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Surgery May 2019

377 REPLIES 377
Member

Re: Surgery May 2019

Hi all

Just wanted to pop back in and say hi to everybody.

It seems a long time since we all had our surgery back in may I hope everyone is doing well and has moved on with more treatments.

 

I've had chemotherapy and a now halfway through having radiotherapy. 

 

I wanted to say how helpful i found your support during the start of this horrible journey.

 

Best wishes everyone x

Member

Re: Surgery May 2019

Pleased you’ve had a break away Mel and managed to forget about things. Sounds like it’s really helped πŸ€—πŸ€—πŸ€—

Member

Re: Surgery May 2019

Hi DiKat

Sorry to hear you developed a cyst on top of everything else! Hope having it drained as eased the discomfort.

Ive just got back from a lovely break at my favourite place, the big cat sanctuary in Kent. It was great and didn’t think once about my diagnosis.

Mel x

Member

Re: Surgery May 2019

I ended up back at breast unit yesterday. I had an appointment because I’d been in touch with BCN 2 wks previously telling her I’d developed pain in my breast and underarm 7/8 weeks after surgery. I saw a different consultant who examined me and a scan revealed I had a cyst which was drained. Feel like it’s never endingπŸ˜” Good Luck with the rads Mel xx

Member

Re: Surgery May 2019

Hi

Appointment with Mrs Chandran went well. Don’t need to see her for another year now 😊.

Hope your radiotherapy goes well today xx

Member

Re: Surgery May 2019

Pleased it went well Mel. Hope this afternoon with Mrs Chandran goes well too xx

Member

Re: Surgery May 2019

Hi

Planing appointment went well and was quicker than expected!

i managed to park outside queens centre today but was very busy. We bought a parking pass and got the bridge tickets too. 

Mine are all around mid day so not too bad xx

 

 

Member

Re: Surgery May 2019

I bought a parking pass Mel. It’s Β£20 for the month. The parking is free in front of the Queens Centre but is often very full depending on what time you go. My appointments are all around 5pm so have managed to get a space 3 out of the 4 days but having the pass takes away some of the stress because I know I can easily park nearby if full. You get your bridge tickets for free xx

Member

Re: Surgery May 2019

Thank you - will do.

im not relishing the 4 weeks of travel but needs must! What’s parking like there? Xx

Member

Re: Surgery May 2019

Hope all goes well for you Mel. Radiotherapy ok so far, worst bit is travel and waiting but all staff are lovely. Let us know how you get on at both appointments πŸ€—πŸ€—πŸ€—

Member

Re: Surgery May 2019

Hi - it’s 9.30 then seeing Mrs Chandran in the afternoon ! Busy day! Hope you are finding radiotherapy ok still xx

Member

Re: Surgery May 2019

What time is your ct planning appointment Mel? Sounds like they are moving things pretty fast xx

Member

Re: Surgery May 2019

I’m going for ct planning tomorrow and starting radiotherapy in 8/8. Having to cancel our holiday but can rearrange that xx

Member

Re: Surgery May 2019

Really pleased for you Mel xx

Member

Re: Surgery May 2019

Hi Mel . Glad to hear you’ve got treatment plan in place .  After all waiting finally getting somewhere. Delighted for you πŸ’•xxx

Member

Re: Surgery May 2019

Hi

 

Well oncologist was lovely. Have CT planning tomorrow and Rads starts 8/8. Been started to n tamoxifen too. 😊

Mel xx

Member

Re: Surgery May 2019

Good luck for today Mel. Hope you get to find out the next part of the treatment plan xx

Member

Re: Surgery May 2019

Fantastic, it will be great for you to get back on track. Keep us posted

Julie xx


 

Member

Re: Surgery May 2019

Hi. Hope everyone is enjoying the sun.

I had a call today to see the oncologist tomorrow. Hoping that means I will soon start radiotherapy and hormone therapy.

Hugs Mel x

Member

Re: Surgery May 2019

Thankyou ladies 😊

Im sure radiotherapy and hormone therapy will be the next thing. Can’t wait to crack on now and resume some normality!

Have a good weekend everyone 😁😘❀️

Member

Re: Surgery May 2019

That’s fantastic news Mel. I’m so pleased for you 😁❀️ Will you need to have Radiotherapy? Have an amazing weekend? πŸ€—πŸ€—πŸ€—

Member

Re: Surgery May 2019

Oh Mel that’s the best news , at last . You enjoy your weekend ❀️Xxx

Member

Re: Surgery May 2019

Fantastic news Mel, onwards and upwards 

Julie xx

Member

Re: Surgery May 2019

Well I’ve just had the best news this evening! My BCN emailed at 9 to say my oncotype was 8 so therefore won’t need chemo! I’m so relieved and can finally see this rollercoaster ride coming to an end. 😊😊😊

Mel xx

Member

Re: Surgery May 2019

Hi

Pleased your rads has gone well 😊.

BCN rang today and confirmed that margins are clear - must be more than 2mm which they were waiting for clarity about. At least I know know I won’t be having more surgery. They are hopeful oncotype will be ready on Tuesday so fingers crossed will soon know what’s happening next.

hugs to everyone and thanks for listening πŸ₯°.

