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Tamoxifen Joint Pain

2 REPLIES 2
SianH
Member

Re: Tamoxifen Joint Pain

Hi @SavvyShopper25 

Thank you for your reply, I’ve struggled with different brands of tablets, I currently have Tillomed but they seem to have made things worse! The best brand for me so far have been Relonchem but still some pain with them. It’s been getting progressively worse and I’m unsure whether the cons outweigh the pros of taking it, the prospect of another 7.5 yrs of this is grim. I’ve rung my breast nurse today I’m hoping she may be able to offer me some advice.

 

SavvyShopper25
Member

Re: Tamoxifen Joint Pain

Hi @SianH

I have been on Tamoxifen for exactly 12 months today, I, too, suffer from joint pain. At first I had ‘restless legs’ in the evenings and couldn’t get comfortable. I also found I hobbled to the bathroom first thing in the morning as my heels and ankles were so stiff and painful.

I have managed to find a brand - Tillomed - which suits me but over the last 6 weeks, I now have a new area of pain in my elbows and wrists. Sometimes I have to lift a kettle with two hands just to pour myself a cup of tea! 
I am kind of used to it now, and am maybe also putting down the joint pain to old age creeping in (51 now!) although I am active enough insofar that I walk the dog daily and go on longer walks at weekends.

So whilst I can’t offer advice - which is what you asked for ! - I am at least letting you know I’m in the same boat!

SianH
Member

Tamoxifen Joint Pain

Is anyone else suffering with joint pain from Tamoxifen? I was diagnosed and successfully treated for ER + breast cancer in 2018. I was pre-menopause so it was the only thing I could have, the prospect of another 8yrs of this pain fills me with dread. I’m currently taking high strength Glucosamine & Chondroitin, MSM & Codliver oil capsules without much relief. From what I’ve heard the other option Aromatase inhibitors are even worse 🙁 Just wondered if anyone has any advice or suggestions. I’m feeling more like a 70 year old than 50!