Hi again Pauline, flower
Oooooo, I'm so glad your daughters doing well.
Am also pleased you got your cording sorted and are also now letting your own hair down! or show without wig. How lovely for you to be so recognised, regarded on your sons 30th. You must have felt so touched and chuffed.
One of my arms, the underside of the upper form armpit, has remained permanently numb from 1st mast and ANC 2006, but only slightly, just a bit weird. Thumb and two next fingers to, have reduced touch sensation, but not much of a prob though.
Awww, your poor friend. Stll she's nearly there, and is lucky to have you supporting and cheering her on. Glad you've had support elsewhere. Didn't know if you'd tried a few other threads on here.
Good luck on the viewing tomorrow
Lotsa love Pauly xxxx
Love to everyone else too xxxx
No wonder I had trouble recognising you - longer hair, and running or swimming out of the posts!! Corr, I know you've loads more s**it to go through yet Pauly, but jeez, how far you've come!! Just since my last visit here. You're 1/2 way to the "Wonderwoman" award!! Plus back to work , Another corr, what?!!
Btw - Did your cording eventually get sorted?
Aww ffffflip, on the house biz. Perhaps the house you lost out on wasn't actually right for you?! I'm a great believer in fate, I'm afraid. Believe certain things happen for a reason - not BC though! Which tips the whole fate biz A over T really, dunnit?! Hope you're own sale "holds" until you find another. Fingers crossed for you and hubs, darlin.
You tried Aloe Vera gel for your sore boob?
More FFFFFlips - Your daughter? What? Crikey. Is she doing okay? I hope so. How old would she be?
Yeh, missed you too. Am not great, but thank you sooo much for asking. Seldom come on here at the mo, which is pretty alien for me, considering it used to be one of my sanctuaries, and solaces. Has always helped ground me, keep me in reality with what others are having to go through. "Giving" also helps me.
Am madly impressed with yer. Much luvvo xxx
Where's everyone else gone? Hope you're all doing okay too xxx
Hey Pauline, and corrr, what a diff a few weeks of me not logging on can make with regards to your progress.
Can't believe you have to drive from Hali to Oldham for rads. Anyways, it's so good to hear you so upbeat, despite your chemo, treatment trecks and discomforts. Take my hat off to you, gal.
A very HAPPY BIRTHDAY to you for today , . Hope you've had an extra special day.
Was your sons 30th last Fri or this coming Fri? Whichever, nice to glam up.
that's fffflippin brill on your Alan's (your hubby?) £1500 so far!!!!! - A m a z i n g in fact.
Much love to you and everyone else and thanks for your well wishes P
BTW happy birthday. Mine is 26/03 so we are almost astrological twins. I would go without your wig! Celebrate your new hair. Have you got the “chemo perm” yet? After 12 months, my hair is just starting to grow through not curly. Now it comes down to about the bottom of my ears. A bob is not that far away. Ah chemo, it gives you a different perspective on life! Hope your pain goes soon (does your physio snap your cords - ping!?). Take care. Xx
Pauline - I see you've had a banging headache today - remember to keep up drinking water - between 1-2 litres a day plus your usual drinks - it really does help. Also, continue with water after treatment finishes. I started to ease off too much and wasn't feeling great so I've upped it to 1-1.5 litres a day and feeling so much better for it.
Bizzylizzy - How are you doing following your node op? I'm not an artist, but am passionate about art, so I'm particularly interested to know how things are going for you. I hope like mad, you're work isn't hampered by all this afterwards and settles down without any restriction to it.
Annig, Mrs Merton - Hope you're both well too
Much love to everyone
Bizzylizzy - I had ANC on thursday after mastectomy 5 weeks ago, hope you are doing well.
Mrs Merton - I'm still getting used to abbreviations, what is MLD ?
Have learned so much from all you ladies, and still learning, hugs to all xxxx
Hi - sorry to hear you have to have this done. It is worth it though because i know from experience that the chemo by itself isn’t enough to kill any tumours further up your lymph node system, so the op can save your life. Ask your surgeon whether he is taking out up to level 1, 2 or 3. Everyone has a different number of lymph nodes but the higher the level removed, the higher your risk of Lymphoedema. After the operation you will have a lot of numbness and strange nerve sensations in your underarm and the back of your upper arm. The back of my arm was numb for about 6 months but is ok now. I also got, and sometimes still get, some strange sensations in my arm. After the operation i had cording which is like a string running down your arm - usually you can see the cord. It is damaged lymph/venous vessel. Sorry to tell you it is very painful but it usually goes after a few weeks/months and physio can help a lot. Then you need to do all the exercises the hospital physio shows you to regain mobility. Plus long-term you need to exercise your arm in the right way to reduce your risk of Lymphoedema. I have a very slightly swollen patch above my elbow that I have had since the op and have also experienced slight swelling in my hand. At the moment i use a sleeve when my arm is tired and for any risk activities such as flying and have MLD. That seems to be keeping it all under control at the moment. I know that all sounds scary but other than avoiding lifting heavy weights, i am using my arm completely normally and have a full range of movement and hopefully you will too. But do stay on top of those exercises and ask for physio if you need it.
