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Surgery May 2018

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning everyone!

CDC - lovely to hear from you and to see you got through the daft forum this time.  At least the robot thingy has been disabled for a while.. thats good news.   Glad to hear you are getting on well and feeling much better than last week.   Also impressed you are not aching so much.. what brand of Tamox are you on?   I was on Teva but this month I have had to have Wockhardt as they couldn't get hold of Teva as there is a shortage?   Not sure if the aches are any worse but definately not better.   Although as I have this stiff butt issue that could be unrelated to Tamox anyway and just an injury I have picked up.   The other joint issues I think are due to the Tamox/menopause though... the hot flushes still persist.. as Shi said.. the duvet hokey cokey is in full flow!

I also received my initial 8 week run-in aspirin tablets this morning... so have taken the first one for the trial.  8 weeks of 100mg a day until they know I can tolerate it and then I get to go on the trial properly.   Just another tablet to remember to take.. I'll need one of those dosset boxes soon.

Feenix - how are you feeling now?  

Kip

x

Member

Re: Surgery May 2018

Kip... the trouble with baking is that you’ve got to eat them while fresh 😈 Enjoy your special wine tonight ❣ I’m a walking advert for vicks vapour rub at the minute. The most exciting thing I’ll be doing today is a lovely steam inhalation 😂 

Reddi ... hope you manage your baking although you do have a busy schedule.

Clare ... pleased things are going well, and you feel really good.  🤞 your inflammatory markers are coming down. Keep massaging. Good luck for your appointment on Monday...hope your decision is made easy for you.

 

I think another warm drink beckons... no biscuits in the house ... maybe that’s a good thing.

Lovely and sunny 🌞 

Member

Re: Surgery May 2018

Giving this another go.  No robot issues today- hurrah!

 

Kip All this talk of baking is making me so hungry! 

 

Jean, hope you are feeling brighter today,  I was laid low all last week so I sympathise.  Hope you’re fully recovered in time for your travels.

 

Reddi, hope the rads continue to go well and your Zoladex injection is not painful.  Definitely worth getting the lipoma checked and hope all is ok.  

 

Wonder how Michelle is getting on?

 

I had a follow up with my Plastic surgeon yesterday,  He’s very happy with how I’m healing.  I now have to do very firm massage, including pinching along the scar to prevent scar tissue forming,  

He did give me more antibiotics and order more blood tests as my inflammation markers, indicative of infection, were very high -127 when my GP tested them last Thursday.  Sure they’ll be fine as I feel great now. Also don’t seem to be having the aches I had now I’ve changed to a different brand of tamoxifen,  I have a meeting to discuss whether to go ahead with radiotherapy on Monday,  My Mum, OH and friend who has had BC all think I should go for it even if they say the benefit will be minimal.  Will see what the specialist says before I decide.

 

Going to press ‘Post’ - 🤞🤞🤞

 

Hugs to everyone 

 

Clare xx

 

 

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Feenix,

Sorry to hear you're under the weather, but like you said better this week than next.. hopefully you'll be back to normal and ready for your trip.   As for hooping,  I have been doing it for about 3 years so well practised, just have to pop on some music and dance away.   Isn't helping shift the pounds though.. that could be the viennese fingers I baked yesterday and then finished the chocolate too!  Oh dear, I must take control... hubby bought me a bottle of my favourite red wine for Valentines.. funnily enough its called "Cupcake"... what else?  So will be quaffing a bit of that tonight so that won't help either.. oh well only Valentines once a year I guess.

 

Kip

x

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning!

Reddi - did you get your baking done?  Sounded delicious!  I may bake some more orange and choc muffins... they were scrummy!

 

Just wondering... is it me or has the "I am a robot" thingy disappeared?  I've posted three times now and not had to do it?   Hooray if it has... but whats coming next?

Kip

x

Member

Re: Surgery May 2018

Hello, all! Rads are going well so far -- only day 5 of 20, and just a tad tender. 👍🏼 Got 2.5 miles of walking in this morning, and trying to plan a bit of exercise this afternoon to help move off my post-chemo, post-Christmas pounds. Though still planning on baking some @Feenix & @Kip-inspired pumpkin bread (forgot to buy eggs yesterday).

 

GP this Friday for my first Zoladex injection out of hospital and I've got a tidy little list for him -- including getting a lipoma on my thigh biopsied (something I'd asked for 3 years ago but which got lost in paperwork and other priorities). Just want to be sure it's benign.

