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Diagnosis 5 days ago

4 REPLIES 4
Member

Re: Diagnosis 5 days ago

How are you and how did the appointment go? 
Been  thinking of you ! 
Sending a big hug from Devon xx

Member

Re: Diagnosis 5 days ago

Of course you can private message me anytime x I apologise if you dont get a quick response as don't always get to my iPad until the evenings ! 
I was told by my oncologist that we can't say all clear as they can never tell whether it will come back which is the frightening thing ! I had something called an oncotype test where part of my tumour was sent of to America to test to see whether I would need chemotherapy and what likelihood of recurrence there was ! I was lucky in that I didn't need chemo and came back as saying only 7% of recurrence !! Let's hope that is accurate!!

i had an amazing support team xx

Big  hugs  and fingers crossed for Wednesday . I will be thinking of you xxx

 

Member

Re: Diagnosis 5 days ago

Aww thank you Phillipa for your kind words I am finding comfort being on here & reading all you brave ladies story’s and journeys I am not going to lie I’m frightened I sit here and just want to start treatment now I’m scared there maybe a waiting list I will know what I’m dealing with on Wednesday I have positive thoughts & weak moments too.

I take my hat off to you for your bravery what an amazing lady you are I hope you had a wonderful support team behind you i have heard the radiotherapy will make me tired. If you don’t mind I’d really like to private message you once I know my plan of treatment I think you will help me through this. I’m too sorry to read of all you have been through but wow you are almost there & have you been given the all clear now I hope you have 🙏 big hug 🤗 & thank you Xxx

Member

Re: Diagnosis 5 days ago

Hi ,

I am so sorry to hear about your diagnosis. All your feelings are very normal, I went through the same in January. I think the first few weeks are the most worrying when your consultant is determining your treatment. My journey began in December last year just before Christmas ! I had found a lump near my nipple . Went to the doc and was fast tracked to the hospital - saw a consultant about four days later ! Nothing showed on the mammogram and the ultrasound but she did a biopsy! She was 99% sure she would be writing to me to say all was ok but I had a call from the hospital on New Year's Eve asking me to come in on the 2nd January ! I was diagnosed with a grade 2 invasive lobular cancer . The cancer likes to feed off oestrogen so I was put on Letrozole to stop any oestrogen ! I had one lumpectomy to begin with and three lymph nodes removed . unfortunately she couldn't get clear margins so two weeks later had another op !! Turned out luckily my lymph nodes were clear but unfortunately she couldn't get clear margins again so ended up with a mastectomy but opted for reconstruction at the same time ! That is coming up to seven months ago now but still recovering although back to doing lots again ! I had 15 sessions of radiotherapy which left me very tired ! 
I hope that your breast care nurse explained that every bodies journey is different! It all depends on your specific cancer as to how your journey will be ! It is a very frightening journey and you will have highs and lows ! I am still getting down now and I have finished active treatment ! I cried this afternoon I'm not sure why but possibly due to tiredness and the fact the pills I am on make me achy . 
Take  all the help you can from your nurse. Mine is fantastic and doesn't mind if you want to ring and have a chat . She has had many conversations with me in tears ! 
Also if you have a cancer charity attached to your hospital use them as much as possible! The force charity attached to Exeter hospital have been amazing ! 
you have done the right thing coming on here , it has helped me through some very difficult times . 
I am more than happy for you to private message me on here if you would like to chat .

sending a big hug and hope that your journey isn't a long and difficult one .

we are all on here to help xxx 

love PHILIPPA xxx

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Member

Diagnosis 5 days ago

Hi All 

I am new to this I’ve joined to get tips & advice I’m scared I feel like I’ve become a needy person overnight I’ve sobbed I’ve screamed and I’m not sleeping well with worry I have 2 lumps in left breast i have had 2 biopsies ( painful) I am struggling to even look at my breast right now I know I’m being silly I also know that I’m not alone in this & i just need inspiration I am usually a strong positive person I’m looking forward to hearing all of your journeys 💓