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Surgery May 2018

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Re: Surgery May 2018

Hi all

Pleased to say there’s been no snow here. Warmer today compared to last two. 

Michelle ... I’ll be ‘there’  in 3 weeks. I’ve started to sort bag out already and I only take hand luggage !!!  Got my Jungle formula. Your doc was definitely a bit off about a/b’s yet it’s the advice we get. If I need anything I’ll just buy over the pharmacy counter. You’ll have a lot of kit to take 👀.  See you and OH are doing good preparing... 12 miles 😊 🚶‍♀️ You’ll be getting excited I’m sure as not long to go. Pleased you’re getting your energy back ... and making BIG lists.

What a fab pic Kip ... filters sound interesting.  Hope your butt isn’t too bad .. and that you can resist prodding. Yes .. the flat side should be much easier to keep an eye on compared to the uniboob... anything I’m not happy with I’ll be beating a path back to the clinic. As everything was occult on mammogram I do wonder about future follow up...didn’t ask about density but as I’m no spring chicken I doubt I have dense tissue ... but I will ask just so I know. 

Clare .. keep up the good work...when you get back to it. I do hope you continue to make steady progress recovering. 

Reddi ..Robin... get yourself booked up for Virginia. It’ll be fab for you to see your parents .. and for them to see you. If you’re not ready to book ... plan... makes lists 😊 

Ooo... a joint get together.

I hibernated for a couple of days but been out and about today... no probs with car I’m pleased to say. 

I see we have to prove we are not a robot now... on numerous occasions for me because I’m typing one fingered on iPad 😂 

 

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Re: Surgery May 2018

Clare I asked about density and they looked at my mammogram. I saw my mammogram and mri at the Marsden. I was wondering what to do so thanks for the advice. I hope your recovery continues to go well. I may be able to claim on an insurance policy through work which covers some tests and a consultation up to £200 called BHSF so will check that out.

Snow was bad here but made it in to our Taunton office today as the other office was closed in the Blacktown Hills. It did say not to travel on local radio unless necessary so my OH took me in and picked me up. Ahh.x

Kip Community Champion
Community Champion

Re: Surgery May 2018

Ha ha ... believe me I don't look like that in real life... add some bags and plenty of wrinkles and thats me.. but thought.. hell why not make myself look a bit better if even for virtual viewing!  

Member

Re: Surgery May 2018

WOW KIP! You are looking fantastic! I must speak to my girls about putting filters on some of my pics, I need all the help I can get! 😂

Kip Community Champion
Community Champion

Re: Surgery May 2018

Good Morning everyone,

Well not much more snow here but very cold and ominous looking.. and the car wouldn't start this morning.. grrr... good job I work from home!  Daughter had to get on the bus but thats no biggie!

Clare - thanks for all the information about the breast density... so glad you are on our thread!   I am going to ask what my density was when I next go.  I know they said they couldn't make out what it was from the mammogram so I had an ultrasound, I also had an MRI before surgery too.   As least my one flat side should be easy to spot anything suspicious... just have to keep red alert for the poor remaining one.  

Michelle - I promise I'll try not to prod.. but ooh the temptation.

Big News.... I had my first hair cut last night.  It was so good to be doing something normal again.  I say haircut.. more of a snip really.  She took of the fluffy ends to even it out.  She said its like a baby getting hair and it could change texture and colour even at this stage.   She says she does a few post-chemo ladies and their hair has changed over time too.   I think I had forgotten all about using products, conditioner etc... as I just use the Lush New bar and don't do much else... looked so much better when she blow dried it and put product in... I'll attach the photo if I can.. although it is my new profile pic if you can see it.   Oh and by the way... I don't look this good really... amazing what a couple of filters do... the joys of having teenagers who know all the tricks...

IMG_20190131_183444_479.jpg

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Re: Surgery May 2018

Claire I love that you are so passionate about breast density. I will ask my breast density at my next mammogram. Mine was seen on a mammogram but I had an ultra sound too. I haven’t had a breast MRI at all. I can imagine having this to focus on is helping you too, I know fundraising and training is helping me. I feel I have a bit of direction at a time when I really need it. I’m not very good at going with the flow, I’m not laid back enough! 

