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Herceptin resulting in heart damage

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Re: Herceptin resulting in heart damage

Thank you Mai for sharing - that makes very interesting reading.  

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Re: Herceptin resulting in heart damage

Just wanted to share this research with anyone on Herceptin. Research into Herceptin and heart problems: https://www.eurekalert.org/pub_releases/2018-03/uok-std030918.php
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Re: Herceptin resulting in heart damage

Wonderful news.

get out there and live your life.

Congratulations, my very best To you.

loveCate.

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Re: Herceptin resulting in heart damage

Hello Jay68,

Bleeding brill! 🥂 🎉 🎈 🎉. 😊 X 🐥
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Re: Herceptin resulting in heart damage

Hi all,

 

Just reporting back following my FINAL oncology appointment!

 

My oncologist is happy - the recent echo heart scan shows my heart is acting well - back to 60% - so I can stop the Ramipril with immediate effect.

 

I'm happy too and that means I've now been removed from the onology department follow ups - fingers crossed that's forever..... 

 

A great feeling - a great day!  

 

Love to all Jay68 xx

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Re: Herceptin resulting in heart damage

Hi Erina, its calked the PERSIPHONE Trial. Now in third stage. Latest results below:-

 

https://www.pharmaceutical-journal.com/opinion/correspondence/less-is-more-shorter-trastuzumab-treat...

 

Hope that helps .

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Re: Herceptin resulting in heart damage

Good day

Just reading your post and are interesting to know more about the research in connection with 8 / 18 Herceptins.  Im currently busy with Herceptin.  Had 8 so far  -  9 to go.

Do you have any info re research!!??

Regards

Erina

(South Africa)

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Re: Herceptin resulting in heart damage

Hi all, just reading through this thread and found it interesting Jay that anything below 60% requires medication. I have had 11 injections and after my 2nd heart echo my heart function was at 54% which was down from what it was, I'm not sure what is was at the start. They debated over giving me Ramipril as I have quite low blood pressure anyway and then said I didn't need it. My last echo my heart function was at 55%, I've been advised this is within a normal range.

 

I've not noticed any issues and do exercise other than keep having to take really deep breaths, but unsure whether that is an effect still from the chemo or the herceptin. I've got herceptin no. 12 tomorrow and another echo on Thursday. 

 

I guess it's just a case of trusts have different opinions but I find it is a constant worry as to what damage it might be doing but really want to continue with it as it is hailed a wonder drug.

 

Good luck with your appointment Cate xx

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Re: Herceptin resulting in heart damage

Hi Waveylocks,

Oh dear, you did have a hard time of it.

I was fortunate to have finished my course of Herceptin.  The last Echo was

down.  Hence having to see Cardio.  Like you I walk for no more than 20 mins.

I find Ihave to rest a lot more than I have in the past.  Hopefully the lethargy won’t last.

Keep smiling Waveylocks,  you are an inspiration.

love and hugs.

 

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Re: Herceptin resulting in heart damage

Aww thanks Cate... I was a bit worried after Id posted that it sounded incredibly smug....know it all? If it did wasnt meant like that and I apologise. I remember being very scared when my heart played up on the Herceptin, my GP was worried too....several visits in an ambulance to a&e occurred as instructed by doctors & ambulance crews. My oncologist debated heavily & lengthily -he wanted me to continue but could also see the effect. So ended with just  the nine injections before the results of the research came out. Its all a fine balance & treatment pushes our bodies to the very edge of what our bodies can tolerate. 

 

The one thing I was told that does help to improve things if you can manage is walking on the flat. Avoiding the hills & slopes reduces stress on the heart but still exercises the heart muscles gently. Its not easy because you get very tired but 5-10 mins will make a big difference....20mins ideal but you must take account of how you are feeling & not push hard. Build it very very slowly. I used a flat park with park benches round the path to rest on -there was a handy cafe for a treat too. I found that wise advice really helpful. I could only do this once on my heart meds & it was a very slow gradual build of walking. 

 

Big hugs to all you brave gals. Without Herceptin our outlooks would be bleak indeed but its not without consequences for so many of us....but not all. Hugs xx  

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Re: Herceptin resulting in heart damage

Hi Waveylocks,

I am just home from meditation, helps to calm and enjoy being in the moment.

The sun is shining, and I am about to have a walk on the sea front.

Thank you for your happy posts.

Wishing you joy and hugs to you also.

