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Surgery May 2018

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Re: Surgery May 2018

Just a quickie to say I’m finally home- exhausted but happy! Will catch up properly once i’m More with it xxx
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Re: Surgery May 2018

CDC I am glad that it went well now you are on the ward. The TV is fab isn't it? I was offered a dressing gown too but took my own new one. I have a cold so am taking it easy now my treatment has finished. I think I relaxed as reached the light at the end of the tunnel so was more prone to germs at work.x
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Re: Surgery May 2018

Michelle .. wise to take antibiotics with you , just in case. If I need anything A/b’s can be bought over the pharmacy counter. OH always has a BNF with him..medic... so he’d just get me the most appropriate. Hope you’ve got your 50% deet and travel socks.

Flying ... I was told to avoid having affected side on the aisle as people can knock you lots... and fall on you 😂.  If you sit next to the window, with affected arm next to it, keep a cover over to keep arm warm. Do  exercises regularly ... can’t remember how often but I’ll do them at least hourly. She told me  the following.... 1. with your arm down, make a fist and then relax it, slowly, and repeat a number of times 2. as before, make a fist and flex your arm up, slowly... as though you’re doing bicep curls... then down and repeat. They can easily be done while sitting.. half hourly comes to mind !!??  You can easily do some of the BC exercises as well if you’re up and about... keep your shoulders loose and do some stretches. I’m usually up and down like a yo-yo, drink lots of water and keep off alcohol as it dehydrates. I guess these exercises apply to long train/car journeys ... anywhere you’re static for hours. Enjoy your fund raiser evening. 

Kip .... how are you this evening? How’s the weight loss going? I think mine will be going up the way I’m dipping into the kitkats.  I picked up a few more Asda bras for £6, total.

Clare .. see you’ve escaped CCU ... home will be beckoning soon.

xx

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Re: Surgery May 2018

Hi Kip. Your dominant arm could be up to 5% bigger than the other naturally. Mine is 9% so quite light. The manual lymphatic drainage involves encouraging the fluid to drain away. I can feel the fluid sitting at my elbow and I use kinesiology tape on this area. My therapist starts by clearing the lymph nodes in my neck then working on my arm and breast and finally moving down to my groin. It's quite an intense massage but I can feel the benefits straight away. Michele

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Re: Surgery May 2018

Kip I thought the same as you re massage. Every day I do it starting at the wrist and working up! So I’ll have to change that then! I have a friend who is a reflexologist and apparently there is a lot of evidence throwing that can help with lymphodema. Even it it doesn’t help it’s nice having someone massage your feet for an hour!
I’ve been like you Jean, obsessing about my arm at various times. I’m taking antibiotics to Nepal, just in case. What exercises have you been told to do on long haul flights? I’m stopping Tamoxifen a week before I fly because of the DT risk. I’m sure I’d be fine but it’s just something else to panic about! I’m glad your cording is better I’m sorry that it too you taking a tumble for it to improve!
I am out tonight at a fundraiser organised by my husbands work. It should be a good night but I feel so tired from my cold and life!
I hope everyone has a good weekend. Claire I hope you are feeling a little better every day. Xx
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Re: Surgery May 2018

Thanks so much for your advice Kip.  I will get stroking!  I would have done if from the wrist too which is how I do my moisturiser.  Maybe I should start at the top with that too.  Glad they've caught it early so hopefully you will not suffer too much x

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Re: Surgery May 2018

Kip ... I do the stroking and always when I shower, same way for moisturising. I sometimes think my arm is slightly bigger than the other but was it that way before ... can’t remember 😂 I’m sure I’ll be having someone eyeballing it one day soon , just to make sure it’s just my normal flab but also to catch things early if it’s lymphoedema. My thick cording seems improved since I head dived out of the car and whacked my ribs/chest. Im wear a wrist splint at night now as thought I’d kicked off carpal tunnel syndrome falling on my hand !!! Seems to have helped. If it’s not one thing it’s another. It would seem Tamoxifen has a lot to answer for. Keep on with the exercises ... reminds me I need to do some.... and a bit of hooping. 

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Thanks Optimisticmz... that sounds interesting.. what does that involve?   I don't have much swelling at the moment so hopefully things will stay that way. 

