Thanks again Wolvesgirl
I will check out the August chemo group and likely will contact you, many thanks for being so kind to offer 🙂
My appointment is Monday with the oncologist.
I will be in touch.
I do hope all goes well with you ongoing treatment.
My wounds are no properly healed yet at least the weigh of the boob is upsetting to the scar tissue on the inside and I still have a slight puffy pocket under arm, but on the surface I dare say the medics will say its healed, it just doesn't feel like it to me.
Luv n Hugs
I think the discussion about triple neg is one you will have with the oncologist who will explain the whole thing. I am no expert but the major drawback as far as I can see is that treatment is limited to chemo and radiotherapy as it is not hormone sensitive and does not respond to Herceptin. However, outcomes are very good in many instances and so there is no need to be too despondent especially as ours were found so early.
That is why I agreed to chemo - the stats demonstrated that it was worth doing. I am on a regime called FEC-T - three doses of a combination of drugs and three of a single drug. I had my second dose today so we shall see how that goes - it’s a reduced dose compared to the first as I reacted to the first cycle and had a week in hospital. Please don’t let that put you off! I did feel a bit backed into a corner but that’s not the clinicians, it’s the disease, so they are only trying to do the best for you and I was confident in that.
Do do you have your appt yet? Please do let me know how you get on - I am in the August chemo group or please msg me if you prefer. Keep strong! xxxx
Thanks for your input. I am wondering if I am triple negative too although they've not used those words.
How are you getting on with the chemo? Hoping all is going well for you.
I should post in that part of the forum for chemo treatment.
thinking of you and sending luv n hugs.
The letter from the hospital today said:
Just wanted to say that your story is identical to mine - recalled from routine mammogram, initial biopsies all pointed to DCIS but on lumpectomy a 1.1cm grade three invasive cancer was found (plus a less than 1mm area next to it). I then had to have SNB which came back clear but my cancer was found to be triple negative so the only treatment is chemo and radiotherapy.
It knocked me for six too - I am conflicted with being so very grateful it was found early thanks to the screening programme but being pretty annoyed I have it! Generally I think the thankfulness wins out. I have started chemo - I have my second cycle this week all being well and hope to be finished by Christmas. Then radiotherapy after Christmas and then annual mammos for five years.
I thought long and hard about the chemo - it seems completely counterintuitive to me to poison healthy cells but I concluded I needed to give myself the best chance so have gone with it. Everyone is different though and the decision is yours to make. I went into the consultant with an open mind which is all you can do. Hope the next step in your journey goes well. xxxxx
Thanks again Shi
I know I have to make another list of questions for when I see the oncologist, but really all I want to do is forget about it, not think about it, it seems like there will be months of treatment that will impact so much on my wellbeing. I guess I will feel more focussed about things in a few days.
I keep thinking should I make my will now, should I clear everything out and just go minimalist then I think can't do much yet as wounds still healing, I guess just do things gradually.
My aging mother in her 80s is asking if she can come with me to the oncologist, I am not sure its a good idea since she is not going to be looking after me or helping me at home and its one of my concerns looking after myself during treatment.
The Macmillan support worker is phoning me Monday so maybe she can help with suggestions.
I guess I need to be happier about being cancer free and not think so much about the dreaded after treatment.
Thank you so much Shi and everyone for the very good support here.
Love n Hugs to all
You are brave and thanks so much for your reply its much appreciated.
I guess I think my health and quality of life will deteriorate a lot more with chemo and I won't be able to manage my own health so well living on my own and having to do everything for myself + how it could impact on my other chronic health conditions as the immune system will take such a battering, at 66 years I'm not sure I can manage it and you are right its going to be difficult to make these decisions knowing the body is currently cancer free after the op.
Its good to know the radiotherapy works so well for people.
All good wish to you now and for the future.
Hi Astra, initially at biopsy I was told grade 2 and op + rads, after op it was tnbc, so chemo and rads, I was 😳about chemo but got kitchen sink thrown as adjuvant therapy after op, so that was my journey. Get your questions ready for your next meeting (take a notebook and write down questions and the responses, it might help to use the ask the nurse and someone like me facility on here too. Keep off dr google. You do what’s right for you, it’s your journey and you are in control 💕💕✨✨Shi xx
You may be knocked for six but you come across as remarkably level-headed. It will be hard to make the decisions, knowing you are currently cancer-free.
Anyway, I wanted to say that one of my oncologists, putting me through the second vile phase of chemo, said that most oncologists have mixed views about the efficacy of chemotherapy but absolutely no doubts about radiotherapy. He said that was the one that makes all the difference. His timing wasn’t brilliant since I was 11 weeks into the 18-week programme and hardly going to shout STOP. In fact, I still would have had chemo as my bc was particularly aggressive and my lymph nodes heavily affected so, in my case, the more treatments the better. However, you might want to ask about whether this is a shared opinion?
Good luck with the decisions and congratulations on being bc-free.
I am worried about the chemo and radiotherapy and what it will do to my body, possibly making more sick with additional health issues, I already have too many.
Still I guess given time to absorb and speak with the oncologist going forward may be easier.
Thanks for your encouragement and support xox
Hi Astra, sending big hug and great news on clear margins and no lymph node involvement. The whole thing is like being in a washing machine on a spin cycle. And it’s not unusual for changes to diagnosis after operation, so please don’t let that wobble you. You are doing amazing and the decisions and choices going forward are yours to make and you will do whats right for you Astra 💕💕✨✨Shi xx