Reddi I’m August surgery and April chemo so I’m a ‘crasher’ here too! Must say i couldn’t have done without the support of this thread the last few months. Have you booked to go to Virginia? You must be so looking forward to seeing your parents. 

Maybe we should have a joint get together of June chemo and  May surgery as there is an overlap? 

Kip stop prodding that injury! 😂 I’m exactly the same “does it hurt if I do this...!’ 

Jean how are you doing? Have you started packing? All of our stuff is in the spare room which is looking a mess now! 

We have snow here today although not as much as they predicted. I’m stranded for now as we live up a country lane and my car is rear wheel drive. It looks pretty but hopefully the sun will melt it away today! 

Have a good day all x

 

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Re: Surgery May 2018

Go, Clare! You are a champion.

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Re: Surgery May 2018

I really do feel reassured that I made the right decision Linda.  I am a D on the bi-rad scale as I have extremely dense tissue.  I’m extremely pleased to hear you asked to see your mammogram and find out your density.  The more people that ask, the more it will become the norm to tell people. I would certainly consider a private ultrasound if I was in your position though it’s good to know that the mammogram was effective in picking up your tumour.  I’ve been told that it can’t be ruled out that I’ll ever get BC again but the chances are small and I will notice something amiss immediately as the only place it could occur is directly under the skin.  I’m considering going for a private ultrasound of my chest area each year anyway. My private ultrasound was the best money I ever spent - under £200 for both.  My sonographer said there were suspicious areas on both sides- it was the NHS radiographer that initially said I just had a cyst on the left.  Thank goodness the consultant sent me for an MRI anyway.  It picked up my bilateral BC. I’d recommend to anyone (who hasn’t had a double MX) to get their breast density checked and if it shows a C or D rating go for a private ultrasound if not offered one on the NHS. I believe private MRIs are expensive but worth considering too.  I should be starting my work with the Cancer Collaborative soon looking at alternative ‘pathways’ for those for whom mammograms are ineffective including people with very dense tissue and/or significant family history but no BRCA or PALb mutations.  (MRIs are only currently offered by the NHS  to those with a known mutation) I’ll let you know how I get on.  There is a big push in the medical community this year on overhauling screening for all cancers and finding ways to ensure earlier diagnosis. Xx

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Re: Surgery May 2018

Clare I am pleased that you got good results and they found the further cancers. It must be reassuring to know you did the right thing. I can't believe they didn't know about it. Would it have been picked up from an MRI? Makes me worry I may have more undetected cancer but hopefully the MRI would have picked it up. I asked about my dense breast tissue to see if I need an MRI or anything else. I am B or possibly C on the Bi_rads scale. They looked at my mammogram and said they could see the cancer. C means small areas may go undetected though. I was told that a mammogram would be ok but if I wanted I could get an MRI done privately.

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Re: Surgery May 2018

Grrrrr. I wasn't done writing that. Anyhoo, thanks for the invitation to crash, and the good wishes. Love hearing about your trips and treks, and gives me heart that a trio to the wilds of Virginia will be doable cine April. (I haven't seen my parents in person for more than a year now.) Have a wonderful time, both. xoxo Robin

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Re: Surgery May 2018

Aw, thanks Michelle & Jean! I feel as though I know all the May surgery folks (even though I am a December surgery person, because I've been lurking off and on to keep up-to-date with everyone on the June chemo thread.

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Michelle, thanks for the advise about the glutes.   I have been looking at hamstring tendonitis on line and it matches me completely.  Im doing the gentle stretches and build up exercises to see if they help.   Stupid me though... did the exercises this morning.. have been working for a while and got up to walk around and thought "hey the pain in the top of the leg/butt joint has gone.. only twinging higher up"... instead of taking joy in that I thought "wonder if it still hurts if I bend down"... duh... "yes it does" is the answer and now its aches again... when will I learn!! 

Rather frosty start here in Suffolk, -3 this morning but beautiful and sunny.. no more snow though.. yet!

