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Surgery May 2018

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Re: Surgery May 2018

Hi all ... just got the internet back on. It had gone walkabout with the phone line from Tuesday...openreach just got round to fixing the problem. Just having a quick read through posts.

Kip ... exercises sound good...pleased you’re doing ok on Tamoxifen although you still have your aches and pains. Not too long until your appointment and get your arm looked at. Great your friend is pleased with her diep. Research says that women who have delayed recon appreciate it a bit more (!?). You’ll have a fab time in York. Keep on hooping and resisting the biscuits...if you can. I’ve nearly finished the Stollen thank goodness.

Michelle ... the moving forward course is worth doing.. you’ll get something from it I’m sure although I realise it’s not for everyone. Six of us still meet up at least once a month.. coffee/lunch/natter.... it’s good support and we know what bc diagnosis is like plus going through treatment. I don’t know about telling people about bc but everyone in the cafe yesterday would known all about it 😂 I’ve seen the Bosh book but not delved into it. I’m definitely doing lists ... on a daily basis...keeps me focussed and it’s good to plan, even just the shopping. 

Clare ... hope your daughter is improving and pain is controlled. You’ve certainly got something to plan (once recovered) and to look forward to in August ... what a lovely thought and gesture.

Afternoon tea ... mmmm.... very nice. Not long to go ... op Wednesday I think !!?? Time is flying but it will be good to see you through it and recovering.

 

Im doing ok... much better mood than last week. Ribs much improved....twangs a bit when lying flat ... and I really should refrain from moving heavy furniture around. Keep getting a burning sensation in my hand... think it’s carpal tunnel syndrome. It’s a side effect of letrozole plus I already have mild nerve compression in that wrist from nerve conduction studies. I’m doing dedicated exercises as I don’t want it to progress. I had severe carpal tunnel syndrome in my other wrist which needed surgery...instant relief though. I think I set it off this time by over stretching my arm when doing cording massage..unless it’s a coincidence. OH off to see family later this month and I’m going over next month ... my first long haul flight for nearly one and a half years. 

Have a good night

xx

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi,  I want a party too... look what you've started Clare Smiley Wink   We all deserve a party I think... Michelle.. a summer party sounds fab.. probably be in my garden too but something to think about. 

Your poor little one Clare, makes my aches and pains fade into the distance just thinking about it.   No doubt she'll get lots of attention at school and make her feel special, I remember always wanting a go on crutches when I was little.. am sure I wouldn't once I had them though.  I always wanted to have a plastercast too... crazy child.

Had another restless night with the achy joints... tried to explain exactly how they feel to my OH this morning but he couldn't understand, its difficult to explain.  He did say that he wishes he could experience it for 10 minutes to fully understand... only 10 minutes mind!!   I think I need to sleep standing up as its so much better then... not sure that would work though Smiley LOL

Kip

xx

Member

Re: Surgery May 2018

Kip I’m pleased your healthy eating plan is going well, I really need to get into ‘the zone’ I didn’t put any weight on in chemo and was really pleased but after surgery it crept up and December the Cadbury’s Hero’s just got the better of me! I would like to lose a stone, I will keep trying!
Cdc your daughters Leige sounds painful. My daughter tore lots of her ligaments in her ankle a couple of years ago when doing hurdles in athletics training. I’ve never seen so much swelling, it’s horrible to see them in pain isn’t it? I hope she feels a bit better now, it’s good school are helping out too.
Afternoon tea sounds lovely and worth putting healthy eating on hold for! I’m pleased your party sounds doable, how nice of the hotel to say you can postpone if need be. I find now it’s little things like that that really mean something to me. I also think you should get excited about it! Start a list of who to invite! I’m getting excited for you, in fact it has made me think maybe I’d like a party in the summer although we’d probably just have it at home! But still something to look forward to!
Jean how are you doing? Hope all is well and the lists are serving their purpose! X
Member

Re: Surgery May 2018

Ah so pleased for your friend Kip and it’s also encouraging for me to hear. It’s a huge op so not surprised she’s on morphine but it sounds as though she’s doing well all th8mhs considered. Hope she recovers well. Haven’t had time to think of op today though as this morning was all about helping my daughter - think we’d totally underestimated how long she’ll be on crutches for and how much pain she’d be in poor thing. Thankfully school have been great and she managed to go in today with some help to get around from a ‘buddy’ and being given extra time to get anywhere. I had a lovely pm tho and was treated to afternoon tea by my dear friend who organised it for my birthday last November. Oh well it was worth the wait- healthy eating plan on hold for the moment!