 

@Kip: Hurrah for good bloods. Go, Add-Aspirin!

 

Hoping @cdc that you are able to overcome the captcha etc. demons to share an update -- and hoping, too, that you're doing well.

Member

Re: Surgery May 2018

Kip...pleased your bloods are all ok. Really good you’re still hooping... don’t know how you do 10 minutes off the trot. I can only do a minute max before I have to pick hoop up off the floor. After a great start to the week, I was so pleased I got through yoga, I’m now virally with cough and feeling rather rubbish. Good job it’s this week, not next... phew. 

I wonder how Michelle is getting on....hope she’s enjoying trekking.

Clare ... how are you doing?

Reddi ... hope rads going ok.

 

everyone have a good day

xx

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Holeinone... oh yes chemo brain.. thats a nightmare isn't it.   No wonder you didn't take it all in... I still had to come away and research and read up again.   I'm just waiting for the aspirin to come in the post and then I can start.  Let me know if you opt in.  Perhaps I'll need to do some revision for the next brain test in a year's time!!  

Kip

xx

 

Member

Re: Surgery May 2018

Thank you for that information Kip.

 

I still have chemo brain so my brain function results might be iffy! I'm changing my mind back around to going on the trial so I may be a fellow guinea pig!

 

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Phew phone call from. Hospital... Bone liver and kidney blood tests all OK... Relief .. Nowcan start the trial... 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning Everyone..

HoleinOne... welcome!   I signed up for the Add Aspirin Trial yesterday.  I was approached towards the end of my radiotherapy and was told I could take part and that they would contact me after Christmas.  They actually didn't so I chased them up last week and lucky I did as the closing date was supposed to be end of Jan but they have squeezed me in.  This could just the closing date for Ipswich so don't panic.   Anyway, the sign up was quite straight forward, form filling and general questions about past health.   Then I had to undertake a short memory test.. similar to the test for dementia I think.  You don't have to take part they are just interested in measuring brain function over time with aspirin.  It was quite easy, she read a list of words, you repeat them, then you have to repeat some numbers, then say them backwards, name 11 things beginning with F, a few math style simple questions, what day of the week is it etc.  Then got weighed and height measured and then had a blood test (liver, kidney and bone function).   I'm waiting on the results of the tests today and then should be good to go.  You initially get put on an 8 week tester trial, so you get given 100mg of aspirin every day for 8 weeks to see if you can (a) tolerate it and (b) remember to take it.   Once the 8 weeks are up you see the hospital and they you are entered into the trial proper.  The computer generates whether you get placebo, 100mg or 300mg of aspirin. You can come off the trial at any time you want.  Here's a link to the information they gave me.   www.addaspirintrial.org. 

I ummed and arrged about it for a while but as Reddi said below, whats to lose?   You get extra monitoring throughout the year too, I think they like to do a blood test every 3 months for the first year.. can't quite remember.  Hope that helps.

Feenix - well done with the Yoga, I still haven't been yet.  Just walking is tiring at the moment.   did hoop this morning though.

CDC - hope you get onto the forum again... I log in before I post and then just click the Im not a robot box before posting.   Usually I am on a pc though, although I do use my phone app too?

Reddi - thats for the pep talk... yeah feeling ok about the trial.. just waiting for a phone call to say the bloods were ok. always panic when they have something to check.. .poor old veins were not happy about giving blood either.  As I only have the one arm to choose from it didn't help.  The chemo has certainly affected the veins in the good arm.  Luckily they had an ace nurse on the ward so she got it ok.  You do have to be on the ball though, she must have asked twice if she could try the other arm and so did the initial nurse (even though they both work in oncology!!).  

Kip

xx

Member

Re: Surgery May 2018

Morning

Ive not found the new site problematic Kip. Seems ok on an iPad. I don’t mind things changing...it’s always interesting trying new stuff out ... like getting a new gadget. As long as I can meet the robot challenge I’m ok 🙂 I don’t know why but I expected the trial to be over a year or two...duh. 5 years seems to be the minimum for anything bc related on the trial front. I did my first yoga session yesterday. Really good. Pleased I could do it although next week might be a different story 😂.  I certainly knew I’d done a workout !!! Must remember to eat something light an hour before so I have a bit of energy in reserve. I’m back to the shops today looking for a reasonably sized cross body bag. I need to get one soon 😟 

Reddi ... ‘Tis the season for sharing viruses.... hope it doesn’t develop into a full blown event 😷 🤧 🥵 ... hope your OH is doing ok. 👍 for today’s rad session.

