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Surgery May 2019

384 REPLIES 384
3331melanie
Member

Re: Surgery May 2019

Hi - Iโ€™ve been ok on tamoxifen which is good.

Hope you are doing ok.

Mel x

Jewels994
Member

Re: Surgery May 2019

Mine was originally due in May, but they phoned and agreed to postpone for a while. Had it at end of July and got the result within a few days, all clear. It was very nerve racking especially  as I had been shielding so was the first journey I had made since before lockdown.

Jac67
Member

Re: Surgery May 2019

Hi Melanie I had mine in June few months late . All was good got results in less than a week . Felt stressed but good to get it out the way . How have you been on tamoxifen xx๐Ÿ’•

3331melanie
Member

Re: Surgery May 2019

Hope everyone is doing ok. I have just received my appointment for mammogram - should have been in July. Itโ€™s made me feel a little anxious!

take care everyone xx

Kaytee
Member

Re: Surgery May 2019

Hi jewels994

My surgery was at the end of may and it's hard to believe it was nearly a year ago. 

My mammogram was due in march so I managed to get one before we went on lockdown.  All normal apparently although I still worry!

Hope you are doing well with your treatment xx

Jewels994
Member

Re: Surgery May 2019

Hi all. Hope youโ€™re all doing okay. This time last year we were going through surgery. I guess most of us would have been due our one year mammogram about now. Iโ€™ve not heard anything about mine, but even if they were too decide to go ahead I wouldnโ€™t be able to as Iโ€™m in the shielding group.

Love and hugs to you all. Stay safe xxxx

3331melanie
Member

Re: Surgery May 2019

Hi Kaytee

Good to hear from you. I hope your treatment has gone ok and you found radiotherapy ok.

Yes surgery seems a long time ago now and I agree everyoneโ€™s support on here was fantastic.

best wishes to you and looking forward to a better new year! X

Kaytee
Member

Re: Surgery May 2019

Hi all

Just wanted to pop back in and say hi to everybody.

It seems a long time since we all had our surgery back in may I hope everyone is doing well and has moved on with more treatments.

 

I've had chemotherapy and a now halfway through having radiotherapy. 

 

I wanted to say how helpful i found your support during the start of this horrible journey.

 

Best wishes everyone x

DiKat
Member

Re: Surgery May 2019

Pleased youโ€™ve had a break away Mel and managed to forget about things. Sounds like itโ€™s really helped ๐Ÿค—๐Ÿค—๐Ÿค—

3331melanie
Member

Re: Surgery May 2019

Hi DiKat

Sorry to hear you developed a cyst on top of everything else! Hope having it drained as eased the discomfort.

Ive just got back from a lovely break at my favourite place, the big cat sanctuary in Kent. It was great and didnโ€™t think once about my diagnosis.

Mel x

DiKat
Member

Re: Surgery May 2019

I ended up back at breast unit yesterday. I had an appointment because Iโ€™d been in touch with BCN 2 wks previously telling her Iโ€™d developed pain in my breast and underarm 7/8 weeks after surgery. I saw a different consultant who examined me and a scan revealed I had a cyst which was drained. Feel like itโ€™s never ending๐Ÿ˜” Good Luck with the rads Mel xx

3331melanie
Member

Re: Surgery May 2019

Hi

Appointment with Mrs Chandran went well. Donโ€™t need to see her for another year now ๐Ÿ˜Š.

Hope your radiotherapy goes well today xx

DiKat
Member

Re: Surgery May 2019

Pleased it went well Mel. Hope this afternoon with Mrs Chandran goes well too xx

3331melanie
Member

Re: Surgery May 2019

Hi

Planing appointment went well and was quicker than expected!

i managed to park outside queens centre today but was very busy. We bought a parking pass and got the bridge tickets too. 

