Soz just seen this - assume you are happy with the result? Also so didn't you need any more chemo after the first 4 cycles? Thanks.
Hi Linda. I took part in Rosco Trial last year, also started on FEC with no issues at all apart from the obvious hair loss 😣 I had my mastectomy in August last year with immediate Diep recon and radiotherapy in October x. I can't say I have had any lasting effects on my breast from the radiotherapy..luckily. If you would like any more information or have any questions. Please let me know. 💪😊
I have started on this trial on FEC last Wednesday 2nd May. I have been told I need a mastectomy and am going to discuss immediate reconstruction if it is an option DIEP. I also need to have radiotherapy and wondered if anyone has had this who can advise what the effects of radiotherapy will be after the reconstruction please?
I would also like to contact others starting out on this trial.
Good on you re the new name Pauline! Very positive. Sorry that you are suffering with cording, it sounds miserable. Hope you get some relief soon.
Take care xx
Hi Pauly. I'm responding, not because I've had the wire guided lumpectomy, but because I have heard about it from others. It's really a very thin wire that is placed next to the lump because the lump has become so small they need to know where it is, and can't expose you to x-rays while in theatre for the surgery. They use a mammogram and/or ultra sound to locate the lump, and put the wire in place, using a local anaesthetic. the surgery is done under general anaesthetic. My own lump was large, so there was no mistaking it. Your procedure seems to be standard for smaller lumps.
I can't imagine what the chemo was like, as they told me it wouldn't help me enough to justify the side effects - it's a double edged sword, that. There is just no telling when we're going to melt. For me it was the radiation - I sobbed my way through the first 6, for no rational reason. I think it's fear of the unknown. Just keep coming back here and there will be plenty of ladies to give you moral support. Hugs.
I was told that unless there was COMPLETE pathalogical response i.e. the tumour completely disappears, then I would be having another 4. I was very disappointed when I was told but in the end they are doing whats right to keep you alive for as long as possible.
My lump shrunk from 33mm to 14mm on the pre-surgery ultrasound, but was found to actually be bigger than that when the lump was examined after surgery. Luckily the surgeon took a fair bit & got healthy margins.
I didnt respond well to the FEC, it made me quite ill but a lot of other ladies got on fine with it. I actually did better on the TC, which I know you havent so it just proves that everyone is so different.
I actually nearly came off the trial after the first 2 FEC (which wouldve totalled 6 cycles in all) because i felt so ill. I dont ever want to feel like that again. But of course after 10 days I started to feel better & decided to just get on with it. I didnt want to regret NOT having chemo at some point in the future.
So even though youve had good chemo results, it could mean that you will still need another 4. I did ask them to reduce the dose to try to prevent me being so ill but that didnt work haha! Try not to overthink it. Your onc will be the one to make the decision & will give you all the facts, but remember that they want to keep you alive and you will recover remarkably quickly after your radiotherapy.
Take care. Im here if you have any other questions.
Glad to hear that you had such positive news and now have a date for surgery. I hope that the chemo effects are easing. Take it easy xx
Thinking of you at your appointment today, hope it goes well. Let us know how you get on xx
Glad to hear that you are feeling a little better after chemo and managed to avoid the hospital! I hope that you have a wonderful family day today. Best wishes xx
Happy New Year Pauline. How are you feeling? I really hope that you are not suffering as badly as after your previous chemo. It's good to hear that you have some dates in place re the next stage of treatment. Thinking of you xxx
Thinking of you today as you undergo your last chemo session. I hope that you manage to keep comfortable during the next few days. I'm glad that you had a good Christmas but sorry to hear that your daughter is poorly.
It sounds as though you have a lovely family who are supporting you.
Best wishes xxx
I can't compare my journey to yours, but I want you to know I have read your posts, daily as you post them. I want you to know you are being heard, and while I can't help, please know I am thinking of you. I have recently finished radiation therapy, and cried all the way through the first 6, and then again for the last one. I know it's nowhere near as bad as chemo, but I do understand that feeling of helplessness and dread.
(I have been put on anti-depressanst now, to help me cope.)
I was just reading your posts. I'm so sorry to hear that you are having a difficult time. I didn't have chemo (just surgery and radiotherapy) but I know how hard it must be, taking its toll physically and emotionally. It's sounds as though you have a wonderfully supportive husband. I know that it's hard, but remember you are the same you, and you will get through this. Have you thought of maybe having some counselling for additional support?
I understand where you are coming from, no talk of cancer over Christmas. This time of year heightens our anxieties and emotions also, which doesn't help. You are still the amazing, lovely person that you have always been.
I hope that you have a lovely family Christmas Sending you a hug and best wishes xxx
Had my first chemo yesterday, apart from being a really long day, from 9 am til 5 pm, it all went smoothly. The Herceptin made me really cold, and the cyclophosphamide gave me sinus pain and a headache. I was tired!! Slept for two hours when I got home, took my meds like a good girl. Slept badly last night, hot flushes and constant trips to the loo for a wee, which I guess is understandable considering how much fluid they pumped into me!
Today I feel okay, no nausea or sickness, a bit of a headache and still feeling tired. Is this normal? When do side effects kick in?
Feeling quite positive so far
Hope everyone is doing well!
Im good thanks How are you doing. Well.....my coil is still a mystery...CT scan didnt find it...to go for another pelvic ultrasound..:) annoying Little thing lol Had MRI today to map out my blood vessels prior to surgery on Wednesday next week...eeek.
Love and hugs
Yes, 4 teeth was a little extreme, but my dentist died unexpectedly 18 months ago, and finding another NHS dentist has been a nightmare! Luckily my oncologist referred me to the Orthodontics dept where they did the necessary. All to do with the Zoledronic acid at the end of the treatment.
I decided against the cold cap, I've read such mixed reports about it, and to be honest, at the moment, losing my hair isn't something that worries me. But just in case it does, I have a wig picked out ready!
No one has mentioned steriods, I guess I don't need them? They told me 6 hours as each drug is administered separately, 2 take 90 mins each, the other 2 60 mins each. with a break in between each. The first time is slower as they watch for adverse reactions. I've loaded my iPad with dozens of books and hours of music. Though I am so restless recently not sure how I will settle? If I can get a decent signal I may well be on here!
The support on here is great 🙂
Thank you xx
Blimey 4 teeth out is a bit much! Presume they were a bit dodgy anyway. The last thing you need whilst having chemo is toothache.
Good luck for Thursday, I also started on the TC so feel free to ask me anything. I didn't get on too bad with it but I know some ladies who did so fingers crossed for you! It seemed to do the job though, halved the size of my lump pre surgery.
6 hours is a long time...I was only in for 3-4 hours max! Why so long?!! Or are you cold capping? We used to read newspapers & chat with people/nurses/volunteers. You can have a nap if you want 😋. Some people take iPads in with movies downloaded on them, or play games.
It's a bit of a chore but I used to go shopping afterwards (couldn't do that on fec!) then go home & crash for a few days.
Do you have some steroids to take the day before chemo? Word of advice...take them early like in the afternoon, no later than 4pm or you'll never sleep! Take all your tablets as directed & you should be fine.
Let me know how you get on! Don't forget, just ask me anything.
Cathy...dental treatment is advised before starting chemo but particularly before having the zolendronic acid infusions as it can affect your jawbone. Although my dentist said he'd never seen anyone in his whole career be affected!