Kip

x

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi all,

DaisyDi - thanks for the message and glad you've been following my progress.  Don't panic the lymphodema is nothing much.  I had some cording after my ANC clearance which was why i was referred to the clinic, to get their advise.  I have been massaging that and its pretty much gone.   But the nurse took measurements of my arm and the affected side is on 8% bigger than the other, you can't really tell but she wanted to get on top of it before it got worse (if it does at all).   Its not painful or anything.  I have a sleeve to wear as and when and exercises to do.  Best thing to do is to keep up the exercises everyday..I know after surgery it can be painful, but take it easy and do them religiously.   She said exercise is the best thing.  I have good movement as I have been doing them all the time.  Gentle stroking starting at the top of you arm and stroking upwards, then moving down a little bit and stroking upwards and slowly work your way down to the wrist.  Don't start at the wrist and work upwards (which is what I thought you had to do).  You should do it gently just enough that the skin creases.  Look after your arm, sun cream, wear gloves in the garden and washing up and if in doubt ask the nurses.   I am sure you will be fine Daisy, its just another thing to worry about but, actually I'm glad they are sorting it now and keeping and eye on it.  I have a friend who wears a sleeve every day and she is fine, compared to cancer and chemo a sleeve is nothing much.

Feenix - wow I didn't know you could get covers... how cool is that.  Thankfully I only need to wear it when I exercise or go for a walk.  I've been wearing it for a few hours today to see how it feels and actually its fine.  I'll make sure I keep up the exercises and hopefully it will keep it at bay.  At least its taken my mind off the aches and pains, the lymph nurse reckoned they are caused by the Tamoxifen!

Kip

xx

Member

Re: Surgery May 2018

Hi Kip. I have followed your story too. I am ahead of you as I had surgery October 2017. I have lymphoedema in my hand, arm and breast and was fitted with a sleeve in May 2018. I am currently receiving manual lymphatic drainage from a McMillan trained nurse (6 sessions being paid for by a charity) and find I benefit greatly from this. I also find kinesio tape useful. So far the swelling is all under control. If you would like to know more than just message me. Michele

Member

Re: Surgery May 2018

Hi Kip. Good your cording has gone. Well done on your range of movement. Sorry about the lymphoedema though.  Good to ‘catch it’ in its early stage. I like that you try to find something positive out of this. You can get bonny  sleeve covers, some which will make it look as though you’ve got a full sleeve tattoo. Hope you join your OH and son doing yoga. 

I was always worrying about my arm, and was quite obsessed at one time, as I was thinking I would be more prone to developing it having had cording and 3 surgeries, even though none of them was ANC. I did feel more at ease after the lymph nurse spoke to us just realising how manageable it is. If I develop it then I’ll just manage it. I’m pleased I now know the correct way to apply moisturiser and she did tell me exercises to do when on long haul. 

Hugs

jean xx

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Re: Surgery May 2018

Hi Kip I have been following your story and was so pleased for you when you finished your treatment.  The pic of you and your children brough tears to my eyes and I now find myself teary eyed again having just read that you have lymphodema.  I am a week post op anc and that was my worst nightmare although I dont have all my results yet so no treatment plan and things may get worse for me.  I also had a 3rd reexcision to get one more clear margin but my journey has been going on since October.  Did you have swelling to your arm?  I am keen to do as much as I can to avoid lymphodema but dont really know what to do for the best.  I am still sore and numb at the moment so finding exercises a bit difficult.

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Michelle, apparently when exercising that it when your blood and lymph is flowing more so its important to wear the sleeve to stop it building up.   I would imagine that if you don't have lymphodema there its good to exercise to keep it flowing but the sleeve just helps stop a build up... I think!!  She did say exercise is very good, especially yoga.