Kip

xx

Member

Re: Surgery May 2018

Hello all!
Great to hear from you Claire and great news about your results, I’m pleased and relieved for you. All the awful stuff is coming to an end! It’s interesting you day you trusted your intuition and it proved right as I feel I have lost faith and confidence in my intuition, I didn’t know I had this until it was tender. Your Tamoxifen experiment sounds interesting let us know the results!
Kip your butt cheek problem sounds like your glutes. I have a weak left glute which causes the problem in my hip flexor when I run. I’m like you when I get up from sitting I’m like a 90year old but once I’m moving I’m fine. If you know of a good physio it’s worth going to see one as they can work wonders to rid you of the pain and give you exercises which strengthen the right are. I have to do lunges and leg raises, I try to remember to do them everyday but you know what it’s like!
Jean thanks for the advice for the plane and the jungle formula repellent, it’s in my case! I’m also picking up some anti-b’s today. The doctor was a bit shirty about it suggesting it should be private not NHS which was annoying and if I’d been expecting her comments I would have argued my case but you know what it’s like, never thinknof these things at the time! What date do you go? We fly on 9th. You must be excited to see your OH and family, willnit be relaxing or will you be on the go all the time?
OH’s b’day was quiet after the fundraiser but very enjoyable. As he was off on Monday we went for a training walk in the Brecon Beacons. If I was more computer savvy I would post a picture as it was beautiful and another 12 hilly miles under our belt. I seem to just be coming out of the tiredness from rads and feeling more myself again which is great.
OH and I went on a BCC Friends and Fsmiky session last night. It was ok, a lot of talk about mindfulness. If I’m honest I probably would have enjoyed listening to everyone there and their stories of how they have coped and coping rather than a led talk but hey ho! One thing which might be of interest as there is always a lot of underwear talk here, BCC hold lingerie evenings with big companies ie John Lewis, m & s, Debenhams etc they measure you up and bring samples. Might be worth having a look to see if they go on in your areas?
Now my energy levels have returned I am determined to get stuff done in the daytime, so I have started the mother of all lists and it is doing the job and getting me focused! Best be off got jobs to do. Hope you are all well!
Ps Reddi you can crash anytime! Xx
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Re: Surgery May 2018

No snow here ... frozen pond and frosty but sunny 🌞 

Getting back to swimming sounds good Kip. I’ve been looking at Asda tankini top and some stingray gear.... I’ve got a swimming KK but yet to decide if I want to use it if I get back to swimming. I’d like to find a ruched top, no formed cups, which would be good to use flat. 

Xx

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi everyone,

CDC - so good to hear you are healing well and that you got the best news from your results...wondeful.   Sounds like you are healing quickly too which is lovely.   Hopefully no rads for you, but if they do suggest it, I am sure it will be the least problematic treatment after everything else you've been through.   Be good to be finished with active treatment though.   Keep me up to date with whether the aches and pains resume once Tamoxifen starts again, that will be a good marker for what may be causing mine.  My knees and feet are improving, the ache first thing in teh morning and if I sit still for too long but once up and about they get going, its the butt muscle pull which is still problematic but that could be nothing to do with any of this cancer business.  I wonder if I have over used an already tight muscle/joint/tendon and am paying the price, its fine when standing still or laying down, doesn't wake me at night just painful if I sit for a length of time or bend down to my toes, then I feel a pull. 

feenix - I am still doing my stretches twice a day and I think it does help, must remember that the old body isn't as nimble as before and needs some love and attention before exercise.  I am hoping to collect my swimming knocker from my Mum this week and then hopefully get sign off from radiotherapy on Tuesday and can start swimming.  Will be lovely to feel weightless for once!!

Its been snowing here in the night, just a light dusting but very icy this morning.  Anyone else got any?

Kip

xx

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Re: Surgery May 2018

Reddi .... hope you’re recovering well post op. Hope you get through your rads without too much trouble.

xx

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Re: Surgery May 2018

Pleased you’re doing so well Clare  ... I can imagine your abdo wound would twang a bit bending/picking things up but it can only improve. Fab news about your results so definitely the right choice. Such a relief for you. It would be good if active hospital treatment was at an end ... fingers crossed for your appointment with oncologist. I’m sure they’ll suggest the best for you. Here’s to a continued good recovery 🍾 🎆 😊 

Yes, OH is away and I’m going over next month... got my deet  50% jungle formula packed already... it was the first thing on my list. 

