Hi Shirley
Sorry to hear about your reaction to the Herceptin injection - I hope it’s not like that for you next time. Really pleased things are getting sorted for radiotherapy 😊.
Im not doing to badly Thankyou. Healing well from second surgery and have appointment for results in a couple of weeks so should have a better idea of my ongoing treatment.
Hugs to you too - let me know how radiotherapy goes.
Mel xx
Hi Mel
Had my tattoos done ready for radiotherapy on 4th July, I hope you are feeling better and have got your own treatment in order please keep me informed. I had my first Herceptin injection last week I felt ok and thought I hope its all like this
I spoke too soon, I was woken up with the worst pains ever all over my body I felt very sick and my temperature was 37.8 so hubby had to phone the alert number who monitored me he had to phone them every hour until it dropped below 37
the next day I felt very lethargic and had some nausea but felt much better the day after. I only hope the one I get on 3rd July is not as bad.
take care
sending you hugs
xx
Hi - I’m in Scunthorpe, north Lincolnshire.
Mel xx
Hi Mel
Just take one day at a time and listen to your body its better than any doctor if it needs rest it will let you know and just rest.
Where about do you live I am in Newcastle
hugs
Shirley xx
Thank you Shirley, you are so kind. I’m usually strong too. I think it’s the feeling of having no control and not working that has hit me, so know the counsellor will help 😊.
Hugs Mel xx
Awww Mel I am so sorry to hear you had to have another surgery lets hope they got the margin right this time.
its such a lot to get your head around, I have always been a strong person but this is testing me to the limits.
I feel like saying no to treatments but my family say look what the alternative is but at 73 I am finding it hard.
Look if you need to see a counsellor you go I have had depression when I was diagnosed with MS and saw her for 4 years so I can sympathise with you. I hope you get sorted with your other treatments I don't think any of them are pleasant but we have to endure. you take care and I hope you recover from your surgery soon, I am always here to talk to. lots of hugs pet
xx
Hi Shirley
Sounds like first chemo wasn’t particularly pleasant. Hope the other sessions are ok. Good that you are starting radiotherapy soon.
Ive just had a second lot of surgery this Thursday as didn’t quite get a large enough margin along one edge last time. Surgeon confident there will be no more surgery now as no more tissue to take. She said I may have an indentation in the breast that she could fill with fat next year. To be honest, I can’t bare the thought of more surgery so may just leave it. I’ve got my cleavage still so no one else will know it’s there worst from hubby!
Im now awaiting results and oncotype to see if I would benefit from chemo or not so back to waiting game.
I have found this all very difficult over last week. I suffer with depression and anxiety so all this has made it worse. I’m back on antidepressants and my BCN is going to refer me to a therapist.
I hope you are ok?
lots of love Mel xx
Hi Melanie
How are you getting on, I had my first chemo on Wednesday ( Herceptin ) I was fine at first then I was woken up in agony every part of my body was in pain, I felt sick , high temperature 37.8 my husband phoned the alert number at hospital who monitored my temperature hourly until it dropped to 36.5, Thursday I was still flakey but the pains were not too bad temperature still up I just rested in bed for the rest of the day. today I feel loads better still a bit off but not complaining
I just hope they are not all like this I have another 17 to go.
I start Radiotherapy on 4th July, breast top of lungs and ribs wish it was all over.
I hope you are coping with everything
love & hugs
Shirley
xxx
Got my appointment to see Oncologist next Wednesday only saw Consultant on Tuesday he wants to talk about Chemo
are they on the ball or what xx
Not too long to wait...
Having to go through the change twice is not a nice thought!
I can’t say I’m looking forward to induced menopause. Still, I suppose it’s a small price to pay....
Will keep in touch.
lots of love Mel xx
I will see him in 2-3 weeks,
The pills will make me go through the change again, went through it nearly 30 years ago not looking forward to hot flushes and night sweats. hubby not looking forward to the mood swings hahahaha
let me know how you are gettling on
love and hugs
xx
Hi
Fantastic the radiotherapy will sort the node. When will you see oncologist? You will get there and will hopefully feel a bit better when you know your full plan of treatment.
lots of love 💕 🤗
Had my 2 week appointment for results with Consultant today who said they took 4 nodes cancer was in the 1st one but other 3 were clear so she said radiotherapy will sort it out. found some DCIS in breast so had to take more margin but hopefully they got it all
Have not ruled out Chemo. have to talk to the oncologist about it to see if it would make me worse especially with my other health problems but still have to have 20 sessions of Radiotherapy plus take a pill called Letrozole for 5 years
still more mountain to climb but will get there
love & hugs
xx
Hi Shirley
I had my dressings off yesterday - the glue was a nightmare to get off!! My underarm and shoulder are sore and numb today. May take some codeine tonight! Other than that I am doing ok. Can’t believe Op was a week ago!
I wish you well for your results and hope everything is clear 😊. I am back in two weeks time for results.
Hugs to you too and keep me updated about results 😚.
Mel xx
Hi Melanie
I hope you are recovering well, I had my dressings removed today the plasters were stuck like glue, I am such a martre I never cried I swore under my breath a few times hahaha. I am still very sore underarm looks like they took 6 nodes so the nurse thinks. I now hope Tuesday gives me good news and no rough cancer cells in nodes or Margin I would hate to go through that again.
I hope I will get to know when I see the oncologist and what is happening about radiotherapy and pills.
Take Care sending hugs to you
shirley
xx
Hi Mini
Thank for your reply I hope you continue to get better. I have more movement in my arm since I started exercising
I hope your recovery goes well
big hugs
Shirley
xx
Hi Shirley
we do sound to be at a similar stage. My plan is for radiotherapy and tamoxifen. Due to see breast surgeon in a couple of weeks. Haven’t seen oncologist yet.
I seem to feel tired in the afternoon at the moment but sure that will pass. I’m pleased to have the op done 😊.
Hugs to you too and keep in touch xxx
Thanks for your reply Mel
I have little pain from where the surgery was but my underarm is sore to touch and painful. the surgeon said they cherry picked some nodes so I don't know how many they took. I am not feeling too bad in myself a little tired but im doing my exercises and have more movement in my are. I think we are at the same stage Mel.. are you having Radiotherapy?
have you seen an oncologist yet and do you have to take pills
hugs to you
Shirley
xx
Hi there,
just seen your post... ive had 3 sentinel nodes removed along with WLE and 4 weeks ago also had axilliary node biopsy done with single mastectomy.
both time my armpit and lower arm were numb. I gently increased all my exercises and started to massage too. Really helped....good luck. ❤️
Hi Shirley
i had lumpectomy on Thursday and took one lymph node. I feel Im recovering well from surgery. The site where the lump was removed is pain free. The lymph area I wouldnt say isnt painful but I am aware if it. My underarm does feel a little numb though - does yours? I’m doing my stretching exercises too - seem to have a good range of movement at the moment.
im going to try a day pain killer free as I’m not in agony to see how I go.
I hope you pain soon goes - have you been prescribed some painkillers? I was given codeine as well as paracetamol.
Take care and hugs to you.
Mel xx
Hi Everyone
I had my surgery on Wednesday 8th at home now but have a lot of pain under my arm the surgeon said they cherry picked some nodes.now the 2 week wait to see if they cleared the margin and to see if any cancer cells in nodes.
I am doing warm up and warm down exercises but my arm is still a little stiff.. does everyone have pain underarm
feeling really sorry for myself right now hopefully the doesnt last long.
hugs to everyone
Shirleyxx