Member

Re: Surgery May 2018

Oh Kip I’m so sorry to hear you have developed Lymphodema , but it is good that they have caught it early and you now know what to do to help it. I’m intrigued why you wear it when exercising, I thought exercise was good for it? I love that you're looking for the silver lining with no bingo wings! Xx
Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi everyone,

Just been to lymphodema clinic... good news is my cording is gone... bad news is.... I have mild lymphodema... now sporting a lovely support sleeve.  I don't have to wear it all the time just when exercising, walking or housework/gardening.   She wants to stop it progressing so has told me some more exercises to do and dos and don'ts and have to go back in 3 months.  She was impressed with the movement i have though.  Actually felt quite teary when I left the clinic, seems I always go in positive and come out with something else but in teh scheme of things.. a sleeve is nothing... and another positive... no bingo wing on that side when wearing it.. lovely toned arm!  Might wear the spare on the other side...Smiley Very Happy

Member

Re: Surgery May 2018

Claire so lovely to hear from you, what a shame about your low bp but as Kip says it’s hopefully just a blip and you get home soon. I hope you are feeling ok in yourself and I’m looking forward to your next update x
Member

Re: Surgery May 2018

Clare ... pleased all went well... hope your BP behaves itself ASAP and you get out of CCU.

Jean xxx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Ahhh CDC.. so good to hear from you.  Glad all went well, just a minor blip with the old BP... you don't like to take things the easy route though do you.... I'm sure you'll be out of that unit pretty sharpish... sending love

Kip

xx

Member

Re: Surgery May 2018

So sorry about your friend Kip

. I just want to send a very quick update. Unfortunately I’m spending another night in Critical Care. There have been some issues with low blood pressure since my op on Monday. Everything looks great but they need to get me off the drugs I currently need to keep myBP stable. I’ll send an update tomorrow xxx
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Re: Surgery May 2018

Not succumbed to the lure of Easter eggs but I couldn’t resist the bargain kitkats and after eight mints 😈 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Ooooh mini eggs and digestives... All I could focus on in the shops was Easter Eggs
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Re: Surgery May 2018

I’ve just been to the supermarket, with good intentions but came out with a bag of mini eggs! Another weakness of mine! 😱
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Re: Surgery May 2018

I’m envious of your weight loss too Kip ... as I’m sitting here with a cuppa and digestives. Dare not confess how many I’ve eaten ... 😈 

Member

Re: Surgery May 2018

Kip sorry to hear your friends news, it is what we all dread but Jean is right there are people ‘living with’ cancer nowadays. I’m sure your friend will come to you when she is ready, she probably needs to absorb the information first. I have no doubt you will be a great support to her.
My leg is sore from the physio but that is the norm, it’s an ongoing injury that I hoped had cleared up after resting it during chemo but it seems to be a weakness that came right back. I’m doing exercises to strengthen it and they seem to be working but it’s a long process!
I’m very envious of your weight loss Kip, I really need to stop making brownies! X
Kip Community Champion
Community Champion

Re: Surgery May 2018

Thanks Feenix - yes hoping for some bargains..  Good news about the hooping... me too.. I lost 3.5lbs last week so thats a plus.

I was thinking about Clare too, hope shes ok.

Kip

xx

Member

Re: Surgery May 2018

News such as you’ve had about your friend Kip, will always hit home. It’s a natural reaction. Being there for her, sending a virtual hug, a message of support is something you can do ... just being there. You’re right, there are many ladies living long lives with mets and there is plenty of support on here which she would find beneficial. There is also the younger persons group. 

I don’t find this subject doom and gloom...it’s just how things are for some. We hope such things will bypass us..... we are definitely all different. Get yourself out shopping ... really good distraction and you might find a bargain 😊.    I started hooping yesterday.

Hope things have gone ok for Clare.

Michelle .. hope physio helped

 

sunny here, washing out, have done wiifit,  going for a walk and enjoying the weak rays while they are there.

jean xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Thanks for all the tips and kind words.   Unfortunately yesterday I had some bad news which didn't help things, I have befriended a lady locally who has been going through treatment (we have never met but chat regularly on line), she is only 41 and had finished treatment but found out yesterday that she has lung mets.   She did have some issues on scan before beginning treatment so it wasn't something out of the blue but still.. it really shocked me and didn't help with the demons at all.    I am going to encourage her to get on this forum and I did some research yesterday and there are lots of chats going on with ladies in the same boat and I think it would be good for her.  Haven't heard from her at all today and don't know how on earth to help apart from just be here I guess.   Having to remind myself we are all different and it doesn't mean it will be me next...  sorry for being so doom and gloom lately... perhaps thats another SE of the Tamoxifen.. it does wreck your hormones... going shopping later.. that will help Smiley Tongue

Kip

xx

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Re: Surgery May 2018

Try Insight Timer for free meditation. I used it alot when I couldn't sleep or woke up then couldn't sleep. If you can't sleep play it twice and try using it before bed.x
Highlighted
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Re: Surgery May 2018

Dear Kip,

 

Just wanted to send you a big hug. We all have those demons, but just think what our bodies have been through last year. How could we not be having some side effects from it all? Everyone is different so try not to worry that others aren't experiencing the same symptoms. Try to focus on how far you have come. I get scared too, but then I think, I have had so much treatment, surely those cancer cells don't stand a chance!!! Being back at work helps too, as there are hours at a time that I am focusing on my work.