Hugs xx

 

 

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Re: Surgery May 2018

@cdc - Crashing May surgery very quickly to say how lovely it is to hear you're doing so well -- and so pleased to hear your results. Wonderful news. Fingers crossed that rads is off the table for  you, post bi-Mx -- would be nice to have one less treatment, right? (I start my rads for left breast on 7 Feb, eons away.)

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Re: Surgery May 2018

Michelle
So impressed with your fundraising. It’s always so sad hearing of others going through tough times too. Sending hugs xxx
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Re: Surgery May 2018

Hi all
Sorry for delay in posting- I’m up and about and doing really well. Thanks for your lovely comments with regards to the FB photo Kip.
I had my results appointment today and WOOHOO! They removed all the cancer so I’m officially cancer free. Soooo happy! They did actually find further cancer in both breasts only a 4mm of DCIS in the left and 2mm of invasive cancer in the right which the consultant said they hadn’t expected to find but I’m so glad I trusted my instincts and went for the double mastectomy and he agreed it was the right decision. Just thought- does that mean even the chemo didn’t kill it all??? I have to see the clinical oncologist to discuss radiotherapy on the right as the guidelines advise it for any tumours over 5cm and mine was 5.4cm but they may say I don’t need it. I’m also healing really well and have to keep reminding myself not to lift things or bend too much- I forget as I feel so well and then end up in pain! Mainly my abdomen. I was still getting a lot of aches before surgery but they’ve eased off and I’m wondering if they are Tamoxifen related as I had to stop taking it for a few weeks. Start again tonight so will be interesting to see if the aches return. I’ll let you know Kip.

Sorry I’m not up to date with everyone’s news but I believe your OH is in India Jean and you will be joining him. Is that right?? If so how exciting!

How are the wedding plans going Lisa?

Reddi When do you start rads?

Take care and hugs to all xxx
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Re: Surgery May 2018

Keep on with the stretches Kip. I have a stretching regime of OH’s , just basics, but it’s the one thing I don’t do and it doesn’t take long. I’ve done about 20-30 mins wii fit ... aerobics, yoga and spot jogging. I don’t have any plans to be out and about today ...it’s a bit chilly outside as pond is still frozen.

 I’m eyeballing politics at the moment !!! 

Pleased Clare is looking ok. Big op to recover from but I’m sure she’ll do well.... one determined lady. She’s back waiting for results too which we know is hard.

J xx

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Feenix, you are completely right.. I wasn't doing any stretches or warm ups before exercising but I have found some gentle exercise for high hamstring tendonitis and am doing those morning and evening and they do seem to help.. trouble is I keep poking, prodding and bending down to see if it still hurts and then it does!   Must try harder!!!

I saw a lovely photo CDC on her Facebook page the other day and she looked really well.

Kip

x

Member

Re: Surgery May 2018

Kip .. a day of no butt pain ...great. Reappearing ...not so great. It does sound hamstringish ... that’s definitely not a proper word !!! Do you do stretches of calf/hamstrings ... what you would do to warm up before exercise in general? Just a thought. Hope your late brekkie was good... more like brunch though. I’ve bought a chocolate eclair 😈 

Wonder how Clare is doing.

Michelle ... hope your trek prep is going ok.

Jxx

Kip Community Champion
Community Champion

Re: Surgery May 2018

How funny Feenix.. i was wondering what an "unpaid" bra looked like.  Well you are certainly the expert on where to go for good bras aren't you.   Let us know if H&M do them.. hadn't thought of looking there.

I haven't hooped today, stiff butt cheek again, Saturday it was fabulous, first day without any pain.. then yesterday.. it began getting achy again...especially when bending down it pulls from let upwards... grrrr.. must remember to bend my knees.   I've just realised I haven't had any breakfast.. no wonder I am hungry.. must get something healthy before that biscuit tin calls me...

Kip

 

x

Member

Re: Surgery May 2018

Bit of gobbledygook in there... wearing Asda bra and hoping for them to make unpadded no lace bra. 😂 

Member

Re: Surgery May 2018

Morning ladies

Hope you’ve all had a good weekend.