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Re: Herceptin resulting in heart damage

Hey Congrats to all you fundraisibg ladies! Brilliant effort! Wow!!

Yes take heart all....sorry yet another pun! Heehee! Getting through all that harsh treatment is a true accomplishment! And you certainly develop a more focused straight forward view about life after it all. I take things steady these days....I dont know how long the reprieve will lastbut the great thing about living in the moment is your not aware of time passing. Everyday Im here is a privilege & I try to savour all that each one brings.

 

wishing you all much joy & I hope the effects of all these harsh treatments starts to gradually ease soon. Big Hugs xxx 

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Re: Herceptin resulting in heart damage

Thank you ladies for your good wishes.  I'll keep you posted!

 

I'm in the UK.

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Re: Herceptin resulting in heart damage

Good for you raising so much money for Cancer Research.  Well done!

I will be thinking of you Wednesday afternoon.

My fingers and toes crossed also, for an end to appointments for you.

Are you in UK or Aust. as I am?

All positive thoughts coming your way from me.

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Re: Herceptin resulting in heart damage

Hello Jay68,
Well done you for all the fund raising. I hope all your appointments go well and the heart damage heals. All tge very best to you 🐥 x
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Re: Herceptin resulting in heart damage

Hello Cate677 - well done to you raising funds for Cancer Research.  I've recently raised £900 for Cancer Research through Race for Life and I've just held an end of treatment party and raised a further £300 for Breast Cancer Care.  I feel it's the least I can do to pay back and enable further research to go ahead.

 

Good luck for Wednesday - I've got what hopefully will be my final echocardiogram on Wednesday afternoon - will find out when I see the onc on 14 August, which again will be my final onc appointment.  Fingers crossed..... x

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Re: Herceptin resulting in heart damage

Well done Cate for all the fund raising. Love the name Adventure Before Dementia - very good. Take care lady and all the very best to you 🐥 x
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Re: Herceptin resulting in heart damage

Hello jay68,

Thank you for sharing your very positive reply.

I agree, Herceptin is one wonderful drug, We are so fortunate to have had all this incredible treatment.

After reading all the posts, I don’t feel as apprehensive about seeing the Cardiologist on Wednesday.

Kindest regards for your continued health and well being.

I have been out raising money for Cancer Research today.  We did very well.

Our team “Adventure Before Dementia” (We are older ladies!) take part in Relay for Life, held

each year.  Last year $80,000 dollars was raised.

Thank you again Jay68.  Love Cate.

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Re: Herceptin resulting in heart damage

Thank you Wavylocks for your reply.

Great news that the damage to your heart has repaired itself.  Very encouraging.

My very best wishes to you.

kindest regards Cate.

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Re: Herceptin resulting in heart damage

Hello chick 1.

I am so grateful for your post and good wishes.

I finished 12 months of Herceptin 4 weeks ago.  Fortunately I got through alltreatments

without any problems.  

Last Echo showed the damage.  Very disappointing, however, thank goodness for the Herceptin,

as you said.  Fortunately damage mild.

very Happy for you now that you are finished treatments.

My very best wishes for your continued health and well being.

Thank you again.

Love Cate.

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Re: Herceptin resulting in heart damage

Just to say that Herceptin heart damage often does improve following treatment. My heart wall has repaired itself. I am still on Ramipril & Cardivilol......cardivilol gives protection my cardiologist said but is planning  to take me off it soon. The ramipril is probably long term. 

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Re: Herceptin resulting in heart damage

Hi Cate677 - I've just read your post and want to reassure you.  I've now finished all 18 Herceptin treatments and before my 14th one I was informed that following my echo scan my heart was showing signs of failure - I too was rather alarmed!  I had been warned this was a side effect but I'd got no symptoms to show anything was wrong but my heart had dropped to 54% - anything below 60% and they begin think of dealing with situation.  I was put on Rampiril firstly 1.25mg - which helped but not sufficiently by the end I'm on 3.25mg per day - on my last echo it had gone back up to 64% - I'm due an echo on 1st August - I'm really hoping the heart is starting to repair itself and I'll be able to come off the rampiril - they have their own side effects - dry cough, mouth and can affect kidneys - so far the side effects are minimal but I'd love to come off them!  I was told the damage caused to the heart by herceptin will hopefully repair itself once the herceptin finishes.  I asked if I could help by healthier eating and more exercise but was told although this was good it wouldn't help as it was the herceptin itself causing the damage.  Love herceptin and what it does but wish it had left my heart alone....!!  x

 

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Re: Herceptin resulting in heart damage

Hello Cate,
I just wanted to acknowledge your Post and wish you well. It's not like you don't have enough to deal with without the added extras.

