk
Kip ... pleased you’ve got your ct appt.... I’m like you just want things straight forward and quick with no possibility of extra surgery afterwards. I’m in a b cup and as I intend to lose more weight I’ll be shrinking more...hopefully it’s still doing my head in though and I’ve already had a major meltdown.. very leaky eyed.... better out than in anyway.
Why did I think you were cold capping..!!
cdc... what a long wait... extremely busy is an understatement. You and ktk are well tea’d 🍵
Jazza ... I hope you had a good trip to your mam’s.
I do hope your appointment goes ok.... hoping your bcn looks after you.
Me, you and cdc have each had 2 ops.... I’m gutted I’m still on with surgery but just have to get on with it.
ive got everything crossed for you xhugx
I've finally had a phone call to have my CT scan tomorrow! Crikey, wasn't expecting that, at least all will be done before my onco appt next week.. dreading results.. but fingers crossed!
Just reading your threads about eating lots the day before chemo, I did the same in case I couldn't eat afterwards and guess what... I can't stop eating... blimey I am starving all the time, seems to stave off the sickness when I eat though (especially salty savoury things).
Feenix - I found Flat Friends before I made my decision to go flat and it was very useful, I also was lucky enough to know somebody who had had a masectomy and remained flat and she was so open, showed me her scars, let me see her prothesis etc and it did help me make up my mind. Interestingly I did feel that the surgeons etc were completely shocked that I would not want reconstruction and kept reitterating that I would be "flat when I looked down"... as if I hadn't thought of that!! Anway, post op and I can honestly say, for me, I have forgotten I only have one, I am very small chested anyway, only A cup beforehand so I think that does help, I've found Knitted Knockers" are a brilliant prothesis (free from their website or you can knit your own), very light, soft and comfy and I pop one in and nobody can tell and I forget its there. Still haven't got a silicon one from the hospital but not sure I will wear it as ladies say they are heavy?? Whatever you choose will be right for you. I think I was swayed by the shorter op and recovery time... I hate anything that takes a long time... i.e no ice cap!!
CDC - the recon from the tummy is a big op but I read up a lot about that too and women reckon its amazing, you get a free tummy tuck on the NHS ... bonus!!
Looking back on all our posts (which actually is only a couple of months) I am amazed how knowledgeable we have become on these things, how we find our way around the NHS system and how strong we can be! GO US!!!!!
ktk... Happy Birthday for yesterday. Lovely your daughter is with you. I hope chemo goes well for you today ....
Wishing minimal side effects for you and cdc.
Hope everyone else on chemo train doing ok
Good news about your wounds cdc but still can’t believe your appts have been so problematic. I do hope you get lots of input tomorrow pre chemo ... I’m sure you will ... just tell them about the c*@kups I’ll certainly try the someone like me service. You will have plenty of time to think about recon later.... I think surgeons expect everyone to want recon who can have it... at least we can decide whereas other women have no choice. Lovely you were at your daughters concert though.
Will be thinking about you tomorrow
Evening cdc... Hope you’ve had a good weekend.
I’ve not chatted about recon yet but my feeling is not to have any... I really don’t want major surgery using flaps and I’m not keen on an implant. They’ll decide at MDT re oncdx pre surgery + if mx whether I’ll need any RT. If I don’t need oncodx I’ll start aromatose inhibitor. My bcn is calling me after MDT and I’ll go and see her this week. As I won’t have surgery til later in July my OH can book his flight now and see family
It is certainly easier having fewer choices cdc but it’s still a big decision to make, weighing up the pros and cons, but sometimes it’s down to how you feel. I’m going to do more reading before I see bcn and I may use the ‘someone like me’ service and access ‘flat friends’.
How are your wounds and are you still starting your chemo tomorrow? If you are I’m hoping all goes well.