I mainly caught up with the ironing and tv series I’ve not seen....but did start doing some hooping. I only did a short walk yesterday as it was quite chilly out. I also did my hour watching birds for the RSPB birdwatch. I’ve finished off the last biscuit so now have to think of something I can nibble on without piling on the pounds ... which I’ve now got to make the effort and lose. I know I can do it just by cutting out the rubbish. Although stress was involved last year I remind myself that I can drop at least a stone and a half quite quickly 😂 I’m having virginal tea at the moment (no biscuits) before I go out to the shops and return a bra to m&s. It was one recommended, white zip up at the front. I did like it but the straps couldn’t be adjusted... it was like a crop top in shape. Hey ho another one bites the dust. In Asda at the mo... can wear them with or without foob. Hoping they do some unpaid Ed ones without the lace. I’ve yet to try Amoena. Might look ar H&M as I’m sure I’ve seen it mentioned somewhere they do them ... might have been on FF.

J xx

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Re: Surgery May 2018

Enjoy celebrating your OH’s Birthday Michelle.

Remember we need to use insect repellent at home too.

I got munched on by mossies  at a garden party one year, right through my clothes too. Left me with a lump on my neck which my friend noticed and I had to have it biopsied  but it was an enlarged lymph node.

Clare .. hope your recovery is going to plan. You’re back waiting for results which we know isn’t easy... this will be the last lot though .. 😊 

I imagine you’ve been hooping already Kip.

Washing in, having cuppa and dare I mention a choc digestive... or more. However, I have planned a healthy main meal ... spicy cabbage, dhal and rice with mango to follow.

jean xx

 

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Re: Surgery May 2018

Thank you both so much for your replies, wise words to set me back on the right course. Yes we are still early on with all of this and I’m sure you are right Jean as time goes by we will be less wobbled by things. Kip your husband sounds like he has a good perspective on things which is exactly what is needed at times like these. I also read that article recently, it’s so accurate with many things and yes I like the speeding bus analogy and also the rollercoaster analogy for diagnosis.
Well it’s my OH ‘s ‘big day’ today and he’s just woken up so I’d better get on with things! Thanks for the insect repellent recommendation Jean xx
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Re: Surgery May 2018

 
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Re: Surgery May 2018

Drat ... upside down ... hey ho

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Re: Surgery May 2018

F756027E-354A-46FC-A66B-E4A717DDB196.jpeg

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Re: Surgery May 2018

Well done on your fund raising night Michelle ... keep that in mind.

It’s sad Michelle, and scary at the same time, hearing about others who are going through BC but we are all different. One of the volunteers on the moving forward course was in her 30’s when diagnosed, the other not much older but they are doing so great. They say volunteering has helped.

There are always reminders around aren’t there. The other night I switched tv to watch the programme about the Liverpool women’s hospital and a young woman with stage 4 bc was in the hospital and pregnant but still having adjusted chemo ...she had a lovely little girl. The night before that I watched Dr Kevin Fong’s programme. I found both programmes interesting. Must be the ex nurse in me but I’ve also experienced family/relatives with different cancers and also friends. As a nurse it was inevitable in my working life. There are many women out there who have had treatment for BC, even living with BC, and are still going strong after many years, decades even.

Remember we are still early days really, not even had our first mammogram so we are hypersensitive to everything. We will probably have those crap days in the future but hopefully less frequently as time goes by. As Kip says, we will pick ourselves up, mentally dust ourselves off and get on with life. Sometimes it’s easier said than done. 

Kip ... your hubby sounds a gem... I like him and his wise words because that is my and my hubbys approach. I remember you posting somewhere that he said “life is terminal” ... got to confess I use that phrase of his. 😂  Yes, I have a glitchy time now and then but that’s par for the course, a work in progress. That article is good .. must read it again.

Positive vibes ladies

ps... got Deet 50% Jungle formula 

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Michelle,  I feel for you.  As you know a lady I know found out she has lung mets now and she is only 41.. it really throws you doesn't it.  You feel like you are bobbing along nicely and then wham.. something happens or you see something on the news and it can set you back.   Hope you daughter is ok too.  Like you say you don't know the whole picture, best not to sometimes.  This new world is a scary one... my husband always tells me to remember that before this whole thing happened we never knew what was around the corner and everyone else never knows what may happen either... but it still doesn't stop you panicking when you've been in this place does it.   I read the "After the treatment ends" article the other day and he hit it on the head, he said..."when people say I may get hit by a bus" its different for somebody who has had a cancer diagnosis.. as we've seen the bus coming and don't know whether it will stop"... I thought that was so apt.  All we can do is try to take it a day at a time and pick ourselves up when we get down and keep on trucking!   Oh if only I believed my own hype somedays!!  