Clare .. you’re not having much luck posting replies. As Reddi says I log on before posting. Sometimes I can’t tell what’s in the robot checking boxes so I have been rejected on a couple of occasions 😂

xxx

 

Member

Re: Surgery May 2018

@cdc I find that I have to log in before typing -- even if it seems I am already logged in, since the time-out function inevitably boots me and the not-robot thing won't override that. Mostly, though, I have given up on posting via mobile and copy my post to Word before attempting to post via computer. Ridiculous given the vendor was supposed to deliver a mobile friendly site!

Member

Re: Surgery May 2018

Hi ladies

 

I'm from November chemo thread and daisydi pointed me here as I have been asked to go on Add Aspirin trial as I had my latest chemo, I just started a thread about it elsewhere for feedback and advice. 

 

I was in a bit of chemo fog when the nurse was explaining it to me and must admit I'm having second thoughts, if anyone has any info or first hand experience, I'd be happy to hear it.

 

Thank you

Member

Re: Surgery May 2018

Aagh another of my posts has disappeared!  I confirmed yet again that I am not a robot.  What is going on!

 

 

Member

Re: Surgery May 2018

@Kip I'm so glad you got yourself in to Add-Aspirin! One thing to keep in mind about the trial -- if the evidence is clearly and hugely supportive for adding aspirin, I believe they'll publish and switch all placebo participants to the protocol asap. And if you're assigned placebo, you'll be doing the same thing you'd be doing anyway, since you don't take aspirin regularly, right? So it feels like a win-win to me, since the aspirin dose is pretty low (low chance of SEs) and I suspect you will indeed get extra monitoring. But do ask about what side effects you might get, and how to report them. 💊🏆

 

@Feenix Your baking is an inspiration. 🧁 I keep meaning to make pumpkin bread, but been too busy with work projects. Maybe tomorrow evening it will finally happen.

 

Day 3 of radiotherapy done; just 17 to go! 😎😎😎 No SEs yet, but I'm not expecting any until late this week or early next. As I mentioned elsewhere (and @Feenix saw), I do expect some burning based on my intro session -- I use 50+ SPF sunblock whenever I'm out in the sun (not just chemo!), because I burn very easily, and the radiographers said those who burn easily seem more likely to get burns. We'll see. I've got the diprobase they supplied as well as aloe vera gel and Udderly; I'm airing out as much as I can given the chilly weather; and I'm drinking lots of water to help with fatige. Only worry now is that my OH has developed a bad chest/head cold, and I have now got the sore throat he started with. We'll see how well RT goes if I'm hacking and sneezing like he is. 🤧 Especially as the end of this week will be busy -- Thursday: RT + Herceptin injection + Zometa (bisphosphonate) infusion; Friday: Zoladex (ovaries) injection + RT + starting AIs (exemestane).

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Feenix,   oh dear the scales... I've avoided mine this week.. lemon drizzle is a naughty thing!   I had forgotten SallyG said she was leaving..shame, but she may come back now its sorted itself... I think I've got used to the new forum site, keep forgetting to click that I'm not a robot though!  

Aspirin trial is for 5 years I believe, either placebo, 100mg or 200mg.   I've not really ever taken aspirin so not sure what to expect.   You have a low dose for 8 weeks to begin and then they check you can (a) tolerate it and (b) remember to take it every day and then you get ramondly picked by a computer as to what you get.   I think I have some extra blood tests during the year and maybe and extra mammogram.. will find out for sure later.

Sun out here too but have electrician in and have had no power so couldn't do the washing.. or any baking thankfully!

kip

x

Member

Re: Surgery May 2018

Morning Kip

It was a big mistake baking... shouldn’t have stepped on the scales this morning...yikes. Anyway I’ve got over a week to repair some of the damage before I fly... don’t want to literally roll off the plane 😂 

Well done for doing the aspirin trial.... how long are you on it? The only time I take aspirin is when I fly. I’ve been lucky to get the same brand of letrozole after the first month of starting it. 

Sally G said she was leaving the site... that was when it changed recently. I’ve come across her elsewhere so hopefully she is doing ok. I do hope she’s getting sorted with everything. Perhaps she’ll pop back on at some point as it would be good to know she’s doing well. 

Hopefully Michelle is enjoying her trekking adventure.

Clare ... hope you’re on the mend.