Sending positive vibes and gentle hugs xx
when I was first diagnosed I thought about mx and I felt that no recon was the way I would go. I may well stick to that as I don’t want any big surgeries like diep etc and I don’t think I would like an implant .... I’m only a b cup and if I lose more weight that’ll reduce too. My 2 x wle have left my boob much smaller and very different anyway... I’m weighing up pros and cons for recon.
Hope the cold cap minimises your hair loss xx
Linda... recipe is on page 10 x
Hi Feenix, oh dear sorry you have more decisions to make. My Mx no reconstruction was very straightforward and healed so quickly, but you really have to look at all the options out there as it's definitely not something everyone can live with, I have completely accepted it and am finding losing my hair harder than losing a breast... Something my OH finds very confusing. I'm sure your team will help provide you with all the answers you need, make that list!!! Take care Kip
Well....saw surgeon.... results show more dcis found ... awaiting MDT tomorrow ( surgeon away next 2 days & wanted me to know results asap). Have talked mx with her and am pencilled in later next month. So now I have to think recon or not.... decisions again although I may go with my initial thoughts of keeping it simple and going for none...need to research again and will see Bcn later in week and talk things through....she’s also giving me a call tomorrow after MDT. Have to await MDT tomorrow anyway...see if I need oncdx and if mx whether I need rt to scar area. Need to get another list written.... drat.
Hope everyone having an ok Monday.
positive vibes gals
Oh that is fab that they worked, take one with you to show the surgeon, surely at the end of the day it is what is best for you and if these work without causing you the problems that has to be good.
I bought some Mepore over the weekend so thanks for the advice. No reaction so saved me a trip to the hospital his weekend. Hope the surgeon will sat I don’t need the PICO dressings anymore and chemo can go ahead tomorrow. Hope everyone had a good weekend xx
I have never reacted to dressings at any time but after my pre surgery blood test I had a square plaster which left the area red and 2 months later I have a feint line on my upper arm side of where the plaster was.
After my masectomy I had a dressing as most do and this was removed 2 weeks later (although I had to replace after 5 days as it got wet in the shower) along with the scar strip dressing.
I now have a 3 inch line scar from the middle of where my boob was to my under arm about 1.5 inches above my masectomy scar, which was the edge of my dressing, I suppose I should be fortunate I do not have a scar all the way round where the dressing went!
Enjoy your weekend mcnulcc.... a walk with pub as a destination sounds like a plan . Hope your onc appt goes ok and you get a time line for start of zaps xx
Morning cdc ... It’s always frustrating when you have a reaction to dressings. I had steristrips and mepore dressings on, which ladybowler mentioned and was ok. (I can get a little red when leaving a plaster on, eg after bloods so I was wondering how I would fare with a dressing on longer. I’d say I was sensitive to some things not allergic ). At the minute I’ve just got mepore over my wound, for support, and have been ok with that. There are steri strips and suture strips so depends which one you’ve got on your wound... can try other things tho plus there’s tissue viability who can be involved ( soz ... retired nurse so start to go into mode ) Very disappointing and frustrating that you couldn’t go for your pre chemo appointment. I hope you managed some Zzz’s last night and are having a rest day, just potter. Xx
Have you tried Mepore dressings, they are the only ones I can use on wounds, but not the ones with the waterproof edge to them
You can get them in different sizes from the likes of Boots/Lloyds Pharmacy etc.
Appointments appointments.... blughghghgg! They do my head in.... You are all coping so well with all these changes to appointments. CDC - i have just taken off my wrist bands but very nervously...they will be going straight back on if anything changes... may be a permanent fixture until September!
Hi cdc... I get an email from bcn and she’s looking out for my results... my oh phoned lab again so he will get a call when my results are ready, hopefully tomorrow. I’m 2 weeks post op so better than last time and 2wks is average for results. Missed MDT this week tho ... don’t know why I can’t be told results as I know what my options will be anyway !! Waiting for results is bl**dy awful as we all know. I do hope your results are ok including genetics in July, and your wounds are healed so you can get to start your chemo. All the best for your pre chemo appointment.... stay positive as much as you can.... xhugx