 

Love Jane xxx

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Re: Surgery May 2018

That looks really good Kip. It’ll be the same one here. There’ll probably one where you are Michelle. It’ll compliment the moving forward course. I’ll be putting my name forward ... do everything that’s available. My bcn said that ladies who have attended found it very beneficial.

xx

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Re: Surgery May 2018

Just saw your post Michelle....takes me so long to get a message on here using one finger typing on an iPad 😂  Just brought to mind reading an article about craftfulness... some find it more beneficial as you’re doing/making things and can be in a group. I’ve got a few small projects to do, such as knit a hat ( probably get it done for next winter !! ), finish a tapestry, do tie dyeing etc. Hope the physio works for your hip. Yikes... not long before you’re trekking. Staying with family is definitely different ...you experience all the power and water cuts 😂 I’ve travelled with them in India, we are in the south, and it’s really interesting. 

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

This is the Hope course20190114_160410.jpg20190114_160521.jpg

Kip Community Champion
Community Champion

Re: Surgery May 2018

Bloomin ' love you ladies....
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Re: Surgery May 2018

Kip .. the Hope course sounds as though it will be very good. I’ll be seeing one of the follow on team in the next couple of weeks for my pre yoga/referral to activities/gym programme so I’ll ask her about it. I have tried an free app called Headspace. You may find it helpful. It’s bloody awful when the demons hit but you’re right that’s it’s par for the course. As with everything time will improve things but being proactive about such things is a positive thing as a little help and cushioning along the way can only be a good thing. Doing courses, using apps, talking on here, accessing counselling, being active, working, quiet time .... so many things that can help. And accepting there will be those ‘off’ days along the way. We are here for you Kip. We understand.

sending a big hug xx

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Re: Surgery May 2018

We are all here to help each each other as you have me many times x. I stupidly forgot to give you the name of the book that came highly recommended it’s called ‘Mindfulness a practical guide to finding peace in a frantic world.’ But I think you have to make the time for it, I heard a good analogy today for mindulfulness ‘you don’t get the 6 pack without the exercise!’
I haven’t heard of the Hope course, maybe we don’t have it in Wales? I am going to give the moving forward course a go. It’s tough isnt it? But plenty beforenus have got through it and I’m sure we will too.
I imagine when you stay with family you see more of real life and culture rather than all the tourist routes Jean. I’m sure it is very interesting and 5 weeks, not far off. We go in 4 weeks and yes I am getting nervous!
Have a good day, I’m just heading in to the physio got an ongoing hip injury from running! X
Kip Community Champion
Community Champion

Re: Surgery May 2018

Meant to say yes I think that's the Hope course it's over 6 weeks and split into different parts, mo ING forward, fears, etc
Kip Community Champion
Community Champion

Re: Surgery May 2018

Thanks Feenix and Michelle you are fab at cheering me on. I have heard of mindful Ness, there are aps aren't there? Might give that a go. I agree that the demons come in waves, I was very happy n positive and then bamm. It takes over, but I think that seems par for the course. Just need to ride it out and believe my own hype.
India will be great Feenix flat or otherwise and I bet they wouldn't even notice
Thanks ladies
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Re: Surgery May 2018

Kip ... worries are heightened when focussed on the subject. I became obsessed looking at arm all the time, having weird sensations, watching size etc. The moving forward course helped me to re focus as I realised that things can be managed if they develop.. a little bit of info/reassurance is good. Then I had a fall and back to square one but improving on the mental side of things. My BCN told me about the Hope course, so I might do that later. Apparently it is different to the Moving Forward course in that it has a facilitator but no speakers attending. It sounds more participant led and is for men and women who have had a cancer diagnosis. Is that the same Hope course you are going to do? Although I have a proper foob I do tend to wear my softie but I do go flat a lot of the time.

