Hi Linda Corinne
Yes, I had 4 FEC. Under ROSCO trial I was randomised so I could have been given either FEC or TC to start with. If the first didn't get desired results the it would have been 4 rounds of what I hadn't had, all prior to surgery. I started off at Taunton, I think I ended up there because I have a TA post code - I live in Martock. It wasn't until I asked where the chemo would take place that I realised I perhaps should have been referred to Yeovil. As for the trial I almost didn't volunteer as they seemed very pushy. My hubby even called them the ROSCO sales reps. Any way Yeovil was completely different and I felt it was my decision to do the trial. Now awaiting results then I may have an idea of what I am dealing with as I am currently HER2 positive/negative inconclusive. It's good to know you were ok with T as everyone within the Feb 19 have lots of problems on it. As for recurrence, that is often in my thoughts too and I'm part way through treatment. I'll update more on this thread when I know more. Take care. Susie B xxx
I did 3 fec but was due to have 4 and told that may be all I needed but my surgeon said I would need to have more than 4 when I saw him after the first FEC. I actually found T better than FEC and only had 1 day off work when having it. So did you have 4 FEC as that sounds different to what I was doing?
I was at Taunton too. I had rads and am on Leyrozole now and had mammoplasty/mastopexy or a lift on good boob in May to match the therepeutic mammoplasty on the bad boob. I am fine now apart from the reoccurrence thoughts but am trying to just get on with things. I have trigger thumb so need to see a hand specialist and my white blood cells and neuts are still low so am having another blood test in July.x
Hi Linda Corinne
Thanks for your reply. Sorry to hear the first 4 rounds of chemo didn't quite work to the surgeon's satisfaction. I was lucky in that I was randomised to start on FEC and it did it's job shrinking my Gremlin from 21mm to 6mm. I'm glad it worked as from what I now understand T is pretty brutal and 4 rounds of that may have been a step too far, the C I could cope with. I now have to wait for the pathology results to see if the FEC killed all the cancer or not. If it did, as you probably know, it'll be 2 more rounds of FEC, if not then the dreaded TC☹. Where did you have your treatment? I was originally referred to Taunton after my 3 yearly mammogram, then transferred across to Yeovil, at my request as that is my nearest hospital. How are things with you now and are you having or had any other treatment.? xx
Susieb I am in Somerset and started on the Rosco trial last May 2018. I decided not to stay on it though as I got a second opinion on the surgery and my surgeon wanted me to have all the chemo before the op. I did meet someone else on my thread on it too and others at LGFB.
Good luck with the RT Jac67. Will be done before you know it. I’ve got an appointment with RT consultant Fri 28th so will hopefully be moving forward with this soon xx
Hi - results due in a couple of weeks. Hopefully won’t keep being cancelled like last time! How are you - haven’t you started radiotherapy now?
Hi Dikat hope you get dates for rads soon . Won’t be long 💕 Katee hope you are ok and healing well . Good luck with rest of treatment. ❤️ Xx
Hi Susie B
Glad you are recovering well. My first follow up appointment was 1 week after surgery with nurse just to remove steri strips and check on wounds. My 2nd one was with breast surgeon 4 wks after surgery ( which was delayed by a week) to get results. Hopefully you will get your results on the 27th. I’m seeing BCN tomorrow to discuss radiotherapy. Really hope I get an idea of a start date as feel in limbo, can’t plan anything. I had my 6th of 18 IV Herceptin & Pertuzumab today but that’s because I’m Her2 +. I bet your keen to know what’s what so you can move forward to the next stage. Keep us posted and take care xx
Results were pretty much as expected. Only one node from my arm had cancer in but all 4 from my chest had cancer. This was as per the results of the PET CT scan so they are happy they have removed as much as possible. No more Surgery, yay! But now have to move onto chemo 😞 and then radiotherapy.
One step at a time.