Mine are all around mid day so not too bad xx

 

 

DiKat
Member

Re: Surgery May 2019

I bought a parking pass Mel. Itโ€™s ยฃ20 for the month. The parking is free in front of the Queens Centre but is often very full depending on what time you go. My appointments are all around 5pm so have managed to get a space 3 out of the 4 days but having the pass takes away some of the stress because I know I can easily park nearby if full. You get your bridge tickets for free xx

3331melanie
Member

Re: Surgery May 2019

Thank you - will do.

im not relishing the 4 weeks of travel but needs must! Whatโ€™s parking like there? Xx

DiKat
Member

Re: Surgery May 2019

Hope all goes well for you Mel. Radiotherapy ok so far, worst bit is travel and waiting but all staff are lovely. Let us know how you get on at both appointments ๐Ÿค—๐Ÿค—๐Ÿค—

3331melanie
Member

Re: Surgery May 2019

Hi - itโ€™s 9.30 then seeing Mrs Chandran in the afternoon ! Busy day! Hope you are finding radiotherapy ok still xx

DiKat
Member

Re: Surgery May 2019

What time is your ct planning appointment Mel? Sounds like they are moving things pretty fast xx

3331melanie
Member

Re: Surgery May 2019

Iโ€™m going for ct planning tomorrow and starting radiotherapy in 8/8. Having to cancel our holiday but can rearrange that xx

Jewels994
Member

Re: Surgery May 2019

Really pleased for you Mel xx

Jac67
Member

Re: Surgery May 2019

Hi Mel . Glad to hear youโ€™ve got treatment plan in place .  After all waiting finally getting somewhere. Delighted for you ๐Ÿ’•xxx

3331melanie
Member

Re: Surgery May 2019

Hi

 

Well oncologist was lovely. Have CT planning tomorrow and Rads starts 8/8. Been started to n tamoxifen too. ๐Ÿ˜Š

Mel xx

DiKat
Member

Re: Surgery May 2019

Good luck for today Mel. Hope you get to find out the next part of the treatment plan xx

Jewels994
Member

Re: Surgery May 2019

Fantastic, it will be great for you to get back on track. Keep us posted

Julie xx


 

3331melanie
Member

Re: Surgery May 2019

Hi. Hope everyone is enjoying the sun.

I had a call today to see the oncologist tomorrow. Hoping that means I will soon start radiotherapy and hormone therapy.

Hugs Mel x

3331melanie
Member

Re: Surgery May 2019

Thankyou ladies ๐Ÿ˜Š

Im sure radiotherapy and hormone therapy will be the next thing. Canโ€™t wait to crack on now and resume some normality!

Have a good weekend everyone ๐Ÿ˜๐Ÿ˜˜โค๏ธ

DiKat
Member

Re: Surgery May 2019

Thatโ€™s fantastic news Mel. Iโ€™m so pleased for you ๐Ÿ˜โค๏ธ Will you need to have Radiotherapy? Have an amazing weekend? ๐Ÿค—๐Ÿค—๐Ÿค—

Jac67
Member

Re: Surgery May 2019

Oh Mel thatโ€™s the best news , at last . You enjoy your weekend โค๏ธXxx

Jewels994
Member

Re: Surgery May 2019

Fantastic news Mel, onwards and upwards 

Julie xx

3331melanie
Member

Re: Surgery May 2019

Well Iโ€™ve just had the best news this evening! My BCN emailed at 9 to say my oncotype was 8 so therefore wonโ€™t need chemo! Iโ€™m so relieved and can finally see this rollercoaster ride coming to an end. ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š

Mel xx

3331melanie
Member

Re: Surgery May 2019

Hi

Pleased your rads has gone well ๐Ÿ˜Š.

BCN rang today and confirmed that margins are clear - must be more than 2mm which they were waiting for clarity about. At least I know know I wonโ€™t be having more surgery. They are hopeful oncotype will be ready on Tuesday so fingers crossed will soon know whatโ€™s happening next.

hugs to everyone and thanks for listening ๐Ÿฅฐ.

Mel xx

DiKat
Member

Re: Surgery May 2019

Oh Mel

How frustrating for you. The clear margins is a good thing. Do you know what the measurements, or lack of mean?? The delayed results situation seems to have been going on for a long time at our hospital. Itโ€™s so difficult isnโ€™t it! Understand why you feel the need to air your views. Take care and hope you get something more conclusive soon.