I’ll be travelling in about 5 weeks. It’s different to going on a package holiday as I stay with family. Plus I just take hand luggage .. travel light which is good.  It’s certainly an interesting place to visit though. Keep it on your list Michelle. It’ll be good to catch up with everyone. I’m wondering if they’ll be taken aback if I wander around ‘flat’ 😳 I’ll just be taking a softie with me ... it’s easy to take out and shove in a pocket if need be...bit harder with the silicon one as it’s not so squashable and have to take care more care with it 😂  

I’ve never been one to book anything in advance. Much prefer doing it adhoc. Our flights were just booked a week ago I think. Here’s hoping you get answers to your questions at your lymph clinic appointment.

How long is it before you travel Michelle? 

Not so sunny here but need to get up and move.

Enjoy your walk in the sun Kip ... hope not so achey afterwards.

xx

 

 

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Re: Surgery May 2018

I hope you enjoyed your dog walk Kip, I’m sorry you are struggling with worries at the moment. I find it comes and goes, although never goes completely. I said a couple of days ago about believing my own hype and I think there is something to that. A friend of mine has rcommended a mindfulness book, I’ve never done it before but apparently there is scientific proof that you can change the neuro pathways by practicing it and therefore making your thoughts more positive. I’ve always thought of it as ‘the new in thing’ but it seems like it might actually help if done properly. I know the main problem is the fear of its return and no one can give us the guarantee we crave but if we can find ways of coping with that fear rather than it taking over our thoughts it has to be worth trying! Hope you are ok, big hug coming your way xx
Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Ladies,

Don't worry Michelle you didn't worry me more, I was just impressed with how well you are doing.  I have tried ot call my Onc Nurse but she is away on holiday until Monday, not sure who to call now.   Its so weird because I think I am thinking about the pain so much and poking around that its making it worse, I need to chill a bit and stop thinking about it and see what happens.  I am sure chemo and Tamoixfen don't help matters.  

Feenix - meant to reply about the bras you got, at least you like the George one, its difficult isn't it.  I still have to arrange to be fitted for my prosthetic but am waiting until I feel up to it as quite happy with the KK at the moment.   When are you going to India?  That is exciting and something nice to look forward to.   We've still got to arrange a summer holiday, I am finding it hard to book things in advance, another of the gremlins I'm dealign with at the moment, almost don't want to jinx things.   I have booked onto the Hope course but can't get on until Feb so hoping that will help with things.   Also have the lymph clinic on Friday so might ask some questions there to.. .anyone who will listen!!

Oh well another day, but nice and sunny here, going to walk the dog this afternoon and see how the legs fair then!  

Kip

xx

Member

Re: Surgery May 2018

Kip I hope I haven’t made you more worried. I was lucky in chemo that I didn’t get any aches but I know it is a common side effect. Also I am 2 months on from you where chemo is concerned. I know a few of them on my chemo thread had a lot of aches and I think still do. Speak to your onc but I’m sure this is just your body healing x
Wow India Jean! I’ve never been but it’s on my list! Everyone who I know that has been have lsaidnit is amazing. My in laws went last year and I think my parents are going this year (or maybe next) I can’t remember!
Forgot to say Claire I hope your daughter is doing ok too!
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Re: Surgery May 2018

Well done on your training Michelle. I’m going to sign up for the 12 week active programme available here... I need a kick start, esp after my fall. I’m travelling to India...I’ve been many times. I’ll be taking plenty of deet with me this time.

Kip ... those worry gremlins have a lot to answer for. Definitely phone your onc to put your mind at rest. My feet and knees have been acting up lately ... I put it down to age and letrozole. I’m guessing you still have the after affects of chemo plus youre on ‘the tablet’ now. Are you still using the Epsom salts ?

