Just wanted to pop back in and say hi to everybody.
It seems a long time since we all had our surgery back in may I hope everyone is doing well and has moved on with more treatments.
I've had chemotherapy and a now halfway through having radiotherapy.
I wanted to say how helpful i found your support during the start of this horrible journey.
Best wishes everyone x
Sorry to hear you developed a cyst on top of everything else! Hope having it drained as eased the discomfort.
Ive just got back from a lovely break at my favourite place, the big cat sanctuary in Kent. It was great and didn’t think once about my diagnosis.
I ended up back at breast unit yesterday. I had an appointment because I’d been in touch with BCN 2 wks previously telling her I’d developed pain in my breast and underarm 7/8 weeks after surgery. I saw a different consultant who examined me and a scan revealed I had a cyst which was drained. Feel like it’s never ending😔 Good Luck with the rads Mel xx
Appointment with Mrs Chandran went well. Don’t need to see her for another year now 😊.
Hope your radiotherapy goes well today xx
Planing appointment went well and was quicker than expected!
i managed to park outside queens centre today but was very busy. We bought a parking pass and got the bridge tickets too.
Mine are all around mid day so not too bad xx
I bought a parking pass Mel. It’s £20 for the month. The parking is free in front of the Queens Centre but is often very full depending on what time you go. My appointments are all around 5pm so have managed to get a space 3 out of the 4 days but having the pass takes away some of the stress because I know I can easily park nearby if full. You get your bridge tickets for free xx
Hope all goes well for you Mel. Radiotherapy ok so far, worst bit is travel and waiting but all staff are lovely. Let us know how you get on at both appointments 🤗🤗🤗
Hi - it’s 9.30 then seeing Mrs Chandran in the afternoon ! Busy day! Hope you are finding radiotherapy ok still xx
I’m going for ct planning tomorrow and starting radiotherapy in 8/8. Having to cancel our holiday but can rearrange that xx
Hi Mel . Glad to hear you’ve got treatment plan in place . After all waiting finally getting somewhere. Delighted for you 💕xxx
Well oncologist was lovely. Have CT planning tomorrow and Rads starts 8/8. Been started to n tamoxifen too. 😊
Hi. Hope everyone is enjoying the sun.
I had a call today to see the oncologist tomorrow. Hoping that means I will soon start radiotherapy and hormone therapy.
Hugs Mel x
Thankyou ladies 😊
Im sure radiotherapy and hormone therapy will be the next thing. Can’t wait to crack on now and resume some normality!
Have a good weekend everyone 😁😘❤️
That’s fantastic news Mel. I’m so pleased for you 😁❤️ Will you need to have Radiotherapy? Have an amazing weekend? 🤗🤗🤗
Well I’ve just had the best news this evening! My BCN emailed at 9 to say my oncotype was 8 so therefore won’t need chemo! I’m so relieved and can finally see this rollercoaster ride coming to an end. 😊😊😊
Pleased your rads has gone well 😊.
BCN rang today and confirmed that margins are clear - must be more than 2mm which they were waiting for clarity about. At least I know know I won’t be having more surgery. They are hopeful oncotype will be ready on Tuesday so fingers crossed will soon know what’s happening next.
hugs to everyone and thanks for listening 🥰.
How frustrating for you. The clear margins is a good thing. Do you know what the measurements, or lack of mean?? The delayed results situation seems to have been going on for a long time at our hospital. It’s so difficult isn’t it! Understand why you feel the need to air your views. Take care and hope you get something more conclusive soon.
First 2 rads fine thank you 🤗🤗🤗 xx
Oh Mel you’ve been messed about . Hope you are ok and get some straight answers next week . Definitely make that complaint as you say it’s the next person as well . But you have to think of yourself now . You just want that treatment plan so you can get it started . Sending hugs Jackie 💕💕
I spoke to my BCN yesterday. Results are back but not clear. Says margins clear but no measurements so wanting to clarify this. Still waiting on oncotype. I’m not usually someone who complains but in this instance I am. I think the wait is unacceptable and unfair. I can’t fault the care received from surgeon etc. My BCN agrees and says she knows if 2 other ladies who have complained too. It won’t improve my situation but may make a difference for other ladies in the future.
DiKat, hope your first rads went well. 😊
Hope everyone else is ok.
lots of love
So sorry to hear this Mel, must be awful for you, 5 weeks is way too long. I really hope you get a response from BCN and it gets chased up. It’s awful being in limbo like this. Sending you 🤗.
Yes, start rads today....will be setting off for Hull shortly 😘
Aww Mel that’s awful. What’s delay . When are they letting you know . I really feel for you it’s not good enough. Sending hugs Jackie ❤️Xxx
5 weeks on and still no results. I feel completely abandoned and think this wait is now unacceptable.
Hope you are ok - are you starting rads tomorrow?
Im not bad. Physically recovered from op but just feel in a bit of an emotional rollercoaster waiting fir results. I’m keeping everything crossed that they are ready this week 🤞
That is so frustrating, was really hoping you’d get your results tomorrow. I’m doing ok, start radiotherapy on Thursday.
Lots of hugs to you
Hi Mel, will you be getting your results tomorrow. Hope they’re not delayed again and they managed to get clear margins
Hope your stitch gets sorted and doesn’t cause you any problems.
Good luck for Tuesday!
Everything crossed that your results come through.
I start my Radiotherapy on the 18th July. Feels strange to think this has all been going on since November xx
I to had a stitch that was poking out. The rest disappeared quite quickly but one only came out last week which was nearly 5 weeks! It did look crusty but not infected so was told it would eventually come off and it did and is now pretty much healed. hope that makes you feel a bit better but if it does go red it might be best to get it checked :-)
Hi mel hope you get your results soon the waiting sucks! I have first chemo on Tuesday:-(
So I have a stitch poking out and am getting nurse to see if it should come out on Wednesday as having a blood test but am getting worries now. Anyone got any advice. It has been there a while but more noticeable now and was red last weekend for a day but ok now.x