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Surgery May 2019

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Re: Surgery May 2019

Oh Mel, how frustrating xx

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Re: Surgery May 2019

Just had the call, results not ready. The waiting game continues.

xx

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Re: Surgery May 2019

Thanks DiKat - I’m expecting a call! 

Will let you know xx

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Re: Surgery May 2019

Wishing you a speedy recovery. Take care 💕. Jackie xx

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Re: Surgery May 2019

Wishing you a good recovery from your op Louann. Take care xx

Fingers crossed results are back for tomorrow Mel. Guess you will get a phone call today if not xx

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Re: Surgery May 2019

Pleased you’re home now recovering. Take care xx

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Re: Surgery May 2019

Glad you’re home.Hope you’re recovery goes well xx

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Re: Surgery May 2019

Well I had my op yesterday afternoon, I was home by 7pm. Very sore and tired but at least I’m on the right road now. It’s been a long time since being diagnosed. Xx

Hope you lovely ladies are all doing well xxx

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Re: Surgery May 2019

 Good luck hope all goes well today . You’re home recovering tonight 💕 Jackie xx

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Re: Surgery May 2019

Hi Louann

wishing you well for surgery. It will soon be done and you’ll be at home.

Pleased you had a fab holiday.

Mel xx

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Re: Surgery May 2019

Hi Kaytee

hope all goes well for you at your appointment tomorrow xx


@Kaytee wrote:

Hi ladies

Hi Mel fingers crossed you get the results as planned on Wednesday so you can move to the next stage of treatment. 

Hi jewels994 and dikat hope your radiotherapy goes well with not too many side effects.

I have first meeting tomorrow with the chemo team to discuss my treatment plan.  Not looking forward to starting chemo but sooner i start the sooner it will finish !

Best wishes everyone x


 

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Re: Surgery May 2019

Good luck Louann xx

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Re: Surgery May 2019

Good luck for tomorrow, hope all goes well xx


@Louann wrote:

I’m due to have my lumpectomy tomorrow that was cancelled on the 8th May. I really hope it goes a head this time.

It would have been earlier but we’ve been on a lovely two weeks holiday in Gran Canaria.

It’s now to get this thing out of me. I’m feeling a little nervous but looking forward to this bit being over with. X


 

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Re: Surgery May 2019

I’m due to have my lumpectomy tomorrow that was cancelled on the 8th May. I really hope it goes a head this time.

It would have been earlier but we’ve been on a lovely two weeks holiday in Gran Canaria.

It’s now to get this thing out of me. I’m feeling a little nervous but looking forward to this bit being over with. X

Member

Re: Surgery May 2019

Hi Kaytee

I hope your appointment goes well. As you say th sooner you start, the sooner it’s out of the way. 

Let us know how it goes 

Mel xx

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Re: Surgery May 2019

Hi Kaytee

Good luck with your meeting tomorrow. Once you get started on the chemo it feels good to start getting them ticked off. I had 6 in total which does seem to be the norm across the board but have noticed that some ladies have 8. Keep us posted xx

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Re: Surgery May 2019

Hi Susie B

Definitely mixed emotions regarding your surgery. Pleased that your margins were clear though. Bet it’s frustrating having to wait to see if you are Her2+ or trip neg. I assumed you would find out straight away! 

Hope you continue to heal well from your surgery and at least all of those lymph nodes are gone now.

Take care xx

 

Member

Re: Surgery May 2019

Hi everyone 

 

Just to update you on my post surgery appointment with my surgeon which I had last Thursday. It was rather a mixed bag, as you may have read DiKat as I know you pop into our Feb group. On the positive side my lump was removed with good magins, so no more surgery☺. What did shock me was to be told that of my 14 nodes that were removed 9 were positive😨. As I am on a trial I was prepared to be told maybe 2 or 3 were positive as there was no guarantee that the 4 rounds of FEC would clear everything, and that I would then have 4 rounds of CT after surgery to finish the job. Also I still don't know if I am triple neg or HER2 positive so my samples have been sent elsewhere for further tests. The surgeon did say it was highly probable the results would come back as negative, something else I didn't want to hear. So next steps at the moment are CT scan on the 9th July, chemo then rads. Talking of which DiKat your rads doc does seem strict, I don't think anyone in the Feb group has been told not to do most of the things you mentioned. Right as far as post surgery healing the wounds are healing nicely. The swelling from the ANC is quite large now. The nurse did offer to drain it on Thursday but I just wanted to get dressed and go home as I think I was in shock. Anyway I'm going to phone my bc nurse tomorrow to ask about getting it drained. It's fairly soft so is not affecting my wounds but does need draining as it's beginning to look more like a tennis ball then a golf ball.

Take everyone. xx  

Member

Re: Surgery May 2019

Hi ladies

Hi Mel fingers crossed you get the results as planned on Wednesday so you can move to the next stage of treatment. 

