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Herceptin side effects

3 REPLIES 3
Highlighted
Community Manager

Re: Herceptin side effects

Hi psychdoc

Sorry you're having issues getting through to the nurses. Are you calling from outside of the UK? 

The Helpline is open from: 

  • Monday to Friday — 9am to 4pm
  • Saturdays — 9am to 1pm

If you are still having issues getting through you could try either emailing the nurses on 'nurse@breastcancernow.org' or by posting a message to the Ask Our Nurses board. 

I hope this helps. Please do let me know if you're still unable to get through to them,

Best wishes,

Saskia

 

Highlighted
Member

Re: Herceptin side effects

Hi,

Thank you.  I would love to talk with one of the nurses but when I dial 0808 800 6000 my phone says it's an international call and if I dial 1808 800 6000 I get a reservations number, not sure what I am doing wrong, I tried 2 different phones and got the same responses.

Loraine

Highlighted
Community Manager

Re: Herceptin side effects

Hi psychdoc

We're glad you're finding the Forum useful. 

If you ever need support or just want to chat about the side effect of your treatment, you could reach out to our nurses on 0808 800 6000

Sending you our best wishes,

Saskia 

Highlighted
Member

Herceptin side effects

I am so happy to have found this forum.  I finished chemo in November 2019 and had my last herceptin 8/7/20.  I was on Letrozole but recently switched to Exemestane.  It took me around 3 months to start to get back to myself after chemo ended.  The time period between chemo ending and doing my herceptin treatments was manageable (low energy and insomnia).  I have been having a very rough summer of just not feeling well, low appetite and no energy.  I thought after my treatments ended that I would not be feeling this way because everyone keeps telling me that herceptin treatments are received well by most people.  It was comforting to read posts by others who also experienced low energy and fatigue.  I am taking 250mg of magnesium to help with the leg cramps and 5000mg of biotin to help with the nails (they still split and break).  Thankfully, I work in a school and was approved to work remotely until the end of the year because I do not think I could handle the commute with a full work week.