I am due to have more nodes removed this Thursday
Sentinal nodes showed cancer and they wish to take out more but I'm not sure how many.
i have a hood range of movement in my arm following a lumpectomy and there is a clear margin in the breast.
i am worried as I have nerve pain already in my arm pit and arm running down to my wrist - constant burning and stabbing pain and am concerned that if they take out more it will be unbearable.
I am left handed and an artist and the BC is in my left Breast and axillar and I can't even bear to think I may be limited by pain.
i have also got a form of trigeminal nerve pain in my face on the right hand side which I have for 8years which is not treatable.
Dies anyone ekse have this nerve pain and what is it like to have more nodes removed ???
Thanks for any responses
Pauline - just to reassure you - what you are feeling is perfectly "normal" - not pleasant at all and only those of us who have been through the same procedure can fully understand.
However, with gentle stroking of the "guitar strings" and the correct exercises - you will find relief - but for better relief it won't be for at least 6/8 weeks following surgery.
Even now, 6 months from finishing chemo (I still suffer side effects from), 5 months following surgery and 2 months following radiotheraphy my chest wall is so tight, the ribs under MX site are painful and my underarm is completely numb and if I do too much or not enough exercise - the "orange under the arm" feel returns.
However, I just feel thankful, bearing all this in mind, that I'm here. Just wish others, as well as myself, wouldn't expect me to be "back to normal"! xx
Oh dear Pauline you are in a right mess is there anyone that can help and give you advice you must be in tottal agony when is it going to get easier for you God only knows, I know you are doing correct exersizes but try very hard not to overdo them because thats as bad as doing none at all.
I hope you enjoyed your meal with Alan and seeing your friend
You must be so bored and fed up with everything thats going on, are you all packed for your move so where are you moving to?
where are yolu having your Radio T but if your arm dont get right surely you will have a problem with the Radio so you really do need extra help to get your arm right I so feel for you Pauline
Try to keep your chin up Big Hugs xx
Hi Jay - Yeh, it must be a pain all these appointments, but good that they're keeping a close eye on everything for you. Heartwise and everything.
Hi Pauly - Pleased to hear you've been drained and more comfey from. Thank goodness you're now having your arm difficulties addressed. I'm sure some good physio and corrective exercises will get it sorted. It certainly did mine, but we aren't all the same. Fingers crossed for you
This is fantastic news, I am so pleased for you! Keep taking it easy, you have been through a lot. Once you start radiotherapy (usually about 6 weeks post-op) time will fly by. You should think of something lovely to do!
Best wishes xx
Glad to hear from you and that you're doing okay, though naturally sore. That sounds nasty on the migraine! As if it's not bad enough just having surgery 😞 Wishing you a speedy recovery.
I'm okay, thanks lovey. Struggle with depression, so called Bi-Polar. xxxxxxx
had surgery yesterday spent one eve in hospital as low blood pressure and also had a very bad migraine - hemiplegic Migraine where lost strength in my left arm and speech slurred but had one before so knew it would wear off.
home now - 2 nodes taken out and waiting for results which I get next Friday
how are you doing ???
Im very sore and bruised but feel ok mentally just tired
thanks for asking
Good Morning everyone
Good Morning Pauly
Well no, I didn't see you before, but think you look pretty darn A okay woman in your posted photo. Love the hair style you have, or was it had? I don't mean to sound insensitive, but from what you said about your friend coming over and going "topless", headwise!!, that you've lost much of your hair? Awwwww, lovey. And Yeh, believe you me, don't I just know how lucky I was not to need chemo or rads. Had a big spontaneous "No chemo required" party to celebrate after 1st mast and ANC!! But, I did lose both boobs and all nodes, so still traumatic, losing the second one espesh. Knock on effect to my personal body confidence, still being a single woman. But the massive advances in recon techniques since my time 2006/07, fortunately, help women a lot more these days, which is great.
I did have some cording with 1st arm, but luckily had physio tutor neighbour, who gave me some extra stretching exercises to do, which I really worked at and sorted it. But I could have contacted my BCN to arrange to see breast physio. So do, won't you if you start with.
Crikey, I don't envy you on the house packing up front. But great to hear of an impending sale of your house though. Are you directly "buying" yourself, or will you be renting for a while.
How many childrem do you have?
Yeh, that's fine on pm'ing me. I'm intrigued to hear all about the BC Pauline biz!!
Hope you have a good day today.