Michelle I rang the venue just to test the water and it looks like our thank you and celebratory night away for everyone will be doable. Even have a possible date at the end of August. The lady I spoke to also said because of the situation if we had to cancel for any reason we could just rebook for another available date. I’m trying not to get too excited as my OH and I have other things to think about at the moment but hoping we can start organising things once I’m suitably recovered.
Xxx
Kip Community Champion
Community Champion

Re: Surgery May 2018

CDC - just wanted to tell you, just had a message from my friend, she had her tummy DIEP procedure yesterday and is sooo happy with the results already.... feeling bit tired and woozy from morphine and a little bit sore but otherwise she's fine and so happy to have a flat tummy and 2 boobies again!  

Kip

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Oh dear Clare, your poor girl, hope she's feeling ok today and not in too much pain.   Your party celebration sounds like a fabulous idea.  My OH and I have been invited to a wedding in York in February so decided to take up the offer and go for a couple of days (just the two of us), so found us a nice hotel and really looking forward to just spending some time away from everything.  

Going back to Michelle's post about what to say to people... I just bumped into a lady in our village, she's very nice etc but always comes up with a sheepish look and says "well how are you....is everything (long pause)...ok?   So I always say "oh yes everything fine" and then she goes merrily on her way.. when I really want to say "yes I feel ok, I ache from head to toe, have hot sweats that wake me up everynight and spend the good part of the day wondering will it come back"  but you don't say those things do you... you just smile, and let them go on their way.  Perhaps next time I will say it... just for the look on her face!   She also always says "love your hair bet your pleased its grown now"... also want to say "no not really much preferred being a mousy blonde with locks passed my shoulders instead of a grey Philip Schofield lookalike" but I don't.   Bless em!!!

Enough of my moaning.... its day 4 of my healthy eating plan and going ok, did some more hula hooping this morning, didn't help with the hot flush I had at the same time but hey ho.   Determined to shed some of this blubber and feel a bit fitter ready for the summer.. oh and have to squeeze into something suitable for a wedding in Feb... eek!!

Kip

xx

Member

Re: Surgery May 2018

Oh your poor daughter, luckily kids recover quickly from these things so hopefully she will soon be jumping around again! I’m sure ‘another’ hospital trip was just what you wanted, youbreally cant get enough of them at the moment can you Claire?!
I think the party sounds like a wonderful idea and really gives you something to plan for and focus on. We all certainly deserve to celebrate getting through all of this! X
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Re: Surgery May 2018

Thankfully the hotel rooms are surprisingly good value Michele! It’s still only an idea but would be good to celebrate!!

On a completely different matter- could have done without the 4 hour trip to A&E this evening with my daughter! She jumped off some equipment at playtime and landed badly then bashed her knee! No broken bones thank goodness but sprained each of the ligaments from her toes and ankle so is now strapped up and on crutches for the next couple of days as she can hardly walk!! I don’t think OH was relishing the idea of having two invalids to look after! Hopefully she’ll be feeling much better by the weekend x
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Re: Surgery May 2018

Wow CDC that sounds like quite the celebration! X
Member

Re: Surgery May 2018

Aagh Just Lost a long post but to précis- So sorry to hear the reaction or should that be non-reaction, of some of the people in your choir. I’ve been saddened by some peoples reactions too. Out of my ‘gang’ of 5 who have known each other since school only one has really kept in contact and I really enjoy meeting up with her. Another wrote ‘always here for you’ in a Christmas card and I had to laugh as I thought ‘No you’re b****y well not.’ Most recently one did message the group on Whatss Ap to say she knew last year hadn’t been a particularly good one for some of us (total understatement on my part) but hers had been great!!!! I’m just really trying to focus on those who do make an effort- I’m intending to throw a big bash when all the treatments over for the people who really have been there for me- OH and I want to hire out the entire hotel where we stayed recently so we can treat everyone to a meal, some dancing and a night away. When we finally got around to getting married in 2015 the only guests were his two older kids and our daughter so I’ve wanted to have a bit of a bash for a few years now - maybe we could combine anniversary celebrations/renewal of vows with a thank you party??!! 🥳 🎉 Good to have something to look forward to.