Fingers crossed that it is mild and recoverable from (as can occur). Was it diagnosed from a drop in LVEF score? Does it impact on your daily life? I hope it does not affect you too badly.

I had herceptin too (finished April). I have not been diagnosed with heart damage, (sometimes I wonder as breathing capacity reduced since chemo). Heart function score dropped from 80s to 60 before final treatments. Wish they had done a scan right at the end as well. The additional prospect of heart damage was just another challenge to deal with. Having the Muga scans or Echo and then hoping that if there was any deterioration it would be minimal and you could carry on with treatment etc. One more thing after another eh?

Take care Cate, wishing you well with Cardio appointment next week 🐥 x
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Re: Herceptin resulting in heart damage

Hello everyone.

Reading through all the posts is so encouraging.

I got through all the treatment, then was told that my heart muscle was damaged.

will be seeing Heart Specialist next week, must admit I am nervous.  Don’t know what to expect.

My Oncologist said the damage was mild,  

Would really appreciate hearing from someone who understands my anxiety.

love to you all.Cate.

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Re: Herceptin resulting in heart damage

Hello everyone.

Reading through all the posts is so encouraging.

I got through all the treatment, then was told that my heart muscle was damaged.

will be seeing Heart Specialist next week, must admit I am nervous.  Don’t know what to expect.

My Oncologist said the damage was mild,  

Would really appreciate hearing from someone who understands my anxiety.

love to you all.Cate.

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Re: Herceptin resulting in heart damage

Hi again, you Lovely Women,

 

Wavey and Curly - How flippin "cute" is that with your names! Obviously meant to be in touch with each other.

I'm NOT glad ANY of you are on this Forum for the reasons you are, but I AM soooo very glad that you all have others here, to be able to share your similar problems and experiences. Be that to support and "bolster" each other up, or bounce ideas off, advise each other. Is exactly why this 'ere wonderful Forum is so invaluable and whoever had the foresight to set it up, really deserves a Dame or Knight-hood. 

I'm "struck" by your heartfelt desires and hopes, that future women hopefully won't have to go through similar to yourselves - that's a selfless and extremely compassionate way to thinking and attitude.

 

Hope you're all improving with your heart probs, however slowly that may be. Am wishing you the continued "Patience, Steadfastness and Perseverence" to carry on with all that entails and to keep kicking at this BLEEPTY disease and the nasty horribly unwanted effects you have suffered from it.

 

Loadsa Love to ALL of You

DoolallyDellyDingDong xxxxxx 

 

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Re: Herceptin resulting in heart damage

Thanks for the info waveylocks. That's very encouraging news. I see my oncologist later this month so will discuss it with him. I'm with you though, if heart jiggered then what's the point. That new study should save a lot of women from experiencing damage. They've really come a long way with treatments. We're pretty lucky it didn't hit us 20 years ago. 

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Re: Herceptin resulting in heart damage

I've  just checked Curlylocks and it is called The Persephone Trial -results expected early in 2018. Link below:- 

 

http://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-comparing-6-months-and-12...

 

Hugs xx

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Re: Herceptin resulting in heart damage

Hi Curlylocks -love the name by the way!! 😊 Yes you will probably have had enough too....will try to see if the results are out. Think its called the Persephone trials but not sure.....memory issuess too!! Ive a feeling its forecasted for the summer coming. The trial has finished and involved 4000 women in th uk. 2000 did the 18 and 2000 did the 9. My Oncologist said for it to be a third stage trial and out there on us patients they have to have shown that they are not causing us harm. His prediction is that if it is a little less effective it will be a very small percentage difference. As far as am concerned its no good if theyve wrecked your heart and that is going to give up the ghost if they've only gvien you another 5% better odds of surviving longer from a relapse of cancer!! Haha! All about balance....  

