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Surgery to take away lymph nodes and clear margins

64 REPLIES 64
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi again Pauline, flower

 

Oooooo, I'm so glad your daughters doing well.

Am also pleased you got your cording sorted and are also now letting your own hair down! or show without wig. How lovely for you to be so recognised, regarded on your sons 30th. You must have felt so touched and chuffed.

One of my arms, the underside of the upper form armpit, has remained permanently numb from 1st mast and ANC 2006, but only slightly, just a bit weird. Thumb and two next fingers to, have reduced touch sensation, but not much of a prob though.

Awww, your poor friend. Stll she's nearly there, and is lucky to have you supporting and cheering her on. Glad you've had support elsewhere. Didn't know if you'd tried a few other threads on here.

Good luck on the viewing tomorrow

 

Lotsa love Pauly xxxx

Love to everyone else too xxxx

 

Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

Hi

I forgot to say I rang the bell 2 weeks ago after I finished my radiotherapy. Hodp said I had to ring it to mark end of my cancer treatment although herceptin now end October, I'm there 1pm today in Halifax.

My daughter is 26 and doing ok thanks.

I've not been on here for ages as I found I wasn't getting much back when I came on so I stayed off for a while. I've been chatted on Breasr Care Buddies on Facebook its a closed group.

Went to my son's surprise 30th Birthday on 23rd March and took my wig off halfway through the night and everybody cheered was so uplifting. I dint wear my wig anymore... 💪 I'm going having my hair coloured at teatime 😁

Cording eventually got sorted by my amazing physiotherapy guy.. Jesus that was awful & very painful, you put yourself through so much stuff to get cording afterwards 😡😠

Sue my friend has 1 chemo left and she's been so very poorly all the way through her treatment. She's been on morphine for pain and spent most of time in hospital. She doesn't want her last chemo but I've told her can't risk one dot of cancer cell being left in her body and she's put over 2 atone in weight on due to steroids... She's not happy. She doesn't have to have radiotherapy lucky for her.

My rads have left me with tight chest and I've got a darker boob than the other. My arm underneath is still numb and I have a dull heavy ache in my lumpectomy area but I deal. Doing gym help and swimming really helps.

2 offers in house but not sold their own or other buyers need to sell. We have another viewer lined up tomorrow.

Oncologist told me out of ROSCO Trial 2 ladies passed the full trial with full pathological response and little old ME was the 2nd person 💪💪💪

I'm hapoy knowing that at some in the future somebody similar to me will get targeted treatment like mine.

Busy today we've just got another viewing request so 2 people coming tomorrow 🤞

Love & hugs
Pauline xx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hey You, 

 

No wonder I had trouble recognising you - longer hair, and running or swimming out of the posts!! Corr, I know you've loads more s**it to go through yet Pauly, but jeez, how far you've come!! Just since my last visit here. You're 1/2 way to the "Wonderwoman" award!! Plus back to work Smiley Surprised, Another corr, what?!! Heart 

Btw - Did your cording eventually get sorted?

Aww ffffflip, on the house biz. Perhaps the house you lost out on wasn't actually right for you?! I'm a great believer in fate, I'm afraid. Believe certain things happen for a reason - not BC though! Which tips the whole fate biz A over T really, dunnit?! Hope you're own sale "holds" until you find another. Fingers crossed for you and hubs, darlin.

You tried Aloe Vera gel for your sore boob? 

More FFFFFlips - Your daughter? What? Crikey. Is she doing okay? I hope so. How old would she be?

 

Yeh, missed you too. Am not great, but thank you sooo much for asking. Seldom come on here at the mo, which is pretty alien for me, considering it used to be one of my sanctuaries, and solaces. Has always helped ground me, keep me in reality with what others are having to go through. "Giving" also helps me. 

 

Am madly impressed with yer. Much luvvo xxx

 

Where's everyone else gone? Hope you're all doing okay too xxx 

  

Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Delly

I'm doing ok thanks.

I've finished the horrible radiotherapy and my boob is looking ok but bit darker but soreness has eased off it had been awful.

Hair has grown loads 😁😁 I'm going back to work on phased return in Monday for some normality.

