Mine is more towards armpit end plus near sternum... liked watching it disappear on uss. I’m going in on Monday... might try post op sports bra for a bit of compression but might not be too comfy. I looked as soon as eyes open .... had dressings on. Looked as soon as dressing off on Wednesday ... had OH look too. We have mirrored wardrobes, there’s mirrors in bathrooms and you have to shower and get dressed 😀 I have read some women’s posts saying they just can’t look but I find it’s good to look, you bond and it’s the norm.... nothing scary. Must be very hard for them.
Sounds as though you had a good night and love that you had a jig ... love it, love it ...Enjoy those moments. I know you’re starting T next week but I’ll keep everything crossed for you ... minimal se’s.... positive vibes.
Might look at bikes later, seeing that fish and chips interrupted plans the other day. The seat is definitely the most important part 😂
Feenix I had a bit of a seroma too but they just told me to gently massage the area, better when in the bath or shower and try to massage it down, mine did go, it was towards the end of the scar near the arm pit area, obviously yours will still be painful and swollen so might not be able to massage it yet. That end bit, where they did the node removal is the numbest bit still and is the hardest bit, but its slowly getting flatter. Good to get advise from nurses though. Its good you've had a look, some ladies find it very difficult to look at themselves afterwards so I was advised to do it as soon as possible. To be honest I tried to sneak a peak in recover, just to reassure myself the right one was missing!
Was lovely to snuggle under the duvet last night and not feel roasted, head was nice and warm with the duvet wrapped round. Even got up and did a little jig round the bedroom this morning to the radio.. shame this good feeling will be zapped next week but I'm making the most of it! Kip xx
Kip... that makes a change trying to keep head warm after all the sizzling heat. Pleased you’re feeling somewhat better. Yes... I looked ... neat ... long ...bit wavy when sat up but had seroma, which is back so phoning bcn tomorrow.
Pleased you’re starting to relax Clare ... enjoy
have a good night
Hi all,. Thanks for your nice thoughts, think I'm feeling better today went for a walk with a lovely friend who cheered me up. Much cooler night's sleep, even had to get up and find a hat as head was cold, we have a big window over our bed and it was chilly so now have stiff neck, oh well something else to think about, I miss my long hair round my neck I think. Raining here today which is very refreshing!
Feenix I'm glad you are on the road to recovery and dressing change went well, did you sneak a peak, I was amazed how tidy everything looked. Interestingly I find my scar gets red and sore in places in middle of chemo cycle so perhaps thats what you feel Cdc? Enjoy time with your mum.
Regarding bike Feenix maybe you will need more of an off road type, but definitely a comfy saddle that's a must, mine is lush!
My friend bought me a lovely card which said "Remember.. a storm never lasts forever!"... So I'm trying to use that as s my mantra for T next week.
Take care Kip xxx
Kip and Clare .... sending you gals big hugs as see you’ve been having a tough time.
Clare ... hope you have a good break away with your daughter.
Kip ... hope today has been better. I like the sound of your bike but not sure whether it’ll be ok eg. riding around Sherwood Forest, a bit off road but not too much if you know what I mean. I’ll have to get out there and sit on a few...need a comfy seat though. I saw what you said about OH in relation to your changed appearance. I got OH to put hand on my chest. He is a medic so it didn’t bother him but I do think it’s hard for OH’s to come to terms with change but we can all adapt and it becomes the new normal. My OH talks to family and a couple of friends
Had first dressing change today ... small seroma drained. OH in with me so he was able to have a nosey. Wound healing nicely. Bit more niggly now but para/Brufen will do the trick. Was planning to look at bikes after appointment but instead had fish and chips at the seaside...oops 😊
Michelle ... you doing any more running or has se caught up?
Its getting cooler ... about time
Hi feenix glad to hear you are up and about, does you good to go out for a stroll I find. I have a lovely vintage style bike and I enjoy biking although haven't done much lately, that's a lovely thing to do and get a new car, good to make plans.
CDC my duff days are 3 days after steroids too, which is always a weekend for me which sucks!
We must all meet up after this roller coaster ends... Be fab to meet you all in person.
Kip is right Michelle... you’ll still be in touch with OH on your op day. Sending a hug.
Im not too bad Kip... bit up and down but better today. Doing exercises.. I’ve had plenty of practise !! Waiting for results now .. hoping there’ll be nothing unexpected and I can get my head in gear (totally wiped out yoyoing about recon and final histology) ... after that get a bit fitter and reconsider what I want, or not !!! Planning to get myself a new bike and get pedalling... better get a bike hat too. Think the time is right to get another car after all that test driving we’ve done since diagnosis. Just been for walk along promenade and it’s quite warm tonight so expect you’ll be sweltering further south.
Michelle if it's any help on my day of surgery I was back from theatre in a couple of hours and home in 6 from moment of arrival al, but on the ward I was texting and chatting and walking around so you'll hopefully be able to at least direct your husband should he require help.
feenix how are you doing?