Hope things improve for you soon......my heart did improve it just plateaued now so need the meds probably for life. Little walks around a flat park is what I can manage but not daily. Some people improve loads so you never do know......fingers crossed. Xxx 

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Re: Herceptin resulting in heart damage

Thanks for getting back to me Wavey. I had 10/18 herceptin treatments so glad to hear it might have been sufficient. My cardiologist told me that even if heart starts to show improvement in function I'll prob be on meds for life. That leads me to think that it's the meds improving the heart function rather than the heart actually healing. I know what you mean about other people's perceptions now that treatment is finished. Seems like they are all thinking everything should be back to normal now but I still feel crappy. Honestly don't know how I'm going to go back to work. The thought really frightens me. I'm trying to force myself to walk every day but am always tired and short of breath. Get fed up feeling like this. I'll stop complaining now and try to be positive today. There's a brand new year ahead of us. I wish you joy, peace, love and good health in 2017. 

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Re: Herceptin resulting in heart damage

Thanks for getting back to me Wavey. I had 10/18 herceptin treatments so glad to hear it might have been sufficient. My cardiologist told me that even if heart starts to show improvement in function I'll prob be on meds for life. That leads me to think that it's the meds improving the heart function rather than the heart actually healing. I know what you mean about other people's perceptions now that treatment is finished. Seems like they are all thinking everything should be back to normal now but I still feel like **bleep**. Honestly don't know how I'm going to go back to work. The thought really frightens me. I'm trying to force myself to walk every day but am always tired and short of breath. Get fed up feeling like this. I'll stop complaining now and try to be positive today. There's a brand new year ahead of us. I wish you joy, peace, love and good health in 2017. 

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Re: Herceptin resulting in heart damage

Hi Curlylocks,

Sorry to hear that the Herceptin has affected your heart. How far through the Herceptin course were you? Were you on the course of 18 or on it for as long as you can? The reason I ask is that there is a third stage research project going on evaluating whether 9 rounds is as effective as 18. Believe the results are due out soon. 

 

I am now 18 months since my last Herceptin but still have palpitations Im afraid so am reliant on a maximum dose of the beta blocker Cardivilol. I am also on Ramiprimil as its affected my blood pressure too. However the eco cardiogram when last done showed improvement. I was told by a nurse thst the effects sre likely to be permenant now. Its how quickly you recover that is the marker now they have stopped giving you the Herceptin. 

I was told by my Oncologist that many people recover from the heart damage that left ventricle damage is specific to Herceptin and can repair. I remain under the cardiologist.

 

I find my energy is limited and I continue to suffer from fatigue.....unfortunately most  people think that once you are through treatment you are back to normal, including my employer, which makes it tougher. Key though if you can is regular short walks......even tiny ones.

 

Im afraid I dont have any stats. Sorry.....maybe someone else will come along and have them.

 

 

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Re: Herceptin resulting in heart damage

Hi wavey. Your story sounds very similar to mine. My ejection fraction had dropped to 31 before anyone seemed to notice the echos had showed a downward spiral. I always felt tired and sob and was thinking I was just getting lazy. Herceptin stopped for now and I'm on ramipril and bisoprolol. They said they will restart herceptin if my levels go up but I'm not sure I want to take the chance. I'm finding it very difficult to find info on Internet about this predicament. Do you hVe any idea where I could find stats siupporting one decision over the other. 

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Re: Herceptin resulting in heart damage

Hello to everyone and again to you, dear Wavey. 

Good to hear from you. We've had an exchange on elsewhere posts since on here. Glad to hear you really enjoyed your Malta hol. An interesting island i'd like to revisit sometime, having only had a brief day visit many MANY years ago (40!!) when I flew to to embark on an "Educational" school cruise round the Med!! It has loads of history, doesn't it.

No, I'm no further forward with my recon. Dived back into a dreadful mental downer slump beginning of May. I've had a little +ve "shift" today, which I'm hoping I may be able to gradually move forwards from. Knowing myself from past experiences of, I shalln't be convinced until it's lasted a few weeks, am bi-polar. I can cope more easily with the manic "uppers" than the manic "downers".. Nuff of all that.

Bad enough you have BC to cope with, without the extra of your heart probs.

On a very personal note - did you go to Malta with a significant other?? If so, go on, do tell. Or are you still single??

 

Loadsa love

Delly xxx

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Re: Herceptin resulting in heart damage

Hey everyone! 

Just wondering how  everyone is doing?

 

Apologies Delly -didn't see your post a few months back now! Am doing much better but suffer with lots of fatigue -tiring easily. Just back from a hol in Malta which was lovely 🙂 

 

its DIEP am heading for but not till late Spring. Struggling to get the last stone off before my op....been going round in circles for a few months now!! Lol... So post hol have put a few pounds back on....so back to the grind stone of getting it shifted!!!! Not finding it easy!!!