Hope everyone else is having a good day.

Lovely and sunny here...washing in...cuppa made ... no scones etc but fruit is beckoning 😇 

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning all,

Cheese scones AND rock cakes.. ooh Feenix you devil!    and Michelle must be well away now... sounds like a crazy last few hours before departing but isn't it always.

CDC - hope you are feeling ok.

KTK - how you doing?

SallyG - whats up?

Georgie Gee - are you feeling any better now, haven't heard from you in a while.

Everyone a bit quiet at the moment... taking that to mean everyone is moving on and getting back into life... excellent!

Im still stiff as a board, started taking glucosamine and chondrin on Friday so will see if that helps, also had to switch brands of Tamoxifen on Friday too as they can't get the one I usually have, so will monitor that too.  I'm off to hospital this afternoon to sign up for the Add Aspirin trial. I nearly missed out as they forgot to ring me after Christmas and you needed to be signed up before end of Jan.. but they called the trial people and they agreed i could participate as long as I signed up before 12 Feb... eek just got in... still feeling a bit unsure.. just scared they'll discover its the new wonder drug for preventing reoccurence and I will have been on the placebo.. but its the only way these things get discovered isn't it.. so hopefully I can help future ladies/men with this horrible thing!

Kip

x

Member

Re: Surgery May 2018

Kip ... I’ve made cheese scones and rock cakes... probably not good as I’ll have to do lots more exercise to work off the calories.

Michelle ... definitely sounds a stressful morning. Hope your flight is good. I’ve got a week and a bit to go before I set off ... yes I’ll be online while away.

Xx

Member

Re: Surgery May 2018

Sorry forgot to say Reddi I hope your OH is healing ok and that rads go well for you xx

Member

Re: Surgery May 2018

So sorry to hear you have an infection Claire, as if you haven’t been through enough. I hope it gets sorted soon and you feel better. 

Kip, lemon drizzle and chocolate orange muffins, what are you doing to me?!!! They sound delicious. 

Jean I hope you packing runs more smoothly than ours and that you have a lovely trip with you OH and family. Will you be able to get online at all whilst away? If not speak when you get back.

We are en route to the airport after a stressful morning, realised our cases were too small and forgot to drop cat at cattery! Will be glad to get to the airport and check in, I can relax then! 

Thanks to you all for your good wishes, speak in a week xx 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Good luck Michelle xxx

Cdc... Sorry to hear you're feeling blurgh... Hope it gets better soon.. X  Sending virtual cake... 🍰🍰🍰

Feenix.... Did u make the scones

Reddi... Hi there hope hubbys ok

Member

Re: Surgery May 2018

Clare ....good to hear from you .... hope you feel less grotty really soon. 

Kip ... I didn’t get the scones made yesterday but today will be the day...I can smell them as I type 😂 

Michelle ... today is the day ... safe travels ... enjoy 😊 ✈️ 🏔 🚶‍♀️ 

Reddi ... congrats on getting your project shipped.  Try cling film on the plaster cast !!! 🤔 😂 

 

xx

 

 

 

Member

Re: Surgery May 2018

I’ve been laid low with an infection and my previous posts have disappeared so I’m going to have to keep this short but I really wanted to wish you safe travels Michelle and good luck with the trek. 

 

I hope your OH is not in too much pain Reddi.   Sounds like a particularly nasty fracture,

 

Kip I could really do with some of your lovely cakes- just been feeling so rotten.  I need some comfort food.

 

Jean,  hope your travel preparations are going well.  Hope you and your OH have a lovely reunion. 

 

Hugs to everyone.

 

C xxx

Member

Re: Surgery May 2018

This will be my third attempt at replying to everyone!  My other posts seem to have disappeared into the ether.  Hoping this works! 

Member

Re: Surgery May 2018

@Michelle21 Swift errands and safe travels. (I hope the winds of Erik don't cause any delays.) As others have already said, I suspect it will be an emotional and immensely rewarding journey (and trek) -- and I hope there is as much joy and wonder and pride and happy exhaustion as everything else you'll experience on the way. I can't wait to hear about it when you're back. ☸️💜  xoxo 

 

Everybody else - stay dry and warm and sheltered! Though I really, really want to get out for a walk or two this weekend, after all of last weekend was spent working on a deadline (project shipped late last night, hurrah!) or OH's A&E visit. Trying to figure out how we can cover his cast so it doesn't get too, too wet. 🌧️🌬️ Erik is a blighter. 🌧️🌬️ 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Feenix,

Cheese scones... another of my favourites...now I fancy one of those.. ooh dripping in butter.....Smiley Very Happy

Its pretty miserable here, grey and damp and looking fairly windy.   Hope you find your bag,  sounds like the type I'm looking for.  I got a lovely designer one in a charity shop a while back but its the type you have to put over your arm and its soooo annoying, I like to be hands free!