Sending hugs

PS your daughter’s essay must be an interesting read!!!
Member

Re: Surgery May 2018

Thanks Michelle.
Just messaged you.
Xx
Member

Re: Surgery May 2018

Glad your appointment went well, how fantastic that the top surgeon popped in to say hello! I’m not sure I would ever get excited about surgery but hopefully you won’t be too nervous.
Your previous post has been playing on my mind. I keep thinking how sad it is that no one from your daughters class acknowledged your situation. I had something similar with my choir. You may remember we did a fundraiser for the cancer centre I’ve been going to and I put a Facebook post on our site with a link to my JustGiving page which has ‘my story’ on it. The people I sit with already know but not one other member has said anything to me. They are mostly women and many quite mature is it really that people don’t know what to say? Are they embarrassed? Is it easier to ignore it? Maybe they think we don’t want to talk about it? I really don’t know. I do find it interesting what I have learnt about human nature over the last 10 months. I was talking to my youngest daughter last week about this and she told me in her RS A Level she wrote an essay on all people being narcissists!
On a more positive note lots of people have surprised me with their kindness and actually when someone is kind to me I appreciate it so much more.

Juliewulie I have just resent the pm, ignore the Christmas reference! X
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Re: Surgery May 2018

Hi Again I forgot to say appointment at Marsden went well and was very reassuring to meet my other surgeon and then the head of the whole department popped in to say hi- Ms Fiona McNeill- she’s considered one of the best breast surgeons best in the country! . Kind of her to come and talk to me though she won’t be doing the op herself. So hope the op goes well for your friend Kip. I’m hoping I can turn my nerves to excitement in the next couple of days!! Xx
Member

Re: Surgery May 2018

Hi Michelle
No I haven't received anything.
Xx
Member

Re: Surgery May 2018

Thanks Kip and CDC, it’s good to know I’m not alone in blurting it out and feeling foolish afterwards. It’s true there is a stigma attached, sometimes I feel like I have been ‘contaminated.’ We tend to only hear about the bad news stories but there are a lot of people walking around who have been ‘cured’ of cancer, we just don’t hear about them. I love the thought that we are breaking down barriers, warriors marching on!
Juliewulie, I sent you a pm before Christmas did you receive it? X
Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Michelle,  don't worry I've been there and done that too!   I think we probably all have.  I was in our local bakers with a headscarf on and could see the ladies looking at me (side glances you get the picture) and I just blurted out .." oh I've got BC" and whipped off my scarf to reveal a bald head.   Don't know why i did it, just had to do something, they didn't know what to say.. well one did. she then told me how her sister in law had died from it!! Cheered me up no end...Smiley Very Happy  I wouldn't worry, we never know whats going on in other peoples lives,  who knows he may know someone who has just been diagnosed and was thinking... "wow she's been there and look at her now"... there's no guide book of how do deal with all of this is there.

Glad you got the Karate Kid reference too... always makes me smile... just need to catch a fly with chopsticks now.

CDC - how are you?  Have you had the appt with the hosptial yet?  My friend is having her tummy diep right now... she was very excited last night!!

Kip

xx

Member

Re: Surgery May 2018

Hi Michelle

I did write a message to you  but it's disappeared! I also tried to PM you but also to no avail. By all means you can PM me. I seem to be having probs with computer so you may get this twice!!

Julie x

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Re: Surgery May 2018

I’m always telling people too Michelle. I understand the embarrassment issue- I’ve felt the same. Posted on my daughter’s Year Group about my upsoming op earlier this week and not a single person said anything (apart from those who know me in person) so I then felt very foolish. However, I’ve given myself a taking too - I firmly believe openness and honesty around taking about cancer can only be beneficial in the long run. I still believed there is a stigma about discussing the big C even though one in two people will sadly be diagnosed with some form in their lifetime. We are breaking down barriers!! Cxx
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Re: Surgery May 2018

Sorry me again! Re healthy eating I’ve recently bought a cook book called Bosh. I hate the title and it’s a vegan book which I’m not but I like to eat a lot of veggie food and there are some really tasty recipes in there. Just thought I’d mention it! X
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Re: Surgery May 2018