Hope you’re all having a decent day.
overcast here... bit cooler which is good.
Hope you manage a run Michelle
I’ve been to Brighton years ago when OH worked in London... pebbly beach... nice place... probably much more busy now. I think we drove down for the day.
Clare ... how are you today ?
Kip ... hope you’re doing ok today
Michelle , great you’ve done your run.... very emotional time. I’m hoping results will be back 3 weeks. Didn’t expect more out... if all well then I won’t be having more treatment and can then decide what I want to do. I’ve even started to let my hair grow ... I had it chopped off at the beginning and kept it short , just in case. I was more prepared for chemo than surgery !!! At least I know my cancer recurrence is as low as it possibly can be at this moment in time.
Clare ... sorry you’ve been feeling down... hope that won’t last long ... getting the meds balance right must be really difficult. It’s good you know you’ll get better though and have something to look forward to with OH and daughter.
I do feel for you lasses going through chemo but nearly half way through 🤞 💪 💪
This time next year will definitely be done and dusted.... we’ll all have to have a celebratory get together in the big smokey 😊 🍸 🍻
Kip... you’re doing well with walk ... good destination. I was in overnight, BP a bit low, drain out next day. Easy recovery considering. Need to keep up with exercises. I see Michelle had good advice about T
I think it’s going to be cooler, soon 😊
Ive not seen anything from Jazza or Bridget. Just know Jazza was waiting for results after her third op... hope all is well.
Hi Feenix so glad you are doing well, did you get home on the same day? I start T on 13th Aug so got one more week to go. Just want the chemo over.
Michelle well done on the park run, I walked 2 miles to pub and back last night and it was fab, no TV as marathon but it's something.
What great news Michelle .... so pleased for you. Your surgery will be fine. I’m ok post op. I had a couple more nodes sent so awaiting histology....again. Off to seaside for a walk. I really need to get some more weight off and get fit
Kip... hope it gets cooler soon. When do you start T?
Clare .... hope you’re doing ok
Hi I michelle that's fabulous news for you and at least lets us see that the chemo really does do its job! I haven't had node clearance yet I'm probably having it after chemo and before rads. You'll be able to let me know what it's like. I finish chemo on we sept. Can't wait as getting worried about the T part.
Feenix.. thinking of you xxx
Love to all.. another hot day here in Suffolk so lazing around with breeze in my baldie XX .Kip
I try to be Kip ... not done them today though. That’s a good way to decide your own queries. Its always difficult to decide without a strategy. It does make sense though. They must be on a par with risks and effectiveness as wouldn’t be given as a choice. Know someone who had rads but think she just didn’t want more surgery, but she did research the risks of both. she has some upper arm pain but it’s manageable... says it’s like someone has punched her. It’s the deciding but sounds like you’re nearly there with it.
Like that you can easily check your scar area... it must be really improved now. It was something that crossed my mind.
Hi Feenix you are good still doing the exercises I do them sporadically but have good movement. Cdc the Asda underwear etc is only on line unfortunately. I still have to decide whether to have node clearance or just rads on them? I think I want them out for peace of mind but not sure still? I try to think if they offered me only rads would I be disappointed and if I think yes then j really want them out. I did that with my mx, I thought if they only offered recon would I be disappointed and I felt I would so that helped me decide. Hope that makes sense ??
Clare ..I think lots of women have to wait for recon and some decide not to have it after the wait.
Yes.. I can see that your skin and scars would need to be optimal for your surgery, whatever that may entail.... do you think you’ll have Diep?
I do the exercises but probably only twice a day... I’ve full range of movement... I’ve been doing them long enough !!!
Asda post op bras etc are online...not seen them in store.
Hope yesterday went ok and se’s Better
michelle... good luck with surgeon tomorrow
Kip , glad you’re feeling more yourself. I was sure what I didn’t want ages ago but over time I had to think +++ and so went into yo-yo mode. If surgeon had had the right gear in theatre last week I might have gone with implant. The yo-yo effect is bloody awful. Hugs xx
Lingerie evening sounds good Michelle.
Know what you mean about feelings changing...I change my mind on a daily basis xx
I've never heard of a lingerie evening, be very interested to hear about it, what a fab idea. Will definitely pop over to the new thread and see if I can offer any advice. I do feel for you Feenix you've had such a long wait for surgery it does mess with your head. Soon be over and you can begin to come to terms with the new you. I just knew I didn't want a mound either and I like the fact that j can feel all around my scar and remaining tissue to check what's happening.... but that's just me.. Mrs paranoia. Take care and have a good evening, I'm starting to feel back to myself today so that's nice altho the eye lashes are decidedly thinner today but hey not much more can fall out now ! Love to all Kip xx
I really think surgeon just checking my decision Clare, like Kip said. I think it’s every day stuff for them but big deal for us. The boob has to go but I don’t want a ‘breast mound’ replacement which may cause more problems, like your friend Kip and her implant. I’d always thought I would go flat if needed but the waiting and deciding has played havoc. Anyway recon is always available down the line if wanted. I just hope I “bond” afterwards.