We've again sold our house but lost the lovely one we found.. . So upsetting.

Had oncology appt yesterday on more meds now to help prevent me ever getting bone cancer which is s joke. Letrozole side effects awful on my joints. I'm back at gym and now swimming.

I'm currently at my brothers just taking kids for a swim. My daughter has been in hospital emergency surgery on her ovaries pretty grim 😔

How you doing? Missed you.

Love
Pauline xx

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hey Pauly

How goes it with/for you? You doing okay with everything?
Much luvvo xxx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hey Pauline, and corrr, what a diff a few weeks of me not logging on can make with regards to your progress.

 

Can't believe you have to drive from Hali to Oldham for rads. Anyways, it's so good to hear you so upbeat, despite your chemo, treatment trecks and discomforts. Take my hat off to you, gal.

 

A very HAPPY BIRTHDAY to you for today Heart Heart, Heart. Hope you've had an extra special day.

Was your sons 30th last Fri or this coming Fri? Whichever, nice to glam up.

that's fffflippin brill on your Alan's (your hubby?) £1500 so far!!!!! - A m a z i n g in fact.

 

Much love to you and everyone else and thanks for your well wishes P

Dellywelly xxxxxx

Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

After brings my usual 3 weekly Herceptin in Halifax then a drive over to Oldham for my radiotherapy. After today's session I'll have 4 left as I finish on 28th March.

I've got one red boob which I've got to say has been painful and itchy and very swollen. Last night was awful I was in bed with a cold wet towel over my boob.. I now just want it over.

Hot flushes seem to have got worse nut can't see BCN till me t Thursday as she's on holiday.

So it my birthday on Sunday and option to wear wig or brave going out with my short Sinead O'Connor look. I go to the hospital without my hat on everybody knows me know so stuff if my head is on show.

Aiming to do phase return to work on 9th April and I'm going to try the gym from next week with just cycle and brisk walkkng initially. Made the mistake of trying to lift a tv last week, words can't describe the pain.. for a split second I just forgot.

During everything going on at the moment I'm in such a good head space, I'm definately not feeling sorry for myself and haven't for a few months. My mind is strong probably the strongest it's been since September. Alan's doing well on his donations for just giving for Mcr 10k run for Macmillan he's got just under £1500 I'm so proud of him.

Still on physio cording has more or less gone but RT has seized up under my arm and part of my shoulder, so it's helping plus I'm doing new exercises.

My son is 30 on Friday so I'm putting on my gladrags for a party 😁

The chat in her seems to have died off since I changed my details I dint seem to see as many posts as I did.

Hope your all well including you Delly.

Love
Pauline x

Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

Hi

Day 4 of radiotherapy I 've tired with banging headache & my boob had swollen. Hospital said swelling is tissue around boob.

The End of a naff day I arrive hime from hospital feeling like I need to sleep & my hubby tells me our buyers have pulled out of our sale. I'm devasted I've spent half the night in tears angry, we were moving back to be nearer my family which is what I wanted so much to finish my treatment and start afresh near my loved ones.

It's not meant to be I'm gutted, I'd packed up most if the house before I had my operation as we were expecting to move within the next few weeks. So it's back on market & I'm very miserable 😔😢

Roll on 28th March to finish radiotherapy.

Hope your all well

Pauline x
Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

The feeling of a cord pinging urggghhh 😏

Your birthday is day after mine! My friend was showing a friend of hers my photo on Facebook with my Sinead O'Connor hair, my friend was telling her my story & when she saw my photo she said that's Pauline my chemo friend it's a small world.

My hair feels like baby lamb hair but my hair is naturally curly and all the back at the bottom is curly now 😂

Not sure about my birthday hair yet it depends if it's cold. My daughter's birthday on 14th March & my son is 23rd March and neither were planned I was told I'd never have kids and then two come along in March.

I'm drinking loads water I'm thirsty all the time even waking up in the night guzzling water. I'm going to try go back to the gym next week.