Clare ... hugs xx

 

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Re: Surgery May 2018

Thanks for the good wishes everyone. Only just started getting my hospital bag ready but at least I’ve o oh just started to get nervous!
Looking forward to it being over.
Linda I haven’t seen the meaasgae on Facebook- will see if find it.xxx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Wow Michelle I'm. Impressed with your training.. I. Ant manage 2 mile walk without aches n pains playing up. Mighr have to bite the bullet and ring onc tomorrow for advice as getting myself. In state worrying about bones... Worry. Gremlin doing overtime..
Clare... All. The best for tomorrow... Will be thinking of you
KIP
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Re: Surgery May 2018

A quick note to wish you all the best for tomorrow Claire. I am sure all will go well, let us know how you are when you are up tonit. I will be thinking of you. X
Glad you are back on line Jean, thought you were a bit quiet! Pleased your ribs are feeling better. Going to see your OH’s family sounds really exciting? Where do they live? I assume you have been before?
Training is going well but tough! Did a 9.6 mile yesterday and 8.5 today so sheltered now! Time for a roast and an evening in front of the fire! Tomorrow I need to do several lists on what to buy/pack etc. Busy busy xx
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Re: Surgery May 2018

Clare forgot to say no other ideas yet re a holiday in sun. A friend is in Hurghada atm as its easy to get there from here as we can fly from Bristol. Hurghada isn't that nice but hot in Feb. 

Not sure if you saw my FB message on the post re dense breasts but anyway hope all goes well tomorrow! Everywhere else is expensive atm although it's only money! xxx

 

Ps Christine Rim had a diep at the Marsden.

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Re: Surgery May 2018

Kip ... forgot to say that I sent off for 2 Asda bras and 2 Nicola Jane ... sent the NJ ones back and kept Asda ones. NJ bras didn’t have cotton pockets, which I prefer, but I didn’t like the style/material of one of them. Sizing was ok. I’d much prefer to see them in a shop esp at the price. I’ll probably try Amoena next. Hope you’re doing ok. Im going to try hooping again next week 😊 

Michelle ... hope your training is going well.

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hello clare,. Oh what a shame for your daughter, hopefully she'll get to Wales and perhaps get given some special responsibilities on the activities which will help her feel involved.  I hadnt realised your op was Monday either, that came round quickky didnt it.  Your poor OH will feel torn between  being there for you and yiur little girl but good your mum can be there for you.  Ill be thinking of you and looking forward to hearung its all done.  Hope you get a restful weekend.

kip

Member

Re: Surgery May 2018

Aw Clare you daughters disappointment must have been immense but hopefully things will turn out ok for her. Children heal well and bounce back quickly.  The school sounds so good.

My goodness it’s your op Monday... I had the 16th in my mind. You’ve certainly had plenty of distraction although not what you would really have wanted. It’s good your mam is around and will be there on the Tuesday for you. Monday will feel like a long day for them all. I’ll certainly be thinking about you on Monday and look forward to hearing you are through it and recovering well.... and planning your shindig 💃🕺

sending love, hugs and positive vibes

Jean

xx

Member

Re: Surgery May 2018

Glad to have you back online Jean.  Do take care- moving heavy furniture? Definitely sounds like you’ve over done things,  Hope the exercises are helping.  

 

Unfortunately the hospital rang my OH out of the blue this afternoon,  A bone specialist decided to review my daughter’s x-ray images taken on Wednesday and he believes she has two ‘small and subtle’ fractures on her third and fourth metatarsals - (the long bones in the foot).  No wonder she’s been in agony and can’t put any weight on it at all.  She’ll be on crutches for a while.  She’s so upset as it’s the school disco on Thursday and the following week her year are off on their long awaited week long residential to a farm in Wales.  She’s literally been looking forward to it for two years!!  We’ll let her go if the school and consultant say it’s safe for her to do so but she’s been in floods of tears tonight as she was looking forward to the hike by the sea activity more than anything else.  Her teacher and the school office manager who are both accompanying the class have been so lovely and have been reassuring her they’ll let her join in with as many of the activities as she can and will find special things for her to do if it’s not possible,  Hopefully she’ll be on the mend by then.  She will be reviewed in the fracture clinic next Tuesday.  Aaaghhh!  My OH was supposed to be coming to the Marsden that day to see me and get an update.  He can come with me to the theatre doors at 8.30am on Monday (14th) but there’s not much point hanging around as I’ll be in theatre till at least 6.30pm.  I’ll then be in critical care so they advised him it would probably be better if he waited till the next day to see me.  He’ll now be with our daughter in another hospital in the opposite direction!  Thankfully my Mum is around so will come instead.  

 

Im exhausted so off to bed,  At least all this drama is taking my mind off worrying about my surgery!!

 

Take Care everyone.

 

ps I’m definitely going to need a party after all this!!