hope today is a better day
weve had a bit of thunder overnight and some rain this morning.. need more
blood moon tonight ... it’ll probably be chucking it down tonight
Michelle ... hope today hasn’t been as bad as yesterday. Steroids have a lot to answer for.
My surgeon is canny but I’m sure she’d just like me to get on with things...I’m sure she’d be happy if I go down the recon road. Anyway I gave her an easier day today ... it would help ease her in after her hols
Michelle21, strange isn't it you the think the relief would be immense reachinb the end of chemo, i thought I'd feel the same reaching half way but I've been more emotional thinking what I've still got to do, i hjavent had and T yet just finished FEC so still got that joy! At least we do know you get through it eventually. What surgery are you having and how long do you have to wait post chemo? Im havjng node clearance then rads then hopefully done and dusted and just regaining some normality and a bit of hair !
Hi Michelle, thanks for the post, all inforamtion regarding T welcomed, not sure what to expect but am expecting down times, just have to battle on... well done for reaching the end that must be a relief! Hope the tears dry up soon and you get your mojo back! Kip
Hi Jem... saw surgeon and went over things, again, which was helpful ... it’s been 5 weeks since last appt.
Pleased you’ve had a better day than expected... hope it continues 🤞
Your walks sound good ... its a few days since I’ve seen the sea.
hope tomorrow is good
great you got away with your mam...and enjoying your food a bonus... in spite of sore mouth.
Worry gremlins ... they pop up just when you don’t want them to. I would choose vomiting over crashing psychologically post steroids ... docs will have different meds to try and negate nausea/vomiting. Sounds like a good plan to ask not to have steroids.Fingers crossed for Tuesday.
Crop tops do tend to roll up a bit but good you’ve found something. There is extra outlay to attend appointments plus everything else. I’ve not bought any more bras although I’ve been tempted to look. Asda post op bras went back. I’ve delayed op for a week to think about implant vs being flat ... although I wasn’t keen it’s the only other option I would be happy to try as it can be reversed and it’s the simplest apart from mx. Do you think you will have bilateral mx?
Like Kip you’ll have had soaring temps
We resorted to the electric fan over the past couple of days... forgot we had one
How are your se’s? Sorry you were feeling so stressed before your chemo .. plus being hormonal on top of that obviously won’t help.
It must be hard having to change onto something new and try and be prepared for different se’s, different regime. I really hope work kick starts your positivity. You’ve got through so much but I know you’ve got decisions to make again after chemo.
No chemo, oncdx not indicated as beneficial and low prediction for rads after last excision. HER2 neg. ER 8/8. I was originally for wle, rads and hormone tablets. I had an 8 mm idc near nipple... I’ve dcis which didn’t show up on any scans/mammo/MRI but was still evident on second excision hence for mx as dcis unpredictable.
Sending a big hug
That sounds like a great idea and so glad your surgeon was so helpful, at least you have some great food for thought. So low prediction for rads does that mean no chemo? Sorry if you've already told me what's next .. Chemo brain is fully operational.
Quick update... got to see surgeon as she’s back from hols. I’ve been up and down about recon or not so she went over ie histology results, the whys and wherefores and about how I was feeling. I’m not considering flap ops but, as I’m uncertain about going flat I’m considering implant as it’s the simplest...went through it all, with diagrams and a couple of pics. Having mx, unless having temp implant, would lose skin and recon later more protracted unless having flap. I’m low prediction for rads. If I didn’t gel with implant I could have it removed. So instead of flat and if didn’t like it then recon I’m prob going recon and if I didn’t like it go flat !!!!
I was told it’s better to take my time... deferred op TIL next week.
gotta get back to hob
will catch up later
Hi Cdc glad you are well apart from sore mouth. Its weird I thought k would be feeling chipper as half way through chemo but actually don't, was quite stressed pre chemo and a biit emotional still, having my period probably adding to hormonal feeling. Having trouble getting my positivity back but going back to work tomorrow so hoping normality helps. Seems like a good plan to try to lose the steroids if u can, i believe Emend is the anti sickness to ask for it u don't have it already. You get so many more steroids on Taxol regime, mine are glaring at me every time j open my bedside drawer ... 8 a day for 3 days pre and post chemo then 4 a day for 3 days then none so a big a lump after that lot. My nurse did say if I don't feel too sick and have a big downer they will adjust them next time so I come off them slower... worth considering. I can't remember if you are having T next? But worth sorting if you are.