X
Ms Merton
Member

Re: Surgery to take away lymph nodes and clear margins

BTW happy birthday.  Mine is 26/03 so we are almost astrological twins. I would go without your wig!  Celebrate your new hair.  Have you got the “chemo perm” yet?  After 12 months, my hair is just starting to grow through not curly.  Now it comes down to about the bottom of my ears.  A bob is not that far away.  Ah chemo, it gives you a different perspective on life!  Hope your pain goes soon (does your physio snap your cords - ping!?). Take care.  Xx 

Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Pauline - I see you've had a banging headache today - remember to keep up drinking water - between 1-2 litres a day plus your usual drinks - it really does help.  Also, continue with water after treatment finishes.  I started to ease off too much and wasn't feeling great so I've upped it to 1-1.5 litres a day and feeling so much better for it.

Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

Hi

I'll be ringing the bell with my mother in law on 28th March... although I've still got herceptin until September.

Cording what can I say I never want this again, it's been horrendous painful. You know you go through all this treatment to end up with cording... 😠😡👎

X
Ms Merton
Member

Re: Surgery to take away lymph nodes and clear margins

MLD is Manual Lymphatic Drainage ie a special type of massage that aims to move lymph fluid around your body and stimulate your lymphatic system to work properly. You can see videos of it on YouTube and learn to do it to yourself to some extent. Dry brushing to move lymph fluid also recommended. There are some useful lymphoedema sites with info about these types of techniques. My consultant says exercise is really important for preventing lymphoedema.
Sorry to those with cording - it is ****** painful. It should go away in time though.
If you are on radio you are on the home strait and the finish line is hoving into view!
Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Delly

I'm not bad thanks still on killer physio for cording it's getting better, my armpit is numb but sore at the same time 😡 physio has managed to breakdown some of the cords but as I'm on radiotherapy I'm carrying on with physio until I've finished.

I've done 3rd RT today came home with banging headache & I don't totally feel myself. Boob quote pink this evening, but it bound to ease off later.

My hair looking good I've got a Sinead O'Connor look at the moment 🤣 went to hospital on Friday night with no hat on I felt quite liberated.

Although it's my birthday on 25th I'm debating could I actually go out without my wig on..

So how you all doing?

Love
Pauline x
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hellooooo Ladies
How are you all doing? and I don't know what MLD means either, Annig.
Pauly - How you doing since your change of nam?. How are your rads going?? and have you yet had any respite from your "cording" pains and complications??
Lots of love to everyone
Delly xxxxxx
Cancerbeater53
Member

Re: Surgery to take away lymph nodes and clear margins

Hi

I've had bad nerve pain as I've had cording now for 4 weeks. I've been having physio which is great but painfull at sane time. Today I can actually raise my arm over my head but still have so.e pain. I've had bad burning pain from armpit to wrist.

I'm due to start radiotherapy at 5pm today but looks like the snow won't let that happen.. annoying as I was up till 4am unable to sleep and there wasn't any s ow then! Very thick at 6.30am.

Hope your ok and have you sorted your arm pain?

Pauline x
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi all
Bizzylizzy - How are you doing following your node op? I'm not an artist, but am passionate about art, so I'm particularly interested to know how things are going for you. I hope like mad, you're work isn't hampered by all this afterwards and settles down without any restriction to it.
Annig, Mrs Merton - Hope you're both well too
Much love to everyone
Dely xxxxxx

Annig
Member

Re: Surgery to take away lymph nodes and clear margins

Hi all, 

Bizzylizzy - I had ANC on thursday after mastectomy 5 weeks ago, hope you are doing well.

Mrs Merton - I'm still getting used to abbreviations, what is MLD ?

Have learned so much from all you ladies, and still learning, hugs to all xxxx

Annig

 