Mel xx

Member

Re: Surgery May 2019

Oh Mel

How frustrating for you. The clear margins is a good thing. Do you know what the measurements, or lack of mean?? The delayed results situation seems to have been going on for a long time at our hospital. It’s so difficult isn’t it! Understand why you feel the need to air your views. Take care and hope you get something more conclusive soon.

First 2 rads fine thank you πŸ€—πŸ€—πŸ€— xx

Member

Re: Surgery May 2019

Oh Mel you’ve been messed about . Hope you are ok and get some straight answers next week . Definitely make that complaint as you say it’s the next person as well . But you have to think of yourself now . You just want that treatment plan so you can get it started . Sending hugs Jackie πŸ’•πŸ’•

Member

Re: Surgery May 2019

Thanks ladies.

I spoke to my BCN yesterday. Results are back but not clear. Says margins clear but no measurements so wanting to clarify this. Still waiting on oncotype. I’m not usually someone who complains but in this instance I am. I think the wait is unacceptable and unfair. I can’t fault the care received  from surgeon etc. My BCN agrees and says she knows if 2 other ladies who have complained too. It won’t improve my situation but may make a difference for other ladies in the future.

 

DiKat, hope your first rads went well. 😊

Hope everyone else is ok.

lots of love

Mel xx

Member

Re: Surgery May 2019

Hope you get a reply soon Mel, sending you hugs xx

Member

Re: Surgery May 2019

So sorry to hear this Mel, must be awful for you, 5 weeks is way too long. I really hope you get a response from BCN and it gets chased up. It’s awful being in limbo like this. Sending you πŸ€—.

Yes, start rads today....will be setting off for Hull shortly 😘

Member

Re: Surgery May 2019

Hi Jackie - I’ve emailed my BCN to see if she’s heard anything. I feel in complete limbo 😒.

Mel xx

Member

Re: Surgery May 2019

Aww Mel that’s awful. What’s delay . When are they letting you know . I really feel for you it’s not good enough. Sending hugs Jackie ❀️Xxx

Member

Re: Surgery May 2019

Hi DiKat

5 weeks on and still no results. I feel completely abandoned and think this wait is now unacceptable.

Hope you are ok - are you starting rads tomorrow?

Mel xx 

Member

Re: Surgery May 2019

You heard anything Mel?

Sending hugs πŸ€— xx

Member

Re: Surgery May 2019

I really feel for you Mel. Fingers crossed you get the results this week.

Lots of hugs

Julie xx

Member

Re: Surgery May 2019

Hi

Im not bad. Physically recovered from op but just feel in a bit of an emotional rollercoaster waiting fir results. I’m keeping everything crossed that they are ready this week 🀞

Mel xx

Member

Re: Surgery May 2019

Hi Mel, how are you holding up. 

Julie xx

Member

Re: Surgery May 2019

Sorry to hear you’ve still not got your results Mel. Hope you have recovered from this last lot of surgery xx

Member

Re: Surgery May 2019

That is so frustrating, was really hoping you’d get your results tomorrow. I’m doing ok, start radiotherapy on Thursday.

Lots of hugs to you

Julie xx

Member

Re: Surgery May 2019

Hi Julie

Unfortunately no date for results yet. It’s immensely frustrating.

Hope you are doing ok xx

Member

Re: Surgery May 2019

Hi Mel, will you be getting your results tomorrow. Hope they’re not delayed again and they managed to get clear margins

Julie xx 

Member

Re: Surgery May 2019

Thankyou ladies.

Hope everyone is doing ok xx

Member

Re: Surgery May 2019

Hi Mel hope you get results this week πŸ’• Jackie xxx

Member

Re: Surgery May 2019

Linda

Hope your stitch gets sorted and doesn’t cause you any problems.

Kaytee

Good luck for Tuesday!

Mel

Everything crossed that your results come through.

I start my Radiotherapy on the 18th July. Feels strange to think this has all been going on since November xx

Member

Re: Surgery May 2019

Hi Kaytee

I wish you well for your chemo on Tuesday xx

Member

Re: Surgery May 2019

Hi Linda 

I to had a stitch that was poking out. The rest disappeared quite quickly but one only came out last week which was nearly 5 weeks! It did look crusty Smiley Frustrated but not infected so was told it would eventually come off and it did and is now pretty much healed. Smiley Happy  hope that makes you feel a bit better but if it does go red it might be best to get it checked :-)

Hi mel hope you get your results soon the waiting sucks! I have first chemo on Tuesday:-(

Member

Re: Surgery May 2019

So I have a stitch poking out and am getting nurse to see if it should come out on Wednesday as having a blood test but am getting worries now. Anyone got any advice. It has been there a while but more noticeable now and was red last weekend for a day but ok now.x

Member

Re: Surgery May 2019

Thank you all. Feels like I’m never going to move forward 😒

Member

Re: Surgery May 2019

Hi Mel sorry to hear no results yet . Horrible playing waiting game . Hope u get news soon .  Jackie xxx❀️

Member

Re: Surgery May 2019

Sorry to hear this Mel, so frustrating for you xx