Take care ladies and if you are forum surfing Feenix sending big hugs for tomorrow xxx Kip
Michelle ... call it pre treatment jitters. Would be the same before starting chemo..anything that’s “unknown” and new, different. I call it the cr@p factor
How are you after your drain escapade ... no lasting damage I hope.
Hope your se’s are minimal ... onto surgery next ... things are moving along.
Clare...cdc... how are you doing? It’ll be your 3rd cycle in a week. Hope your se’s are ok and perhaps you’ve managed a trip to your mams again.... school holidays permitting.... I’m sure all schools will be out now. It’s amazing how quiet the roads are around here. Feels as though lots of folks are away... or perhaps they’re keeping out of the heat at this time of the day.
I hate the up and down of things Kip but they are part and parcel of “this”. I remember that you, Sally, ktk and everyone else have been here before and made it through. Youre still going through the other cr@p now and still you’re all so supportive. You’re all bloody Fab
heres hoping there’s a bit of rain on the horizon sometime soon
hols in Spain sounds great. Sorry you’ve been down and tearful ...it’s this cr@p we have to deal with. Words with dil wouldnt have helped plus you’ve had a significant birthday..... Happy Birthday. Good you’re starting rads soon and just get it out the way.
Its all understandable Feenix, it's a big deal you are allowed those meltdowns.. but you'll do it and come out the other side relieved , it's been a long and hard wait for you hadn't it.
Mcnlucc, sounds like a lovely break albeit punctuated with tears and bad words, i think we are allowed to be grumpy it's a tough time don't feel bad,, just because you are on hols doesn't stop the worries does it. At least rads start soon and that's another step off of the rollercoaster.. big hugs xxxxx
I heard it was a record in Suffolk for temperatures... makes things so much more difficult to cope with though. 2days to surgery and having meltdown + doubts creeping in, all the what ifs. Had really low moods over past week or so.. wondering if letrozole ramping them up. Even the meditation not helping ... be still my wandering mind 😆
Hope your se’s are as minimal as poss
Hi Feenix thankfully worry gremlins not so bad today I think it's the thought of chemo that's makes it worse, at least half way now and just riding out the SEs now. Do u have a date for surgery, i keep forgetting everyone's status but I know it's coming soon? It's so hot here in Suffolk and getting hotter as week progresses I think we had 33 degrees yesterday! No sun for me though
Hi Reddi how weird is that! 3 of us now got same thing. I went to chemo unit for blood test today she said it's a common side effect of chemo probably due to lack of nasal hair and loss of some eyelashes. Advised to keep taking the antihistamine and use the eye drops to help irritation. Wonderful Chemo hey. Mine do feel a bit better today and it's not so hot out either. Will see how it goes,
@Kip I'm another suffering from runny nose and runny eyes. I called the chemo hotline on Thursday, as it seemed to come on suddenly on Wednesday afternoon, after my pre-chemo meeting with the oncologist, with cycle 2 on Friday.
Because I had no temperature, hotline suggested antihistamine -- probably hayfever, exacerbated by lack of nose hair and lack of rain (high pollen counts, at least here in London, plus the usual city air pollution).
Antihistamine has mostly cleared it up.
Hi everyone, thanks for tips on nostrils and kind of reassuring you have the same CDC. I'll see what chemo unit say today and report back. It seems you have got a good plan going forward cdc and glad you found the flat friends site interesting. If out ofnthis nightmare you get both breast as you want and a great tummy then got to be a plus hey!
Now got to get up and prepare for trip to the old hospital again... ground hog day!
Have a good day all Kip
Feeling a bit more sanguine this evening. Amazing how surreal it still seems at times. Know what you mean Kip about the lead up to surgery.
I’ll just have to keep on looking for the ideal bra. When I find one I like I usually try and buy same one in different colours. I’ve got a couple of the secret support vests to try Kip. I might try a pull on bra/crop top by Sloggi as they’ve got pockets/removable inserts... bit on the pricey side but might be worth a try. I agree about the amoeba bras sizing Clare.
Kip .. hope your bloods are ok and you get past the halfway mark on Monday.... cross those days off. Keep cool ...
Clare .. sounds like a good plan to do allergy testing before your next surgery. Sounds as though you’re hoping for bilateral diep. You should get that ok’ d considering yours and family history. Like you say it’s a once only complex op, long op time and a few months recovery. I think it’s routine to see a psychiatrist beforehand if wanting to remove a healthy breast in bmx. Your friend certainly knew what she wanted ... great that she’s flat... so versatile that way if you think about it... probably liberating.