Ms Merton
Member

Re: Surgery to take away lymph nodes and clear margins

Hi - sorry to hear you have to have this done.  It is worth it though because i know from experience that the chemo by itself isn’t enough to kill any tumours further up your lymph node system, so the op can save your life.  Ask your surgeon whether he is taking out up to level 1, 2 or 3.  Everyone has a different number of lymph nodes but the higher the level removed, the higher your risk of Lymphoedema.  After the operation you will have a lot of numbness and strange nerve sensations in your underarm and the back of your upper arm.  The back of my arm was numb for about 6 months but is ok now.  I also got, and sometimes still get, some strange sensations in my arm. After the operation i had cording which is like a string running down your arm - usually you can see the cord.  It is damaged lymph/venous vessel.  Sorry to tell you it is very painful but it usually goes after a few weeks/months and physio can help a lot.  Then you need to do all the exercises the hospital physio shows you to regain mobility.  Plus long-term you need to exercise your arm in the right way to reduce your risk of Lymphoedema.  I have a very slightly swollen patch above my elbow that I have had since the op and have also experienced slight swelling in my hand.  At the moment i use a sleeve when my arm is tired and for any risk activities such as flying and have MLD.  That seems to be keeping it all under control at the moment.  I know that all sounds scary but other than avoiding lifting heavy weights, i am using my arm completely normally and have a full range of movement and hopefully you will too.  But do stay on top of those exercises and ask for physio if you need it. 

BizzyLizzy
Member

Re: Surgery to take away lymph nodes and clear margins

I am due to have more nodes removed this Thursday 

Sentinal nodes showed cancer and they wish to take out more but I'm not sure how many.

i have a hood range of movement in my arm following a lumpectomy and there is a clear margin in the breast.

i am worried as I have nerve pain already in my arm pit and arm running down to my wrist - constant burning and stabbing pain and am concerned that if they take out more it will be unbearable.

I am left handed and an artist and the BC is in my left Breast and axillar and I can't even bear to think I may be limited by pain.

i have also got a form  of trigeminal nerve pain in my face on the right hand side which I have for 8years which is not treatable.

Dies anyone ekse have this nerve pain and what is it like to have more nodes removed ??? 

Thanks for any responses 

liz 

Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Moan away Pauline - it's good to get it out and know someone is listening. I had a situation today where I very nearly lost it.... over my herceptin and the fact the onc wants me to have another echo heart scan before next injection on 1 March! Getting someone to understand was a bl***y nightmare! Thankfully got there in the end! xx
Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Pauline - just to reassure you - what you are feeling is perfectly "normal" - not pleasant at all and only those of us who have been through the same procedure can fully understand.

However, with gentle stroking of the "guitar strings" and the correct exercises - you will find relief - but for better relief it won't be for at least 6/8 weeks following surgery.

Even now, 6 months from finishing chemo (I still suffer side effects from), 5 months following surgery and 2 months following radiotheraphy my chest wall is so tight, the ribs under MX site are painful and my underarm is completely numb and if I do too much or not enough exercise - the "orange under the arm" feel returns.  

However, I just feel thankful, bearing all this in mind, that I'm here.  Just wish others, as well as myself, wouldn't expect me to be "back to normal"!  xx

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Pauly
I'd get back in touch with whoever drained your underarm and go get it drained again. I had my seroma drained 3x before it stopped building up. Have you seen the breast physio yet? or are you still waiting on that? If so, think you're going to have to be a bit more firmly assertive, darlin', as you're struggling sooo much. Needs some specific stretching. Is the hospital far from you?
Lots of love, Delly xxxxxx
Acer1945
Member

Re: Surgery to take away lymph nodes and clear margins

Oh dear Pauline you are in a right mess is there anyone that can help and give you advice you must be in tottal agony when is it going to get easier for you  God only knows, I know you are doing correct exersizes but try very hard not to overdo them because thats as bad as doing none at all.

 

I hope you enjoyed your meal with Alan and seeing your friend 

 

You must be so bored and fed up with everything thats going on, are you all packed for your move so where are you moving to? 

 

where are yolu having your Radio T  but if your arm dont get right surely you will have a problem with the Radio so you really do need extra help to get your arm right I so feel for you Pauline 

Try to keep your chin up Big Hugs xx

Mum xx

Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Also, should add, you will need to continue to do all the breast exercises once doing rads - as rads makes everything stiffen up again - in fact, I'm still suffering discomfort from them now and they finished on 19 Dec!!
Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Pauline - it's very early days for you!

I had mx and 17 lymph nodes removed on 19th September last year. It took 8 weeks before I was able to lift my hands above my head without discomfort! I didn't start the 15 rads until 30 November.

For rads you need to be able to clasp your hands together and then extend them above your head in a straight line.