Take care.. and good will power on the 1 square of chocolate... I only manage 1 bar!

Kip

x

Member

Re: Surgery May 2018

Burning bras Kip ... very retro .... but significant. Id thrown my old ones out just before diagnosis as I planned a clean sweep... luckily I’d not bought a whole bunch of new ones. My travel bag is half packed but I’ve most things at hand to finish it off. I just need a light roomy cross body travel handbag as I threw my old one out. That’s my mission this weekend around the local shops.

The lemon drizzle cake and the chocolate orange muffins .... mmmm. I’m doing cheese scones today. I’ve not bought any biscuits for a while and I’ve stuck to a square or 2 of dark chocolate a day. 

Ill be interested in what you think about the Hope course as I’m considering whether I should do it.

I do hope the physio works.

Very windy here with some rain .. hoping it’s not too bad this afternoon so I can get out for a walk.

 

hope you’re all doing ok

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi ladies, 

Michelle,  sounds like you've had quite a day,  the trying on of bras would be a difficult one for all of us..  I still can't bring myself to throw out my old bras from pre mx.  They sit under my bed as a reminder of the old me and reduce me to tears to see them but I can't part with them.  I think I should have a ceremonial burning of the bras! At least you found some nice ones.  I think you will find your trek hugely emotional but hopefully a great way to mark the end of this roller coaster.  It's amaziing and you'll be very proud of yourself and so will we!!  Hope you get your packing done in time..

Jean,  great you are packed and ready to go... Must be exciting.  I made the mistake of baking lemon drizzle cake and choc orange muffins today and now can't resist. I also got my start date for Hope course so looking forward to that.  And physio booked too, hope they sort me out.

Hope everyone else is ok

Kip

Member

Re: Surgery May 2018

Well done on getting 3 bras Michelle. Yikes... that’s leaving your packing last minute but you’ve obviously got everything ready anyway. I’m laughing at myself packing my hand luggage bag already and I’ve got a couple of weeks to go 😂 

xx

Member

Re: Surgery May 2018

Thanks Jean I really appreciate your support, it helps so much knowing I am not alone going through this.

I did manage to finish shopping and actually bought 3 bra’s. One of the assistants came up to me and asked if she could help and after a few more tears I pulled myself together and she measured me and helped me get 3 comfortable and pretty bras, who knew they could be both! 

I’m hoping the trek will help me along. I have this romantic idea I walking away all of the bad things that happened last year. 

I havent started packing yet and tomorrow I have to drive down to drop the dog off with my mum so I might have to pack on Saturday morning before we go! 

Thanks again for your support xx

 

Member

Re: Surgery May 2018

Michelle ... Emotions can hit you at any time, without warning...just needs that little trigger and today for you it’s trying on a bra. What an appropriate symbol of the rollercoaster that was 2018. The driving force behind your trek. I think the trek will ‘help you along’.

I hope you managed more shopping.

How’s the packing going?

hugs

jean xx

Member

Re: Surgery May 2018

Thanks Jean, emotions are strange things aren’t they? I thought I was feeling ok about everything but I’ve just started crying in M & S changing room! I was trying on bras so I guess it’s not that surprising.

Maybe I feel more stressed than I thought about the trek, it has been a great focus but maybe it’s stopped me thinking about other stuff that I need to process? Who knows?  I think you are right there is an element of not letting ourselves look forward to things because of the fear of being knocked back. Oh well, pull myself together and get back to shopping xx

Member

Re: Surgery May 2018

Michelle ... when I think about it this trip is maybe the first real test of the ‘new’ you so it may feel a bit daunting in a way...switching off a bit and concentrating on the practical things could be a coping mechanism. Maybe we are hesitant to really let ourselves go and really open up and fully enjoying something just in case we get knocked back !!??! 🤔.....We could debate this for some time !!!  It will get better though.  Main thing is that you are going on your trek, that which has kept you going, gave you focus... and it’s going to be great. 