Hope your se’s settle
Michelle ... hope minimal se’s on this last cycle.
have a good nights sleep ladies
Thats helpful to know thanks. I’ll keep an eye on my nostrils and buy some cream just in case. .
With regards to the double MX I will see what my MDT suggest. My surgery is due to be discussed around the time of my penultimate chemo. Obviously the decision is up to me but if I just have my right breast removed using the tummy flap procedure I can’t have the left one done at a later date as it’s a ‘once in a lifetime’ procedure. I’m not keen on an implant. I was hoping to get some guidance from the geneticist who thinks that something is going on in my family even though I do not carry the BRCA or PALB2 genes. She was going to use a different predictive tool for reoccurrence based on my extensive family history but unfortunately the programme only allows data be put in for one tumour so as I have bilateral BC it can’t help. Very frustrating! When I had the original therapeutic mammoplasty it did remove all of the tumour on the left so I presume, in theory, I could keep ithat breast. On the right, despite a further margin shave, the pathologist found there was an area of multi focal cancer cells below the nipple so a mastectomy is now my only option.
I know that it is not usual practice to remove a healthy breast. One of my friends had to fight to get her other breast removed. . She a retired nurse and knew about her risk of recurrence. Her team even made her see a psychiatrist before they agreed to it but she is very happy with her decision. She’s had no reconstruction at all but has wonderful prostheses. However, since I also had a tumour in the left they will remove it too if I prefer or if they deem it necessary. The Breast cancer Care booklet on reconstruction suggests that the surgery takes between 4-8 hours but that is only for one side. I seem to remember my surgeon saying that It would be around 10 hours for both! She would also need to work with a vascular surgeon. She definitely said I would need a minimum of a week’s stay in hospital. All rather daunting but I’d hope it would be my last surgery except possibly for nipple reconstruction, I do know that if the surgery fails I would have no other option than to go flat but I think I’m happy with that. Kip the Flat Friends Facebook page is so helpful, especially all the photos of those brave women and ideas on how to dress.
Oh dear Feenix, bra shopping is proving to be difficult for you isn't it. Post op I quite often just wore a vest top which has a sort of support part in the top (got them from Primark only about 2 pounds each, they were quite comfy too and I now use them to sleep in as pj tops. I'm looking forward to getting to half way stage on Monday for the chemo, but just hoping the bloods are ok this time around, hopefully shoudl be as having the injections now too. I have to go in tomorrow for the blood test, I'm taking my daughter so she can see the chemo unit too. Hope you perk up a bit today, Im sure the pre-op nerves won't help, that was a hard time for me, all the what ifs, I was actually glad when I finally got into the operating theatre and it was out of my hands, the relief was immense.
Michelle - hope the last chemo goes well... hurray for that part to be over one more thing to tick off the list isn't it. I haved 64 days left I think...
Its stlll so hot here, the wig has been throw off again... back to baldiness and loving the cooler head!
Enjoy the day ladies...
🤞 for today Michelle
Clare ... how are you doing? Hoping this week has been a good one.
marmite67 ... hope you’re doing ok.
Weather ok here, need to get more active today after lots of driving yesterday. Feeling a bit flat, mood wise, (no pun intended).... might be preop anxiety, letrozole. Got post op amoena front fastening bra the other day but slightly big band size..it rides up. So back it went to clinic and got smaller size to try which fits more like a bra than crop top, better band size fitting but depth could be bit better. I’m definitely in between sizes... see what I mean about me and bras!!! That definitely got me fed up... might have to resort to crepe bandages 😂 Hey ho.
I put article title page on but was more interested in what patients should know...article in July 7th 18th BMJ . I can try and post article if anyone wants it
Michelle pleased it’s your last one tomorrow and things are going well. Climbing a mountain, however small, is good.
Had a good walk last night. Today we did more driving than walking but it was good to be out for the day.
Kip... you’ll be halfway after next Monday? Sounds as though your se’s are manageable. Is your cording still ok since you whacked it? I’m still trying to do a bit of hooping. Hope you’re managing to get out for those walks. Supposed to be out on the old bike sometime but it’s still lounging in the shed.
Hj Michelle glad things are movjng along for you and great to hear e chemo is dojng its job.. makes it worthwhile. Ask as many questions as you like that's what we are all here for I'm always asking things. I'm doing ok with chemo so far, managing to work still and not too many side effects so shouldn't moan some do seem to suffer more don't they.
Just remembered Michelle that I was told if I needed rads a permanent implant wouldn’t be done beforehand. I’ve read different things about having flap surgery and the effect rads can have. It’ll depend on what recon you want I guess. Xx