Cording is painful but it does get better just takes lots of time. The exercise where you walk up the wall with your hands is one of the best - persevere with pain - but don't overdo it. Another good exercise is to place your hands on the wall at chest height and lean forwards to the wall until you feel pressure.

I used to do the exercises 3 times at day - breakfast, lunch and dinner - it does take time though.

Good luck x
Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Pauline - when did you have your surgery? x
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Morning girlies

 

Hi Jay - Yeh, it must be a pain all these appointments, but good that they're keeping a close eye on everything for you. Heartwise and everything.

Hi Pauly - Pleased to hear you've been drained and more comfey from. Thank goodness you're now having your arm difficulties addressed. I'm sure some good physio and corrective exercises will get it sorted. It certainly did mine, but we aren't all the same. Fingers crossed for you

Lotsa love

Delly xxxxxxx 

Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Delly

Thank you for asking. On checking my latest echo scan result she decided I need to take heart meds as herceptin is affecting my heart. It's not too bad but she doesn't want it getting any worse. I've got to go Drs once a week for next 2/3 weeks for blood pressure checks and have another heart scan just before my next herceptin injection which is booked for 1 March. So just when you think no hospital or appointments for 3 weeks - WHAM something else crops up.... ergh! I don't mean to sound ungrateful as I know this is all for my own good but really it does get you down....

Anyhow, upwards and onwards.... I will get to the end of this journey.... x
Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Oh Pauly - it's horrid! Don't panic - I had cording too. My BCN gave me advice over the phone and I'm happy to pass that on. She basically said using some E45 gently stroke inside of your arm from wrist to elbow (no rubbing or backward/forward movement) one direction only - about 5 times, then holding arm outwards continue from elbow to armpit again one direction (with light strokes) then from armpit down the side of torso - in one direction downwards and from collarbone downwards - just gentle strokes and about 5 times for each area. It doesn't feel like anything is working but after a few days you will notice a difference - another way is to cross your arms across your chest and gently lift your elbows upwards - don't push too far but that opens up the drainage routes.

Good luck for tomorrow x
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Girls
Well done Jay68. How did you go on with your onc check-up?
Hi Pauly - I'm surprised you having to have rads at Christies. That's going to be a long daily treck for you!! Yeh, it does sound like it may be cording. Hope you get help with on Thursday.
Lots of love to everyone
Doolally xxxxxx
Jay68
Member

Re: Surgery to take away lymph nodes and clear margins

Well done Pauline... without Breast Cancer - the results are fantastic and arn't those words just amazing to hear and see in print! I wasn't on the trial; I had 3xEC and 4xD(+H+P) - followed by mx and complete lymph removal 17 - pathology report was same as yours cancer free! I'll never forgot those words.... - I had rads in Dec and although a breeze compared to chemo still come with se's - hope you find the same. Today, 8 weeks since finishing rads I'm back to see onc for post rads check up - and I'm still on herceptin injections.

Good luck, for the future xx
Hufflepuff
Member

Re: Surgery to take away lymph nodes and clear margins

Pauline,

 

This is fantastic news, I am so pleased for you! Keep taking it easy, you have been through a lot. Once you start radiotherapy (usually about 6 weeks post-op) time will fly by. You should think of something lovely to do!

 

Best wishes xx

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Corr Pauly, that's all sounding bloomin fandabidozee, lovey. What are we popping to celebrate. I'm so ffflippin pleased for you.
Loads of love
Dellywelly xxxxxx
girly888
Member

Re: Surgery to take away lymph nodes and clear margins

Dear Pauline (without breast cancer Smiley Happy)

am so pleased to read your good news, 

girly  x

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi BizzyLizzy
Glad to hear from you and that you're doing okay, though naturally sore. That sounds nasty on the migraine! As if it's not bad enough just having surgery 😞 Wishing you a speedy recovery.

I'm okay, thanks lovey. Struggle with depression, so called Bi-Polar. xxxxxxx

BizzyLizzy
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Delly 

had surgery yesterday spent one eve in hospital as low blood pressure and also had a very bad migraine - hemiplegic Migraine where lost strength in my left arm and speech slurred but had one before so knew it would wear off.

home now - 2 nodes taken out and waiting for results which I get next Friday 

how are you doing ??? 