Kip ... hope you’re good today... you too Clare.

xx

Member

Re: Surgery May 2018

I’m sure you’re right Jean, once I get there I will be excited! It’s great that you are getting back to doing your normal trips away. You are so right with ‘it’ catching your thoughts, processing it and then carrying on with your day, and I’m sure (hope) that this will become easier as time goes by.  Well done on your walk and your HIIT exercises, it all helps. 

Claire how are you feeling now? Hope you are  doing well. 

Have a good day all xx

Member

Re: Surgery May 2018

Definitely got to keep a sense of humour Kip ... it’s one of my coping mechanisms. Try and tweak your appointment to either March or May next year and avoid it being around OH Birthday.... just say you’re going away !!!! I definitely need to shed the weight .. only doing a bit of hooping, a couple of minutes at most but I try and pick hoop up twice a day. I’ve started doing some hiit exercises too. I’ve walked 4.67 miles around Lincoln today. I was like a snail going up Steep Hill .... so slow. My muscles were protesting going up...my knees on the way down. 

J x

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning!

Thanks Feenix Glucosamine and Chondrin thats the other thing the nurse said to try, I couldn't remember its name.. I may give it a go and see but I get what you mean about not wanting more tablets.  I struggle to remember to take the 3 I do take on a daily basis!  

Have to admit I had a little giggle when I read you were travelling a little bit lighter this time around... I thought to myself.. "yes one boob less"... thats what I always think about myself.. . I should weight less coz I'm one down!   Been back hooping today, need to shed some weight.. I've fallen off the band wagon AGAIN...grrrr.   Oh well pick myself up and back on it.

It is strange how the hospitals differ about when you should have your first appointment isn't it.   Although I am glad mine is April it does mean that every year I will have a the awful wait over hubby's birthday and Easter.  We had an awful Easter last year so just hoping I can reign in the fear and have a better one this time round.  Also OH and son are going away to French battle in school Easte holidays so I will be home alone with my daughter so may end up fretting!  Oh well it is what it is.

Reddi - ask any questions when you have more energy.

Hope the squirrels are behaving.. they are rodents... but so cute.

Kip

x

Member

Re: Surgery May 2018

Reddi ... they’ll be happy in the roof space where it’s warm ... let’s hope they just store nuts there.

Member

Re: Surgery May 2018

@Kip What a comprehensive final appointment. I have questions -- but will post tomorrow, when I'm less tired!

Member

Re: Surgery May 2018

My poor American kindred, the grey squirrels. I don't think either of us has the heart to have them killed, no matter what damage they do.

Member

Re: Surgery May 2018

reddi ... great your sister can help you out with flight. Can see that you will have a lot of juggling with finishing rads and injections to fit a flight in. What are airline blackout periods ... ? Hope you find this year more manageable regarding work. Crikey ... what a time for your OH to fracture his hand but accidents will happen at the most inconvenient times ... hope he’s comfy in his cast.

My neighbours had squirrels in roof space .. they got traps off the council as they (grey squirrels) are classed as pests here, in the same class as rats so I was told. 

Michelle ... I think we are all in the early days stage but I get what you mean about it being surreal. I felt that way more last year ... it used to stop me in my tracks and I’d think what the **** ... then I’d process stuff, think yeah this is the new me, and then get back to what I was doing. Once you get packing, are on the flight and then get to your destination you’ll feel ok with it I’m sure. Looking forward to hearing about it.. and pics too ?  For me this flight is the old normal, just that I’ve had a break for a year and a half. I’m flying ‘lighter’ this time ... not by much though 😂 

Kip ... sounds like you had a really positive sign off appointment with an understanding nurse. Very reassuring. Really good you’ve got your mammogram appointment and onc one but I know you’ll worry until you’re told all is ok.... we will all be like that I’m sure. My mammogram will probably be April/May I’ve been told... my first op was the end of April. Once I’ve had my mammogram I’ll be transferred formally to the follow on team of nurses. Got my diagnosis March 21st. My onc appointment is in September and I should be seeing surgeon August. It might be worth while trying glucosamine.  It seems to be a common recommendation. I tried that and chondroiton some years ago. I’ve not got any at present as I really don’t want to take more tablets. I may change my mind 🤔

 

Popping to Lincoln tomorrow for some retail therapy and a good walk. I usually do a good few miles when there. The weather doesn’t seem too bad ... better than Thursday it would appear, according to the forecast.

xx

 

 

Member

Re: Surgery May 2018

Wow Kip sounds like you had a very reassuring  appt. It’s interesting your 1 year check Is from diagnosis, mine is from surgery which will be August. I’m actually a bit envious of you having a mammogram sooner, I was diagnosed 29th March, but I guess I will have to trust the system and be patient! Incidentally it’s my daughters birthday on 11th April! 