Hi jewels994 and dikat hope your radiotherapy goes well with not too many side effects.

I have first meeting tomorrow with the chemo team to discuss my treatment plan.  Not looking forward to starting chemo but sooner i start the sooner it will finish !

Best wishes everyone x

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Re: Surgery May 2019

Hi Jewels

Yes you’re right about not using the cream before a morning appointment. The rads doc told me nothing on the skin beforehand. He was extremely strict, said no baths from start of treatment, no shower gel or deodorant even though I’m not having armpit zapped, no swimming, spa’s Etc. And to continue this for 3 months. I haven’t read anywhere about anyone else about being this strict. I will use common sense. Can’t see a problem with having a bath if it’s shallow and don’t immerse chest area. I don’t use bubble bath anyway as have quite sensitive skin! Oh and he also said no herbal teas, supplements or change in diet to increase antioxidants as in addition to strengthening good cells it would strengthen cancer cells and reduce effectiveness of radiotherapy. It’s all a mine field xx

Member

Re: Surgery May 2019

It is amazing how much the advice given differs. I was told simple shower gel and when I said I’d bought some E45 I was told that was great as could be used before as well, but other people have said there’s no way it should be used before. As my appointments are all in the morning I think I’ll just put it on afterwards

Member

Re: Surgery May 2019

Hi Julie

Im left side too. Was told they will decide after planning appointment if I have to hold breath. Good luck for the 11th x

Hi Jac67 

Good to hear you are over half way through and doing ok. I’ve been amazed at how the advice differs. I’ve been told E45 or something similar only, definitely no aloe Vera! X

Member

Re: Surgery May 2019

Hi Jewels you’ll be keen to get started radiotherapy.,I’m on 8 of 15 . So far ok . Bit pink . Good luck 💕

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Re: Surgery May 2019

I had my planning appointment last week, less than a week after I saw the radiotherapy doctor. They had the list of dates ready for me and I start on 11th July. Mine works out at just over 8 weeks post op.

planning appointment was fine, I had to do breath holding as I’m left side. Good luck with it xx


@DiKat wrote:

Hi Julie

Radiotherapy doc was lovely, very informative but very strict with do’s and dont’s! 

No start date as yet as now need to wait for ct planning appointment. Looks like it’s going to be another 2-3 wks before I get started which will put me 9 weeks post op. I need 20 sessions in total, having extra 5 boost as was stage 3 xx

Mel, I really hope your results come back. Barbara rang me on the Monday with mine so I have everything crossed for you 🤞 xx


 

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Re: Surgery May 2019

Hi Dikat . How did your radiotherapy appointment go xxx💕

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Re: Surgery May 2019

Oh surely not again ! Fingers crossed you get them and get on with treatment plan . ❤️

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Re: Surgery May 2019

Hi Julie

Radiotherapy doc was lovely, very informative but very strict with do’s and dont’s! 

No start date as yet as now need to wait for ct planning appointment. Looks like it’s going to be another 2-3 wks before I get started which will put me 9 weeks post op. I need 20 sessions in total, having extra 5 boost as was stage 3 xx

Mel, I really hope your results come back. Barbara rang me on the Monday with mine so I have everything crossed for you 🤞 xx

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Re: Surgery May 2019

Fingers crossed 🤞 they’re ready on Wednesday Mel xx

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Re: Surgery May 2019

Hi

Have appointment for Wednesday but expecting it to be rearranged like last time. Results weren’t ready yesterday.

Hipe you are doing ok?

DiKat, hope your appointment went well.

Love to everyone xxx

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Re: Surgery May 2019

Hi Mel any news on your results yet . Hope you are ok . Xx💕

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Re: Surgery May 2019

 

Hi Dikat, how did your radiotherapy appointment go. Have you got a start date yet

 

Julie xx

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Re: Surgery May 2019

Hi Linda

Maybe the 1.86 is more normal for you. I think as long as they are above 1.5 it’s probably not too much of an issue as that’s all they needed to be for chemo. Hope you get your thumb sorted. I also feel like I’m falling apart in places 🤪 x

Member

Re: Surgery May 2019

Didcat strangely they were only wbc 3.75 and neuts were 1.86 before chemo so too low although once during chemo they went up to 4.38 and 3.92. O well i am going to mention it at my docs appointment today re my trigger thumb which clicks in the middle since starting the hormone treatment and the surgeon said i should see a finger specialist in case it gets worse.i do have alot of joints that click now though and I have Osteopenia so take calcium for that. I think my body is packing up.i always thought i had a good immune system as hardly ever get ill! Lol.x

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Re: Surgery May 2019

Fingers crossed they are on the up for you Linda. I wonder how much they fluctuate. Before my chemo my wbc was 7.7 and neuts 5.10....guessing it will be a while before they reach those kind of levels.

Take care xx

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Re: Surgery May 2019

Did cat my neuts are also 1.86 on 9th May and should be 2. My white blood cells are 3.3 and should be 4. My chemo finished in September. They are higher than they were in October though.x

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Re: Surgery May 2019

I have Barbara. She’s great! 

