keep meaning to mention ‘Heathers hair’ on here..they are a charity who make headbands with real hair on, so you can wear them under a cap or scarf and you have a fringe,* or even an all round short bob.*
it is free, but as it’s a charity, they like small donation.xx I have two of those myself.*
Thanks, pre assesment Tuesday, start Chemo Thursday so will see what she says. Thanks again.
I had a PICC line in on Monday. I took some co codamol beforehand. I do this before dentist visits too. Hardly felt the local anaesthetic and totally pain free procedure. I was advised to use a hot compress with a cover for the first couple of days. I had my first chemo and having the line made it a really easy procedure.
Just saw your post re Picc line, I had one it was put in with local anesthetic and then I had to have an xray to make sure it was in the right place, all completely painless.
All chemo drugs, blood tests etc are done through the line so no harm to your viens, had to go every 10 days to my local clinic and have the line flushed and dressings changed again painless and easy to cover with plastic sleeve so showering etc not effected.
From my experience I would say if offered one take it
Good Luck and Best Wishes
Hi Lozy, sorry no one has replied re PICC line. I can tell you of my experience with a Hickman line if it would help? I, too, don't like needles , but that's because my veins are so thin there is always bother finding them. As my chemo would last 5 months my Onco, once he'd looked at my good arm ( can't use the side the ops been on) decided that a Hickman line was the way to go. It went into the chest below the clavicle. The anaesthetic was local into the breast. The procedure , for me, wasn't the easiest . Again, all my veins are narrow so to thread tubing in was a bit difficult . It made administering the drugs extremely easy, and much reduced the time needed for each session. I have met a couple of ladies on my hospital visits who have had PICC lines fitted and it greatly helped the administering of the drugs. Both of them had the lines fitted after their treatment had started, and because their veins had hardened. PICC lines don't last as long as the Hickman. X
Hi Melly, everyone is very different re SE's, but I think you should let the Chemo team know about the palpitations. It may be that this is unusual and your dose needs adjusting. I'm not a medic so don't know, but the advice to me was, if in doubt ring.
Fatigue is fairly common, and if you have a little booklet and start writing down symptoms you may find a pattern emerging. This is helpful in planning stuff during cycles. For me I had one week knocked for six, one week ok but no immunity so didn't go out much, and the last week I was full of beans! Then it was the next round of chemo. The fatigue was cumulative for me, so by my fourth one there weren't so many beans, more like spaghetti! Im half way through rads now , so it's all doable. X
I have moved your post to a thread that has already been started, Chemotherapy - Tips and Tricks. The ladies on here are very supportive and I am sure they will be along to share their tips soon.
Hi well I finished chemo 1st September 2016 and radios last week and the past 3 weeks I've developed really soft nails that have lifted off the nail bed they smell occasionally and are generally manky and painful I've tried nail polish what else can I do ?
The little pots of fruit in jelly or fruit salad pots are great. A flask for hot water to keep for days when you struggle to get up. I agree with JenJen that a lot off stuff gets bought but not used. You do need a thermometer. The only thing I would say about the mouthwash is to get the non alcohol version. Chemo is scary but until you do the first cycle you won't know how you'll be affected by it.
Do get yourself on the monthly thread for your chemo as having the support of people at the same stage as you is invaluable. All the best for your treatments. xx
Ive got my first oncologist appointment tomorrow night and like you haven't got a clue what I need to get in preparation so the list of essentials from JenJen is a great start. All very scary but I remain positive and its great to see that others have the same worries/concerns that I have at this very early stage of our journey 🙂
I was given the info for Headstrong by BCN to make my own appt , and received referral info for wig through post today... Wasn't going to bother with a wig or cold app but BCN encouraged me to t least have a look at the wigs available. Makes you less noticeable seems to be the reasoning - doesn't really bother me - keep nipping to shop and forgetting I haven't put my softie in 😱Suppose no hair is more noticeable though. Will look into the Toni and Guy session.
make wig appt, make headstrong appt ...
