Hi Bazza, I've booked a holiday to India in Feb for 2 wks and got a fully comp quote for £274 from Staysure (other insurance companies are available!) and was told the quote will be reduced to about £230 if I wait until chemo finishes and to £159 after being cancer free for 2 years. This is a lot more than I usually pay but I desperately need a holiday and I'm just looking at it as part of the overall holiday cost. Unfortunately for me, my last 3 chemos had to be cancelled due to complications but it does mean that my radiotherapy has been brought forward so end of treatment (excluding Letroxole and blood thinning injections to treat blood clot) will be mid October for me.
It's worth shopping around but I think most insurance companies whack a premium on policies for travellers who have had cancer regardless of the prognosis. Good luck with your search and let me know if you or other readers manage to find more reasonable cover.
How many of you are planning a holiday after your treatment? I've seen that insurance can cause a few problems.
I wanted to try the Cole cap but my oncologist said if you are having EC you will loose almost all your hair. She advised me against it because of my COPD. Do not think I could sit for 4 hours on my head but as a lot of ladies say small price to pay if you keep your hair.
Looking ahead, due to have 2nd chemo next Thurs. How soon after finishing chemo do you start Radiology? Just wondering about booking a winter holiday once I finish chemo at beginning of December but wont bother if i start Rads straight away. Should be having Rads for 4 weeks so will take me into January.
Thanks for advice.
After my third chemo I came home and two days later I was brushing my hair which was long and healthy and it completely all came out. I had a big garbage bag full of hair. At the hospital there is a group that make caps for cancer. Really nice ones for summer and winter. Never had to worry just put it on and go. Now 2 yrs. later my hair grew back thin in some spots, curly when it was straight before and I think the worse gray! I was told not to shave my head just left it fall out on its own. Apparantly when you shave it your scalp gets really itchy.
Hi, just completed my first chemo/herceptin cycle. I had severe leg muscle and back pain after the first session. My oncologist prescribed one Clarityn tablet a day to alleviate the problem. It worked, not sure why or how, but I can now get by on a couple of paracetamol a day.
This is my first post. I don't really have ant tips as such (sorry) but I do have a question re the cold cap. I had my first chemo FEC-T (I have stage 3 HER2 positive and 3 of 15 lymphs were affected) 4 weeks ago tomorrow. I should have had the second dose last week but after travelling all the way there (they have suddenly closed the local unit and I now have an hours journey) they said they would have to defer for a week as I had a tooth abcess and had phoned the dentist earlier to get anti B's left out.
Anyway I had a terrible headache the first time, which I'm not sure was the cold cap or the chemo but within 40 minutes after the drip came out I had to use the loo and was violently sick, they had taken the cap off so I could use the loo and when I came out I could not bear it to go back on. I carried on being sick for an hour
Just before I was due to have my second chemo, my hair started coming out - it's not thick anyway (as I have an under active thyroid) but every day I have maybe 3 handfuls of hair on my pillow and I can see a few bald patches on the top - though the back is less affected.
My question is am I likely to have wasted my time because I took it off early last time?
Is it worth proceeding? I had my longish hair cut short to make the capping easier but I read that the capping is more painful the thinner the hair is?
Hard to know what to do for the best really!
Thankyou in advance
Sorry but i'm afraid the Tax does seem to cause aching. Mine was muscles joints etc. I took Codeine Phosphate 30mg at night which was great for getting a better sleep. Of course the steroids given with Chemo will also be preventing you from sleeping. Only two more to go then you're done....I would definately ask for some stronger painkillers.
Good luck with the rest of your treatment. Gilly x
Hi everyone - I finished chemo 6 weeks ago, although still have herceptin/pertuzamab every 3 weeks. I used the cold cap throughout (6 x Taxotere) and have kept the majority of hair although it is a lot thinner than before. It is really worth persevering , I felt 6 weeks of discomfort were worth it instead of 6 months without hair.
On the subject of specs I bought some cheap folding ones from Wilko, about £5 I think, and only opened half of arms and this worked for me. Good luck with the cold cap ladies. Marli xx
Hi Lulu, I had my first chemo treatment yesterday and used cold cap. Tips: take paracetamol beforehand (and during if the 4hrs runs out). Nurse should spray hair lightly with water+conditioner, makes it easier to take it off. Take a cotton Alice band got protect your ears and your forehead at the touching point. It takes a couple of attempts to get a tight fit, it's really important as any gaps or bubbles will encourage hair loss. I didnt wear my glasses, but nurse suggested bringing an old, bashed pair so I guess it's possible. Might try ear buds and music next time too. Keep warm, extra blanket was avail, and drink warm drinks. Keep the injection arm warm, I forgot and wondered why my hand was hurting! It was cold...I did get a headache during first 10 mins but paracetamol was effective. It extended the time by 1.5hrs. And I looked like I was about to be shot from a cannon according to my 19yr old son beside me. When I got home I washed my hair with Simple shampoo and conditioner, gently towelled dry and left it to dry naturally. Put a silky nightdress over my pillow last night, and woke up 8 hrs later. So far, so good. Hope this helps xx
I've got stage 3, 6 cm lump and five nodes infected. I seem to be having the same treatment as yourself and start my first chemo in two weeks time. Good luck with all your treatment and stay in touch x
Please let me know how the cold cap was as I am thinking of having one as start chemo in two weeks time.
Thank you everyone for the tips I've picked up by reading this. I am terrified but knowing you are all out there undergoing the same does give me strength xx
Ive read to just keep eating plenty of fresh fruit and veg and wheatgrass is good for white blood count and Aloe vera to settle the stomach. Best wishes x
Hi there. I start my chemo in two weeks time and I would love any help or advice. Thank you x
Hi I also start my chemo in a few weeks time and other's have suggested lemon and honey for the metallic taste, also pineapple lollies to help with sickness.
I'm due my chemotherapy in two weeks time. I didn't know whether to try the cold cap or not but I think I may try it now. Was your body temperature cold or due to cold cap or did you wrap up?
I am due to have my second chemo session tomorrow, the tips really helped 1st time also had cold cap which was not as bad as I thought it was going to be. I also found that the need to feed was great, not every day, did try little and often which helped a bit. I'm trying to take one day at a time .
Are you read about treating that disease type with "a new molecular therapy that uses targeted peptides and proteins to restore cellular function".
Please do a Google search for the term "Peptide treatment", or the company named "Regenerative Cellular Therapy".
If you go to the first page of this thread ( I think there's about 34 pages!) people have put their hints and tips throughout the thread - it's been running for a few years now but users still find the information helpful. If there's anything you need to ask and you can't find an answer then please don't be afraid to ask, there's always someone here to help.
Please excuse me but I am new to the forum. I start my first chemo session next Wednesday 17th December and would be interested in the Top Tips for Chemo, but where do I find them?
Hi Flossie my new site has gift packages containing natural products especially selected for each area of treatment. This idea came from my own experience. For more information please send me a private message
What a fantastic list! Thank you to all the contributors 🙂
Something practical to share with family and friends who want to help - I'm going to ask them to help source items and put bag/packs/caddy together in readiness for when the time comes.
Thank you again xx