Surgery May 2019

[DiKat]

Linda

Hope your stitch gets sorted and doesn’t cause you any problems.

Kaytee

Good luck for Tuesday!

Mel

Everything crossed that your results come through.

I start my Radiotherapy on the 18th July. Feels strange to think this has all been going on since November xx

[3331melanie]

Hi Kaytee

I wish you well for your chemo on Tuesday xx

[Kaytee]

Hi Linda 

I to had a stitch that was poking out. The rest disappeared quite quickly but one only came out last week which was nearly 5 weeks! It did look crusty  but not infected so was told it would eventually come off and it did and is now pretty much healed.   hope that makes you feel a bit better but if it does go red it might be best to get it checked 🙂

Hi mel hope you get your results soon the waiting sucks! I have first chemo on Tuesday:-(

[Linda Corinne]

So I have a stitch poking out and am getting nurse to see if it should come out on Wednesday as having a blood test but am getting worries now. Anyone got any advice. It has been there a while but more noticeable now and was red last weekend for a day but ok now.x

[3331melanie]

Thank you all. Feels like I’m never going to move forward 😢

[Jac67]

Hi Mel sorry to hear no results yet . Horrible playing waiting game . Hope u get news soon .  Jackie xxx❤️

[DiKat]

Sorry to hear this Mel, so frustrating for you xx

[Jewels994]

Oh Mel, how frustrating xx

[3331melanie]

Just had the call, results not ready. The waiting game continues.

xx

[3331melanie]

Thanks DiKat - I’m expecting a call! 

Will let you know xx

[Jac67]

Wishing you a speedy recovery. Take care 💕. Jackie xx

[DiKat]

Wishing you a good recovery from your op Louann. Take care xx

Fingers crossed results are back for tomorrow Mel. Guess you will get a phone call today if not xx

[3331melanie]

Pleased you’re home now recovering. Take care xx

[Jewels994]

Glad you’re home.Hope you’re recovery goes well xx

[Louann]

Well I had my op yesterday afternoon, I was home by 7pm. Very sore and tired but at least I’m on the right road now. It’s been a long time since being diagnosed. Xx

Hope you lovely ladies are all doing well xxx

[Jac67]

 Good luck hope all goes well today . You’re home recovering tonight 💕 Jackie xx

[3331melanie]

Hi Louann

wishing you well for surgery. It will soon be done and you’ll be at home.

Pleased you had a fab holiday.

Mel xx

[Jewels994]

Hi Kaytee

hope all goes well for you at your appointment tomorrow xx

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@Kaytee wrote:

Hi ladies

Hi Mel fingers crossed you get the results as planned on Wednesday so you can move to the next stage of treatment. 

Hi jewels994 and dikat hope your radiotherapy goes well with not too many side effects.

I have first meeting tomorrow with the chemo team to discuss my treatment plan.  Not looking forward to starting chemo but sooner i start the sooner it will finish !

Best wishes everyone x

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[DiKat]

Good luck Louann xx

[Jewels994]

Good luck for tomorrow, hope all goes well xx

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@Louann wrote:

I’m due to have my lumpectomy tomorrow that was cancelled on the 8th May. I really hope it goes a head this time.

It would have been earlier but we’ve been on a lovely two weeks holiday in Gran Canaria.

It’s now to get this thing out of me. I’m feeling a little nervous but looking forward to this bit being over with. X

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[Louann]

I’m due to have my lumpectomy tomorrow that was cancelled on the 8th May. I really hope it goes a head this time.

It would have been earlier but we’ve been on a lovely two weeks holiday in Gran Canaria.

It’s now to get this thing out of me. I’m feeling a little nervous but looking forward to this bit being over with. X

[3331melanie]

Hi Kaytee

I hope your appointment goes well. As you say th sooner you start, the sooner it’s out of the way. 

Let us know how it goes 

Mel xx

[DiKat]

Hi Kaytee

Good luck with your meeting tomorrow. Once you get started on the chemo it feels good to start getting them ticked off. I had 6 in total which does seem to be the norm across the board but have noticed that some ladies have 8. Keep us posted xx

[DiKat]

Hi Susie B

Definitely mixed emotions regarding your surgery. Pleased that your margins were clear though. Bet it’s frustrating having to wait to see if you are Her2+ or trip neg. I assumed you would find out straight away! 