I just had to come on and talk to people who understand or maybe don’t maybe it’s just me! I’ve just completely embarrassed myself. I was out running in the park and went past a man who I often see and say good morning to. He asked me “new haircut?” To which I replied “yes long story but I had bc last year” I then said “I really just want it to grow because I feel I stand out” I don’t feel like I stand out I don’t know why I said that but realising that I ’d probably made him feel bad I followed with “all good now though” and then I jogged on. I feel such an idiot, why do I feel the need to tell absolutely everyone I have had bc? He is not the first random person I have told but he is the most embarrassing because I will see him again. I’m sure it was the last thing he wanted to hear out on his morning walk. ☺️
Good for you Kip starting your healthy eating/fitness regime. I am back exercising but am really struggling to eat less. I weigh the most I have done in 2 years but have lost 1lb in the last 7 days so I will persevere. I did laugh at your karate kid reference, I thought the same as soon as you said painting the wall!
Jean I do have another appointment booked with the counsellor next week, I think I will make that my last. Partly because I do feel mentally better than I was but also I see the trainee and I’m just not sure how good he is! I think I’ll do the moving forward course in Feb, although will have to miss a week because of the trek but the next one isn’t until April and I just feel ready for it. Do you keep in contact with any of the ladies you met there? Have you been out walking at all? It’s beautiful here today but a bit fresh! Lists definitely rule! I’m back writing lists too. I find it helps to motivate me to get things done and as both the girls are now back at uni the house is very quiet so I have to keep busy otherwise we know what happens, those worry gremlins creep in! Also I think when you are at home as opposed to work you have to be disciplined to get things done, so lists are a winner here! My favourite list is one I wrote on my phone last year and is nothing to do with housework it is of all the places I want to go on holiday and it feels good to start ticking them off!
CDC how did your appointment go with the surgeon go? The Facebook group you’ve found sounds very useful, it’s always good to hear of other people’s experiences isn’t it? Even though ours may be different it all helps with the preparation. I’m sure it will go well for you as they are so experienced at the Marsden.
Well I’m slightly over my embarrassing outburst of earlier, any advice gladly received perhaps I need to sew a zip on my mouth and padlock it!
Have a good day everyone xx
Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi everyone...

Good to hear everyone is starting to make inroads into the next stages of this journey, whether training for a trek, preparing for next surgery or making those lists... it all matters...its the next step forward!  I've started a healthy eating plan this week (well yesterday actually)... trying not to listen to the biscuit tin calling me.   I really need to shift this extra weight, can't be helping my achy joints.   I have been using the hopsital exercise DVD doing a couple of sections a day, its really quite good, very gentle and now I have my pilates ball I can do all the exercises.  Its basically just for shoulders, chest and neck, to loosen, stretch and release the tightness, but seems to help.   Some of the exercisees are similar to the ones I was given after surgery, like walking the finger tips up the wall but they have been pushed further by facing the wall with the pilates ball under your outstretched palm and then you roll the ball up so that it moves down your arm and you do this up and also out to the side at an angle and it really gives it another dimesion... sorry not explained very well but seems to help.  Lots of other little exercises to do which only take a few minutes at a time.  I have even managed to hula hoop and do some arm exercises at the same time!   One is called "painting the wall" and reminds me of the film Karate Kid (not sure any of you remember it)... where you extend your arm out in front and basically move it like you are painting up and down, flexing the hands... really helps my tight forearm! 
Feenix you were right I have my lyphomdeam appt on 18th Jan so still another 10 days, will be glad for an expert to take a look and tell we whats what.   Its still sore when I reach forward and I get a funny twanging feeling around my elbow, although I don't this its very swollen.   How are you doing?   Hows the ribs?

I also managed to get the same brand of Tamoxifen this month so will see if that helps sticking to the same one...so far its not too bad, just the aches (not sure if its that though) and hot sweats during the night but am sleeping pretty well I think, well not any worse than before anyway.

Hope everyone is getting back into the swing after xmas.

love

Kip

xx

Member

Re: Surgery May 2018

Thanks Clare. Sounds like you’ve found a good group to get info and support about Diep. I’m in the Flat friends closed group which I find really supportive, informative and I know Im not alone in my attitude. There was an interesting interview on woman’s hour today about mastectomy although I didn’t catch the beginning. I might have to catch up with it. I do hope you got as much info as you could at your appointment today and feel informed and confident with your team. 

Kip... hope you’re doing ok. You’ve still got a wait for your appointment with lymph nurse if I remember correctly. Hope work is going ok.

Michelle .. hope your training is going ok. How are you doing in general ... just came to mind you were having counselling. If you’ve continued with it I do hope it is helping. Keep on walking, running and anything else you can do to help as well.

Weather has been rubbish today so I’ve been rather lazy, apart from being round the shops.... I’ve done some ironing !!! 😂 .... Lists rule ok. Got myself a diary with a yearly planner and large enough (a5) to write my lists 😊 

xxx

 

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Re: Surgery May 2018

Belated birthday greetings Jean!  I think the lists and daily activities are a really good idea.  It has helped me to have a bit of a routine when I’ve felt low.  I’d love to get in to Tai Chi at some point too,  Sorry you’re side is still sore- I can imagine you must have to be extremely supple for some of the yoga moves on the DVD.  Not sure I could  have attempted some of the positions I’ve heard of even before surgery! 

 

Michelle fantastic you managed 7 miles and so glad you found someone to Chat with,  Its so wonderful that you’re raising money too.  