First 2 rads fine thank you ๐Ÿค—๐Ÿค—๐Ÿค— xx

Jac67
Member

Re: Surgery May 2019

Oh Mel youโ€™ve been messed about . Hope you are ok and get some straight answers next week . Definitely make that complaint as you say itโ€™s the next person as well . But you have to think of yourself now . You just want that treatment plan so you can get it started . Sending hugs Jackie ๐Ÿ’•๐Ÿ’•

3331melanie
Member

Re: Surgery May 2019

Thanks ladies.

I spoke to my BCN yesterday. Results are back but not clear. Says margins clear but no measurements so wanting to clarify this. Still waiting on oncotype. Iโ€™m not usually someone who complains but in this instance I am. I think the wait is unacceptable and unfair. I canโ€™t fault the care received  from surgeon etc. My BCN agrees and says she knows if 2 other ladies who have complained too. It wonโ€™t improve my situation but may make a difference for other ladies in the future.

 

DiKat, hope your first rads went well. ๐Ÿ˜Š

Hope everyone else is ok.

lots of love

Mel xx

Jewels994
Member

Re: Surgery May 2019

Hope you get a reply soon Mel, sending you hugs xx

DiKat
Member

Re: Surgery May 2019

So sorry to hear this Mel, must be awful for you, 5 weeks is way too long. I really hope you get a response from BCN and it gets chased up. Itโ€™s awful being in limbo like this. Sending you ๐Ÿค—.

Yes, start rads today....will be setting off for Hull shortly ๐Ÿ˜˜

3331melanie
Member

Re: Surgery May 2019

Hi Jackie - Iโ€™ve emailed my BCN to see if sheโ€™s heard anything. I feel in complete limbo ๐Ÿ˜ข.

Mel xx

Jac67
Member

Re: Surgery May 2019

Aww Mel thatโ€™s awful. Whatโ€™s delay . When are they letting you know . I really feel for you itโ€™s not good enough. Sending hugs Jackie โค๏ธXxx

3331melanie
Member

Re: Surgery May 2019

Hi DiKat

5 weeks on and still no results. I feel completely abandoned and think this wait is now unacceptable.

Hope you are ok - are you starting rads tomorrow?

Mel xx 

DiKat
Member

Re: Surgery May 2019

You heard anything Mel?

Sending hugs ๐Ÿค— xx

Jewels994
Member

Re: Surgery May 2019

I really feel for you Mel. Fingers crossed you get the results this week.

Lots of hugs

Julie xx

3331melanie
Member

Re: Surgery May 2019

Hi

Im not bad. Physically recovered from op but just feel in a bit of an emotional rollercoaster waiting fir results. Iโ€™m keeping everything crossed that they are ready this week ๐Ÿคž

Mel xx

Jewels994
Member

Re: Surgery May 2019

Hi Mel, how are you holding up. 

Julie xx

DiKat
Member

Re: Surgery May 2019

Sorry to hear youโ€™ve still not got your results Mel. Hope you have recovered from this last lot of surgery xx

Jewels994
Member

Re: Surgery May 2019

That is so frustrating, was really hoping youโ€™d get your results tomorrow. Iโ€™m doing ok, start radiotherapy on Thursday.

Lots of hugs to you

Julie xx

3331melanie
Member

Re: Surgery May 2019

Hi Julie

Unfortunately no date for results yet. Itโ€™s immensely frustrating.

Hope you are doing ok xx

Jewels994
Member

Re: Surgery May 2019

Hi Mel, will you be getting your results tomorrow. Hope theyโ€™re not delayed again and they managed to get clear margins

Julie xx 

3331melanie
Member

Re: Surgery May 2019

Thankyou ladies.

Hope everyone is doing ok xx

Jac67
Member

Re: Surgery May 2019

Hi Mel hope you get results this week ๐Ÿ’• Jackie xxx