Whatever you do with the squirrels I would get rid of them fast! They may look cute but like Kip says they can do some damage! X

 

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi All,

Well Reddi I'm glad I wasn't the only one having posts going missing.  I posted a lengthy one twice!   What is happening?

Sorry to hear abour your OH, sounds painful and not at an ideal time too.  Good news about the eyebrows though, I wonder if the Lush soap is the key... who cares.. at long as eyebrows are coming in hey! And as for squirrels... blimey.. woulnd't know where to start with removing them... I think you can get squirrel traps.. not sure if they are humane or not though.  Squirrels can do a lot of damage though, they chew through wires and things... eeek.

Michelle - sounds like you will soon be off... I can imagine it feels quite surreal after everything that has happened over the last year... I sometimes look back and it just blows my mind.

 

I had my "sign off" from radiotherapy today.  It was really good to talk things over with the nurse.  She is lovely.   They are happy with my skin etc and now have appointment for my first annual mammogram... 11th April (1 year to the day of diagnosis.. and the day before OH's birthday)... fingers crossed he doesn't get another rubbish birthday.  Then a couple of weeks later (the good old 2 week wait) I have onc appt for a check up.   Trying not to worry about all that yet...but am sure it will lurk inthe depths of mind during the night.   They were very positive, said that everything looks good, good clear margins and that MX was definately the right option for me as there were some calcifications around the tumour which may have been difficult to capture with a lumpectomy.   I also questioned the size of my tumour, as its been worrying me.  When diagnosed I was told it was 22mm in size but after MX they said 55mm and I have always worried about how much it had grown.  She looked back at all my records and read them to me and explained that the tumour was still 22mm after surgery but that they measure from the widest part of the calcifications which totalled 55mm.  She was very reassuring that the lump hadn't grown at all and that they got it all.    I also asked about my aches and pains and butt ache and she said she would be very suprised if I didn't have any aches and pains and they would expect it due to chemo, rads and Tamoxifen and that she doesn't think the aches are anything significant but has recommended I self refer to physio to see if they can help but I can always ring them to request a scan if it will put my mind at rest... so feeling a bit relieved now.  She said chemo plays havoc with joints.. don't we know it!!  So all in all not a bad appointment... just got to move forward a bit now and try to regain some normality.  She also recommended taking glucosamine for the joints too.

Take care all

Kip

xx

Member

Re: Surgery May 2018

@Michelle21 My nose won't stop running! I also get some leg fatigue in the 2-3 days after each Herceptin injection (taking a long country walk is a abit tough), but then it's gone. My last Herceptin injection will be mid September.

 

I wish I could take full credit for the cleverness -- my parents should get it all, as my initials are actually RED. My one grandmother always called me Robin red-breast, which made me cringe and blush as a preteen. I appended my OH's initials and liked how I sounded: 'ready'.

 

Now trying to decide: how to deal with the 2 squirrels that seem to be making a nest in the roof of our block of flats (pretty much right above our flat, as it happens)? They woke us in the middle of the night --  ugh, 2 nights in a row without much sleep -- and my OH has confirmed it is squirrels, and at least 2 of them, by watching the tree out back until he saw them leaping to and fro with materials. Better than a rat, I suppose. I don't want them to be exterminated (i.e., killed), but I do want them to be quiet, little scratchy paws. And the more they explore, the more worried I become that they're going to come through a pipe hole in the kitchen.

Member

Re: Surgery May 2018

Kip, how did your end of treatment appt go? Hopefully it went well and is another step forward. Glad the butt is getting better too! I had a sports massage on my legs yesterday in preparation for next week! I can’t believe it is next week, you’re right Jean where did that time go? I haven’t started packing yet but things are accumulating in the spare room. I feel quite indifferent about the trip it’s odd. I’m not excited and I’m not nervous. I know this is going to sound really weird but I feel a bit similar to how I felt going through treatment, just getting on with it and not thinking of it too much. Obviously once I get there it’s going to be much better than treatment! Maybe because the last 10 months have been surreal this also feels surreal! 