 

Linda- I spent a day in Cairo on a mini-cruise from Cyprus some years ago and absolutely loved it but we did have to have an armed guard at one point due to issues with security,  Have you had any other ideas of places to go?  I’m going to be looking for inspiration as I also intend. To have an amazing holiday once all the treatment is over.  

 

Kip how are you getting on?  Hope you’ve had a good weekend.

 

I came across a closed group for people on Facebook who have had or are going to have DIEP surgery.  I’m now feeling slightly less nervous having read their experiences. Also feel better informed about what to expect.  Hopefully my apppont,ent with the surgeon tomorrow will also help.

 

Sending best wishes to everyone sxx

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Re: Surgery May 2018

Linda .. my niece has just been to Egypt and loved it. I was there 1990 ... I’d always wanted to go. 

Michelle ..  I use the wii fit yoga as a warm up. My side isn’t 100% yet but the stretching helps... at the same time as making it more sore 😂. We were looking at some yoga dvds my OH got when he did some training in India ... I’d have to be uber flexible to do some of the moves. The follow on team here have various things on offer and there’s weekly yoga which I may consider. Pilates is supposed to be good too. Going to get back to tai chi at some point. My mood has improved but think I’m still on a low level at times hence I’m making to do lists on a daily basis and going to incorporate different activities eg. House stuff, me stuff, creative stuff, OH stuff etc. I may then be more focussed, motivated, productive and balanced. Sometimes I just can’t be bothered and I know it’s a mental thing. Maybe I’m in hibernation mode !! Sounds as though you’re doing good...getting out with your trekking group and doing 7 miles ... well done. Good to be able to chat about both your experiences with the lady trekker.

Kip .. hows the exercise dvd going ?

Clare ... hope your appointment goes ok tomorrow.

xx

Member

Re: Surgery May 2018

Well done Linda not long now! Egypt sounds exciting, I’ve bever been but would love to see the pyramids!
How is the wii fit going Jean? I’ve never done yoga but keep thinking I should sign up for a class, it is supposed to be great for improving flexibility which I could really do with! I hope the exercising has continued to lift your mood. I googled the wooden rower as I’d never heard of them and you’re right they do look great which solves the usual problem with exercise equipment of where to store it!
CDC good idea having a much deserved break away with your OH. I hope you feel refreshed from it.
We went for a walk this morning with our fellow trekkers. We haven’t met any of them before although coincidently I knew one couple as their daughter and mine were in school together. Generally I think the group are fundraisers rather than people who have been through cancer however I did chat to one lady who confided in me that she’d had BC a year ago. She was quite surprised when I said me too! It was really nice sharing our stories. We walked 7 miles and it wasn’t particularly hilly but I do feel tired now. I really need to work on my stamina but an easy afternoon today I think! I hope everyone is enjoying the weekend xx
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Re: Surgery May 2018

CDC 12 down 8 to go! Not sure where we will go yet. Was thinking of Hurghada Egypt but there was a bomb at the pyramids although not been to the pyramids but did think about going to the pyramids this time. We are thinking about a night away to celebrate the end of treatment first. Am thinking about you!

I mentioned I was thinking about an op in May on my other boob last week at my rad's review and they said to ask re a mammogram in October a year after my op as you have to leave it a while after surgery. I last had a mammogram in March on my good boob so that will be a year and 7 months from diagnosis. The surgeon said he would see me in April which is actually my wedding anniversary to discuss the op for symmetry as am lopsided at the mo.

x

Kip Community Champion
Community Champion

Re: Surgery May 2018

Ooh they sound interesting feenix
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Re: Surgery May 2018

Thanks ladies.

Hope that Pilates ball does the trick Kip. Await your feedback.....

Ive been out for a walk this morning ... this afternoon will be wii fit. OH would like a rowing machine ... where to put it though. I’ve seen some wood ones online, which use water for the resistance. A bit expensive but stored upright and look like a contemporary piece of furniture. 

Hope you all have a good day.

xx

Community Champion

Re: Surgery May 2018

Feenix

 

Belated happy birthday wishes for yesterday

 

 

Helena xxx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Yes hope you had a wonderful birthday Feenix 🎂. Glad to read you are getting the list writing going again... And starting to feel less tired and getting the ribs sorted. I have a small pilates ball coming today as lots of the exercises on my dvd use one to assist with movement... Watch this space I'll report on its helpfullness
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Re: Surgery May 2018

Happy Birthday for yesterday Jean! 🎉🍰 Sending a big birthday hug and birthday wishes for a healthy future xx
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Re: Surgery May 2018

Hi Ladies

Kip ... being back to a work routine must be satisfying. I’ve yet to get a diary for this year but still have last years planner ... it certainly tells a story. Hope you’re ploughing your way through the chocolate at a steady pace. Your exercise dvd sounds really good and I hope you get back to swimming...I just keep on thinking about it.  I’ve got some exercise bands but haven’t used them much although physio said they would be good for stretching. I may try a 5 week exercise prog through nhs site .. picked it up looking through Becca app. It’s on the same site as the couch to 5k. I’ll have to wait until my ribs are pain free and by that time I’ll probably have forgotten all about it 😂 . Hope your chemo se’s keep on improving... Michelle and Clare also. 

