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Did anyone else find the herceptin injection painful?

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Re: Did anyone else find the herceptin injection painful?

I have ongoing Herceptin- today was probably my 22 injection! 

I walked for a while after my injection (I requested a non drowsy antihistamine). I then sat for half hour.. when I went to get up .. I had to limp.. the muscle in my leg was so painful.. still is.. this happened last appointment aswell.. the difference is the nurse who gave it to me for the last two injections . On my last stabbed me at On my last  appointment.. I let a yelp out of me.

anybody any solution for the pain now? Thanks ,

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Re: Did anyone else find the herceptin injection painful?

I bought some and it did nothing for me. On the other hand, it's cheap enough and worth a shot.

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Re: Did anyone else find the herceptin injection painful?

No not when they were given - well the prick of the needle going into the skin of course but if you mean the aches and pains after then yes lots of us get that and you have to take claritin hay fever tablets 1 every 12 hours this is why: http://myangrycancer.blogspot.com/2013/02/claritin-is-worth-its-weight-in-gold.html

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Re: Did anyone else find the herceptin injection painful?

I think that would help if it was the injection itself that was painful (rather like using an Emla patch on your port for chemo) but if it's actually the product entering your body, it isn't going to work.

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Re: Did anyone else find the herceptin injection painful?

Am on no14 herceptin injection and I use numbing cream every time. 

I put it on the area of the thigh 1 hour before the  appointment. I don't feel I thing. 

You can ask for it from the hospital or you GP. 

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Re: Did anyone else find the herceptin injection painful?

Am on no14 herceptin injection and I use numbing cream every time. 

I put it on the area of the thigh 1 hour before appointment. I don't feel I thing. 

You can ask for it from the hospital or you GP. 

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Re: Did anyone else find the herceptin injection painful?

IME, if they try to push too fast it hurts at the time, not afterwards. I've had general ongoing joint and muscle ache (although that could still be the Taxol) but nothing like you describe. I hope they get to the bottom of it.

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Re: Did anyone else find the herceptin injection painful?

Hi I have now had four of these two in each leg and each one has been agony.  I can't watch the injection as don't like needles even after all the canullas I've had, blood tests etc etc.

 

Whichever leg it is is awful..  I have to wait for an hour after the injection at hospital when all seems fine.  It's about another hour or so after that the pain starts, like my muscle has been worked too hard, travels all down my leg and can hardly lift my foot off the floor.  I cannot climb stairs, get into the bath etc as just too much pain.  I have cried after every one.  Mentioned to Oncology doctor today and he is going to look into it.  As far as I know the injection is given slowly on each occasion but maybe not slowly enough?  I feel grateful however that I have the chance to have this, if it has to be like this for all the rest then I will have to learn to live with it. 

Any further advice would be helpful, if anyone can recommend anything?

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Re: Did anyone else find the herceptin injection painful?

Hi I have had 13 now and none have really hurt. My nurse always gives me my injectio to hold for about 10 minutes to wzrm it up so if your was cold maybe that is the reason it hurt so much. I really hope your next one is better xx
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Re: Did anyone else find the herceptin injection painful?

Hi chick, herceptin working , just started on cape for lung mets this week so hope they work. Best wishes 

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Re: Did anyone else find the herceptin injection painful?

Hello Biker and Yorkie,

 

Yes absolutely spot on, it is great that Herceptin is around and we are able to access it.

 

Biker - good to hear from you.  I hope the treatments are having the desired effects for you.

 

Best wishes to all.

 

Chick X

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Re: Did anyone else find the herceptin injection painful?

I agree we are lucky to be having herceptin. I must admit I have never had any problem with the injection, usually chat to the nurse whi le she administers it, so that usually takes my mind off it. But maybe I am lucky the pain is not so bad. Not everyone is the same i think but best wishes to all who are on herceptin 

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Re: Did anyone else find the herceptin injection painful?

Hi.  I agree totally with what chic1 is saying, it was my experience too.  The only bit i will add is that they told me that the content of the injection breaks down fat as it goes in to find room and that is the painful bit.  My injections stung more as time went on, it was possibly linked to the fact that near the end i was getting fitter again and my muscles were building up so less fat. Who knows but boy, a bit of stinging and discomfort is a minor problem.  Just bite on something if you have to as the needle goes in until the stinging stops. If you get bruised, it will go. Compared with what many have to go through its a drop in the ocean. Feel pleased you are able to have Herceptin and think of those years back when without it your prognosis was much poorer. Good luck to all. xx

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Re: Did anyone else find the herceptin injection painful?

Hello all, 

 

All 18 of mine initially stung and then were OK after the initial discomfort.  I found it OK on the whole and wasn't really left with any marks,  bruising, or pain on completion.  I did not prepare for them in any way beforehand. 

 

As other people have said,  the injection needs to be delivered slowly and it can hurt more when cold.  They also recorded whether left or right side was used so this could be alternated.  To be honest,  I didn't really bother too much about that. 