Im very sore and bruised but feel ok mentally just tired 

 

thanks for asking 

liz 

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Good Morning everyone

Good Morning Pauly

Well no, I didn't see you before, but think you look pretty darn A okay woman in your posted photo. Love the hair style you have, or was it had? I don't mean to sound insensitive, but from what you said about your friend coming over and going "topless", headwise!!, that you've lost much of your hair? Awwwww, lovey. And Yeh, believe you me, don't I just know how lucky I was not to need chemo or rads. Had a big spontaneous "No chemo required" party to celebrate after 1st mast and ANC!! But, I did lose both boobs and all nodes, so still traumatic, losing the second one espesh. Knock on effect to my personal body confidence, still being a single woman. But the massive advances in recon techniques since my time 2006/07, fortunately, help women a lot more these days, which is great. 

I did have some cording with 1st arm, but luckily had physio tutor neighbour, who gave me some extra stretching exercises to do, which I really worked at and sorted it. But I could have contacted my BCN to arrange to see breast physio. So do, won't you if you start with. 

Crikey, I don't envy you on the house packing up front. But great to hear of an impending sale of your house though. Are you directly "buying" yourself, or will you be renting for a while.

How many childrem do you have?

Yeh, that's fine on pm'ing me. I'm intrigued to hear all about the BC Pauline biz!! Smiley Wink

Hope you have a good day today.

 

Hope anyone/everyone else has a good day too

Loadsa love, Dellypoos xxxxxxxx  

delly
Member

Re: Surgery to take away lymph nodes and clear margins

You there BizzyLizzy???

Have you had your surgery yet? If so, how are you doing. You were on here 31/01.

Let us know where you're up to, if you feel up to it.

CK's had great results from her Jan op. Clear margins and 18 lymph nodes unaffected. Onc apptment 14th to be told when rads (? start

Lotsa love to everyone

Delly xxxxxxx

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Pauly

I'm just being caring and supportive, chummy. It comes naturally and it's free!! But I have to graciously thank you for the compliment tho'.

As you're leaking, what type of dressing have you got on your drain site (charming description!)? and is it still leaking today? If so, ask them if they could give you a waterproof plastic foam one, if you haven't already.

Awwww. lovey, you sound well peed off. There's nothing bad about talking about it. Cancer's never gonna be a convenience. No never gonna be a breeze, and Yes, it's an effin inconvenience. And, it will carry on being for a while. But . . it will start to get better. Might be  s s s l o w w l l y, so try and be patient with your body and self.

Who's calling you Pauline with breast cancer??

You let out whatever you want and need to on here, lovey. This is your place - your space. Rant, moan, groan,have a sob  - wo'eva babe! 

I'm not much help on the chemo info wise/treatment wise, never having had it. Doesn't stop me symapathising though. Did you have any previous contact with any of the chemo threads on the Forum Pauline??    

I don't remember you having a name photo before. Have just had a look at you and waved! I like your necklace - is it a tree of life?

Lotsa love, Dellywelly xxxxxx  

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hey Pauly flower,

Yeh, ain't having that drain tube out a weird dragging feeling?! Please don't worry about lymphoedema at this point, but has to always be a consideration for the future, ref bloods, cannulas, blood pressure cuffs, bites, grazes, cuts, sunburn. BTW - Always wear sleeves when your gardening. I had it all drummed into me, following both masts with ANC's. And just don't ever let any less "wary" medic try to talk you into anything otherwise! Stand your ground, because you'll probably come across them, as I have.You'll no doubt have been given all this info, so I'm sorry if repeating. But can't stress it enough, and you'll get used to it being second nature, protective. But as I said, don't worry.  

Have you not got a dressing/plaster over your drain entry/exit wound? If you have - don't worry about leakage. If you haven't, get one on.

Yeh, had a smattering of snow here too last two days. Been out and about in the beautiful Derbyshire hills on the doorstep today. Great to escape the house and get some invigorating crisp fresh air into the bod.