Although I am still sore from the surgery my husband and I are off to the big city for a concert this weekend which was booked before I was diagnosed. Wasn't sure if we would make it but looking forward to leaving reality behind for a few days 🙂
Hi Linda Corinne
Yes, Linda I live in Somerset but I haven't come across anyone yet who is also doing the trial, either in my home town or on the Forum. I'm in the February 19 starters group. How about you?
I'm doing ok since my surgery on Friday. The after effects of the anaesthetic didn't kick in until Monday😴. I think because I wasn't in pain or discomfort I perhaps didn't rest enough and have since paid the price. Anyway rested well yesterday and feel a bit more alert this morning. My 2 incisions seem to be healing well, just stitched and glued together and I'm doing my arm stretches. I have a follow up appointment with my surgeon next Thursday (27th) but don't know what I'll be informed about then. Perhaps you could enlighten me DiKat?
Glad to hear you're recovering well too, 3331melanie, and you soon feel less tired from the aneasethic and get a follow up appointment soon. We seem to be continually playing the waiting game.
Thinking of you too Kaytee . Going for results is always nerve wracking. Since receiving my diagnosis I find myself thinking the worst on each occasion. Positive thoughts, then receiving bad news has rather put me off seeing things in a positive light.
Must get up now, do my stretches then shower. Up to the hospital for PICC care later. It hasn't been used for almost 10 weeks but my onc wanted to keep it in ready for my final 2 rounds of chemo after surgery. Take care everyone xxx
Good luck for your results Katy, will be thinking of you xx
Pleased to hear you have less discomfort this time Mel and 🤞results are quicker this time xx
Morning lovely ladies.
i have had no pain at all from second op which is good. I seem to be taking a little longer to recover from anaesthetic this time and invariably feel tired in the afternoon. My antidepressants seem to be kicking in now and taking the edge of things.
Havent got date for results yet. - I’m guessing the next 2-3 weeks although I know from last time that there have been delays.
Hope everyone else is doing ok.
Good luck Katy - let us know when you feel ready.
hugs to everyone
Hope you are recovering from your ops 🙂
It's results day for me tomorrow. I feel very nervous. Hoping not all the lymph nodes have been affected but I guess I will find out the next step
Just checking in really and wanted to say hope everyone is doing ok.
Hope the recovery is going well. Do either of you know when you’ll get results. Sorry if you’ve already said. Goldfish brain xx
Pleased you are recovering well from surgery. The theatre experience certainly is surreal! My throat is still a little sore too but not as bad as yesterday. I got some swelling under my lymph area last time but it went in about 3 days without intervention. Hopefully your swelling will be manageable.
waiting game for results now....keep us updated.
Just to say thank you for your kind words and good wishes. The surgery was much better than I imagined it would be. One minute I was having a cannula in to inject a relaxant, anti-sickness meds and pain relief, probes and things attached, next minute I'm in the recovery room with a nurse talking to me!. Surreal.
I had a fairly good night, and am in no pain, just a little discomfort under my arm. The worst thing at the moment is the after effects of having a breathing tube during surgery, my throat's a bit sore. I haven't got a drain which is a huge bonus. I can expect some swelling but if it gets too uncomfortable under my arm I just go to the hospital and they will drain it for me. I am also patched together with internal stitches and glue. That's 2 steps out of the way how many more will depend on next report. I know I've got 2 more rounds of chemo. On the ROSCO trial I only had 4 rounds of FEC. No doubt there will be rads too. Hopefully it'll be established whether I'm HER2 positive or triple negative or even a mix of both, then I'll have a better idea of what I am actually dealing with..
Mel, glad to know that you're not in any pain either and that you're also being referred to a therapist. I think sometimes the medics forget about our mental wellbeing I hope it helps.
Dikat, thanks for taking the trouble to read my quick up date in the Feb forum. We all enjoy reading your posts too.
I know some of you will be going onto chemo next so if you can join in with the monthly forums when you have a starting date. Please pop into the Feb whenever you like. We're a chatty bunch, as Dikat has already discovered, and someone is always there to advise, help or simply listen.