How are you? You any further forward re recon? 

Hugs xxx 

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Re: Herceptin resulting in heart damage

Hi to all here

 

Wavey - awwwwwwww.

How lovely that that nurse "picked you up" off the sob floor. Just what you needed I bet. It's a horrible roller coaster this dratted bleep of a disease. They must be so used to people getting upset.

Being a delayed implant recon girl who never ever wanted self tissue recon, I'm not as useful on Dieps. My surgeon who performed both my Masts was pushing Lat flap at me. I was quite small at 34 A-B and I thought I remembered him saying Lat Flap suited smaller women - all to do with the size of the tissue they can remove. In my more recent recon discussions (8yrs later), I was still thinking implants and he was happy to do but still spoke of using part of the back muscle which I still didn't want due to extra scarring and extra poss healing risks. However, I changed surgeons and went ahead with expanders and got through all the stretching appts - haven't yet had the silicon replacement op.

 

So is Diep tummy  or thigh? And I know you've posted it elsewhere, are you a single mast lady for "delayed" recon ??

How are you feeling today - you a bit calmer ? and still doing okay on your meds ?

Lotsa love and a hug Delly xx  Love to everyone else xx

 

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Re: Herceptin resulting in heart damage

Thanks Delly,

you are lovely 😊

On the blubbing front -been at it again today.....went for a mammogram -when I got there the receptionist said its a mistake and shouldn't have one until April -well I burst into tears -dear oh me-they were so kind to me but just couldn't help myself. What was good though was a kind nurse took me to a room and had a chat to explain. She used to work with my Onc and said he is the kindest most thorough of Oncs who will leave no stone unturned to get the best outcomes-we were just chatting so she knew nothing about the heart thing. I came away feeling reassured. Every cloud and all that...😊😊

 

On the recon front am down for a DIEP or Tram flap. Have met with the surgeon and his nurse. Now found out he rarely does DIEPs so a Tram Flap. Now with the heart thingy it will be delayed -maybe as well as I'd like to see someone who's done loads of DIEPs. Seen the photos so I know it's no picnic for either op. His nurse said she'd put me forward for breast reduction before recon -hmmm not so sure about that. So going off the ball with it all, preferring to focus on getting my strength back. 

 

Hugs Waveylocks xx 

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Re: Herceptin resulting in heart damage

Yey, Wavey, that's great. If you wanna good blub, let it flow. I'm long down the line of 9 years and I still get upset and wobbly when I talk about BC (Big C**P!) tho' there's been a whole load of other stuff since on top. I'm a far more openly emotional person than I used to be, but also don't suffer or put up with fools so gladly, less tolerant with certain things but MORE with others such as fellow BC'ers. I also still feel very angry which isn't so good - okay if I'm on my own, can have a good stomp and rant till I'm red in the face which I do do sometimes.

 

I know our paths have crossed on other threads Wavey, and I'm sure you've probably posted details elsewhere, but just refresh me what's happening recon wise with you?

And Yeah, aren't people ab fab on here - helpful, supportive, non-judgemental. I feel it's been responsible for a bit of a recent turnaround for me and am hoping I stay that way 'cos it's a bit unpredictable.

 

Love to you and all else who're looking in

Delly xx

 

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Re: Herceptin resulting in heart damage

Thanks Delly, 😊😊 My Oncologist is so kind and understanding that I find it hard to oppose. He did listen to me as he could see I was really upset but asked me to wait a month for the next echocardiogram as he said when you go on the tablets it makes you worse before you get better.

 

When I saw my GP my blood pressure had really dropped but upper reading was a little high still and my heart rate was much better (90's) so the drugs are working -yeah!! Put me on a higher dose of beta blocker as well as the Ace Inhibitor. So am now hopeful that I won't need further intervention. The Onc said he would try to take me off the meds a bit later than usual as the reaction had gone on a long time. Fingers crossed. Need to keep exercising -the hearts a muscle after all!!

 

Yesterday I couldn't stop crying -even when I saw the Oncologist.....those tears went on a bit (felt a bit stupid, irrational and ridiculous). Went through the whole of BC treatment without hardly a murmur....lol. Think it's also a reaction to everything not just the heart issue. Think seeing the nurse about recon didn't actually help me!! Unfortunate it was that same day....lol.