Take care

Big hugs... focus on the fab evening you had..

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Re: Surgery May 2018

Life’s ups and downs are so tough nownarent they? We had the fundraiser last night and it was brilliant. There were 160’people there and so many people said how great that we are doing this. I woke up feeling so supported and optimistic for the future. Fast forward 5 hours my youngest daughter who is home for the weekend tells me about one of her flat mates mum has breast cancer, I asked how she’s doing and she tells me she has stage 4 in her spine. This has really upset me. I didn’t show it in front of my daughter but I wonder what affect it has had on her too. Not to mention the poor lady who is going through all of this. I try to keep perspective, I don’t know what stage it was found at or whether she was HER2 + etc. Life has changed for us now hasn’t it and that is really hard to live with sometimes.
I hope your husband arrived safely and you got to your tai chi Jean. I also keep thinking about starting yoga but thinking about it as far as I’ve got! Interesting that it can help with lymphodema Kio. X
Ps Jean what brand of Insect repellent do you use? X
Kip Community Champion
Community Champion

Re: Surgery May 2018

No clean knickers Feenix... what a dilema Smiley Very Happy

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Re: Surgery May 2018

Tai Chi is good Kip ... gentle stretching and movement. I didn’t get this morning as discovered the outside drain was blocked ...Dyno  Rod to the rescue. We might have tree roots again. Anyway ... I should be lucky now so will get a lottery ticket tonight 😂. After doing hubbys washing this week I totally forgot about mine so found I was without clean knickers this morning. After washing and drying all is now present and correct. I need to get more as I’ve not been replacing the ones I’ve thrown out ... too much focus on bras !!! Yoga is supposed to be good. I’m looking forward to giving it a go. I’ve got a swimming KK.... just havent got swimming gear. I’ll go to Tai Chi beginning of next week as it’s on different days at various venues. I really need to increase my weight bearing activities as well just to give my bones a ‘leg up’. Hubby arrived ok, good flight and enjoying better temperatures .. and sun. I’ll have to get myself sorted for travelling.

Well, going to hoof it round the shops and get out for a walk afterwards

Jean xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Ooh After Eights... I love them.  Feenix you always make me want chocolate!   Sounds like you are very busy at the moment, how is Tai Chi?  Never tried that?   I am hoping to start Yoga though, the lymphodeam nurse said there is a lot of research into how much Yoga helps with lymphodema reduction and prevention, just don't want to stretch the butt muscles too much at present so waiting a while (thats my excuse anyway!!).   I also want to try swimming too, just got to get my self in gear to actually go!   Also need a swimming knocker.. must get on to mother.   Hope you hubby arrived ok, its exciting that you get to go too soon... very exciting.

Kip

xx

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Re: Surgery May 2018

Michelle ... pleased you got through your scan, eventually, and have been checked over by your onc. All helps with putting your mind at rest. We all want things to be straightforward but when there’s a glitch, and of course back at the hospital, it is understandable that emotions will be triggered. My goodness, you’re certainly putting the miles in. I’m happy with 3, if I’m lucky.... I’m going to play the age card 😂 Hope your final fundraiser goes well and you have a Fab celebration for your OH 50th.  Two and a half weeks will fly by ... you’ll have a great time, a good experience,  I’m sure... steady away. I’m looking forward to some pics. 