Best wishes to you all and once again than you for helping me through this part of my journey❤❤❤❤❤
Hi Susie B
Saw your post on chemo thread. Glad you got home and hope you’ve managed a good news nights sleep. Look forward to your update. Take care 🤗 xx
You take care of yourself and rest. Pleased you have had the referral, we need all of the help we can get during these difficult times.
Sending hugs 🤗 xx
Hi Mel oh u look after yourself. Think the emotional side can be worse. Only a day after surgery you’ll be all over the place . Glad it’s over for you . Sending hugs take care 💕💕
Mel, glad you’re surgery’s done and there’s no pain. Take time to look after yourself.
Susie, thinking of you today
Love and hugs to you all
weel a one surgery done. Surgeon said that’s it now it terms of surgery as there is no more tissue she can take, Apparently I’ll have an indent which she is looking to fill with fat next year. Experiencing no pain which is good but just feel like I’ve been through the mill. She’s referring me to a therapist to as all this has hit me ha d this week.
Susie - hope all goes well today.
Kaytee- hope you are doing ok.
love to everyone xx
Hope your recovery is going well xx
Hope everything went to plan today and you are feeling ok xx
Will be thinking of you tomorrow. Will all be over before you know it and I hope the chemo has done a good job of shrinking things xx
Thanks for your good wishes. My son is a lot older than yours at 27 but still just as good as passing on the bugs like he did as a child. My throat isn't hurting and my glands aren't swollen this morning, just a bit sniffly so fingers crossed.
Will keep you all briefly up to date. I'll be posting more detailed updates on the February forum.xxx
Hope u are well enough for your surgery tomorrow. I had mine (mastectomy) nearly 2 weeks ago now but in the run up my son (who's 3) came down with every bug you can imagine and I was convinced the surgery would be postponed again! Pleased that I didn't get anything more serious than runny nose so surgery went ahead but I know how worrying it can be.
How old is your son?
Hi Mel and Dikat
Hope all goes well for you today
Thank you for your good wishes! I’m more nervous about this surgery than the lumpectomy which is silly as it’s a much shorter procedure. I suppose it’s the thought if second surgery in 5 weeks. Praying fir the clear margin needed 🙏. Mine was only one edge that wasn’t big enough.
I hope you don’t succumb to the bugs and that your surgery can go ahead as planned. Yes, please let us know how you get on. Will be thinking of you. Mel xx
Just popped in for quick catch up and to see how everyone is doing.
Good news about your results DiKat. I'll read your full post in the Dec thread.
Hope all goes well for you tomorrow Mel and they get the clear margins this time. Not getting them the first time is something I'm dreading but realise it's something that has to be done.
I'm just hoping everything goes ahead for me on Friday. I woke up yesterday with a sore throat and slightly swollen glands, the usual signs for me that I am fighting something. My son, who has just gone away for a few days started with a cough over the weekend. Hoping I don't succumb to it🤞. Temp is normal so guess that's a good sign.
Will let you know how I get on. All the Best Susie xxx
Positive results from surgery, thankfully, so can now move on to RT in approx 4 weeks. I have done a detailed post in Dec 2018 chemo thread. Tried to copy & paste it here but couldn’t. Thank you to you all for your kind words & support 💕💕💕🤗🤗🤗
Thanks for the good wishes everyone.
That sounds positive about the lymph node Mel, everything crossed for a clear margin for you now xx
i emailed my breast care nurse as I wanted clarification regarding the ‘isolated tumor cells’. Apparently they found some 0.1mm in one lymph node. Because this has been removed she said they would,d do nothing more about it and it suggests no further spread so that’s positive I suppose. Hope they can get the clear margin needed tomorrow. If they don’t I feel inclined to say take the whole thing off and be done with it!
Susie - not long until your surgery either. Hope all goes well.
Hugs to everyone Mel 🤗