Hope anyone/everyone else has a good day too
Loadsa love, Dellypoos xxxxxxxx
You there BizzyLizzy???
Have you had your surgery yet? If so, how are you doing. You were on here 31/01.
Let us know where you're up to, if you feel up to it.
CK's had great results from her Jan op. Clear margins and 18 lymph nodes unaffected. Onc apptment 14th to be told when rads (? start
Lotsa love to everyone
I'm just being caring and supportive, chummy. It comes naturally and it's free!! But I have to graciously thank you for the compliment tho'.
As you're leaking, what type of dressing have you got on your drain site (charming description!)? and is it still leaking today? If so, ask them if they could give you a waterproof plastic foam one, if you haven't already.
Awwww. lovey, you sound well peed off. There's nothing bad about talking about it. Cancer's never gonna be a convenience. No never gonna be a breeze, and Yes, it's an effin inconvenience. And, it will carry on being for a while. But . . it will start to get better. Might be s s s l o w w l l y, so try and be patient with your body and self.
Who's calling you Pauline with breast cancer??
You let out whatever you want and need to on here, lovey. This is your place - your space. Rant, moan, groan,have a sob - wo'eva babe!
I'm not much help on the chemo info wise/treatment wise, never having had it. Doesn't stop me symapathising though. Did you have any previous contact with any of the chemo threads on the Forum Pauline??
I don't remember you having a name photo before. Have just had a look at you and waved! I like your necklace - is it a tree of life?
Lotsa love, Dellywelly xxxxxx
Hey Pauly flower,
Yeh, ain't having that drain tube out a weird dragging feeling?! Please don't worry about lymphoedema at this point, but has to always be a consideration for the future, ref bloods, cannulas, blood pressure cuffs, bites, grazes, cuts, sunburn. BTW - Always wear sleeves when your gardening. I had it all drummed into me, following both masts with ANC's. And just don't ever let any less "wary" medic try to talk you into anything otherwise! Stand your ground, because you'll probably come across them, as I have.You'll no doubt have been given all this info, so I'm sorry if repeating. But can't stress it enough, and you'll get used to it being second nature, protective. But as I said, don't worry.
Have you not got a dressing/plaster over your drain entry/exit wound? If you have - don't worry about leakage. If you haven't, get one on.
Yeh, had a smattering of snow here too last two days. Been out and about in the beautiful Derbyshire hills on the doorstep today. Great to escape the house and get some invigorating crisp fresh air into the bod.
And Yeh, waiting on results is the pits!!! I'm loving your positivity and hope you can maintain it. But, at the same time, don't be surprised if you have wobbles and some major sobs. Some of it will be possibly after effects of general anaesthetic, but most of it will be the wham blam, thank you NOT man - upset and major trauma of what you're going through. So please do just let it out and flow. It's important. You're going through a massive mental and physical "smash" and "grieving". And please make it known how you feel to Alan and all your other loved ones, family friends. Don't try and put a brave face on. You need all the support you can get, so reach out and "take and receive" for a change. They love you, so they want to know what you're feeling and want to be a support to you. Tears are for the "brave". Stuff what anyone else thinks or says.
You're doing bl**dy great woman. Keep exercising!! and don't let slip. Take a couple of Para's and an ant-acid (Bisodol/Rennie perhaps) before you go to sleep, even if your not paining, to prevent waking yourself up when unconsciously moving your arm in your sleep, till your more generally comfey.
Loadsa love to you Pauly, a huge warm hug and a bit of stick exercise wise
Well, I hope you've been having a very relaxing day and that was great to know on the clear margins. Sorry you're so sore and feeling sickly (not surprised you didn't fancy the black puddin then ). I couldn't believe how many tabs you had to take, before the op - 15 !! almost a meal in themselves. That was good of him to say "be optimistic". Sounds like you're going to need some feeding up when your tums more settled. Extra sos tomorrow then.
Hope the house survey went well (that's an extra lot on!) and hope your positivity keeps steaming forwards, girl. Keep doing your exercises. Lots of love xxx
Love to everyone else too
Hi BizzyLizzy (lovely name)
You've got me mixed up with Pauly. Crikey, a whole back Tattoo. Would have thought that would have cured your needle fear That's dreadful you passing out for your scan. I think anaesthetists are the best medics for cannulas.
I hope you're op goes well next week and fingers crossed for clear margins for you too. Keep us informed with how you're doing, if and when you can.
Lots of love to everyone
i share your fear of needles and canulas ! Blood tests too
crazy as I have a whole back TATOO !
I am due to have surgery next week and also having to have a wire
have stage 2 -17mm mucoid / collloid cancer which is quite rare
i passed out in the CT scan as they couldn't get the cannula in so even more nervous now
I am also worried they won't get the full margin
finding keeping busy seeing friends and doing things helps distract me
do hope it all goes well for you good luck
sounds like we have similar fears !