Kip ... sounds like a plan to ask about your achey butt and leg at your next appointment... put your mind at rest. Sounds ‘muscular’ as you get relief from a heat pad. You and Michelle are starting a new trend in diets I feel 🍫 🥚 

Im not so bad... feet up at the mo sampling after 8 mints !!!! OH on his way to see family ... I’ll catch up with him next month, hopefully with a bit of weight loss to show.... no more choc boxes after today and an increase in activity from tomorrow (I’ll be too busy tracking his flight today .... I feel better when I know he’s arrived ). I will go out for a short walk to village pharmacy this afternoon. Thinking Tai Chi tomorrow. Still awaiting yoga assessment and referral to local leisure centre exercise/activity programme. See it’s going to be quite balmy for a couple of days from tomorrow ... lovely.

xx

 

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Re: Surgery May 2018

Oooo I love chocolate orange! Definitely one of your 5 a day! Chocolate orange and mini egg diet! Xxx
Kip Community Champion
Community Champion

Re: Surgery May 2018

Thanks Michelle, I had a bone scan and CT scan before chemo in June and was all clear, so hanging on to that too.  I think it may be a problem with my hamstring tendon as I have the classic symptoms (from Dr Google anyway) so will keep that in my head for now.  I have an appt with radiotherapy team on 5 Feb so will mention to them what I need to do next. I know I need to bite the bullet and get scanned probably for peace of mind.   Sitting on a heating pad relieves it so perched on one now.   I think you have so done the right thing by giving yourself something concrete to focus on, I definatley need to set some goals and face forwards.  I am liking the sound of the mini egg diet.. well they say eggs are good for us don't they!!  My health eating is going ok, slow progress but trying hard, difficult when not doing much exercise though but anything has to help I guess.  I was wondering if a chocolate orange counted as one of my five a day!Smiley Tongue

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Re: Surgery May 2018

Thanks Kip. You’re right, sometimes rest is the best thing to do. When I was first diagnosed I had it in my head that my hip problem was down to ‘you know what’ but I stopped running during chemo and it went away and the second I ran again it started. During chemo I was terrified that I was riddled so my onc referred me for a CT scan, it was worrying waiting for results but all clear thank heavens. Have you had a scan? I realise things could have developed since then but I put those thoughts out of my mind. I’m sure you will be fine Kip, our bodies have been through so much in the last 10months it’s no surprise there are aches and pains. Rest up and if you are still worried speak to someone.
How’s the weight loss going? I’ve lost 2lbs now but feel I should have lost more with all the exercise, perhaps the mini egg diet isn’t helping! It’s my husbands 50th on Saturday so i won’t be dieting this weekend!!
Claire I hope you are getting plenty of rest and being looked after.
How are you doing Jean? X
Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Michelle, it is a new look isn't it,, quite confusing to be honest.

You sound like you are doing so well, wonderful mileage under your belt ready for the big one and lovely that the Onc checked you over for peace of mind.  Annoying about the scan, I've had a MUGA scan before with the injection and can understand why you felt emotional.. I always get emotional when back at hospital, it just opens old wounds I find.  I'm still having the achy butt cheek and legs but resting it and now walking seems to help so, although I hate not doing stuff, I am going to rest up for a while and see what happens.  If not I will have to brave the hospital for peace of mind I guess.

Hope everyone is doing ok and can find our threads on here!

Kip

xx

Member

Re: Surgery May 2018

Hi everyone
My! This is a new look!
Sorry you are nothing sufferingnwith joint pain. I’ve been lucky and don’t seem to be suffering physicallybthat much now. I have a running injury with my hip that means when I stand up I am stiff for the first few steps but I’ve had that for ages and it doesn’t stop me doing anything.
I’ve had a busy few days. At the weekend we walked 17.3 miles and 6.7 miles. I felt so pleased and happy, although very tired! It felt as if I’d achieved something, then on Monday I had my heart scan. It’s a MUGA scan so lucky me I get to have two injections with it. They’re not content with the amount of stuff they’ve put through my veins these last few months! You have to wait between injections and then a twenty minute scan. At the end they said the pictures weren’t clear so I had to wait half hour and do it again but for 40 minutes! It was frustrating, not the worst thing in the world but I got really upset about it. I don’t really know why when I think about it rationally.
On Tuesday I had an appt with my oncologist. She asked how I was doing on Tamoxifen, and since rads. I asked her to examine me aswell just for my piece of mind and all was good. I told her I’m scared of something reappearing and me not noticing so she said she’ll fit another appt in for me 6 months after my mammogram so I don’t feel totally left on my own.
I feel less emotional today, thankfully.
Thanks for the info on flight exercises Jean, I might have to start an exercise class up with all that I’ll be doing!!
Friday nights fundraiser went really well. Everyone seemed to enjoy the night and were very supportive of me and OH. We have our final big fundraiser on Thursday. OH wants me to say a few words but I’m still thinking on that! The trip is only 2 1/2 weeks away now, I’m getting nervous! Xxx
Member