And Yeh, waiting on results is the pits!!! I'm loving your positivity and hope you can maintain it. But, at the same time, don't be surprised if you have wobbles and some major sobs. Some of it will be possibly after effects of general anaesthetic, but most of it will be the wham blam, thank you NOT man - upset and major trauma of what you're going through. So please do just let it out and flow. It's important. You're going through a massive mental and physical "smash" and "grieving". And please make it known how you feel to Alan and all your other loved ones, family friends. Don't try and put a brave face on. You need all the support you can get, so reach out and "take and receive" for a change. They love you, so they want to know what you're feeling and want to be a support to you. Tears are for the "brave". Stuff what anyone else thinks or says.

 

You're doing bl**dy great woman. Keep exercising!! and don't let slip. Take a couple of Para's and an ant-acid (Bisodol/Rennie perhaps) before you go to sleep, even if your not paining, to prevent waking yourself up when unconsciously moving your arm in your sleep, till your more generally comfey.

Loadsa love to you Pauly, a huge warm hug and a bit of stick exercise wise

Dellywelly xxxxx

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Pauly
How are you doing? Have been having technical probs, so haven't been able to log on the last 3 days. You're probably feeling more comfey now the drains are out are you? you doin your exercises missus!! xxx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Yeh, got what you meant on the margins, just that it was good they felt they'd taken enough. Glad you've managed to eat and being strict with the exercises. Have to send out your Alan to stock up on tasty temptations for your return. Pleased you're so positive. Hope you get a good nights rest tonight, but nothing like your own bed.
Yep, fingers all crossed for no more nasty chemo xxxxxx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Pauly

 

Well, I hope you've been having a very relaxing day and that was great to know on the clear margins. Sorry you're so sore and feeling sickly (not surprised you didn't fancy the black puddin then Smiley Tongue). I couldn't believe how many tabs you had to take, before the op - 15 !! almost a meal in themselves. That was good of him to say "be optimistic". Sounds like you're going to need some feeding up when your tums more settled. Extra sos tomorrow then. 

Hope the house survey went well (that's an extra lot on!) and hope your positivity keeps steaming forwards, girl. Keep doing your exercises. Lots of love xxx

Love to everyone else too

Delly xxxxxxx

 

 

 

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Ooooo Pauly, just missed you by a couple of mins. I'm sending a wave. You get my hug and kiss from Alan? Well done flower. should imagine you're feeling cream crackered, but relieved at that bit being over. Hope you get a good nights sleep, without too much ward noise. That's the worst part of hospitals. I'll get the frying pan out again in the morning shall I? Do you like black pudding? it's from Bury - the best. Lots of iron. Note the pan's one of these ceramic ultra non-stick ones, very little oil needed, so they're a healthy fry up, I'll have you know. I'm not into greasy spoons xxxx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Hi BizzyLizzy (lovely name)
You've got me mixed up with Pauly. Crikey, a whole back Tattoo. Would have thought that would have cured your needle fear That's dreadful you passing out for your scan. I think anaesthetists are the best medics for cannulas.
I hope you're op goes well next week and fingers crossed for clear margins for you too. Keep us informed with how you're doing, if and when you can.

Lots of love to everyone

Delly xxxxxxx

BizzyLizzy
Member

Re: Surgery to take away lymph nodes and clear margins

Hi Delly 

i share your fear of needles and canulas ! Blood tests too

crazy as I have a whole back TATOO ! 

 

I am due to have surgery next week and also having to have a wire 

have stage 2 -17mm mucoid / collloid cancer which is quite rare 

then Radiotherapy 

 

i passed out in the CT scan as they couldn't get the cannula in so even more nervous now 

 

I am also worried they won't get the full margin 

finding keeping busy seeing friends and doing things helps distract me 

do hope it all goes well for you good luck 

sounds like we have similar fears ! 

delly
Member

Re: Surgery to take away lymph nodes and clear margins

Awwwww, thanks for letting us know Alan. Just hope everything's clear. Give her a gentle hug and kiss from Delly will you please. Have one yourself too, but not so gentle for you, 'ey xxxxxx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Go tell that BC where to go!!!!
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
delly
Member

Re: Surgery to take away lymph nodes and clear margins

Now where's that stapler gun gone????!!! xxxx