 

Feel better today & more optomistic. The sun is out (not really -the sky is grey here) 😊 And am so so grateful to your kind words, Marli's and others. What a lot of lovely people there are on here. Thankyou so much Hugs xx 

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Re: Herceptin resulting in heart damage

Hi Wavey and Marli, hope you're both good ??

Flippin 'eck Wavey, you have a good rant. Yeh, me thinks you need to get stroppy, gently but assertively to begin with - if that doesn't work, then rant, rave, stomp and DEMAND ! cos' all of this aggravation ain't doing your heart any good either, IS IT ! Just MORE stress.  Good luck with it lovey.

Keep us in touch

Delly xx 

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Re: Herceptin resulting in heart damage

Thanks Marli & Delly,

Yes  Marli you very kindly posted on another thread to me -thanks your info was very helpful. The trouble is I was left for three months after it started -bit of a slip up of internal communication. So only got result recently. Everyone else says cardiology involvement needed except for Oncologist. Wish I had a cardiology nurse (if only) but programme of introduction of meds/care was sent straight to GP to implement.

 

Problem with that was that I had huge palpitations over the weekend so my  heart rate even at rest never went below 125 & blood pressure was 191/116 so fairly high. Had a banging headache and felt nauseated so concerned ambulance crew insisted on me going to A&E -where doc was worried & felt it was right for me to be there observed all night but no additional meds. Wasn't until I managed to see GP next day  blood pressure and heart rate as high as ever that I could get the necessary increase plus beta blockers. Seems nuts to me & was a very unpleasant scary experience. This has happened twice now & infact last time the GP sent me back to A&E but really it's cardiology I need! Sigh...

 

My patience has run out now & am afraid I think am gonna have to be plain stroppy. Apart from the waste of the use of inappropriate resources I'm worried about the impact on my health. 

Excuse my rant!! Lol... Xx

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Re: Herceptin resulting in heart damage

Hi waveylocks  -think we have "spoken" about this before. After 1st regular echo (had 4/18) it was found that heart had been affected.

The rejection rate at start of treatment was 62 but had dropped to 50 so Herceptin was stopped . I had had no real symptoms except being a little out of breath climbing stairs or walking uphill and fast heart rate at echo appt. Saw cardiologist and was given ACE inhibitors and Beta Blockers. Also given a cardio nurse who came every 2 weeks to check my progress and up my medication as required. At next echo rate had gone up to 52, then next one was 60.

Restarted Herceptin September and all ok so far. Having another echo on Monday , so watch this space !

Don't see cardio nurse now but she is available if I have any questions as is GP. GP is now responsible for my medication now.

If you are worried I would go see your GP for her to keep an eye on your BP and reassess your medication - mine was raised twice to ensure correct dose.

Hope you get sorted soon,  Marli x

 

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Re: Herceptin resulting in heart damage

Hi, me again

That's extra tough you're having to go through all this alone  xx 

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Re: Herceptin resulting in heart damage

Thanks Belinda 😊😊 Just looked at your post after an early hours run of palpitations -seems to help if I'm sat up in bed -ruined my beauty sleep though!! Haha.

Good to hear that most recover well.....think I'm just a bit thrown as trying to move on. Never mind I know it's small scale in the scheme of things -do a good job though on scaring myself in the middle of the night -on my own so no other significant other to prod & disturb -hehe. The damage am told is not enough to warrant a cardiologists involvement. Onc had had a chat with one. Am not so sure though my blood pressure was really high at my Onc appointment yesterday & I feel pretty rubbish. He's a good Onc so must know these things....

Apologies for rabbiting on.... Xxx 

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Re: Herceptin resulting in heart damage

Hi there, two threads are running in latest posts about heart damage, I have posted in both, one is long term side effects of chemo and the other is called diagnosed with cardiomyopathy. If you are logged in click on my name, go to my latest posts and you will be able to find the threads. Take care, we often recover well. X

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Herceptin resulting in heart damage

Hi,

Just wanting to know if there is anyone else out there who has developed left ventricle damage as a direct result of Herceptin?  I was on 9/18 when it happened. Herceptin is not going to be continued. Symptoms were palpitations and increasing fatigue, especially on physical exertion.  Now on heart meds to support heart. Hopefully will recover in time. Be interesting to hear from others. how long does it take to recover? Feeling worried by what has happened.