Re: Surgery May 2018

The site has changed its look ...  🤔 

Kip .. sounds as though your exercise dvd is very helpful. I do my exercises at least twice a day. When Im cooking I do a few in the kitchen, just a few extra stretches. Halve the distance you walk ... do things little and often and gradually build up. It does appear that joint/muscle twanging are the norm.My right hip and knee were giving me a bit gyp a couple of days ago but seem ok today. It might have been because I was out in the cold for some hours at the weekend.... it is my dodgy hip though from walking over Great Shunner fell many years ago. I’ve noticed my joints are slightly sore in general .. a combination of age, letrozole and cold weather. However my joints, in general, have been on the blink for some years. 

Michelle and Clare  ... how are you doing?

I may put my best foot forward and go out ... 

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Morning Feenix,

No snow here either, lovely and bright though but cold..

I still do my exercises too, I have now got some more for lymphodema, but similar things and also the DVD so trying to do a few from them each day.  The lymphodema ones are supposed to be done twice a day so I try to do them when I get up and before bed, they are quick and easy, very gentle and can be done sitting done.  I've just done a couple of sections from the DVD too and some hooping.  Still have this pain in my butt and back, its worrying me a lot but over the weekend it was ok without doing any walking then I went out for about 3 miles on Monday and its back again, might have to knock the walking on the head for while or cut down the distance and see what happens.  Glad you ribs are improving, its slow progress all this isn't it.

Kip

x

Member

Re: Surgery May 2018

Looking forward to warmer weather Kip. Apparently there’s been a bit of snow elsewhere in the area this evening .. none where I am but going to be a cold night. I’ve just been around the shops today, done a bit of housework and wii tennis and that’s it for exercise. Might go to Tai Chi on Friday .. the gentle stretching will be good. Just when I think my ribs are ok they twang just to keep me on my toes.... nearly there though. Pre fall I still had some tightness  which felt better after exercising.  I still do my post op exercises daily. Do you? How are you doing with your sleeve?

xx

Kip Community Champion
Community Champion

Re: Surgery May 2018

Hi Feenix, sounds like you had a nice day albeit a bit cold.  Its definately a bit milder down here today, no frost this morning and nice and bright.. roll on the summer hey.

Kip

x

Member

Re: Surgery May 2018

1/2 pound is better than nothing Kip. Sounds as though you’ve twanged something... so easily done. Hope it settles.

I had the thermals on yesterday ... had a nice train journey for a look out with OH. Only round the shops this morning.

 I was up at 5 am but it was overcast here for seeing the blood moon. Saw one years ago when I was on nights.

Hope everyone has had a good weekend

xx

 

Kip Community Champion
Community Champion

Re: Surgery May 2018

Welcome Home Clare ... I saw you lovely photo on FB relaxing in your chair... you look great!

Optimisticmz - my arm is 9% bigger to so as you say its only minor but best to keep on top of it before it gets bigger.  I am wearing my sleeve whilst at home working and its ok, keeps my arm warm this weather.

Feenix - Only lost 1/2 llb this week.. haven't been out walking much though as its been cold and my stiff butt was playing up.. I decided to rest it a bit and I think its helped.  It feels like I have pulled a tendon (perhaps the hamstring looking online) and its pulling in my butt cheek, it doesn't hurt when resting but after walking or bending with straight legs.. boy it hurts.   Ive done some hooping this morning and that doesn't hurt it though, so hoping the rest will be sending it on its way.  Still having stiff kneews and ankles in the night though but that seems to be par for the course for some on Tamoxifen... its bearable though so Ill carry on in the hope it fades with time.

Did anyone see the blood moon last night?  Beautiful pink glow this morning..

Kip

xx

Member

Re: Surgery May 2018

Great you’re home Clare. Here’s to an uneventful recovery ... rest, steady away.

hugs

jean xx