I mentioned Headstrong to the nurse today (first time I visited the chemo ward) and she said it's them who make a referral to that service, after the first cycle. Maybe it's different by region/hospital, though.
And about the wig, I'm not going to get one, but from a Macmillan booklet I found out about the Toni&Guy "Strength in Style" service, and you can get an appointment with one of their specialists to talk about hair treatment, wig styling, etc. The first one is free and doesn't force you to continue.
I'm going to check it out on Monday.
I need an idiots guide to top tips too SCarletBea , heart scan next week should be starting chemo 1st or 2nd week of August . Trying to do a list and not succeeding , make wig appt, make headstrong appt ... Rest is vague , sun screen, moisturiser, boiled sweets ? When I get actual date might organise me more . Note book for chemo brain I have already as I am already fuzzy headed.
Hi, I'm meeting the consultant oncologist for the first time later this week to discuss my oncoming chemo, probably to start early August.
I read the other tip thread completely, a bit of this one, and I'm so confused. There's just so much information, and my brain is still a bit fuzzy from 2 general anaesthetics...
Could some kind soul make me a list of the *truly essential and basic* things I need to get before I start?
There's just so much, I don't know what I can leave to worry about/sort out later or what I should really have on the hour zero...
Hi T -
just pop into Boots and get a digital thermomenter
The dizzyness should go afer about day 8-10 post treatment - it it because your red blood count is dropping and not so much oxygen is getting to your muscles and the rest of your body. It is not because of the tablets you are taking. This dizzyness may likely come back after each treatment between days 3/4 and last to day 9/10.
You might find it helpful to join the June 2016 sarters chemo thread. There are many ladies at about the same stage of your treatment. It is a fun and lively thread and I feel sure it could be of great help to you.
I'm on day 5 of first FEC treatment and so far the worst thing seems to be a feeling of dizzyness most of the time. My mouth isn't too sore yet but I can feel it going that way. I have a raging thirst most of the time and have been drinking as much water as possible. Does anyone know if the dizzy feeling will go or is it to be expected for the duration of all treatments? I'm thinking it might be the Lansoprazole I have to take every morning so was wondering if there might be an alternative I can take?
I have had good result from something called 'Diamond' nail hardener that I bought in boots. My nails as a result are actually longer than normal and I am 4 FEC chemos down!. I did take it off the other day and before I reapplied my nail had broken so the stuff definitely works
I was given mouthwash on prescription, the name of it escapes me now, I was told corsydil can stain your teeth. Anyhow worth asking your team about a mouthwash script if your suffering x
haha just remembered it was called Difflam.
Tina, I brush my teeth and use cordysl, (well generic brand from home bargain which is half the price and exactly the same) after every meal/night and apart from 2 small ulcers on first cycle which Iglu sorted out my mouth has been fine. In fact had check up at dentist the other week and he was well impressed. It's really important to floss as well.
Thanks for the info, youre definitely my Oracle!
Ive just rung the ward about mg bloody sore mouth n gums, they advised corsadyl, surely thatd make em more sore. Ive always suffered with a sensitive mouth so have alcohol free mouthwash and now a soft kids toothbrush, its on fire though, plus my glands are up, grrr! Perhaps i should book in with my dentist? Oh the joys xx
Thanks sweetie, good idea about the jug of water, will go looking for sugar syrup tomorrow. Must warn kids to keep paws off! Old?? Im surely older than you, im 49 Thursday.
Anyone else been for a ct scan , where you have to drink that awful fluid? I've no idea why im having it! Had full bone scan yesterday too....getting my moneys worth i reckon but may they bring extra unwelcome news, thats the question. Xx
Hello, this is a reply to Maz,
I have same diagnosis and am now 5 weeks post op (all went well)' and waiting to see oncologist so anticipating a similar treatment regime. Not looking forwards to it much, and feel almost back to normal at present time. Longing to be able to plan a few holidays etc, but know I won't be going far for the next few months. Have to be so grateful to have come through surgery and feeling better without that dangerous lump!