I will let you know how it goes on Friday. Hope your results come through soon and you can start moving forward with what’s next xx

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Re: Surgery May 2019

Hi, yes I have Rachel - who is really kind and helpful too. I’ve met Barbara too. How about you?

Ill be a interested to hear how it goes on Friday for when I eventually go!

xx

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Re: Surgery May 2019

Yes, have got my first appointment through for this Friday so hopefully will find out what’s what. How lovely of Mrs Chandran ❤️ Do you have a Macmillan nurse at Grimsby? Xx

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Re: Surgery May 2019

Hi DiKat!

well, what were the odds of that! 😊. Yes we would have been on the same day!

Mrs Chandran is one of the nicest, empathetic consultants I’ve ever met. She held my hand both times when they put me to sleep.

I guess you’ll be at castle hill then for radio?

xx

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Re: Surgery May 2019

Mrs Chandran 😊

I liked her instantly too. Had trust in her and find her very reassuring. If my op hadn’t been delayed a week for me to get over chemo we would have been on the day unit at the same time xxx

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Re: Surgery May 2019

Hi DiKat

What a small world! Had surgery at Grimsby as really liked Mrs Chandran 😊.

Who did your surgery?

Mel xx

 

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Re: Surgery May 2019

Hi Mel

Just seen one of your other posts, didn’t realise you were in Scunthorpe. Is that where you had surgery? I’m in Cleethorpes xx

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Re: Surgery May 2019

Hi Linda

Just wondered what level your neuts were when you had last blood test and how long after your last chemo the blood test was. I am having 3 weekly targeted therapy IV infusions and my neuts were 1.86 this time. I thought they would be higher than this by now....last chemo was 10th April xx

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Re: Surgery May 2019

Hi Linda Corinne

Yes, I had 4 FEC. Under ROSCO trial I was randomised so I could have been given either FEC or TC to start with. If the first didn't get desired results the it would have been 4 rounds of what I hadn't had, all prior to surgery. I started off at Taunton, I think I ended up there because I have a TA post code - I live in Martock. It wasn't until I asked where the chemo would take place that I realised I perhaps should have been referred to Yeovil. As for the trial I almost didn't volunteer as they seemed very pushy. My hubby even called them the ROSCO sales reps. Any way Yeovil was completely different and I felt it was my decision to do the trial. Now awaiting results then I may have an idea of what I am dealing with as I am currently HER2 positive/negative inconclusive. It's good to know you were ok with T as everyone within the Feb 19 have lots of problems on it. As for recurrence, that is often in my thoughts too and I'm part way through treatment. I'll update more on this thread when I know more. Take care. Susie B xxx   

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Re: Surgery May 2019

Hi Susieb,

I did 3 fec but was due to have 4 and told that may be all I needed but my surgeon said I would need to have more than 4 when I saw him after the first FEC. I actually found T better than FEC and only had 1 day off work when having it. So did you have 4 FEC as that sounds different to what I was doing?

I was at Taunton too. I had rads and am on Leyrozole now and had mammoplasty/mastopexy or a lift on good boob in May to match the therepeutic mammoplasty on the bad boob. I am fine now apart from the reoccurrence thoughts but am trying to just get on with things. I have trigger thumb so need to see a hand specialist and my white blood cells and neuts are still low so am having another blood test in July.x

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Re: Surgery May 2019

Hi Linda Corinne

Thanks for your reply. Sorry to hear the first 4 rounds of chemo didn't quite work to the surgeon's satisfaction. I was lucky in that I was randomised to start on FEC and it did it's job shrinking my Gremlin from  21mm to 6mm. I'm glad it worked as from what I now understand T is pretty brutal and 4 rounds of that may have been a step too far, the C I could cope with. I now have to wait for the pathology results to see if the FEC killed all the cancer or not. If it did, as you probably know, it'll be 2 more rounds of FEC, if not then  the dreaded TC☹. Where did you have your treatment? I was originally referred to Taunton after my 3 yearly mammogram, then transferred across to Yeovil, at my request as that is my nearest hospital. How are things with you now and are you having or had any other treatment.?   xx 

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Re: Surgery May 2019

Susieb I am in Somerset and started on the Rosco trial last May 2018. I decided not to stay on it though as I got a second opinion on the surgery and my surgeon wanted me to have all the chemo before the op. I did meet someone else on my thread on it too and others at LGFB. 

x

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Re: Surgery May 2019

Good luck with the RT Jac67. Will be done before you know it. I’ve got an appointment with RT consultant Fri 28th so will hopefully be moving forward with this soon xx

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Re: Surgery May 2019

Have a great few days away and enjoy the concert Kaytee 🤗💕

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Re: Surgery May 2019

Started yesterday. Met few lovely ladies. Was absolutely fine . Hope you get news soon xx💕