Sounds like your oncologist is being very thorough which is really good .You need a clear picture of what's going on so they can decide the best way to treat you .There are most definitely false positives at times with the bones and different radiologists can interpret slightly differently so it's a complex task .The waiting is horrible .I hope you get the best news you can 🤞🤞🤞
Thankyou everyone for your reassuring words,just to update from my last post.Unfortunately my C.T scan came back as having secondaries in my spine and lungs so then had to have an M.R.I.I was then referred to an oncologist who was wonderful and explained that I would have to have Chemotherapy,she also told me that she doesn’t think the spine was malignant but my lungs were so commenced on Letrozole.The onc also sent me for a blood test and Pet scan which was on the 19/9/19,as I couldn’t start the Ibrance until she had seen the results of both.Well I was told she would ring me about the outcome etc but didn’t,when I rang them I was given an appt for the 8/10/19.I then received another letter to say my appt has been changed to the 15/10/19.This obviously concerned me So rang the breast nurses to find out why.It seems my onc is seeking a second opinion as the Pet scan was inconclusive!what exactly does that mean!
People keep saying that no news is good news but it doesn’t help and I am getting more & more anxious with the waiting.Has anyone else been through this?
Bevrax, you are allowed to cry, and scream and shout if that’s how you feel. Once is bad enough, but twice seems 😱. Unfortunately it does happen more often than you would think. I’ve got secondaries in my lungs, and quite honestly they don’t bother me. I’m on a double whammy of Letrozole and Palbociclib and they are doing a great job. I was diagnosed almost three years ago, and there are even better drugs available since then.
I think you need a proper discussion with your main consultant. Preferably with someone to support you and write everything down for you. I’m sure that knowing how you feel will be helpful in formulating a treatment pathway for you. Emotional resilience is part of that treatment. Push for psychological services support, holistic treatments and ask what else?? Always a good question to end a meeting with. 💐😘
Very sorry you have had such rubbish news - the ladies in the secondary section of the forum will give you lots of advice and support when you are ready to go there - some are living their lives to the full years after this diagnosis - hopefully you will be the same 🤞.Jill x. https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/ct-p/secondary_breast_cancer
Bevrax sending ❤️Please use the ask the nurse and someone like me option and also jump onto chemo thread on here, there is a September 2019 chemo starters and if you are starting in October there will be a October 2019 chemo starters one starting. 👭👭chemo is easier when you can share with others who understand and are going through chemo too ❤️ Do speak to your teams too there are reflexology classes and things that you could look at and book your look good feel better session through Macmillan at your unit, 💕💕✨✨Shi xx
So sorry Bevrex, having it once is bad enough but for it to return, that's just awful.
Do chat with the McMillan nurses at the hospital and breast care nurse specialists as you need to and the team on the helpline here also.
Sending you feeling calmer days.
Big luv n Hugs
Thankyou for replying,unfortunately my C T scan showed secondaries in my lung and top of spine!
I am devastated,I now have to have chemo which I am dreading and can’t stop crying,I am such a coward.
You may well have done so already but I would definitely discuss how you are feeling with your support team. Not sure if you have a dedicated breast cancer nurse? If so they can either help or point you in the right direction to get the support you need.
Alternatively call the charities helpline as that's partly what they are there for...to support you and others going through this challenging time.
I am now waiting for a CT scan to check if there’s any secondary’s anywhere else then if that’s ok I am to have a mastectomy.
i had Breast cancer in 2002,had partial Breast removal with lymph nodes excised and radiotherapy,then tamoxifen for five years,all fine until now.
I seem to be having terrible panic attacks,I feel weak,giddy and faint,my hearts beating so loud and fast.I don’t know what to do?