I hope you get an appointment your new foob fitting soon Kip. Asda swimming gear seem to get good feedback. I’ve heard of others using bio oil. I don’t think it matters so much what you use, as long as it’s not highly perfumed, as it’s the massage that helps ‘mature’ scars.
Clare ... hope all goes ok today.
Hello Cdc and Feenix, my scars gets redder and irritates a bit after chemo j notice, they are very well healed but can pull a bit during the 2nd week, otherwise no problems. I use aveeno on mine bur was also wondering about bio oil? In relation to the daft questions your surgeons ask, when i said i want mx with no recon mine said "You do realise you will look down and be flat"... felt like replying "no kidding Sherlock". Guess they feel they are double checking we understand the process?
It must be so hard for you to still be juggling with decisons over surgery especially cdc with chemo adds in to the mix. I can't decide what to eat sometimes let alone make those decisions. I am sure you'll both be sure of the right thing when the time comes and you'll both find bras that fit properly, I'm still waiting to hear about a proper prosthesis.. then i can shop for some more. I do have a nice post op swimmjng costume from asda... if only i could go swimming though. If it's any help my friend had mx with inplant which unfortunately rejected so she had a couple more ops and has had to complete chemo, rad s and tamoxifen and is currently flat but is having tummy diep in October as she is now 2 years clear and is very excited with the prospect and said she wouldn't change a thing with her decisions and feels she is now ready to "finish the job" and complete the journey. I don't think I'll ever want a recon but who knows how we will feel once through this tunnel?.
Take care kip xx
So sorry to hear about your panic attack. Making decisions is so hard. I’m certainly thinking of you and hoping all goes well with the surgery at the end of the week.
Thanks for your wise words! I will leave the bra shopping for now and take a look at the other sites you mention as my mind is not made up with regards to recon or not. What a very strange question for your surgeon to ask!! Good answer.😄 A friend of mine who ‘opted’ to have a double MX told me that the surgeon enquired ‘So you’re happy with your decision?’’ the day after her surgery - she replied ‘Well no I’m not happy that I have Breast cancer and had to make the decision in the first place!’. Some surgeons seem to be staggeringly insensitive at times!
Take care and hope you’re able to enjoy the cooler weather.
ps Good to hear that you’re also using Aveeno. Think I, going to stick with it for the moment and hopefully my scars will become more supple.
Clare ... definitely hang fire with the bra shopping until after your op... it makes sense. I’ve been using aveeno after both ops... no tightening. Op end of week. Think I had panic attack last week but I’m still not keen on implant and really not up for flap surgery ... just not mentally up for for either so I’m left with mx. Need to get through results after that. When I saw surgeon she said to me “so you want a mx” .... I replied that “no I didn’t” typical answer to the question I expect !!! I’ve looked at sites relating to no recon and stuff like Scar project and What Lies Underneath. There’s lots of interesting stuff out there relating to recon and none ... probably gives a better overview than textbooks.
I hope tomorrow goes ok .. minimal se’s.
Kip... hope today has been better
hope it stays cooler
Kip ... saw that you’ve been having a tough time. Your 16 year old sounds so lovely, daughter too. Your OH ... bless him he must be feeling so helpless. I hope se’s will be improving soon.
Thunder, lightning and rain in buckets last evening and overnight... nice and breezy today
Clare... good to see you are enjoying some normality
Kip ... hope you’re having a good day... surely you’ve had rain by now !!!
Michelle ... hope today is good
As Kip says of course you belong.... we are all in this together, on any thread.
I think the most important thing I got from surgeons appt was being able to talk things through again and went through histology’s again. plus OH was with me. I don’t think I could have signed a consent form after not seeing her for 5 weeks. In hindsight I should have had op weeks earlier instead of waiting for to come back from hols... could have had another surgeon. When I go back to implant I know I am really not keen.... to me it’s a foreign body, silicone can leak little bits and get into nodes ( got that from recon book), use mesh which is a FB too ( no long term research as to safety...bmj article) and gets absorbed into skin but not systemically, it’s under pec, can get twitchy muscle, doesn’t move etc.... As you can see I go into things in depth, overthink, but these are things Ive come up with and it’s how I see things. And that’s without the potential complications !! It is a quicker recon than flap op, it provides a shape to put bra on, is used a lot and many women are happy without any problems. Am also talking things through with OH. Anyway it’ll be all over end of next week... just need to get rid of the remains of the boob.
As you know you want recon things should be somewhat easier although you do have to get all your options. I get the feeling that you will be thinking of flap recon ??? You can’t have permanent implant pre rads. You could have a temp implant after skin sparing mx and be ready for flap recon. You can have flap recon before rads but might compromise recon. Some surgeons will do before rads, some won’t..... just a few things I’ve picked up along the way.
Write your q’s down, ask time scales, recovery, do’s and dont’s afterwards.
its good you’re getting to the next stage.
Hope youll be back to getting fit soon ... you’ll be back to 🏃♀️