Hope you continue to heal well from your surgery and at least all of those lymph nodes are gone now.

Take care xx

[Susie B]

Hi everyone 

Just to update you on my post surgery appointment with my surgeon which I had last Thursday. It was rather a mixed bag, as you may have read DiKat as I know you pop into our Feb group. On the positive side my lump was removed with good magins, so no more surgery☺. What did shock me was to be told that of my 14 nodes that were removed 9 were positive😨. As I am on a trial I was prepared to be told maybe 2 or 3 were positive as there was no guarantee that the 4 rounds of FEC would clear everything, and that I would then have 4 rounds of CT after surgery to finish the job. Also I still don't know if I am triple neg or HER2 positive so my samples have been sent elsewhere for further tests. The surgeon did say it was highly probable the results would come back as negative, something else I didn't want to hear. So next steps at the moment are CT scan on the 9th July, chemo then rads. Talking of which DiKat your rads doc does seem strict, I don't think anyone in the Feb group has been told not to do most of the things you mentioned. Right as far as post surgery healing the wounds are healing nicely. The swelling from the ANC is quite large now. The nurse did offer to drain it on Thursday but I just wanted to get dressed and go home as I think I was in shock. Anyway I'm going to phone my bc nurse tomorrow to ask about getting it drained. It's fairly soft so is not affecting my wounds but does need draining as it's beginning to look more like a tennis ball then a golf ball.

Take everyone. xx  

[Kaytee]

Hi ladies

Hi Mel fingers crossed you get the results as planned on Wednesday so you can move to the next stage of treatment. 

Hi jewels994 and dikat hope your radiotherapy goes well with not too many side effects.

I have first meeting tomorrow with the chemo team to discuss my treatment plan.  Not looking forward to starting chemo but sooner i start the sooner it will finish !

Best wishes everyone x

[DiKat]

Hi Jewels

Yes you’re right about not using the cream before a morning appointment. The rads doc told me nothing on the skin beforehand. He was extremely strict, said no baths from start of treatment, no shower gel or deodorant even though I’m not having armpit zapped, no swimming, spa’s Etc. And to continue this for 3 months. I haven’t read anywhere about anyone else about being this strict. I will use common sense. Can’t see a problem with having a bath if it’s shallow and don’t immerse chest area. I don’t use bubble bath anyway as have quite sensitive skin! Oh and he also said no herbal teas, supplements or change in diet to increase antioxidants as in addition to strengthening good cells it would strengthen cancer cells and reduce effectiveness of radiotherapy. It’s all a mine field xx

[Jewels994]

It is amazing how much the advice given differs. I was told simple shower gel and when I said I’d bought some E45 I was told that was great as could be used before as well, but other people have said there’s no way it should be used before. As my appointments are all in the morning I think I’ll just put it on afterwards

[DiKat]

Hi Julie

Im left side too. Was told they will decide after planning appointment if I have to hold breath. Good luck for the 11th x

Hi Jac67 

Good to hear you are over half way through and doing ok. I’ve been amazed at how the advice differs. I’ve been told E45 or something similar only, definitely no aloe Vera! X

[Jac67]

Hi Jewels you’ll be keen to get started radiotherapy.,I’m on 8 of 15 . So far ok . Bit pink . Good luck 💕

[Jewels994]

I had my planning appointment last week, less than a week after I saw the radiotherapy doctor. They had the list of dates ready for me and I start on 11th July. Mine works out at just over 8 weeks post op.

planning appointment was fine, I had to do breath holding as I’m left side. Good luck with it xx

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@DiKat wrote:

Hi Julie

Radiotherapy doc was lovely, very informative but very strict with do’s and dont’s! 