 

Clare ... I was super anxious before my last op but more about decision making. I really didn’t want a mx as I’d got used to my ever shrinking boob, and it was ‘another surgery’.   It’s natural to be anxious before major surgery, or any surgery. It’s the mental preparation, knowing there’s going to be a ‘change’ which will need to be embraced and a recovery period to get through. Although the length of your surgery must be daunting there are so many women who have gone through Diep and been ok .. that is so positive... keep that in mind. Your team will be very experienced doing Diep’s... they will reassure you on Monday and answer your questions. How are your pre op preparations going?  Sounds good to have a couple of days away with your OH. 

 

Michelle ...  my goodness .. next month is your trek !! I have to take my hat off to you...I can only get up to walking pace. Mind you I’ve never been a runner. And you’ve signed up for more !!! They’ll keep you going. Keep on believing your own hype but take it easy if/when you have an off day ... go with the flow. My birthday was yesterday..chill out day. I never feel I have to do ‘anything or something’ and there’s so many other days in the year to chose from...warmer days 😂 Today is the day to start off on the right foot for me... definitely into lists again and will get a 2019 diary/ planner tomorrow. Gosh...I was doing that this time last year and it all went out of the window .. hey ho. Hope you get some good 💤

 

Jane .. pleased you are doing so good.... getting near to ringing that bell 🔔 🔔 🔔 

 

 

Ive felt very tired and grumpy the past few days. Decided to take myself in hand .... started doing half hour wii fit today .. the yoga part was good for stretching.. and I have had a walk. My ribs are twanging but I need to keep on going. My mood has improved today probably because I don’t feel so cream crackered and I haven’t nodded off ... results. Hoping I can keep motivated.

Deciding whether to do long haul flight this month or next ... 🤔 

I was told having an Epsom salt soak is good for crampy legs !?

Its been really chilly today. Hoping it’s going to be a bit ‘warmer’ tomorrow.

xx

 

 

 

Member

Re: Surgery May 2018

You both talking about neuropathy has made me think, yesterday my feet were really sore to walk on. I had been for a run but only a short one. I’ve been lucky I haven’t had many chemo related SE’s but do have a bit of neuropathy in my feet. Do you know if it is aggravated by exercise or helped? I know exercise helps most things but I’m wondering if the pounding of running might make it worse? I really hope not, I’m loving being back running. I guess I’ll have to just see how it goes. Chemo really is the gift that keep on giving! X
Kip Community Champion
Community Champion

Re: Surgery May 2018

CDC - thats really interesting because I find if I haven't done too much walking my legs, feet and knees don't suffer at nighttimes as much.. but otherwise they are so restless and achey, my feet sometimes feel like I've walked 40,0000 steps and I haven't done a single one.. perhaps it is neuropathy from the chemo... whatever it is I hope it slings its hook soon!!  

Kip

xx

Member

Re: Surgery May 2018

Hi everyone

Kip I get the restless feeling in my feet some nights- it’s definitely neuropathy related in my case. I’ve been referred to the pain specialist at the Marsden so it will be interesting to hear any suggestions. I find if I keep off my feet for a couple of days then I can walk pretty normally for the next day or two . I think I’m just going to have to plan my days carefully if I know there will be a lot of walking involved. Still hoping that over time the sensation will comeback properly.

Janie, I’m glad your transition back to work is going well. Only a few more days and you’ll have finished your rads! Great news.

Michelle it’s brilliant you’re getting on with your training. Thanks for your reassuring words with regards to surgery. I'm feeling somewhat calmer today and talking to the surgeon on Monday should also help.

Hi Linda not too long to go now. Hope you’re enjoying planning a holiday. Any ideas where you’d like to go!

How are you doing Jean? Have you managed any more walks? It’s a glorious day here and I managed a little walk around the grounds of the hotel where my OH and I spent the last 2 nights.

Hugs to everyone xxx
Kip Community Champion
Community Champion

Re: Surgery May 2018

Yes tick of the days Jane, soon be ringing loud and proud!