Reddi I love your that your handle is a play on your name, it made me smile. Sorry to hear of your partners mishap, just what you need with rads coming up. I know everyone reacts differently to rads but you don’t know how you will react until you’re in it and my reaction was quite harsh. I finished mid November and only started to feel back to my normal energy levels a couple of weeks ago so it might be worth bearing that in mind when you book your trip home. Lucky that your sister can help with the flight, I bet you can’t wait to see everyone. When do you finish Herceptin? I’m on it until 20th May. I don’t have many se’s from it although have a funny taste that I’m hoping will go when I finish and also have a very runny nose! 

Claire I hope you are feeling better each day and pleased with the results of your surgery.

Have a good day all xx

Member

Re: Surgery May 2018

@Kip I don't know if I should be frustrated or relieved that a long, whingey post I wrote earlier got eaten by the new site set-up. (Really? You time out log-ins after I've typed something up and hit post?)

 

Short(er) version: Haven't booked a flight to the US yet as I can't afford to, literally, because of having to turn down so many freelance projects over the past year because of treatment schedules and side effects. My sister is buying the ticket for me using frequent flyer miles, but the ideal time, near Easter, is colliding with the airline's blackout periods. I have to be post-RT (last session 7 March, if all goes to plan), and fit between Herceptin injections (every 21 days) and Zoladex injections (every 28 days). It's proving difficult. However, I have priced travel insurance for the US, and happy to say it won't bankrupt us. I was really worried it would be over a thousand pounds -- though I guess about £250 for 2 weeks isn't exactly cheap.

 

Separately, my OH has joined @cdc's daughter as a fracture clinic patient! (@cdc, how is your daughter getting on?) He mashed his hand on a railing when the bus he was on stopped abruptly, and ended up with a bad spiral fracture in the hand bone connected to his small finger. Thankfully, the ortho he saw today said he can get away without surgery to insert a pin, though his finger won't ever align quite like it used to. Still, he needs a cast for 3 weeks, then, if the bone is healing okay, he'll switch to a hand splint for 3-6 weeks. I'm not sure how we're going to manage the launderette while I'm having RT. Supermarket shopping for us as well as his mum is also going to require some rearranging. Oh, well.

 

Also (though this belongs more in the chemo thread): @Kip, I've tried using the Lush New soap on my eyebrow area, like you said you did, and my eyebrows are coming in! It may just be coincidence, and they're only halfbrows right now, but it is super exciting. So thank you for mentioning that you did this!

 

@Michelle21 & @Feenix -- You must be on the wing very soon!

Member

Re: Surgery May 2018

Hi Kip

Pleased you’re not prodding and poking ... so much !!

Sunny here and quite nice out.

A ‘sign off treatment’ appointment is good...another step forward.

Ive got another couple of weeks to go so this week I need to get everything together so I’m not leaving stuff til the last minute.... I’ve got a list or two on the go. Michelle will be off at the weekend ... yikes, where did that time go to. Just remembered Kip ..have you been to the wedding you were invited to?

I hope you’re nearly fully packed Michelle ... it’ll be such a great experience .. steady away.

Clare ... how are you doing? I can’t remember whether you said but presuming you don’t need rads.

Definitely hope you’re planning your trip Reddi.

 

It looks so good out I might do some washing 

 

hope you all have a good day

xx

 

 

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning all,  the little amount of snow we did get here has well and truly gone now.  just a miserable and wet grey Monday.   Hope you are all well, CDC hope the recovery is going to plan and you are making leaps and bounds, let me know if the aches and pains return once Tamoxifen is back in your system.   I still have the achy butt cheek and leg but am trying not to prod and poke it (sort of!!)..

I have an appointment with radiotherapy team tomorrow - the letter states "Breast Care End Treatment Clinic".. not sure what that is but hoping its just a sign off.  It always sends me down the gremlin road when an appointment is due.  Just reminding myself I haven't had any tests done so no results to be had tomorrow.  

Jean - when do you go away, its very soon isn't it?

Michelle - you are off too aren't you.... wishing you all the best of luck for that... you are amazing.

Reddi - have you booked your trip yet?

KTK - how are you doing?

Anyone else I have forgotten... hope  everying is progressing nicely!

Kip

xx

 

Member

Re: Surgery May 2018

Ha .. spoke too soon...have snow, but only a smattering 😊 

I’ll know what it’s like out and about when I feed the birds ... then out to shops but think I’ll wait a while. Cup of ☕️ beckons.

I hope the snow isn’t too bad where you are.

J xx