 

I had a few different nurses deliver the injections.  I use to play them off.  I would say "so and so was really good last time -hardly felt it ". A little bit of competition introduced for my benefit!  Mind you,  found most of the nurses apologising about the pain before they had started.  I also noticed that the way it was angled in made a difference to pain felt. 

 

Best Wishes to all,

 

Chick 🐣 X

 

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Re: Did anyone else find the herceptin injection painful?

Hi- I had my first one last Friday and was a bit apprehensive about it and told the nurse so. She was great and said she understood and she warmed the vial up with her hands before injection as she said if it’s really cold it can hurt more. She told me it would probably sting for a few seconds and then be fine - and she was right - hardly hurt at all - 🤞I see her next time . 

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Re: Did anyone else find the herceptin injection painful?

Sorry - I've just signed up, so catching up on threads Smiley Happy

 

I've had two of these now and the first one hurt like f***.  In fact, that's the word I said out loud to the nurse.  The second one I barely felt.  The difference was that the second nurse did the injection REALLY slowly.  She said it was OK for me to ask for her by name next time so I will do that.  If you get a good experience, hang on to that nurse and if not available, make sure whoever does it, does it slowly.  It really does make all the difference.

 

Good luck everyone!

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Re: Did anyone else find the herceptin injection painful?

I completed my Herceptin injections 7 months ago and I used elma cream for each injection after the first one stung like hell! Your GP should prescribe you the cream plus the dressings - it comes in a neat little box of ?4 small tubes. The nurses give me my sub-cut injections at the top of my thigh so I used to put the emla cream on and cover it with the dressing at least 2 hours before my appointment. I can’t remember the name of the dressing but it is the clear waterproof type with no gauze. The cream completely numbs the area so you don’t feel the needle being inserted although depending on the operator there can still be a bit of stinging. Each tube of cream can be used at least twice. My main gripe about the whole process - aside from the fact that Herceptin didn’t work for me as I had a recurrence while still having the injections! - was that there seemed to be no standardisation of the way the injections were given. Some nurses were much more skilled than others!

 

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Re: Did anyone else find the herceptin injection painful?

Sorry forgot to put name it's susan
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Re: Did anyone else find the herceptin injection painful?

I've had 6 herseptin injections &everyone extremely painful . I ask for it to be given slowly it makes no difference it really hurts .saw your coment above about some cream Emla cream from boots to put on will buy some ready for next herseptin Wednesday. Will let you know .
&also does it have to be given in outside thigh?
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Re: Did anyone else find the herceptin injection painful?

I have had 13 so far and if it stings or you get a bruise it is because they have got near either a nerve or a blood vessel which they cannot see. Luck of the draw but it helps to relax and breath deeply oh and be sure that they have changed the needle from the one they use to mix it up to the much finer one that goes into you (same as the g-csf injections).

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Re: Did anyone else find the herceptin injection painful?

I've had 12/18 so far and only one that was really sore, the nurse thought maybe she had gone close to a nerve that time so it might have just been bad luck for the first one.  It does definitely vary each time though.  One tip a nurse gave me is just before they give it, to push down on the floor with your foot and then relax the thigh for the injection.  I really do hate these injections though!!

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Re: Did anyone else find the herceptin injection painful?

Yes tell them to do it very slowly because it really does make it much easier to deal with.

I always politely remind them of this after one which I felt was done too  quickly and i felt more side effects with it.

It is always quite a sore jab but once you are prepared for that you should be ok.  I always start an interesting conversation about an irrelevant subject so that helps!!!

 

Good luck

Aine x

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Re: Did anyone else find the herceptin injection painful?

Thanks to you both. I wasn't expecting it to sting so much and probably tensed up which wouldn't have helped. They are going to put the emla cream on so hopefully that will help. Might get a different nurse too. X
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Re: Did anyone else find the herceptin injection painful?

Hi Theresa

 

The Emla numbing cream should help, just make sure it's been on for around 15 mins before injection. You can actually buy it Boots, you have to ask for it. It's about £3? for a small tube but you don't need much, problem with applying it before you go to hospital is knowing where exactly on your thigh they are going to inject so maybe best let them do it.

 

As Jaydubz said, some sting more than others and I personally think it depends on the nurse who is administering it and also how quickly it is given, you don't want it too fast. Unfortunately it is a "nippy" jag.

 

Good luck with Emla cream.

 

xx

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Re: Did anyone else find the herceptin injection painful?

Hi Teresa, managed to grind my way through my course of 18 Herceptin injections and had the final one last October. Yes, I had some that brought tears to my eyes but not so many - I found it depended on whoever administered it! I guess the technique differs from nurse to nurse? Anyway, very best of luck and I hope that you have a few more 'gentle' experiences further down the line xx

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Did anyone else find the herceptin injection painful?

Hi I had my first herceptin injection on Thursday and found it intensely painful. The nurse said it would sting a bit but that was a serious understatement in my case. I'm afraid I cried and swore. I have been very ill on the Fec part of my chemo and been hospitalised with infections around the 6-8days so am feeling pretty low. Luckily have started the T part now and feel much better on this drug regime. They are going to put emler cream to numb the area first, don't think I could take a year of these if they hurt that badly every time! Anyone else had this and did anything help?