Member

Re: Surgery May 2018

Hi  Michelle and Kip

Thank you for your good wishes. Tenth radiotherapy today so two thirds done! I am counting down the days to that bell!

Jane xxx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Wow Jane.. thats great that the nurse will come to your work for you... wonderful!   Glad to hear you are fairing well too, its good to be back at work isn't it.  After I finished my Rads (19th Dec) I haven't really found I have been too tired, not got sore either although I do have a couple of red patches but they don't hurt.

Michelle - glad the Tamoxifen is suiting you fairly well.  Those sweats are awful though aren't they.  I'm not convinced its the Tamox only causing my aches as it seems to be a SE of the docetaxol chemo for some people too.  Perhaps its a bit of both.  Last night I had restless right leg all night long and achy feet.. perhaps its some sort of neuropathy thing.. who knows.. just hope it passes.  I have been looking up swimming timetables to see if I can get myself motivated to go swimming, thinkign I need to stretch all these muscles.  After my work out yesterday with the DVD I am a bit stiff today, so still stretching.

Kip

x

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Re: Surgery May 2018

Your DVD sounds good Kip, I think I have quite good movement and flexibility inmy arm until I stretch it above my head, it really feels quite stiff then. I should make more of an effort to stretch it.
I seem fine on Tamoxifen too, no aches just lots of hot flushes.
Jane it sounds like you are doing well, I’m impressed your nurse will come to your work to give your herceptin, that must be really handy for you sonyou can keep working. I hope the remainder of your rads go well.
Mum and dad went home today, lovely to see them but good to have our home back! Hoping to get back in to a routine at last xx
Member

Re: Surgery May 2018

Hi Feenix,

I am doing well, thank you! I have just had nine of my fifteen radiotherapy sessions. No ill effects still. I had tried to bring it forward as I wanted to be finished by the time I went back to work today. However, it was not too bad having the sessions over the Christmas period. We had the children home from Uni and family down, so I had plenty of offers of lifts, and we combined it with a nice coffee after!

Work was so good today. I was absolutely thrilled to get back to it. I have been off from 26th June. I am doing mornings only til the radiotherapy has finished ( 10th January)The radiotherapy nurse told me the tiredness may kick in about nine days after my last radiotherapy. I hope not! I am away for a friend's 50th, then the following week I will be back to work full-time.

I will be having three weekly Herceptin injections til June but they are happy to come into work to do that, then sit in the waiting room for two hours to make sure there are no side effects. ( I am a dentist).

Best wishes to all of you

Jane xx

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning all, well back at the desk and getting on with work.   Funny how you soon get back into the stride.

CDC - I can well imagine the worries are creeping in for your operation but you'll get there and this is the final piece of the jigsaw and you can heal up and move forward knowing you've done all you can.  Good to hear you have the weight gain for you operation too, I have plenty around my hips, tummy, bottom well everywhere really and am going to try to take that into control now the new year is here... although I still have a shed load of chocolate to get through too.

Fab you are getting on well with Tamoxifen too, just the knees.  It will be intersting to see if it improves when you are off them for a couple of weeks.. let me know.  My stiff limbs are still a nuisance but slightly less so now, just the lower back which aches (see below for possible reason though) and I get the sweating during the night.

I finally got to watch and participate in the Breast Exercise DVD given to me by my hospital.  Its really quite good, it was made by Ipswich Hospital Macmillan unit and is aimed at getting movement and flexibiiity back.   I did most of it today, its very slow to begin with and you build up as you go but had some great exercises that really feel like they will get my arms and shoulders moving.  Made me realise that my hip and back pain is probably down to posture as they point out that once you have had breast surgery you naturally arch forward to protect that area and you shoulders dip and hunch causing stiffness.  I need to work on the video and to buy a small pilates ball as some exercises use those.  SOme use the resistance bands and that seems like a good thing too.  

Michelle - I like your thinking that if you say your fine enough you may just believe it.. Im trying that too, not always successfully and I too spend times awake with wandering mind.  I would love a whole nights sleep for once, but hot sweats and aches don't allow that any more.  But mustn't moan as on the whole I sleep ok.