No start date as yet as now need to wait for ct planning appointment. Looks like it’s going to be another 2-3 wks before I get started which will put me 9 weeks post op. I need 20 sessions in total, having extra 5 boost as was stage 3 xx

Mel, I really hope your results come back. Barbara rang me on the Monday with mine so I have everything crossed for you 🤞 xx

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[Jac67]

Hi Dikat . How did your radiotherapy appointment go xxx💕

[Jac67]

Oh surely not again ! Fingers crossed you get them and get on with treatment plan . ❤️

[DiKat]

Hi Julie

Radiotherapy doc was lovely, very informative but very strict with do’s and dont’s! 

No start date as yet as now need to wait for ct planning appointment. Looks like it’s going to be another 2-3 wks before I get started which will put me 9 weeks post op. I need 20 sessions in total, having extra 5 boost as was stage 3 xx

Mel, I really hope your results come back. Barbara rang me on the Monday with mine so I have everything crossed for you 🤞 xx

[Jewels994]

Fingers crossed 🤞 they’re ready on Wednesday Mel xx

[3331melanie]

Hi

Have appointment for Wednesday but expecting it to be rearranged like last time. Results weren’t ready yesterday.

Hipe you are doing ok?

DiKat, hope your appointment went well.

Love to everyone xxx

[Jac67]

Hi Mel any news on your results yet . Hope you are ok . Xx💕

[Jewels994]

Hi Dikat, how did your radiotherapy appointment go. Have you got a start date yet

Julie xx

[DiKat]

Hi Linda

Maybe the 1.86 is more normal for you. I think as long as they are above 1.5 it’s probably not too much of an issue as that’s all they needed to be for chemo. Hope you get your thumb sorted. I also feel like I’m falling apart in places 🤪 x

[Linda Corinne]

Didcat strangely they were only wbc 3.75 and neuts were 1.86 before chemo so too low although once during chemo they went up to 4.38 and 3.92. O well i am going to mention it at my docs appointment today re my trigger thumb which clicks in the middle since starting the hormone treatment and the surgeon said i should see a finger specialist in case it gets worse.i do have alot of joints that click now though and I have Osteopenia so take calcium for that. I think my body is packing up.i always thought i had a good immune system as hardly ever get ill! Lol.x

[DiKat]

Fingers crossed they are on the up for you Linda. I wonder how much they fluctuate. Before my chemo my wbc was 7.7 and neuts 5.10....guessing it will be a while before they reach those kind of levels.

Take care xx

[Linda Corinne]

Did cat my neuts are also 1.86 on 9th May and should be 2. My white blood cells are 3.3 and should be 4. My chemo finished in September. They are higher than they were in October though.x

[DiKat]

I have Barbara. She’s great! 

I will let you know how it goes on Friday. Hope your results come through soon and you can start moving forward with what’s next xx

[3331melanie]

Hi, yes I have Rachel - who is really kind and helpful too. I’ve met Barbara too. How about you?

Ill be a interested to hear how it goes on Friday for when I eventually go!

xx

[DiKat]

Yes, have got my first appointment through for this Friday so hopefully will find out what’s what. How lovely of Mrs Chandran ❤️ Do you have a Macmillan nurse at Grimsby? Xx

[3331melanie]

Hi DiKat!

well, what were the odds of that! 😊. Yes we would have been on the same day!

Mrs Chandran is one of the nicest, empathetic consultants I’ve ever met. She held my hand both times when they put me to sleep.

I guess you’ll be at castle hill then for radio?

xx

[DiKat]

Mrs Chandran 😊

I liked her instantly too. Had trust in her and find her very reassuring. If my op hadn’t been delayed a week for me to get over chemo we would have been on the day unit at the same time xxx

[3331melanie]

Hi DiKat

What a small world! Had surgery at Grimsby as really liked Mrs Chandran 😊.

Who did your surgery?

Mel xx

[DiKat]

Hi Mel

Just seen one of your other posts, didn’t realise you were in Scunthorpe. Is that where you had surgery? I’m in Cleethorpes xx

[DiKat]

Hi Linda

Just wondered what level your neuts were when you had last blood test and how long after your last chemo the blood test was. I am having 3 weekly targeted therapy IV infusions and my neuts were 1.86 this time. I thought they would be higher than this by now....last chemo was 10th April xx