Kip

xx

Member

Re: Surgery May 2018

I was also diagnosed in March, what a horrible time that was. I still find it difficult to think back to, the feelings are still very raw. However this is a new year, onwards and upwards with lots of up hopefully!
Writing diaries, calendars and planning ahead things we really want to do seems to be a theme. The saying dont’t put off till tomorrow what you can do today really chimes with me now! Just do it! I’ve set myself a few challenges for next year, you already know of the trek I’m doing in February but I have also signed up to 4 10k’s and 2 half marathons! Training started yesterday with a beautiful 5k along the seafront. I’ve also put on lbs so hopefully getting back to running will help with that aswell as giving me the feel good factor.
Claire I was terrified before my surgery but I think the apprehension is worse than the reality. Sending lots of positive vibes to you, after surgery you are closer to the end of this horrible process.
Thanks for your kind words Jean. We did have a good time for my mums birthday, are you a Capricorn too? When is your birthday and do you have something nice planned?
I know my mum will go home feeling like she has her daughter back and I am definitely in a much better place now however I do feel I have made a decision to project that I am back to ‘normal’ when in reality there are still so many worries. Perhaps if I carry on like this I will believe my own hype!! 😂
I used to be such a great sleeper but now find if I am often lying awake in the early hours. Not always worrying but just going over stuff in my head.
Kip good luck with work, I think getting back into some sort of routine can do wonders.
Have a good day all xx

Member

Re: Surgery May 2018

Jean I hope you’re not feeling as sore. Good you got out for a walk but definitely agree going with the flow is the right way to approach things. I was so down a couple of days ago but realised it was my body’s way of saying ‘’enough’s enough. You need to rest’. It’s been lovely catching up with my family over Christmas but it’s akso been exhausting. Not sleeping properly either which doesn’t help. On a positive note, apart from my dodgy knees and some hot flushes, I seem to be doing ok on the tamoxifen. I will be interested to see if the joint pain lessens over the next couple of weeks as I have to stop taking it before my op.

Take care everyone. Sending hugs to you all 🤗🤗🤗xxx
Member

Re: Surgery May 2018

Hello all you lovely ladies and here is hoping to many, many more ups this year. It was March last year when I had my fateful shower and felt the thickening which heralded the start of a tumultuous year. I’m sorry I’ve been a bit quiet but been struggling with my emotions. I didn’t feel nervous before my last two ops but there is just something so final about a mastectomy- However, you all give me hope and in many ways ‘final’ is good. Hopefully I’ll feel more relaxed knowing I’ve ensured my chances of getting BC again are minimal. Thank you so much for your honesty and openness in sharing your experiences.

Linda, so good to hear you’ll hopefully be finishing treatment very soon. Fingers crossed you’ll soon be holidaying in the sun! We all deserve a b***dy good holiday this year!!

Kip hope your return to work goes smoothly. You’ll have to share any weight loss tips- I’ve put on a stone over the holidays so my plastic surgeon will be happy I definitely have enough tummy for two reconstructions now!!!! Only trouble the weight has also gone too my hips. I’ll be a complete pear by the end of treatment. 🍐
Kip Community Champion
Community Champion

Re: Surgery May 2018

Just put up the new calendar and had a flick back through the 2018 one.... Full of horrendous reminders... Especially the one back in March... I'd marked it as `shopping' so that the children didn't know anything.. Seems a different lifetime and I guess it was... Oh well no looking backwards got to look to the futures.
Back to work tomorrow and time to shed this weight... Still go a shed load of chocolate though 😒
Member

Re: Surgery May 2018

Pleased you’re getting to the end of your hospital treatment Linda. I started out in March also. Have found the support to be exceptional. Enjoy your break away in the sun ...all the best for 2019.

xx

Member

Re: Surgery May 2018

I second the rollercoaster year. Good riddens. Thanks to all for helping me through from March until now. Hopefully my treatment will end on 16th January. I am hoping to go away to get some sun soon. Happy new year.xx

Member

Re: Surgery May 2018

Kip ... I’ve got everything crossed for more ups. 

Jane ...  how are you doing? I think you’re having radiotherapy?  2018 was certainly a rollercoaster, physically as well as psychologically. Wishing you all the best for 2019.

 

I put my good foot forward this morning and got out for a walk ... I know I need to do more, help my endorphins and increase my feel good factor. I’m making a list already, looking at things I need to do, things I’d like to do/try but nothing is ‘resolute’ as I know being flexible is the key ... go with the flow. 

 

I think about the ladies who are just being diagnosed, having to make difficult decisions, going through treatment and know that there is always support on here.

 

hugs xx

Member

Re: Surgery May 2018

Happy New Year, Kip, and all you lovely ladies. You have shared my highs, when I have had good path reports, and my lows, like my trauma over my mastectomy, and have got me through this. I have never met any of you, but our shared experiences make me feel like you are friends! I wish you all well. Jane xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi all, just wanted to wish you all a Happy New Year!!  Heres to a muxh better 2019 for us all.  I would also like to say a big thanks to uou all foe being there feom the early dsys, through surgery, chemo and every up and down... You are all truly amazing...  

Fingers crossed for more ups than downs this year

kip